Support Groups A - B
How to Use -- Contents
Slightly Creaky does research to find the links you would most likely need and provides them for you in an easy-to-find format. You can access the various categories from any of our pages using the top or side menus. Each category has generalized headings, followed by more specific ones.
Many support groups are named for people, are generalized and provide assistance for several related conditions, or are otherwise difficult to interpret. This page provides links alphabetically based upon specific ailments. Please scroll down, use the index link, or use your browser's "find" or "search" feature to get the the area you are seeking.
In addition to support groups, we include links to informational sites on these conditions.
Updated January 1, 2012
Please Contact us if you find a broken or bad link.
Links to Support Group:
Alphabetical List: |
Quick Links to selected categories: |
||
|---|---|---|---|
Support Group Home Page Includes directions, hints for use, etc. |
See the "Medical Information" page for Medical Definitions, Pharmaceuticals and Home Remedies, Advocacy Groups, Medical Articles | ||
| Have We Missed a Support Group or Ailment? We are constantly looking for more information and more links. Please help us improve our site and service. The Internet had millions of web pages dedicated to medical conditions and support groups; we can only sample a few of them. If you know any sites we should include write to suggestions@slightlycreaky.com | |||
Caution - Proceed with care. Slightly Creaky is not responsible for the content of web sites listed here nor the actions taken by the people owning, managing, or participating on them.
This listing is the result of more than 500 hours of research. It is the property of Slightly Creaky and may not be reproduced in any form. Every attempt has been made to provide an accurate description of each organization.
NOTE: If the table lines do not show properly, please refresh the page.
Updates: We review and update this page every 4 months. Many support groups change names or even terminate their services. Should you discover a bad link or wish to suggest that we add one, please contact suggestions@slightlycreaky.com
We try to avoid commercial sites, but in many cases they are the only ones who provide information and support. If you are looking to buy or sell medical products, please use a generalized search engine.Support Groups "A" to "Al"
"A" through "Al"
| Abdominal Aortic Aneurysm Information Link |
Legs For Life Legs For Life is a national screening program for Peripheral Arterial Disease (PAD), Abdominal Aortic Aneurysm (AAA), Carotid/Stroke, and Venous Disease. | |
| Aneurysm Support and Information Another 14,000 Americans per year die from Aortic Aneurysms. The Aorta is the bodys largest artery. It extends from the heart to the abdomen, where it branches into two smaller arteries. The biggest part of Aortic Aneurysms, about 75%, occur in the section of the artery contained within the abdomen. | ||
| Abdominal Pain Information Link |
Abdominal Pain Forum A health community featuring member and doctor discussions ranging from a specific symptom to related conditions,treatment options, medication, side effects, diet, and emotional issues surrounding medical conditions. | |
| Chronic Functional Abdominal Pain People with functional gastrointestinal disorders can have a variety of symptoms that range from painless diarrhea or constipation, to pain associated with diarrhea and/or constipation (usually called irritable bowel syndrome). There is another, less common condition of abdominal pain that is chronic or frequently recurring; it is not associated with changes in bowel pattern. This condition is called chronic functional abdominal pain.
|
||
| Abortion | ||
| An Overview of Abortion Laws (2010) | ||
| Abortion Overview | ||
| Planned Parenthood For more than 90 years, we’ve worked to improve women’s health and safety, prevent unintended pregnancies, and advance the right and ability of individuals and families to make informed and responsible choices. | ||
| After Abortion This website tries to provides a neutral, non-political, non-religion based, non-judgmental place for women to communicate with each other after an abortion. | ||
| Abortion Support Group Discussion boards | ||
| I Had An Abortion Read hundreds of true stories, share your own story anonymously, get feedback and comments, chat in the discussion forum, help others, meet new friends, and so much more | ||
| Structured Recovery Support Groups The Structured Recovery Support Groups are private 'self-help' groups that do an on-line non-religion based, non-political healing program for women recovering after an abortion. | ||
| Post Abortion Support Group A community of patients, family members and friends dedicated to dealing with Post Abortion, together. | ||
| Resources for Help After Abortion Have you personally experienced abortion or had your child aborted? It is a difficult issue to deal with. Your feelings associated with the abortion(s) deserve attention. Our hope is to connect you with the resources that can help you understand your feelings and behavior related to your experience. | ||
| Abortion Support So many of us go though getting an abortion and regreting it in the end. When I had mine i did not have any support and wished I did. If you have had an abortion or are thinking about having one and would like support we are here for you. | ||
| Post Abortion Trauma Post-abortion stress is the inability to process the stress and emotions accompanying one’s abortion decision and experience. This may be an immediate or delayed reaction that can surface anytime in a person’s life. When it does resurface, it can be confusing, painful and overwhelming. | ||
| Post-Abortion Resources The following is a list of resources which you may turn to for personal study, and lists of organizations to whom you may refer women and men for counseling or additional information. | ||
| Abortion Alternatives | Abortion Alternatives When faced with a crisis pregnancy, some women have two immediate choices: to continue the pregnancy, or not. These two options are not for all women. | |
| Adoption Support Groups For Birth Mothers Adoption support groups for birth mothers or birth fathers who are thinking of placing (or recently placed) a child for adoption are very limited and those that do exist are often hard to find. We have done our best to help you by providing the information and resources | ||
| Adoptive Families, the award-winning national adoption magazine, is the leading adoption information source for families before, during, and after adoption. | ||
| Post-Adoption Support Groups Post-adoption support groups provide community, shared experience, as well as an excellent source of information and resources for adoptive families. | ||
| Adoption Support If this is your first visit, be sure to check out the FAQ. You may have to register before you can post or search: | ||
| Daily Strength - Adoption Support Group Discussion boards |
||
|
|
||
| Abuse Survivers | Fort Refuge A journey of healing from abuse we suffered: child abuse, incest, sexual assault, rape, domestic violence, ritual abuse, or psychological and verbal abuse. We feel that all types of abuse are damaging, and we do not minimize any person's experiences. It is our goal to reach out to as many fellow survivors as we can with compassion, understanding, and encouragement, | |
| iSurvive Forum A Non-Profit Organization for Abuse Survivors Learning to Thrive | ||
| Adult Survivors of Child Abuse An international self-help support group program designed specifically for adult survivors of neglect, physical, sexual, and/or emotional abuse. | ||
| Abuse Survivors Meetup Groups Meet other local survivors of sexual, physical, or emotional abuse to share advice on surviving and coping. | ||
| Survivors Network of those Abused by Priests We are the largest, oldest and most active support group for women and men wounded by religious authority figures (priests, ministers, bishops, deacons, nuns and others). We are an independent and confidential organization, with no connections with the church or church officials. | ||
| Stalking Victims Survivers America has been hit with an escalating crisis it doesn't know how to handle. Across the country, hundreds of thousands of people have fallen victim to individuals who have obsessively focused on them. The phenomenon is called stalking. And once you've been a victim, you'll know how life-destroying this can be. | ||
| Survivorship Within this site you will find information on ritual abuse (also called ritualistic abuse or ritual-abuse-torture). The “difficult dates” page lists holidays that are hard for survivors of satanic ritual abuse (SRA), polytheistic cult abuse, and abuse by nazi groups. The articles give background and deal with the effects of ritual abuse, child pornography, and child prostitution, and government/military mind control (MC). Many of the articles describe living with Post Traumatic Stress Disorder (PTSD) and Dissociative Identity Disorder (DID, formerly called MPD.) There are numerous links to other pages on ritual abuse and to healing resources. | ||
| Help for Adult Victims Of Child Abuse We provide support, friendship and advice for any adult who's life has been affected by childhood abuse. | ||
| Accessibility | The Paciello Group The Paciello Group is dedicated to helping government agencies, technology vendors, e-commerce corporations, and educational institutions make their technology equally accessible to all people, including those with disabilities. The company offers professional consulting, technology solutions, and monthly monitoring services to ensure that clients reach all audiences effectively and efficiently while meeting governmental and international standards. | |
| Americans With Disabilities Act Information. ADA standards govern the construction and alteration of places of public accommodation, commercial facilities, and state and local government facilities. The Department of Justice (DOJ) maintains ADA standards that apply to all ADA facilities except transportation facilities, which are subject to similar standards issued by the Department of Transportation (DOT). Federal facilities are covered by standards consistent with those of the ADA issued under a different law, the Architectural Barriers Act | ||
| Achalasia Information Link |
Achalasia Community This web site has been created to help educate and provide support to those people who suffer from Achalasia, and is dedicated in helping them and their families who share in the suffering. | |
| AGMD GI Motility Disorders Support Community Connects patients, families, friends and caregivers for support and inspiration | ||
| Achalasia Meetup Groups Meetup for support with other local sufferrers and survivors of the esophageal disorder, Achalasia. Achalasia is diagnosed when the esophagus is less able to move food toward the stomach and the valve from the esophagus to the stomach does not relax as much as it needs to during swallowing. | ||
| Achromatopsia | Achromatopsia Network Congenital achromatopsia is a rare hereditary vision disorder which affects 1 person in 33,000 in the U. S. Persons who have achromatopsia do not have normal "cone vision." In the retinas of normal eyes there are 6 million cone photoreceptors, located mostly at the center of the retina. Persons with achromatopsia are either totally colorblind or almost totally colorblind, and they have poor visual acuity. | |
| Achromatopsia Support Group People with maskun have difficulty seeing in bright daylight because their rod cells (the receptors responsible for detecting brightness) are saturated. | ||
| Acne | Acne Assassin. "I decided to become a dermatologist and specialize in acne and also received a degree in psychology. I now help other people control there acne, going to high school heath classes to inform teens about the facts. Just remember you can control acne so don’t let it control you!!" | |
| Acoustic Neuroma | Acoustic Neuroma Association ANA is a patient member organization, providing information and support to persons diagnosed with or treated for acoustic neuroma and other benign tumors of the cranial nerves | |
| Acoustic Neuroma Association of Canada One purpose of this website is to increase and expand the accessibility of current, relevant information about acoustic neuroma for patients, their families and healthcare professionals. | ||
| Acromegaly | Daily Strength DailyStrength.org is the largest, most comprehensive health network of people sharing their advice, treatment experiences, and support. Keep a wellness journal, read members’ stories, and chat with new friends with over 500 support groups. | |
| Acromegaly Support Group A community of patients, family members and friends dedicated to dealing with Acromegaly, together. | ||
| Health Network Support Acromegaly is a hormonal disorder caused by the over-production of the growth hormone in adulthood after puberty. It can result in serious illness and premature death. | ||
| Acute Respiratory Distress Information Link |
ARDS Support Center Acute Respiratory Distress Syndrome (ARDS) is an acute, severe injury to most or all of both lungs. Patients with ARDS experience severe shortness of breath and often require life support because of respiratory failure. ARDS is not a specific disease; instead, it is a type of severe, acute lung dysfunction that is associated with a variety of diseases, such as pneumonia, shock, sepsis (a severe infection in the body) and trauma. | |
| I Survived ARDS Anonymously connect with people who share your experiences-- like those who say 'I Survived Ards Acute Respiratory Distress Syndrome'. Read hundreds of true stories, share your own story anonymously, get feedback and comments, chat in the discussion forum, help others, meet new friends, and so much more-- all free. | ||
| Addiction | See specific addictive references, such as Alcohol Addition, Drug Addiction, Sex Addiction, etc. | |
| Addison's Disease Information Link |
NADF. "It is our goal to find a cure for Addison's Disease - a way to prevent it in future generations, while continuing to improve the lives of those already affected by it. But research is expensive. " | |
| Daily Strength DailyStrength.org is the largest, most comprehensive health network of people sharing their advice, treatment experiences, and support. Keep a wellness journal, read members’ stories, and chat with new friends with over 500 support groups. | ||
| Adenoid Cystic Carcinoma | Adenoid Cystic Carcinoma Research Foundation The Adenoid Cystic Carcinoma Research Foundation supports research into Adenoid Cystic Carcinoma that will improve therapies and accelerate a cure for the disease. Adenoid cystic carcinoma is a rare cancer, typically originating in the salivary glands. Its course is both slow and persistent, leading to a relatively favorable prognosis on a five-year horizon, but a poor prognosis beyond 10 years, often due to metastasis to the lungs and liver. | |
| Adenoid Cystic Carcinoma Organization shares information including research, clinical trials, hospitals and alternatives. | ||
| Adenoid Cystic Carcinoma Support Group on Facebook | ||
| Adenylosuccinate Lyase Deficiency |
Purine Research Society When we consider the many different roles purines play in our metabolism, it is not surprising that the diseases of purine metabolism are as varied, ranging from asymptomatic conditions, which are only discovered accidentally, to disorders with severe neurological abnormalities, which are ultimately fatal. As with other metabolic diseases, each disorder is caused by a defective gene which results in an enzyme with too little or too much catalytic activity. | |
| Adoption - see Abortion Alternatives | ||
| Adrenal Diseases | National Adrenal Diseases Foundation The National Adrenal Diseases Foundation is a non-profit organization dedicated to providing support, information and education to individuals having Addison's disease as well as other diseases of the adrenal glands. | |
| Adrenal Insufficiency Support Group A community of patients, family members and friends dedicated to dealing with Adrenal Insufficiency, together. | ||
| Adrenal Fatigue Support Group It is hard for people with adrenal fatigue to find people to talk to who completely understand what they are going through. I was one such person. No one can fully understand your fatigue, hypoglycemic attacks, dehydration and need for extra salt, depression, anxiety, increased allergies, etc., unless they are going through it themselves. | ||
| Adrenal Hyperplasia | Adrenal Hyperplasia Organization CAH is a genetic defect of the adrenal glands. A person with CAH will not be able to produce several vital hormones known as corticosteriods. CAH is treated with hormone replacement, replacing one or both of the hormones missing, generally with Cortef and Florinef. Living with CAH requires extra attention to common illnesses and stress inducing situations (injury, exercise, etc.) | |
| The Magic Foundation Major Aspects of Growth In Children (MAGIC) is made up of more than 25,000 families. The majority of us are parents of children with growth disorders and others are affected adults. | ||
| Adrenoleuko- dystrophy | Adrenoleukodystrophy (ALD) - Online Support Group ALDSupport.org exists to support families affected by all forms of Adrenoleukodystrophy (ALD). | |
| Australian Leukodystrophy Support Group A serious genetic disorder which progressively affects the adrenal gland, along with the white matter of the nervous system. | ||
| Fight ALD ALD is a disease that effects boys and is usually misdiagnosed or goes undetected for so long that chances of treatment or survival are minimal. This genetic disease is often passed from mother to son, and daughters may become carriers. Survivors of this disease have symptoms like ADD/ADHD. | ||
| Adult Polyglucosan Body Disease |
APBD Research Foundation Our mission is to improve the diagnosis and treatment of Adult Polyglucosan Body Disease, support individuals and families affected by the disease and increase awareness of APBD among health professionals and the public. | |
| Advocacy | Self Advocates Becoming Empowered Our goals include making self-advocacy available in every state including institutions, high schools, rural areas and people living with families with local support and advisors to help; working with the criminal justice system and people with disabilities about their rights within the criminal justice system; and closing institutions for people with developmental disabilities nationwide, and build community supports. | |
| Special Needs Advocate for Parents SNAP serves over 6,000 organizations and families in the special needs community with educational seminars on special needs estate planning, referrals, and networking opportunities as well as offering medical insurance problem-solving education and services. | ||
| Am. Assoc. on Intellectual and Developmental Disabilities AAIDD promotes progressive policies, sound research, effective practices, and universal human rights for people with intellectual and developmental disabilities. | ||
| The Center on Human Policy, Law, and Disability Studies A network of academic programs, centers, student organizations, and affiliated faculty whose research, teaching, and advocacy seeks to promote the rights of people with disabilities locally, nationally, and globally, and to facilitate a critical examination of disability as an aspect of diversity in society. | ||
| Bazelon Center For three decades, the Judge David L. Bazelon Center for Mental Health Law has been the nation's leading legal advocate for people with mental disabilities. Our precedent-setting litigation has outlawed institutional abuse and won protections against arbitrary confinement. Our advocacy has opened up public schools, workplaces, housing and other opportunities for people with mental disabilities to participate in community life. | ||
| Center for the Study and Advancement of Disability Policy CSADP provides public education, leadership development and training, technical assistance and information dissemination, and conducts action-research and analysis of public policy issues affecting individuals with disabilities and their families. | ||
| Job Accommodation Network JAN is a free consulting service designed to increase the employability of people with disabilities by: 1) providing individualized worksite accommodations solutions, 2) providing technical assistance regarding the ADA and other disability related legislation, and 3) educating callers about self-employment options. | ||
| World Institute on Disability WID is a nonprofit research, public policy and advocacy center dedicated to promoting the civil rights and full societal inclusion of people with disabilities. WID's work focuses on: employment and economic development; accessible health care and Personal Assistance Services; inclusive technology design; and international disability and development. Over half of the staff are people with disabilities and are respected national leaders in the disability field as well as in industry, government and social services. | ||
| The Office of Disability Employment Formerly The President's Committee on Employment of People with Disabilities, we seeks to facilitate communication, coordination, and promotion of public and private efforts to enhance employment of people with disabilities. | ||
| TASH is an international membership association leading the way to inclusive communities through research, education, and advocacy. TASH members are people with disabilities, family members, fellow citizens, advocates, and professionals working together to create change and build capacity so that all people, no matter their perceived level of disability, are included in all aspects of society. " | ||
| Agoraphobia Information Link |
Agoraphobia Support Group A community of patients, family members and friends dedicated to dealing with Agoraphobia, together. | |
| Health Network Learn more on the symptoms of agoraphobia, possible treatment options, and also of famous individuals who are its victims! | ||
| Aicardi Syndrome | Aicardi Syndrome Foundation Our mission is to improve the diagnosis and treatment of Adult Polyglucosan Body Disease, support individuals and families affected by the disease and increase awareness of APBD among health professionals and the public. | |
| Aicardi Syndrome - Online Support Group The purpose of this community is for families affected with Aicardi syndrome to provide each other with emotional support. | ||
| Aicardi-Goutières syndrome | International Aicardi-Goutières Syndrome Association Aicardi-Goutieres syndrome is a progressive disease that affects the brain and the immune system, causing brain atrophy and loss of white matter in the brain. A child is born with this syndrome; most cases known are very severe. The syndrome is often mistaken for a pre-natal virus, but it is actually inherited genetically. There are many families with multiple children affected. It is classified as a leukodystrophy because it affects the myelin, or white matter, of the brain. | |
| AIDS / HIV Information Link |
HIV Support Listing of national and state organizations. | |
| AIDS Support Group People still lose jobs because of HIV infection and have little access to social services But, why suffer in silence? | ||
| AIDS / HIV Support Groups On this AIDS/HIV support website you will find support groups, organizations and clinics that are dedicated to helping people affected by AIDS/HIV. | ||
| Online HIV Forums and Support Groups - A Survey These groups and forums can be very good places to find support within the HIV community. For those people who do not want to meet others face to face, the anonymity of online forums and support groups can provide the support they need while maintaining the person's confidentiality. | ||
| NPL Project, UK At NPL we offer a range of support groups for people living with HIV/AIDS. | ||
| AIDS Netork A Group for African Americans who are HIV Positive | ||
| About.com Support This forum is a place you can seek out answers to your questions; help others answer their questions; share stories of personal struggles and personal triumph; and make a few new friends along the way. | ||
| Alagille Syndrome | Alagille Syndrome Alliance The purpose of the Alliance is to serve as the main networking resource and source of information for people with AGS, their families, friends, and health care providers. Alagille syndrome (AGS) is a complex multisystem disorder involving primarily the liver, heart, eyes, face, and skeleton. The major clinical manifestations of AGS are cholestasis, characterized by bile duct paucity on liver biopsy; congenital cardiac defects, primarily involving the pulmonary arteries; posterior embryotoxon in the eye; typical facial features; and butterfly vertebrae. Renal and central nervous abnormalities also occur. Mortality is approximately 10%, with vascular accidents, cardiac disease, and liver disease accounting for most of the deaths. | |
| Children’s Liver Disease Foundation Our vision is that childhood liver disease will be understood and fought effectively thereby ensuring that young people with liver disease and families will be able to take control of their lives and achieve their full potential. | ||
| Albinism | NOAH (US) The Albinism World Alliance (AWA) is a network of albinism support groups in various countries. Albinism is a comparatively rare genetically inherited group of condition which results in a reduction or complete lack of pigment (colour) in the skin, hair and eyes of people with the condition. This can result in pale skin which burns easily in the sun, virtually white hair, very severe short-sight and photophobia (a severe sensitivity to light). There are two types of albinism, that which affects the skin, hair and eyes (oculo-cutaneous albinism) and that which affects just the eyes (ocular-albinism). | |
| Daily Strength DailyStrength.org is the largest, most comprehensive health network of people sharing their advice, treatment experiences, and support. Keep a wellness journal, read members’ stories, and chat with new friends with over 500 support groups. | ||
| Alcoholism Binge Drinking and Teens |
Sober Recovery People do recover, every single day. From alcoholism and drug addiction, dual diagnosis, abuse and trauma, overeating, gambling, codependency and more, people do get better. They rarely do it alone. If help is what you seek, we hope you'll find it here. | |
| AA: Alcoholics Anonymous Main site for AA: Alcoholics Anonymous, a self-supporting group of men and women who wish to recover from alcoholism and alcohol abuse | ||
| Al-Anon and Alateen For over 50 years, Al-Anon (which includes Alateen for younger members) has been offering hope and help to families and friends of alcoholics. | ||
| The Health Network Alcohol abuse, as described in the DSM-IV, is a psychiatric diagnosis describing the use of alcoholic beverages despite negative consequences. Alcohol abuse is sometimes referred to by the less specific term alcoholism. | ||
| Families Anonymous Anyone whose life has been adversely affected by another person's use of drugs, alcohol, or related behavioral problems is welcome. | ||
| Raional Recovery The combined mission of Rational Recovery Systems, Inc., is (1) to disseminate information on independent recovery from addiction through planned, permanent abstinence, (2) to make self-recovery a viable option to all addicted people everywhere, and (3) to make informed consent to addiction treatment and recovery group participation available to all addicted people. | ||
| Women For Sobriety, Inc. is a non-profit organization dedicated to helping women overcome alcoholism and other addictions. Our "New Life" program helps achieve sobriety and sustain ongoing recovery. | ||
| SMART Recovery The leading self-empowering addiction recovery support group. Our participants learn tools for addiction recovery based on the latest scientific research and participate in a world-wide community which includes free, self-empowering, secular and science-based, mutual-help support groups. | ||
| ACOA: Adult Children of Alcoholics ACOA: Adult Children of Alcoholics is a 12-step, 12-tradition program of women and men who grew up in alcoholic or otherwise dysfunctional homes. | ||
Allergies |
World Allergy Organization The World Allergy Organization is an international umbrella organization whose members consist of 74 regional and national allergology and clinical immunology societies from around the world. By collaborating with member societies, WAO provides direct educational outreach programs, symposia and lectureships to members in 92 countries. WAO also sponsors scientific symposia in developing areas throughout the world and jointly sponsors postgraduate programs on allergy and clinical immunology during professional, non-allergy association congresses. | |
| Allergy Support.Org When you register and login, you get immediate access to our discussion boards. You can also chat online with other users! | ||
| Health Network Allergy is immunity fighting the wrong enemy: allergies happens when a person's immune system reacts improperly to things which are usually harmless and treats them like parasites attacking the body. | ||
| WebMD® Allergies Community Sign up for the Allergies & Asthma newsletter and keep up with all the latest Allergies news, treatments, and research | ||
| Food Allergy Support Group If you are a member of a support group that's not yet listed, please let me know and I'll add your information. | ||
| Food Allergy Initiative FAI makes every effort to maintain a comprehensive and up-to-date list of support groups around the country. | ||
| Kids With Food Allergies Dedicated to fostering optimal health, nutrition, and well-being of children with food allergies by providing education and a caring support community for their families and caregivers. | ||
| Peanut Allergy Support Group Here at PeanutAllergy.com, we have had an online community for over ten years with over 10,000 members. Get information on the allergy, schools, travel, or just introduce yourself and share your story. We would love to hear from you. | ||
| Food Allergy & Anaphylaxis Network Whether you are new to food allergy or facing a new milestone in your child's life, meeting other families who are in the same situation and sharing experiences and support can be so helpful. More importantly, you understand that you are not alone. | ||
| Latex Allergy Support Group (UK) The aims of the Group are to raise awareness of latex allergy, provide support for those affected, and promote the safe and appropriate use of latex products and equipment. An advisory panel provides advice on medical and technological issues. | ||
| Alkaptonuria Information Link |
AKU Society A feeling of isolation is one of the many things Alkaptonuria patients have to cope with and the AKU Society is dedicated to improving the awareness of the disease, which will in turn reduce the isolation of sufferers as well as improve the knowledge within the medical profession. | |
| Alkaptonuria on Facebook | ||
| Alopecia Areata Information Link |
National Alopecia Areta Foundation Alopecia areata is a highly unpredictable, autoimmune skin disease resulting in the loss of hair on the scalp and elsewhere on the body. This disease affects approximately 1.7 percent of the population overall, including more than 5 million people in the United States. | |
| Alopecia Areata Support Group A community of patients, family members and friends dedicated to dealing with Alopecia Areata, together. | ||
| Alopecia Support Group Look no further, the new you starts here. We are a member of the American Hair Loss Council, specializing in all types of non-surgical hair replacement for .... alopecia, hair loss and chemotherapy. | ||
| Alopecia Areata Support Community (UK) for all people living with Alopecia Areata (AA), Alopecia Totalis (AT) and Alopecia Universalis (AU) and AGA (as well as their family and friends!). Share your stories and find support through the message board, post your photos and make new friends in the chat room! | ||
| Alpha-1 Antitrypsin Deficiency Information Link |
Alpha One Foundation Alpha-1 Antitrypsin Deficiency is a hereditary condition which may result in serious lung disease in adults and/or liver disease in infants, children & adults. | |
| AlphaNet AlphaNet, Inc. is a not-for-profit, organization founded in 1995 by three individuals with Alpha-1 antitrypsin deficiency. AlphaNet is devoted to improving the lives of individuals with Alpha-1 antitrypsin deficiency through comprehensive disease management services, clinical research administration, and consultative services. The organization also funds research and community activities. | ||
| Alpha-1 Advocacy Alliance Our mission is to improve the health and well being of those affected by Alpha-1 through support to patients, educating healthcare professionals and advancing public policy for the Alpha-1 Community. Alpha-1 antitrypsin is a protein produced by the liver to protect the human body from damage caused by neutrophil elastase. Neutrophil elastase is an enzyme released by white blood cells during times of inflammation and infection and is necessary in digesting damaged cells and bacteria. When A1AD is not available to neutralize this enzyme, the body tissues are damaged. | ||
| Children’s Liver Disease Foundation C.L.A.S.S. is a -volunteer, nonprofit organization dedicated to serving the emotional, educational, and financial needs of families coping with childhood liver disease and transplantation. Our goal is to be both a service to families and a valuable resource for the medical community. | ||
| Alport Syndrome | Daily Strength DailyStrength.org is the largest, most comprehensive health network of people sharing their advice, treatment experiences, and support. Keep a wellness journal, read members’ stories, and chat with new friends with over 500 support groups. | |
| Alport Syndrome Support Group A community of patients, family members and friends dedicated to dealing with Alport Syndrome, together. | ||
| Alport Syndrome Foundartion The Alport Foundation of Australia is a non profit organization formed in 2008. The goals of this Foundation are to support Australian patients with Alport Syndrome and their families; to support quality research which provides a better outcome for those with Alport Syndrome and their families; and to raise awareness of Alport Syndrome in Australia. | ||
| Alström Syndrome | Alström Syndrome International Alström Syndrome is progressive. The first sign observed in infants is usually extreme light sensitivity (photophobia) and a wobbling of the eyes (nystagmus). Another of the first signs MAY be dilated cardiomyopathy and congestive heart failure in infants under 1 year of age. Children rapidly gain weight during their first year and become obese as young children. Later, multiple organ systems in the body can be affected resulting in blindness, hearing impairment, type 2 diabetes, heart failure, liver disease, urological dysfunction, pulmonary fibrosis, and renal failure. | |
| Alström Syndrome UK Alström Syndrome UK provides support for those affected by Alström Syndrome, their carers and professionals working with them. | ||
| Alveolar Capillary Dysplasia | Alveolar Capillary Dysplasia Association ACD is an abnormal development of the alveolar beds in the lungs. All reported cases had an initial diagnosis of Primary Pulmonary Hypertension of the Newborn (PPHN). | |
| Alzheimer's Disease Also see Dementia Information Link Caregivers Guide |
Alzheimer's Association Alzheimer’s (AHLZ-high-merz) disease is a progressive brain disorder that gradually destroys a person's memory and ability to learn, reason, make judgments, communicate and carry out daily activities. As Alzheimer’s progresses, individuals may also experience changes in personality and behavior, such as anxiety, suspiciousness or agitation, as well as delusions or hallucinations. | |
| Alzheimer’s Research Foundation Alzheimer’s disease is a neurological disorder characterized by a steady decline in cognitive ability. It is the most common form of dementia. There are several stages of the illness and some people may develop the early-onset form of the disease. In the United States, nearly 5 million citizens currently suffer from Alzheimer’s disease. Worldwide assessments place the total number of dementia cases between 20 and 30 million. With humans living longer, experts predict that the number of people Alzheimer’s affects will triple by 2050. | ||
| American Health Assistance Foundation AHAF is one of America's leading supporters of scientific and medical investigations into Alzheimer's Disease, Glaucoma, Macular Degeneration, Heart Disease, and Stroke. | ||
| National Endowment for Alzheimer's Research NEAR has a particular interest in the latest genetic approaches to diagnosis and treatment of Alzheimer's disease. Through a combination of genetic screening technologies and gene therapy, the underlying causes of Alzheimer's can be fully addressed. | ||
| American Health Assistance Foundation "Funds research seeking cures for Alzheimer’s disease, age-related macular degeneration and glaucoma, and provides the public with information about risk factors, preventative lifestyles, available treatments and coping strategies." | ||
Support Groups "Am" to "Az"
"Am" through "Ar"
| Amnesia | Daily Strength DailyStrength.org is the largest, most comprehensive health network of people sharing their advice, treatment experiences, and support. Keep a wellness journal, read members’ stories, and chat with new friends with over 500 support groups. |
| Amnesia Support Group A community of patients, family members and friends dedicated to dealing with Amnesia, together. | |
| Amnesia Society (in English and German) The first self help group for all amnesia patients and their family/friends across Europe and Germany. | |
| Amputees | Amputee Resource Foundation of America Current, accurate information pertaining to all aspects of amputation management and amputee rehabilitation in assisting in the process of assimilating amputees back into society and returning many to the workplace. Easily accessible, accurate information about amputation and the consequences thereof have been severely lacking for many decades. However, recent advances in technology can now provide access to timely information and resources heretofore unavailable to many. |
| Amputee Online This multi-award winning WEB Site is designed primarily to help out amputees on a peer to peer basis. However, friends and families of amputees, doctors, prosthetists, teachers, PE instructors, physical therapists or anyone wanting to know more about amputation, will benefit from using this site. | |
| ASCOT-World A Support Group & Social Club for Amputees | |
| Activeamp.org There's a lot to do out there. There are a lot of ways to exercise your need to sweat or to compete or just to play. So put down the damn remote, turn off the TV and go do something.Then go teach the kids they're OK, too. | |
| Amputee Coalition of America Whether you are facing amputation for the first time, or have lived with limb loss for years, the Amputee Coalition of America provides a wealth of information for and about amputees. If you have recently had a limb amputated or are preparing for one, please search the library for “New Amputee Information” and contact ACA’s National Limb Loss Information Center (NLLIC) to receive a free information packet-- we are here to help you! | |
| Limbless Association (UK) The Limbless Association provides information, advice and support for people of all ages who are without one or more limbs. It has a nationwide network of volunteer visitors who are all amputees themselves, offering support and encouragement to prospective amputees, carers and those already trying to come to terms with limb loss or deficiency. UK Help Line: 0800 644 0185 | |
| Stumps Are Us A whimsical support group of cheerful cripples who can answer almost *any* question you might have about life without one, two, three or more limbs." | |
| Daily Strength - Amputees Support Group Discussion Boards. |
|
| I Lost My Leg to Amputation Read hundreds of true stories, share your own story anonymously, get feedback and comments, chat in the discussion forum, help others, meet new friends, and so much more | |
| American Amputee Foundation Empower amputees, their families, and care providers to make informed decisions by providing them with information, referral, peer counseling, self-help literature and education. | |
| Amyloidosis Information Link |
Daily Strength DailyStrength.org is the largest, most comprehensive health network of people sharing their advice, treatment experiences, and support. Keep a wellness journal, read members’ stories, and chat with new friends with over 500 support groups. |
| The Amyloidosis Support Groups Support Community connects patients, families, friends and caregivers for support and inspiration. | |
| Amyloidosis Support Group A community of patients, family members and friends dedicated to dealing with Amyloidosis, together. | |
| Amyotrophic Lateral Sclerosis Information Link |
ALS Association Whether you are facing amputation for the first time, or have lived with limb loss for years, the Amputee Coalition of America provides a wealth of information for and about amputees. If you have recently had a limb amputated or are preparing for one, please search the library for “New Amputee Information” and contact ACA’s National Limb Loss Information Center (NLLIC) to receive a free information packet-- we are here to help you! |
| A.L.S. Family Charitable Foundation Several years ago, we started this Foundation in hopes of creating a brighter future for those living with A.L.S. Because we know the realities of the disease, we have made it our life's work to eradicate A.L.S. We proudly offer several great programs designed to enhance the lives of those that we seek to support. We owe a great deal to our wonderful volunteers and benefactors that are now part of our "family". | |
| World Fed. of Neurology Amyotrophic Lateral Sclerosis Sponsored by the World Federation of Neurology Research Group on Motor Neuron Diseases to link researchers and clinicians worldwide with the goal of finding effective treatment and a cure for ALS. | |
| Amyotrophic Lateral Sclerosis Association The ALS Association is the only national not-for-profit health organization dedicated solely to the fight against ALS. ALSA covers all the bases - research, patient and community services, public education, and advocacy - in providing help and hope to those facing the disease. The mission of The ALS Association (ALSA) is to find a cure for and improve living with amyotrophic lateral sclerosis. | |
| ALS Chapters in the United States The ALS resource directory was established to help individuals quickly find local support groups, medical centers, organisations, clinics and medical centers specific to ALS and MND. | |
| ALS Chat The ALS forum is an all-volunteer driven resource provided free of charge to help anyone directly or indirectly affected by ALS and MND (also known as Lou Gehrig's disease). | |
| Les Turner ALS Foundation The Les Turner ALS Foundation began with one patient and a dream; today it serves more than 550 patients annually and its membership is comprised of people living with ALS their friends and families, healthcare professionals, researchers and corporate leaders | |
| Anal Stenosis | Making Contact Groups for children with disabilities. |
| Animal Abuse | Animal Rights and Animal Protection Organizations Worldwide ionformation and contact lists. |
| STOP Animal Abuse! Everyday thousands of animals are being abuse.they are being starved by who they thought was there friend. You may be thinking "yeah so"... Imagine your pet being abused... Imagine a human being abused. Just because they can't talk doesn't mean they can't feel! | |
| I Am Against Animal Abuse Read hundreds of true stories, share your own story anonymously, get feedback and comments, chat in the discussion forum, help others, meet new friends, and so much more. | |
| Prevent Animal Abuse What you need to know to make a difference. | |
| Pet Abuse We offer multiple ways for advocates to stay informed on cruelty case updates, and help spread the word about animal cruelty. You can always search the animal cruelty database or browse new cases, or connect with us on your favorite social networks. | |
| Families against ANIMAL ABUSE This group is all about the abuse of animals in all shapes and sizes and what we can do to help. You may come here and share rescue stories, Let it be know to others about horse slaughter and what you can do to help this cruel death. No animal is to small or to large to be not included. From Rats to Horses, Dogs to Cats, Ferrets to Birds, and everything in between. | |
| Speak for Those Who Can Not (Canada) Tell your friends and family about our archaic and weak federal animal cruelty law and why so many animal abusers are not punished. Urge them to order posters and decals too. | |
| Androgen Insensitivity | Androgen Insensitivity Syndrome Support Group Alström Syndrome is progressive. The first sign observed in infants is usually extreme light sensitivity (photophobia) and a wobbling of the eyes (nystagmus). Another of the first signs MAY be dilated cardiomyopathy and congestive heart failure in infants under 1 year of age. Children rapidly gain weight during their first year and become obese as young children. Later, multiple organ systems in the body can be affected resulting in blindness, hearing impairment, type 2 diabetes, heart failure, liver disease, urological dysfunction, pulmonary fibrosis, and renal failure. |
| Androgen Insensitivity Syndrome Support We are here to provide support, information and assistance to all who wish to know more about Androgen Insensitivity Syndrome (AIS) and similar conditions. | |
| Androgen Insensitivity Syndrome Support Group Australia A peer support, information and advocacy group for people affected by AIS and/or related intersex conditions, and their families. |
|
Anemia |
Daily Strength DailyStrength.org is the largest, most comprehensive health network of people sharing their advice, treatment experiences, and support. Keep a wellness journal, read members’ stories, and chat with new friends with over 500 support groups. |
| Iron Disorders Institute An iron disorder occurs when iron is out of balance in the human body. | |
Anencephaly |
Anencephaly Stories "You are not alone in carring your child with Anencephaly to term.This is what Lucas' mom has to say to parents who have been given the adverse prenatal diagnosis of Anencephaly:" |
| Anencephaly Information "Information about the birth defect anencephaly. Help for affected parents, caregivers, family and friends. " Available in 8 languages. | |
| Spina Bifida Association Over 250,000 Americans are in the Spina Bifida Community. An estimated 70,000 people in the United States are currently living with spina bifida, the most common permanently disabling birth defect. Spina Bifida is a neural tube defect that happens in the first month of pregnancy when the spinal column doesn’t close completely. | |
| Angelman Syndrome Information Link |
Angelman Syndrome Foundation USA Angelman Syndrome is a rare neuro-genetic disorder It is characterised by intellectual and developmental delay, speech impediment, sleep disturbance, unstable jerky gait, seizures, hand flapping movements, frequent laughter/smiling and usually a happy demeanor. AS is a classic example of genetic imprinting caused by deletion or inactivation of critical genes on the maternally inherited chromosome 15. |
| Angelman Syndrome Support Group A community of patients, family members and friends dedicated to dealing with Angelman Syndrome, together. | |
| Face to Face The Angelman Syndrome support group and health community is for parents/caretakers of children with Angelman Syndrome. | |
| ASSERT (UK) We are all volunteers who have direct contact with people with Angelman Syndrome. The majority of the trustee's are parents or relatives of children or adults with Angelman Syndrome. If you are a parent we can offer advice and support on a wide range of problems you will face. If you are a carer or professional we can offer information and experiences based on real life caring. | |
| Angelman Syndrome Association of Australia The Angelman Syndrome Association Incorporated is the umbrella Organisation for children with Angelman Syndrome and their families in Australia. There are support groups in each state and territory. | |
| Anger Management | Daily Strength DailyStrength.org is the largest, most comprehensive health network of people sharing their advice, treatment experiences, and support. Keep a wellness journal, read members’ stories, and chat with new friends with over 500 support groups. |
| Anger Management Support Group A community of patients, family members and friends dedicated to dealing with Anger Management, together. | |
| Anger Management The information provided is designed to support, not replace, the relationship that exists between a patient/site visitor and his/her health professional. | |
| Article: Anger Management Groups - How and Where To Join Them If you are looking for a place that you can get the help that you need for your anger disorder problems, you may want to check out the various anger management groups that are in your area or from the internet.These groups are simply great for you as a sufferer to get ample emotional and psychological support that can help you to get through tough times. Just remember that there is no reason for you to go through this alone and now you do not have to anymore. | |
| Angina Information Link |
American Heart Association Our mission is to reduce disability and death from cardiovascular diseases and stroke. |
| Angina Support Group A community of patients, family members and friends dedicated to dealing with Angina, together. | |
| Angina Support Group Also applies to: Accelerating Angina, Angina Pectoris, Angina - chronic, Angina - stable, Angina - unstable, Heart pains, New-Onset Angina, Progressive Angina, Stable Angina, Unstable Angina | |
| iMedix Get advice and support from thousands of patients like you. | |
| AngioEdema Information Link |
Hereditary AngioEdema Association Hereditary angioedema (HAE) is a rare, potentially fatal genetic disorder typified by a deficiency or dysfunction of the plasma protein C1 Inhibitor, and characterized clinically by swelling of the extremities, face, trunk, abdominal viscera, and upper airway1. Abdominal attacks can cause severe pain, and mortality from edema induced airway closure |
| Angioedema Support Group Join the 'Angioedema' group to help and get support from people like you. | |
| Angioma | Angioma Alliance Angioma Alliance is a non-profit international voluntary health organization created by people affected by cavernous angioma (cerebral cavernous malformations). Our mission is to improve the quality of life for those affected by cerebral cavernous malformations through education, support, and promotion of research. |
| Angioma Support Group A community of patients, family members and friends dedicated to dealing with Angioma, together. | |
| Ankylosing Spondylitis Information Link |
KickAS.org Ankylosing spondylitis (AS) is a rheumatic disease that causes arthritis of the spine and sacroiliac joints and can cause inflammation of the eyes, lungs, and heart valves. It varies from intermittent episodes of back pain that occur throughout life to a severe chronic disease that attacks the spine, peripheral joints and other body organs, resulting in severe joint and back stiffness, loss of motion and deformity as life progresses. |
| Spondylitis Support Groups Click on a location below to learn about a group and to view
meeting times, location & information. |
|
| Spondylitis Association of America Our mission is to be a leader in the quest to cure AS and related diseases, and to empower those affected to live life to the fullest. | |
| Ankylosing Spondylitis Support Group A community of patients, family members and friends dedicated to dealing with Ankylosing Spondylitis, together. | |
| Health Network Be on your guard against Ankylosing Spondylitis and learn about the preventive measures you can take, if you fall in the high-risk group prone to the disease. Join this support group today! | |
| Anophthalmia | International Children's Anophthalmia Network (ICAN) Anophthalmia is a medical term used to describe the absence of the globe and ocular tissue from the orbit. Anophthalmia and microphthalmia(small eyes) are used interchangeably since in most cases CT Scans show some remnants of either the globe or surrounding tissue. Anophthalmia/ microphthalmia (A/M) may affect one eye with the other eye being normal, or both eyes, resulting in blindness. |
| MAPS on Facebook MAPS will provide parent to parent support to others raising children with microphthalmia and/or anophthalmia. By sharing a wide variety of information, MAPS strives to empower parents and reduce the overwhelming feeling of isolation that is all too common when a diagnosis of microphthalmia or anophthalmia is confirmed. | |
Anorexia Nervosa - see Eating Disorders |
|
|
|
| Anxiety Disorders Information Link |
Anxiety Disorders Association of America (ADAA) Anxiety Disorders are the most common mental illness in the U.S., with 40 million (18.1%) of the adult U.S. population (age 18 and older) affected. |
| Anxiety and Panic Support Groups Links to sites that provide support, reinforcement, and information. | |
| National Anxiety Foundation This website is intended for educational information only. Treatment for anxiety disorders is not a do it yourself' project. If you believe, after reading this, that you might have an anxiety disorder, you should see your physician who can either diagnose and treat you, or refer you to a specialist. | |
| National Mental Health Association Mental Health America is the country’s leading nonprofit dedicated to helping ALL people live mentally healthier lives | |
| Panic Attack Support Groups Self-help and support groups for anxiety disorders are a way of empowering people to help themselves, and others, on the path to recovery. Participation in a self-help group can end the painful isolation of suffering alone with a disorder that is disruptive and debilitating for the individual and those people around him/her. | |
| Anxiety Tribe AnxietyTribe is an online support community designed to connect individuals that suffer from Anxiety. | |
| Anxiety Support Groups and Hotlines National listing. | |
| Social Anxiety Support Social support groups have the general purpose of providing social support to people with social anxiety, rather than specifically addressing the goals of therapy and treatment. Some people find it supportive and comforting to spend time socially with others who also experience social anxiety and may better be able to understand what they're going through. Individuals with more severe social anxiety should consider pursuing treatment with a structured therapy group before joining a social group. We have a directory of social anxiety groups organized by location. | |
| Find the Light The mission of this website is to provide online peer support for adults that are suffering from mental illnesses such as anxiety, mood disorders (bipolar, depressive disorders), and substance abuse. We also provide accurate, credible information relating to various mental health issues. We also welcome caregivers and/or parents of children and adults with these crippling disorders. | |
| Apert Syndrome | National Craniofacial Association The National Craniofacial Association has been dedicated to assisting children and adults who have craniofacial disorders resulting from disease, accident, or birth. |
| Daily Strength - Apert Syndrome Support Group New discussion area 2011. | |
| Aphasia Information Link |
Aphasia Hope Foundation Aphasia is a speech/language disorder that impairs a person's ability to communicate. It is most commonly the result of a stroke but can occur from any severe head injury. |
| Aphasia Community Groups Groups listed below represent a wide variety of group types and structures. Some consist only of persons with aphasia and their significant others and some are more inclusive. Some are free and some are not. The listing below is alphabetical by state and city. Canadian resources are listed at the end. | |
| Daily Strength - Aphasia Support Group Online dicsussion boards. Aphasia is a loss or impairment of the ability to produce and/or comprehend language, due to brain damage. It is usually a result of damage to the language centres of the brain (like Broca's area). | |
| Aphasia Support Group (Blog with discussion area) Being a speech-language pathologist, I often see how so many lives are affected when a person suffers from aphasia. I frequently talk with family members of my aphasic patients and see their frustrations, uncertainty and emotions first hand. | |
| Aplastic Anemia (Also see Anemia) |
Aplastic Anemia & MDS International Foundation, Inc. Aplastic anemia occurs when the bone marrow stops making enough blood-forming stem cells. The symptoms of aplastic anemia can include increased bleeding, bruising, petechiae, susceptibility to infections, shortness of breath, fatigue, decreased alertness, dizziness and lingering illness. |
| Arachnoiditis Information Link |
Circle Of Friends With Arachnoiditis Adhesive Arachnoiditis is a disorder which causes severe, chronic, intractable pain. It is the inflammation of one of the spinal cord coverings (meninges), the middle meninges, the arachnoid and nerve roots that causes Adhesive Arachnoiditis. This inflammation causes the covering to become "sticky", adhering it to the spinal cord and the nerve roots as they exit the spinal canal. |
| Arachnoiditis Support Community Board Welcome to the Arachnoiditis Support Community Board. We offer help, support, information and friendship for those that suffer with arachnoiditis and chronic pain. This Board is open to all that need help, want help, and to those that can offer help and support. | |
| Life with Arachnoiditis Our mission is to provide a hope-filled environment highlighting information, education and research. We also offer one-on-one communication with others affected by Arachnoiditis, Epidural Fibrosis, Failed Back Surgery Syndrome and other related spinal disorders. | |
| Arnold Chiari Malformation | World Arnold Chiari Malformation Association Chiari malformations are structural defects in the cerebellum, the part of the brain that controls balance. The major symptoms are headaches and neck pain. Most commonly the other symptoms confirmed to be Chiari related are: dizziness, vertigo, loss of balance visual disturbances, palpitations, sleep apnea, ringing in the ears, difficulty swallowing, impaired fine motor skills, chronic fatigue, muscle weakness and tingling of the hands and feet. |
| Arnold Chiari Malformation Support Group A community of patients, family members and friends dedicated to dealing with Arnold Chiari Malformation, together. | |
| Daily Strength - Arnold-Chiari Malformation Support Group Discussion boards. |
|
| Arteriovenous Malformations Information Link |
AVM Survivers The mission of AVMSurvivors.org has always been to be there for anyone with an AVM in need of support. We'd love to hear stories of how the community has helped YOU! Share your experience with the AVMSurvivors.org community! |
| Arteriovenous Malformation Support Group A community of patients, family members and friends dedicated to dealing with Arteriovenous Malformation, together. | |
| AVM Support UK We are a unique group working throughout the UK offering free, patient friendly information and support to all whose lives have been affected by the rare condition Arteriovenous Malformation. | |
| Arthritis Information Links: Juvenile Arthritis Osteoarthritis Gout Lyme Disease Rheumatoid Arthritis Sarcoidosis Scleroderma |
Arthritis Foundation While often referred to as if it were a single disease, arthritis is actually an umbrella term used for a group of more than 100 medical conditions that collectively affect nearly 46 million adults and 300,000 children in America alone. While the most common form of arthritis - osteoarthritis - is most prevalent in people over 60, arthritis in its various forms can start as early as infancy. |
| Arthritis Support Group A community of patients, family members and friends dedicated to dealing with Arthritis, together. | |
| Daily Strength - Arthritis Support Group Arthritis is the leading cause of disability in the over 65s and the disease affects about twice as many women as men. This community focuses on general arthritic conditions as well as osteoarthritis. | |
| Rheumatoid Arthritis Make a connection, ask a question, share a concern, give advice or just chat. Our message boards connect you with a community of people who understand where you’re coming from and what you’re going through. | |
| Juvenile Rheumatoid Arthritis Support Groups Juvenile rheumatoid arthritis support groups exist to help people suffering with the condition, and those who care for them, to gain support and help from others. Support groups can be found online and in local communities. Online support groups offer patients anonymity. | |
| Arthritis Society, The The Arthritis Society offers a wide range of programs and resources dealing with arthritis. These services, including the examples below, can benefit people with arthritis as well as family members and caregivers.(Canada) | |
Support Groups "As" to "Az"
"As" through "Az"
| Asbestosis Also see Mesothelioma Information Link |
Daily Strength Asbestosis Support People with extensive occupational exposure to the mining, manufacturing, handling or removal of asbestos are at risk of developing asbestosis. There is also an increased risk of lung cancer and mesothelioma. This risk is related to the total dose of asbestos received and the duration of asbestos exposure. |
| Mesothelioma Web A mesothelioma diagnosis can be overwhelming, and we are here to answer any questions you might have, and to help you take the steps necessary to find the options that are best suited to your individual needs. | |
| Asbestosis Support Group This site includes people who have come together to share the common experiences and problems unique to Asbestosis related complications. In addition to providing you a secure and private Internet forum to meet people who share a common bond, it is also our goal to bring you the up-to-date Mesothelioma / Asbestosis related information. You may also find it valuable to have a direct/regular contact with other people in similar situation. | |
| Mesothelioma Groups Support If you or a loved one has been infected with asbestos, or is working in an asbestos rich environment you might want to have detailed information about the closest mesothelioma or asbestos support group, to start receiving their services as soon as possible. | |
| Asbestos Support Groups A list of support groups set up to help victims and relatives suffering from asbestos related diseases. | |
| Asbestosis Support Forums A community of patients, family members and friends dedicated to dealing with Asbestosis, together. | |
| Asbestosis Online Health Community and Support Group Through this Asbestosis support group, you can get Asbestosis information, share experiences about Asbestosis, connect with peers, and get answers to your Asbestosis questions from health professionals. | |
| Asbestos.com (Mesothelioma Center) " Whether you, a family member or a friend are diagnosed with mesothelioma or another asbestos-related disease, this site was designed for you. The Mesothelioma Center is committed to being a comprehensive one-stop resource for all asbestos- and mesothelioma-related issues" | |
| Mesothelioma Alliance "You can access an enormous living resource of knowledge, experience, and insight from mesothelioma patients who have walked in your shoes. " | |
| Ascities Information Link |
Children’s Liver Disease Foundation Our vision is that childhood liver disease will be understood and fought effectively thereby ensuring that young people with liver disease and families will be able to take control of their lives and achieve their full potential. |
| Ascites Support Group Join the 'Ascites' group to help and get support from people like you. | |
| I Have Chylous Ascites Read hundreds of true stories, share your own story anonymously, get feedback and comments, chat in the discussion forum, help others, meet new friends, and so much more-- all free | |
| Asperger's Syndrome Information Link |
Asperger Syndrome Education Network ASPEN provides families and individuals whose lives are affected by Autism Spectrum Disorders (Asperger Syndrome, Pervasive Developmental Disorder-NOS, High Functioning Autism), and Nonverbal Learning Disabilities with: Education about the issues surrounding the disorders. Support in knowing that they are not alone, and in helping individuals with ASD's and NLD achieve their maximum potential. Advocacy in areas of appropriate educational programs, medical research funding, adult issues and increased public awareness and understanding. |
| Joshua Center The Joshua Child and Family Development Center supports programs designed to improve the lives of individuals and families living with Tourette Syndrome, Asperger Syndrome, Obsessive Compulsive Disorder and their Associated Disorders through research, education, social and clinical programs. | |
| AHA Association is a New York organization providing support and information for families, individuals and professionals affected by Aspergers Syndrome, High Functioning Autism, and Other Pervasive Developmental Disorders. | |
| OASIS Online Asperger Syndrome Information & Support(Jpoined with MAAP Services) This web site provides articles, educational resources, links to local, national and international support groups, sources of professional help, lists of camps and schools, conference information, recommended reading, and moderated support message boards. | |
| Asperger's Syndrome Meetup Groups Meet with local people affected by Asperger's Disorder (Asperger Syndrome) for support and discussion. | |
| Asperger Syndrome Support Group Like other autism spectrum disorders, AS prevalence estimates for males are higher than for females, but some clinicians believe that this may not reflect the actual incidence rates. | |
| Asperger Syndrome Support Network (Australia) We are a volunteer group of parents, carers, partners, professionals and individuals with Asperger Syndrome, with the goal of providing support to those living with Asperger Syndrome. | |
| Asthma Information Links: Asthma Asthma in Children Asthma, Adult-Onset |
Asthma and Allergy Foundation of America Asthma is a disease of the lungs in which the airways become blocked or narrowed causing breathing difficulty. This chronic disease affects nearly 20 million Americans. Asthma is commonly divided into two types: allergic (extrinsic) asthma and non-allergic (intrinsic) asthma. |
| Allergy and Asthma Network Mothers of Asthmatics What is asthma? Are allergies serious? Do I have to find a new home for my dog? How do I find a good doctor? As you stroll through the streets of Breatherville and step inside any of its buildings, you’ll find answers to your questions, concerns, and fears. You’ll learn to minimize asthma and allergy symptoms and prevent flare-ups…and have a little fun along the way, too! Meet our citizens, learn your way around, and come back often. Our creative hometown approach to asthma and allergies is like nothing you’ve ever seen. | |
| American Academy of Allergy, Asthma, and Immunology There are key differences between severe asthma and milder forms of the disease. And those differences could have implications for the management of the most at-risk and hard-to-treat patients. In most cases, asthma can remain well controlled with medication. But 5% to 10% of asthma patients suffer from a severe form of the disease that does not respond well to treatment. These patients have a higher risk of asthma-related hospitalization and death, but it has not been clear if there are unique features about severe asthma that cause patients to be sicker. | |
| American Lung Association As part of our American Lung Association® community, you have the benefits of in-depth and timely information on lung issues including asthma, tobacco control, and environmental health | |
| Ataxia | A-T Children's Project Ataxia-telangiectasia is a progressive, degenerative disease that affects a startling variety of body systems. Children with A-T appear normal at birth, and the first signs of the disease usually appear during the second year of life. These first signs are usually a "wobbly" lack of balance and slurred speech caused by "ataxia," which means a lack of muscle control. |
| National Ataxia Foundation The National Ataxia Foundation is dedicated to improving the lives of persons affected by ataxia through support, education, and research. | |
| Worldwide Education and Awareness for Movement Disorders WE MOVE is the Internet's most comprehensive resource for movement disorder information and the hub of movement disorder activities on the web. | |
| Atherosclerosis Information Link |
International Atherosclerosis Society promotes, at an international level, the advancement of science, research and teaching in the field of atherosclerosis and related diseases. To access content on athero.org you must be a registered user and you must log on. |
| Attention Deficit Disorder and ADHD Information Link |
CHADD CHADD (Children and Adults with Attention-Deficit/Hyperactivity Disorder) is the nation's leading non-profit organization serving individuals with AD/HD and their families. CHADD has over 16,000 members in 200 local chapters throughout the U.S. Chapters offer support for individuals, parents, teachers, professionals, and others. |
| ADDers (UK) Our objective is to promote awareness to ADD, ADHD (Attention Deficit Hyperactivity Disorder) and to provide information and as much free practical help as we can to those affected by the condition, both adults and children and their families. | |
| ADHD News Do you have a great ADHD story or tip you would like to share? We’d love to hear from you! Your story could be somebody's inspiration! | |
| The Attention Deficit Disorder Support Site There is nothing more frustrating than seeing a child or loved one experience learning problems, or LD (Learning Disorder) and ADD/ADHD . These individuals may often be out of control, over-stimulated, under-stimulated, or experience uncontrolled stimulation patterns, exhibiting behavioral which is difficult to explain and which often disrupt an entire household. | |
| Attention Deficit Disorder Meetup Groups Meet other local people dealing with ADD and ADHD. Gather to share your experiences, progress, and thoughts with one another. | |
| Daily Strength - ADHD / ADD Support Group Attention-deficit hyperactivity disorder (ADHD) is a neurologic syndrome that exhibits symptoms such as hyperactivity, forgetfulness, mood shifts, poor impulse control, and distractibility, when judged to be chronic, as symptoms of a neurological patholog | |
| ADDitude Would you benefit from joining a support group? Find out where and how can you find one that caters to parents of kids with ADD. | |
| Australian ADD/ADHD Support Groups Please note that all the support groups listed are independent and are not part of, or affiliated to, adders.org | |
| Attention Deficit Disorder in Adults Information Link |
CHADD CHADD (Children and Adults with Attention-Deficit/Hyperactivity Disorder) is the nation's leading non-profit organization serving individuals with AD/HD and their families. CHADD has over 16,000 members in 200 local chapters throughout the U.S. Chapters offer support for individuals, parents, teachers, professionals, and others. |
| Support for Non-ADD Spouses and Partners Living with adult ADD can be quite a challenge. Not only is it a challenge for the actual person who has ADD but for those around him or her. Much needed understanding and support for adults with ADD has finally begun to surface. But what about the people who have chosen to love, honor and cherish adults with ADD? Where do they go for support and understanding? Who is going to help them cope with the challenges of adult ADD? | |
| Attention Deficit Disorder Meetup Groups Meet other local people dealing with ADD and ADHD. Gather to share your experiences, progress, and thoughts with one another. | |
| ADDers (UK) Our objective is to promote awareness to ADD, ADHD (Attention Deficit Hyperactivity Disorder) and to provide information and as much free practical help as we can to those affected by the condition, both adults and children and their families. | |
| Atypical Hemolytic Uremic Syndrome (HUS) | Foundation for Children with Atypical HUS Hemolytic Uremic Syndrome is a rare but important cause of severe kidney failure in children. 2-4 new cases per 100,000 are reported-Possibly 7,500 children have HUS. Patients may require dialysis. While permanent kidney failure is rare, HUS is one of the leading causes of kidney failure. Also visit their Atypical HUS information site. |
| AudioVisual Assistance | Assistive Media Assistive Media is a non-profit entity that produces on-line audio recordings of literary works free-of-charge for persons with text-reading or other access disabilities |
| Captioned Media Program The Captioned Media Program provides more than 4,000 open-captioned videos free for loan to U.S. citizens with a hearing loss. | |
| Autism Information Link |
Autism Society of America Autism is a developmental disability that typically appears during the first three years of life and is the result of a neurological disorder that affects the normal functioning of the brain, impacting development of social interaction and communication skills. Both children and adults with autism typically show difficulties in verbal and non-verbal communication, social interactions, and leisure or play activities. |
| Autism National Committee (AUTCOM) This is the only autism advocacy organization dedicated to "Social Justice for All Citizens with Autism" through a shared vision and a commitment to positive approaches. | |
| Autism Speaks Few disorders are as devastating to a child and his or her family. Instead of Little League games and sleepovers, most people with autism will face lifelong supervision and care, exhausting a family's financial and emotional resources. The nation's fastest-growing serious developmental disorder, autism now affects 1 in 150 children in the United States, | |
| Autistic Society Our mission is to unite parents, families, friends, people with Autism and professionals by creating a strong, supportive community worldwide. Sharing first hand knowledge, information, news and research about Autistic Spectrum Disorders. | |
| Any Baby Can, Inc. Every child deserves to be accepted, appreciated, and loved; receive proper nutrition, adequate health care, education, and all the things that will give him or her a chance for a healthy life. | |
| National Mental Health Association Mental Health America is the country’s leading nonprofit dedicated to helping ALL people live mentally healthier lives. | |
| Autoimmune Diseases Also see specific condition |
Autoimmune Diseases Support Group "Inspire connects patients, families, friends, caregivers and health professionals for health and wellness support. Inspire works with trusted health partners to build safe and secure health and wellness groups." |
| CIDPUSA the worlds largest foundation on autoimmune diseases and operate a advanced medical center for autoimmune diseases in Lahore. Committed to providing the widest possible selection of services, support, to assist and allow you to live your life to the fullest. You only live once, time flies by, this earth is small and your life span even smaller. | |
| Autoimmune Hepatitis | Children’s Liver Disease Foundation Our vision is that childhood liver disease will be understood and fought effectively thereby ensuring that young people with liver disease and families will be able to take control of their lives and achieve their full potential. |
| AutoImmune Hepatitis (UK) Welcome to one of the most popular on-line websites for information on AIH. This website will provide good quality information in simple english and explaines AIH so everyone can understand. | |
Support Groups "B" to "Bo"
"B" through "Bo"
| Back Pain Information Links: Sacroiliac Joint Pain Low Back Pain Back Pain Management |
Daily Strength Back Pain Support Group- DailyStrength.org is the most comprehensive health network of people sharing their advice, treatment experiences, and support. Keep a wellness journal, read members’ stories, and chat with new friends with over 500 support groups. |
| Back Pain Support Group This web-site has been set-up as an alternative to the many other "corporate" health-related sites out there, whose restrictions and moderation limitations too greatly stifle the open exchange of valuable information between us fellow back pain sufferer's. | |
| Back Pain Support Group A community of patients, family members and friends dedicated to dealing with Back Pain, together. | |
Back Pain Support Discussion boards |
|
Back Pain Community Moderated by Web MD |
|
| Back Pain Online Health Community and Support Group Through this Back Pain support group, you can get Back Pain information, share experiences about Back Pain, connect with peers, and get answers to your Back Pain questions from health professionals. | |
| Balance Disorders Information Link |
Balance Disorder Foundation A private support group has been established for people who are interested in discussing Mal de Debarquement Syndrome (MdDS). Topics of discussion include treatments, nutrition, coping with MdDS and other issues that affect MdDS sufferers and their families. |
| Vestibular Disorders Association Need help coping? See our support resources and find us on Facebook! | |
| Baldness Information Link |
Male Pattern Baldness anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Male Pattern Baldness. You're not alone. |
| Female Pattern Baldness Join today to meet, support and share information with others who are living with female pattern baldness | |
| Women's Hair Loss Project The women’s hair loss project is just an idea I thought of whilst feeling horribly sad and depressed about my own hair loss situation. I have been dealing with this for over 8 years and I’m not even 30 yet. | |
| Barth Syndrome | Barth Syndrome Foundation Barth syndrome is a serious X-linked genetic disorder, primarily affecting males. The characteristics consist of the following: A weak heart muscle usually associated with enlargement of the heart. A reduction in a type of white blood cell that is most important for fighting bacterial infections. All muscles, including the heart, have a cellular deficiency which limits their ability to produce energy. During childhood most affected individuals are below-average in height and weight. |
| Barth Syndrome Bartonella Infections Anonymous Support Group Read hundreds of true stories, share your own story anonymously, get feedback and comments, chat in the discussion forum, help others, meet new friends, and so much more-- all free. | |
| Barth Syndrome Trust (UK) The Barth Syndrome Trust aims to increase awareness amongst health professionals and the general public both to facilitate accurate diagnosis and to provide continuing support to affected families after diagnosis. | |
| Batten Disease | Daily Strength - Batten Disease Support Group DailyStrength.org is the most comprehensive health network of people sharing their advice, treatment experiences, and support. Keep a wellness journal, read members’ stories, and chat with new friends with over 500 support groups. |
| Batten Disease Support and Research Association Also known as Spielmeyer-Vogt-Sjogren-Batten Disease, it is the most common form of a group of disorders called Neuronal Ceroid Lipofuscinoses. Over time, affected children suffer mental impairment, worsening seizures, and progressive loss of sight and motor skills. Eventually, children with Batten Disease/NCL become blind, bedridden, and unable to communicate and presently is always fatal. | |
| Batten Disease Support Group A community of patients, family members and friends dedicated to dealing with Batten Disease, together. | |
| Batten Disease Support and Research Association In order to effectively combat the devastation of the disease and to fully support research efforts to unravel the mysteries on Batten, the worlds of medical science and the victims and their families must meet and work closely together to reach understanding and common goals. | |
| Bed Wetting Information Link |
Bed Wetting AB/DL This site is to be used by people with a bed wetting problem. We know it isn't fun to wet the bed and we want to do our best to help you through this time in your life. |
| Daily Strength - Bedwetting Support Group Discussion boards | |
| I Bedwetting Read hundreds of true stories, share your own story anonymously, get feedback and comments, chat in the discussion forum, help others, meet new friends, and so much more-- all free. | |
| Teen-Adult Enuresis Let's talk aboutTeen-Adult Enuresis (Bed Wetting), share our stories and tips. | |
| Bedwetting / Enuresis Join our online group on bedwetting. Ask questions, get answers from other experienced parents and experts, and learn more. | |
| Adult Bed Wetting Discussion boards and information. | |
| Behaviorial Disorders Also see Mental Health |
National Mental Health Association Mental Health America is the country’s leading nonprofit dedicated to helping ALL people live mentally healthier lives. |
| Behavioral Problems in Students with Oppositional Defiant Disorder Support Group for Parents and Teachers | |
| Conduct Disorders Chances are that if you are a new parent to this site you probably aren't having a great parenting day. Come in, familiarize yourself to our site, ask questions and read our stories. We are a group of parents who are raising challenging children. Our kids have many different diagnoses, but all of them are oppositional and resistant to parenting. | |
| Family Behavioral Resources Our passion is to assist the whole family in learning and obtaining caring therapeutic support. | |
| Behçet's Disease Information Link |
American Behcets Disease Association Behçet's disease is an autoimmune disease that results from damage to blood vessels throughout the body, particularly veins. In an autoimmune disease, the immune system attacks and harms the bodies' own tissues. The exact cause of Behçet's disease is unknown. Most symptoms of the disease are caused by vasculitis (an inflammation of the blood vessels). |
| Daily Strength - Behcet's Disease Support Group Discussion boards and information. | |
| Behcet's Disease Support Group Forums Discussion boards and information. | |
| New Zealand Behçet's Support Group Our purpose in coming together as a group is to provide support to better assist you in navigating through the medical system, as well as give a listening ear. | |
| Bell’s Palsy Information Link |
Bell’s Palsy Bell's palsy is a temporary weakness or paralysis of the muscles on one side of the face. These muscles are controlled by the facial nerve. Because there's a facial nerve on each side of a person's face, and Bell's palsy usually affects just one nerve, people with Bell's palsy will most likely notice stiffness or weakness on one side of the face. |
| Daily Strength - Bell's Palsy Support Group Discussion boards and information. | |
| Bell's Palsy Support Group A community of patients, family members and friends dedicated to dealing with Bell's Palsy, together. | |
| Bell's Palsy Support Group Bell's Palsy is a paralysis of cranial nerve VII (the facial nerve), resulting in inability to control facial muscles on the affected side. Several conditions can cause a facial paralysis, e.g., tumor, stroke, and disease. However, if no specific cause can be identified, the condition is known as Bell's Palsy. | |
| Inspire As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more. | |
| Bereavement Information Link: Loss, Grief, and Bereavement |
Good Grief Center Each of us will experience grief at some time in our lives. While it is a universal experience, it is also a unique one. There is no specific process, no healing formula, no right way to manage grief. However, there are healthy, effective ways to cope. We are dedicated to helping people through these especially difficult times |
| M.I.S.S. Foundation If you are a family member experiencing the death of a child, we extend our deepest empathy. There simply are not words to express the depth of the sorrow...we are here to share the pain and we want you to know that we will walk with you. | |
| SHARE - Pregnancy and Infant Loss Support The mission of Share Pregnancy and Infant Loss Support, Inc. is to serve those whose lives are touched by the tragic death of a baby through early pregnancy loss, stillbirth, or in the first few months of life. | |
| Daily Strength - Bereavement Support Group Discussion boards and information. | |
| Inspire Inspire connects patients, families, friends and caregivers for support and inspiration.. | |
| Bernard-Soulier Syndrome Information Link |
Bernard-Soulier Syndrome One of the major purposes of this web site is to help physicians and patients learn more about the Syndrome. It is not clear how many patients suffer from the syndrome or if there is a regional variation in occurrence. |
| Bernard-Soulier Syndrome Support Group A community of patients, family members and friends dedicated to dealing with Bernard-Soulier Syndrome, together. | |
| Biliary Atresia | Children’s Liver Disease Foundation Our vision is that childhood liver disease will be understood and fought effectively thereby ensuring that young people with liver disease and families will be able to take control of their lives and achieve their full potential. |
| Biliary Atresia Network Facebook. Biliary Atresia Network is an online support group for families who are dealing with the pediatric liver disease, biliary atresia pre or post transplant. Members will share stories, seek support, ask questions, pray together or just talk. This group is open to all families, friends and medical professionals who care for children with biliary atresia. Please join us! | |
| Binswanger Disease Information Link |
I Have Binswanger Disease Read hundreds of true stories, share your own story anonymously, get feedback and comments, chat in the discussion forum, help others, meet new friends, and so much more-- all free. |
| Bipolar Information Links: Bipolar Disorder Bipolar Disorder in Children and Teens |
Dealing With BiPolar Disorder With bipolar disorder, life can be like an emotional roller coaster. One day your mood is low and you feel sad. Then your mood gets really high and you feel great. |
| Child & Adolescent Bipolar Foundation The Child and Adolescent Bipolar Foundation is a parent-led organization of families raising children diagnosed with, or at risk for, pediatric bipolar disorder. | |
| Harbor of Refuge This site was created to serve people who are receiving appropriate medical treatment for their bipolar illness, including appropriate medications. We also welcome affected friends and family members of people with bipolar illness. Our greatest strength is the peer to peer support we offer one another. | |
| Depression and Bipolar Support Alliance We work to relieve and to prevent this treatable condition by providing information and support services. We also campaign to raise awareness amongst the general public about the realities of depression. | |
| Icarus Project, The We are a website community, support network of local groups, and media project created by and for people struggling with bipolar disorder and other dangerous gifts commonly labeled as "mental illnesses." We believe that when we learn to take care of ourselves, the intertwined threads of madness and creativity can be tools of inspiration and hope in a repressed and damaged world. Our goal is to help people like ourselves feel less alienated, and to allow us—both as individuals and as a community—to tap into the true potential that lies between brilliance and madness. | |
| Silver Lining We are devoted to the individuals and their family and friends who have been affected by this illness. We know all too well what this disorder is about. We live it every day. | |
| National Mental Health Association Mental Health America is the country’s leading nonprofit dedicated to helping ALL people live mentally healthier lives | |
| National Alliance for the Mentally Ill NAMI is the nation’s largest grassroots mental health organization dedicated to improving the lives of persons living with serious mental illness and their families who join together to meet the NAMI mission through advocacy, research, support, and education. | |
| Birth Defects Information Link |
Genesis Fund The Genesis Fund is a nonprofit organization that raises money for the specialized care and treatment of New England area children born with birth defects, mental retardation and genetic diseases. One of the major goals is to provide state-of-the-art, coordinated, humanistic care to these patients. |
| March of Dimes Our mission is to improve the health of babies by preventing birth defects, premature birth, and infant mortality. We carry out this mission through research, community services, education and advocacy to save babies' lives. March of Dimes researchers, volunteers, educators, outreach workers and advocates work together to give all babies a fighting chance against the threats to their health: prematurity, birth defects, low birth weight | |
| Teratology Society The Teratology Society is a multidisciplinary scientific society founded in 1960, the members of which study the causes and biological processes leading to abnormal development and birth defects at the fundamental and clinical level, and appropriate measures for prevention. Teratology is the study of the causes and treatment of birth defects | |
| Association of Birth Defect Children, Inc. ABDC provides information to ures that may cause birth defects, resources, and support groups. | |
| Birthmarks Information Link |
Birthmarks.com the premiere resource site for information about vascular and pigmented birthmarks. Community support for those whose lives are affected by birthmarks is offered through a free, private newsgroup with an international membership. |
| Vascular Birthmarks Foundation An international charitable organization that networks families affected by a vascular birthmark, tumor, or syndrome to the appropriate medical professionals for evaluation and/or treatment and provides informational resources as well as sponsors physician education, research, and programs that promote acceptance for living with a birthmark. | |
| Birthmarks Support Group A community for those whose lives are affected by birthmarks. Share, meet and support each other. | |
| Bleb Nevus Syndrome | I Have Blue Rubber Bleb Nevus Read hundreds of true stories, share your own story anonymously, get feedback and comments, chat in the discussion forum, help others, meet new friends, and so much more-- all free. |
| Blindness – see Vision | |
| Bloom’s Syndrome | Bloom's Syndrome Foundation Bloom's Syndrome is a very rare inherited genetic disorder, caused by a gene that does not function properly. This creates an unusually high number of breaks or instability along their chromosomes. This instability causes short stature, immune system deficiencies leading to respiratory and bronchial infections, patchy facial skin colorations, sensitivity to sunlight, sterility, and worst of all, an extraordinarily high risk to develop many cancers and leukemia, at early ages. |
| Bloom Syndrome Support Group A community of patients, family members and friends dedicated to dealing with Bloom Syndrome, together. | |
| Bloom's Connect Facebook International support group for people with Bloom's Syndrome and our support systems. | |
| Body Dysmorphic Disorder Information Link |
BDD Central The most comprehensive online presence related to body dysmorphic disorder. This site is maintained by BDD survivors, and also receives contributions from the world’s leading BDD experts. The mission of BDDCentral is to offer a safe and supportive place to communicate and learn, educate the public through outreach programs, and offer updated resources |
| Body Dysmorphic Disorder Forum Message boards. | |
| Body Dysmorphic Disorder Meetup Groups Body Dysmorphic Disorder Meetups around the world | |
| Body Dysmorphic Disorder Read true personal stories, chat & get advice, support and help from a group of 203 people who all say 'I Have Body Dysmorphic Disorder' | |
| Bone Cancer Information Link |
Adult Bone Cancer Survivors We are a group of adults from all over the world who have been diagnosed with bone sarcoma, a type of cancerous tumor that invades bone. These tumors make up less than 1% of the cancer cases diagnosed each year, and they tend to occur in children and adolescents. |
| Daily Strength - Bone Cancer Support Group Discussion boards and information. | |
| The Adult Voices of Bone Cancer With nearly 60 members, their mission is to support bone cancer patients and survivors, and there is talk of doing more. | |
| Bone Cancer Support Group A community of patients, family members and friends dedicated to dealing with Bone Cancer, together. | |
| Bone Cancer Support Boards Message boards | |
| Borderline Personality Disorder - see Personality Disorders | |
Support Groups "Br" to "Bz"
"Br" through "Bz"
| Bradykinesia Aslo see Parkinson's Disease |
Worldwide Education and Awareness for Movement Disorders WE MOVE is the Internet's most comprehensive resource for movement disorder information and the hub of movement disorder activities on the web |
| Brain Aneurysm Information Link |
Brain Aneurysm Foundation, The Being diagnosed with a brain aneurysm is frightening. Having survived a ruptured aneurysm is a very difficult experience to have gone through and can be extremely unsettling. Gathering information about your condition can help ease this fear, help begin the healing process, and help bring a sense of comfort and support during a trying time. |
| Brain Injury Information Link: Brain Concussion |
Brain Injury Association of America The leading national organization serving individuals, families and professionals who are touched by a life-altering, often devastating, traumatic brain injury. |
| B.I.R.D. The term "brain injury" covers a huge variety of conditions. At BIRD, we make no distinction between types of brain injury and aim to treat people of all ages and all levels of severity. Many people with brain injury are born with the problem due to genetic reasons or complications during pregnancy and birth. Other people suffer trauma during their life from accidents, assaults and natural disorders such as strokes. | |
| Headway (UK) "Headway UK provides support to the local Groups and Branches and helps to deliver high quality services through guidance on policies, procedures, standards and training." | |
| International Brain Injury Association (IBIA) IBIA is dedicated to the development and support of multidisciplinary medical and clinical professionals, advocates, policy makers, consumers and others who work to improve outcomes and opportunities for persons with brain injury. | |
| Think First Each year an estimated 500,000 persons sustain brain and spinal cord injuries in the United States. The most frequent causes of these injuries are motor vehicle crashes, falls, sports and recreation, especially diving, and violence. Children and teens are at high-risk for these devastating injuries, many of which are preventable. ThinkFirst, the National Injury Prevention Programs award-winning public education efforts target this high-risk age group | |
| Brain Tumor and Cancer Information Links: Brain Tumor Brain Cancer |
Brain Tumour Action (UK) BTUK is a self-help news and discussion group for patients, careers and others affected by a brain tumour |
| Childhood Brain Tumor Foundation founded by families, friends and physicians of children with brain tumors. Our mission is to raise funds for scientific research and heighten public awareness of this most devastating disease and to improve prognosis and quality of life for those that are affected. | |
| Young Adults Surviving Glioblastoma Glioblastoma mutiforme is the "most common primary brain tumor" and the most aggressive form of brain cancer. Prognosis according to statistics are on average 6 months to one year. | |
| American Brain Tumor Association The American Brain Tumor Association exists to eliminate brain tumors through research and to meet the needs of brain tumor patients and their families. | |
| Making Headway Foundation To provide comfort and care to the children with brain and spinal cord tumors and their families as they undergo the fear, anxiety and stress of hospitalization, surgery, chemotherapy and radiation treatments. We do this through the many programs we fund at the New York University Medical Center to make the hospital stay more comfortable. | |
| Rose Meadow Farm Rose Meadow Farm is a unique, assisted living facility for people with acquired brain injury (including neurological injuries such as stroke) and/or spinal cord injury. Our mission is to provide each resident with the dignity and self-respect that we all expect to receive, and to assist each resident individually to attain the highest quality of life possible. | |
| National Brain Tumor Society This website can help you cope by offering information about brain tumors and treatment, malignant and benign brain tumors, brain tumor medical centers, the latest brain tumor clinical trials as well as connecting you to a network of brain tumor survivors. We offer hope to patients, families, and caregivers." | |
| Support and Advocacy Groups: Brain Cancer From the American Association for Cancer Research | |
| Brain Cancer Support Some people who are living with the disease find brain cancer support groups to be helpful. In these groups, patients or their family members get together and share what they have learned about coping with brain cancer and the effects of brain cancer treatment. Brain cancer support groups may offer support in person, over the telephone, or on the Internet. | |
| Breast Cancer Information Links: Breast Cancer Breast Cancer and Coping With Stress Breast Cancer Genetic Testing Breast Cancer in Men Breast Cancer in Young Women Breast Cancer Prevention Breast Reconstruction Breast Self Exam |
Network of Strength Network of Strength has been a trusted resource for 30 years and has helped thousands find the information they need to make educated decisions. From articles on our Web site to the knowledge of our YourShoes peer counselors on the 24/7 Hotline, Network of Strength keeps you informed. |
| Celebrating Life Foundation The Celebrating Life Foundation was established on May 3, 1995. It is one of the leading foundations in the nation that promote breast cancer awareness specifically targeting African American women and women of color | |
| Living Beyond Breast Cancer Our goal is to improve your quality of life and help you take an active role in your ongoing recovery or management of the disease, regardless of educational background, social support or financial means. | |
| John W. Nick Foundation A non-profit organization focused on educating the public about the dangers of male breast cancer. | |
| Making Memories Breast Cancer Foundation The goal of Making Memories Breast Cancer Foundation is to grant wishes to people who have been diagnosed with terminal breast cancer. | |
| National Breast Cancer Coalition The National Breast Cancer Coalition is the nation's largest breast cancer advocacy group with hundreds of member organizations and tens of thousands of individual members. | |
| Young Survival Coalition The only international breast cancer survivors and supporters dedicated to the concerns and issues that are unique to young women and breast cancer. The YSC also serves as a point of contact for young women living with breast cancer. | |
| Susan G. Komen Breast Cancer Foundation Komen for the Cure is the world's largest grassroots network of breast cancer survivors and activists fighting to save lives, empower people, ensure quality care for all and energize science to find the cures. | |
| National Breast Cancer Foundation The National Breast Cancer Foundation mission is to save lives by increasing awareness of breast cancer through education and by providing mammograms for those in need. | |
| Inflammatory Breast Cancer Research Foundation Inflammatory breast cancer is the most aggressive form of breast cancer. In the US, IBC affects younger women disproportionately and African-American women are diagnosed with IBC at significantly younger ages than Caucasian-American women. | |
| SHARE - Self-Help for Women with Breast or Ovarian Cancer We are breast and ovarian cancer survivors and we're here to help you. We know what it's like to have early stage, recurrent, and metastatic disease. If you've been diagnosed with breast or ovarian cancer -- or if you simply want to know more about these diseases -- we can help. |
|
| Brittle Bone Also see Ehlers-Danlos Syndrome |
Children's Brittle Bone Foundation, The The mission of the Children's Brittle Bone Foundation is to provide funds for research into the causes, diagnosis, treatment, prevention, and eventual cure for Osteogenesis Imperfecta (OI), while supporting programs which improve the quality of life for people afflicted with OI, promote awareness and educate the public. |
| Brittle Bone Disease Support Group The Brittle Bone Disease support group and health community is for individuals and family members of individuals have been diagnosed with Brittle Bone Disease. | |
| Buerger’s Disease | Buerger's Story This website was created for patients, relatives, friends, and anyone who is interested in this life-altering condition. |
| Buerger Disease Support Group A community of patients, family members and friends dedicated to dealing with Buerger disease, together. | |
|
|
| Burns Informational Links: Burns Chemical Burns |
Daily Strength - Burns Support Group Message boards for discussion. |
| Burns Support Foundation (Australia) We know that the emotional effects of a burn may continue to reverberate through the emotional life of the family for many years after the original incident. The BSF aims to be available to help patients and their families through these difficult times. | |
| Burns Recovered Support Group (Facebook) The mission of Burns Recovered Support Group is to assist burn survivors in their recovery and educate the public in burn awareness and prevention. | |
| Burn Survivers To raise public awareness for burn survivors and survivor's in general to let the world know that we are not victims but we are Survivor's | |
The Obvious Legal Statement.
The folks at Slightly Creaky are volunteers. None of us get any salary or compensation in any form. We are not a corporation, just a few folks working out of our houses. If anything on this site bothers you, if you notice mistakes, please let us know.
While we do maintain editorial rights, things slip past. The submitted columns and news articles belong to the contributor(s), not to the Slightly Creaky team. We are simply a vehicle bringing you information to the best of our ability. We have no control over the sites we link to. Web site contents frequently change. If you find anything improper, objectionable or not working, please notify us.
Be sure to read our complete Legal Information and Policies