Support Groups C - D
How to Use -- Contents
Slightly Creaky does research to find the links you would most likely need and provides them for you in an easy-to-find format. You can access the various categories from any of our pages using the top or side menus. Each category has generalized headings, followed by more specific ones.
Many support groups are named for people, are generalized and provide assistance for several related conditions, or are otherwise difficult to interpret. This page provides links alphabetically based upon specific ailments. Please scroll down, use the index link, or use your browser's "find" or "search" feature to get the the area you are seeking.
In addition to support groups, we include links to informational sites on these conditions.
Please Contact us if you find a broken or bad link.
Alphabetical List: |
Quick Links to selected categories: |
||
|---|---|---|---|
Support Group Home Page Includes directions, hints for use, etc. |
See the "Medical Information" page for Medical Definitions, Pharmaceuticals and Home Remedies, Advocacy Groups, Medical Articles | ||
| Have We Missed a Support Group or Ailment? We are constantly looking for more information and more links. Please help us improve our site and service. The Internet had millions of web pages dedicated to medical conditions and support groups; we can only sample a few of them. If you know any sites we should include write to suggestions@slightlycreaky.com | |||
Caution - Proceed with care. Slightly Creaky is not responsible for the content of web sites listed here nor the actions taken by the people owning, managing, or participating on them.
This listing is the result of more than 500 hours of research. It is the property of Slightly Creaky and may not be reproduced in any form. Every attempt has been made to provide an accurate description of each organization.
NOTE: If the table lines do not show properly, please refresh the page.
Updates: We review and update this page every 4 months. Many support groups change names or even terminate their services. Should you discover a bad link or wish to suggest that we add one, please contact suggestions@slightlycreaky.com
We try to avoid commercial sites, but in many cases they are the only ones who provide information and support. If you are looking to buy or sell medical products, please use a generalized search engine.Support Groups C through Cg
"C" through "Cg"
Cancer with index to all types of this disease |
| CADASIL (Cerebral Autosomal Dominant Arteriopathy) |
CADASIL Together We Have Hope We are devoted to promoting awareness, support and research for this rare genetic disease including patients, families, friends and healthcare providers. |
| Daily Strength - CADASIL Support Group Message boards |
|
| CADASIL Support on Facebook A group for sufferers, supporters and those who are curious about this syndrome. | |
| CADASIL Support Group A community of patients, family members and friends dedicated to dealing with CADASIL, together. | |
| Cancer Index General Information About Cancer (Check each specific Cancer section for information about that disease) |
Use links to get to specific Cancer areas. There is overlapping, so several support groups appear in more than one place.
Not all the condition are in this section, so please use these links. General Cancer Support Cancer Research & Funding Male Specific Cancers Female Specific Cancers Breast Cancer Cervical Cancer Ovarian Cancer Brain Cancer Blood Cancers Colorectal Lung Cancer Children and Teens Prostate Bone Pancreatic Pituitary Skin Cancer Thyroid Liver Neuroblastoma Cancer Survivers Kidney Asbestosis/ Mesothelioma Adenoid Cystic Carcinoma Head, Mouth & Throat Other Cancers |
| General Cancer Support Informational Links: Cancer Fatigue Cancer Pain Cancer Prevention Cancer Survival Chemotherapy |
Association of Oncology Social Workers Over 1000 Association of Oncology Social Work members from around the world are committed to advancing excellence in psychosocial care of persons with cancer, their families and their caregivers. Experts in networking, education, advocacy, research, and resource development, through counseling, stress and symptom management, care planning, case management, navigation, education and advocacy. |
| Cancer Fighters Lengthy list of various cancer support groups with contact information. | |
| Planet Cancer A a community of young adults with cancer. Take a look around at the info and funny stuff on the site. Pop over to our social networking community and talk with other young adults on My Planet. If you feel strangely at home, join Planet Cancer now! We'll keep you current on young adult issues, opportunities, and what's happening on the Planet. | |
| Cancer Lifeline Cancer Lifeline's Support Groups work to meet the needs of patients, survivors, caregivers, family members and friends. | |
| Coping with Cancer: Supportive and Palliative Care Many people who have cancer or who have been treated for cancer develop symptoms or side effects that affect their quality of life. Care given to help patients cope with these symptoms or side effects is called palliative care, comfort care, supportive care, or symptom management. | |
| Support and Self-Help Organisations (UK) This page gives information on various cancer support groups throughout the UK as well as other European and English speaking countries. | |
| Cancer Research & Funding Information Links: Cancer Causes Cancer Detection |
National Cancer Institute The National Cancer Institute coordinates the National Cancer Program, which conducts and supports research, training, health information dissemination, and other programs with respect to the cause, diagnosis, prevention, and treatment of cancer, rehabilitation from cancer, and the continuing care of cancer patients and the families of cancer patients. |
| Cancer Organizations - General An eclectic but hopefully comprehensive listing of national foundations and organizations that support cancer patients, gleaned from multiple sources and websites. These are generally more conventional or traditional in nature, but a great starting point for research, education and support. | |
| The American Cancer Society Together with our millions of supporters, the American Cancer Society (ACS) saves lives and creates a world with less cancer and more birthdays by helping people stay well, helping people get well, by finding cures, and by fighting back. | |
| General Cancer Organizations and Resources Massive list of resources. | |
| Cancer Fighters List of cancer resources and organizations | |
| Male Specific Cancers See also Prostate Cancer Information Links: Cancer Of The Testicle Cancer of the Penis |
Orchid Cancer Appeal (UK) The Orchid Cancer Appeal was the first registered charity dedicated to fund research into diagnosis, prevention and treatment of testicular, prostate and penile cancer and to increase public awareness of these previously neglected diseases. |
| John W. Nick Foundation A non-profit organization focused on educating the public about the dangers of male breast cancer. | |
| Male Care Malecare develops practical, life saving programs to address the problem of men dying sooner than women. Since 2005, we have expanded our programs to include services and research regarding the effects of cancer on Lesbian, Gay, Bisexual and Transgender people. | |
| Daily Strenght - Male Breast Cancer Support Group Message boards and discussions |
|
| Male Breast Cancer Support Group A community of patients, family members and friends dedicated to dealing with Male Breast Cancer, together. | |
| Female Specific Cancers Information Links (also see specific cancers for more information) Uterine Cancer Vaginal Cancer |
Facing Our Risk of Cancer Empowered (FORCE) FORCE is for women with increased risk of cancer due to family history and genetic status, and for members of families in which a BRCA mutation may be present. |
| Gilda's Club Worldwide To provide meeting places where men, women and children living with cancer and their families and friends join with others to build emotional and social support as a supplement to medical care. Free of charge and nonprofit, Gilda's Club offers support and networking groups, lectures, workshops and social events in a nonresidential, homelike setting. | |
| Women's Cancer Network The mission of the Women's Cancer Network is to keep women informed and to enable them to be their own health advocates. | |
| Pregnant with Cancer Network Our mission at the Pregnant With Cancer Network, is to let you know that you are not alone. Being diagnosed with cancer when you're pregnant can be a terrifying and lonely experience. You may feel like the only pregnant woman to ever be given such devastating news | |
| Network of Strength Network of Strength has been a trusted resource for 30 years and has helped thousands find the information they need to make educated decisions. From articles on our Web site to the knowledge of our YourShoes peer counselors on the 24/7 Hotline, Network of Strength keeps you informed. | |
| Eyes on the Prize Women with cervical, uterine (endometrial and sarcoma), ovarian, vaginal, vulvar, gestational, and tubal cancer join together to share information and emotional support for living with reproductive cancers. | |
| Blood-Related Cancers |
See Leukemia Lymphomic Diseases Non-Hodgkin's Lymphoma |
| Cancer Survivers Information Link |
Cancer Survivors Network We celebrate by supporting one another, sharing our stories and what we've learned, and by living life to the fullest one day at a time. |
| Cancervive Cancervive is an organization that responds to the needs of cancer survivors and their families. We are committed to providing practical resources to assist you. | |
| Cancer Survivors On Line Cancer Survivors On Line offers cancer information, resources, and support. It is designed for cancer patients, families, friends, and the professionals who treat them. It's created and maintained by cancer survivors willing to share their knowledge and experiences. |
|
| Survivorship: During and After Treatment In this section you'll find information and tips on staying active and healthy during and after cancer treatment. You can also get information on dealing with the possibility of cancer recurrence, and find inspiration and hope in stories about other people whose lives have been touched by cancer. | |
| Cancer Care CancerCare’s National Office serves people with cancer and their loved ones throughout the entire 50 states, Puerto Rico, and the U.S. Virgin Islands. By using the phone and internet, CancerCare social workers can help people no matter where they are. | |
| Cancer Survivors Network Message board and discussions. | |
| Cancer in Children and Teens | Planet Cancer A a community of young adults with cancer. Take a look around at the info and funny stuff on the site. Pop over to our social networking community and talk with other young adults on My Planet. If you feel strangely at home, join Planet Cancer now! We'll keep you current on young adult issues, opportunities, and what's happening on the Planet. |
| Young Adults Surviving Glioblastoma Glioblastoma mutiforme is the "most common primary brain tumor" and the most aggressive form of brain cancer. Prognosis according to statistics are on average 6 months to one year. | |
| Cancer Warriors Cancer Warriors aims to be a source of encouragement and support to the courageous kids who battle cancer, and their siblings, during their journey. We want the families to know they are loved and that they are not alone, and help them find hope and renewed strength. | |
| Childhood Brain Tumor Foundation founded by families, friends and physicians of children with brain tumors. Our mission is to raise funds for scientific research and heighten public awareness of this most devastating disease and to improve prognosis and quality of life for those that are affected. | |
| Making Headway Foundation To provide comfort and care to the children with brain and spinal cord tumors and their families as they undergo the fear, anxiety and stress of hospitalization, surgery, chemotherapy and radiation treatments. We do this through the many programs we fund at the New York University Medical Center to make the hospital stay more comfortable. | |
| Groop Loop A safe place for teens with cancer and their families to build an online community to find support, education and hope. | |
| Head, Mouth & Throat Cancer Information Links: Esophageal Cancer Head and Neck Cancer Larynx Cancer Nasopharyngeal Cancer Salivary Gland Cancer |
Cathy's EC Café Esophageal cancer forum. |
| The Oral Cancer Foundation The Oral Cancer Foundation is a national public service, non-profit entity designed to reduce suffering and save lives through prevention, education, research, advocacy, and patient support activities. Oral cancer is the largest group of those cancers which fall into the head and neck cancer category | |
| Mouth Cancer Foundation Professional support organization solely dedicated to supporting people with mouth, throat and other head & neck cancer face the crisis of cancer. | |
| Mouth Cancer Support Group A community of patients, family members and friends dedicated to dealing with Mouth Cancer, together. | |
| Throat Cancer Being diagnosed with cancer can be devastating. Throat cancer affects a part of your body that is vital to everyday activities, such as breathing, eating and talking. | |
| Throat Cancer Support Group A community of patients, family members and friends dedicated to dealing with Throat Cancer, together. | |
| Tongue Cancer For many, talking about their condition with family and friends only causes more stress and anxiety for loved ones. So, you pretend that nothing has changed. But it has. And talking about your condition with others is positive therapy. But where do you turn? Who can provide that emotional support so vital improved outcomes? | |
| Other Cancers Information Links Gallbladder Cancer Stomach Cancer |
Gallbladder Cancer Support Group A community of patients, family members and friends dedicated to dealing with Gallbladder Cancer, together. |
| Gallbladder Cancer Support Groups Gallbladder cancer is a rare disease in which malignant (cancer) cells are found in the tissues of the gallbladder. | |
| Living with Stomach Cancer Living with a serious disease like stomach cancer is not easy. Cancer patients and those who care about them face many problems and challenges. Coping with these problems is often easier when people have helpful stomach cancer information and support services. | |
| Daily Strength - Gastric Cancer Support Group Message boards and discussions. |
|
| Stomach Cancer Support For people who are facing the challenges of living with stomach cancer, support from a variety of sources can help them cope with the physical and emotional aspects of the disease. | |
| How to Start a Cancer Support Group Cancer patients often find that connecting with others who are going through a similar situation can help to reduce stress and improve quality of life. Support groups provide more than emotional support. They provide resources and education, as well as offer members tips on how to cope. | |
| Rare Cancers If you are coping with a rare cancer, you know the reality. Having a rare cancer can make you feel alone, as it can be hard to find someone else with the same diagnosis. It's also likely that your doctors have never treated anyone with your cancer before, which can be scary and unsettling | |
| Rare Cancer Support Forum If you are newly diagnosed with a rare type of cancer or a pediatric cancer; you are no longer alone. | |
| Chordoma Support Group This is a peer group, for patients, family and friends, to offer support, friendship and understanding and shared experience. There are links posted to relevant on-line information, by qualified people and from reputable sources, but these cannot substitute for professional, medical advice. | |
| Canavan Disease Information Link |
Canavan Foundation, The Canavan disease is a relatively rare, but always fatal, inherited, degenerative brain disorder that primarily affects children of eastern and central European Jewish descent, which includes about 90 percent of the Jews in America. It is estimated that one in 40 Ashkenazi Jews is a of the Canavan gene. Currently, there is no cure for the disease, which usually becomes apparent when the infant is three to nine months old. |
| National Tay-Sachs & Allied Diseases Association NTSAD is dedicated to the treatment and prevention of Tay-Sachs, Canavan and related genetic diseases, and to providing information and support services to individuals and families affected by these diseases, as well as the public. Strategies for achieving these goals include research, family services, genetic screening, public and professional education and advocacy | |
| Canavan Disease Online Support Group A community of patients, family members and friends dedicated to dealing with Canavan Disease, together. | |
Canker Sores |
Canker Sores Small shallow ulcers that appear in the mouth and often make eating and talking uncomfortable. There are two types of canker sores.... |
| Canker Sores Support Group A community of patients, family members and friends dedicated to dealing with Canker Sores, together. | |
| Cardiomyopathy Informastion Links Cardiomyopathy (Dilated) Cardiomyopathy (Hypertrophic) Cardiomyopathy (Restrictive) |
Cardiomyopathy Association (UK) Cardiomyopathy occurs when the heart becomes abnormally enlarged, thickened and/or stiffened due to a number of factors. As a result, the enlarged heart is weakened and less able to pump enough blood to meet the body's oxygen needs. |
| Cardiomyopathy Support Group of Ireland The Irish Cardiomyopathy Support Group was set up in 1999 in association with the Irish Heart Foundation. The purpose of the support group is to create an awareness of the condition and to support people affected by it. | |
| Children's Cardiomyopathy Foundation As the only organization in the country whose primary focus is pediatric cardiomyopathy, the Foundation takes a leadership position in broadening the understanding of the disease. The Foundation plans to be a funding partner and the primary advocate for studies into the causes, diagnosis, treatment, and cure of pediatric cardiomyopathy. The Foundation hopes to also fill the void in physician and patient education and support. | |
| Carpal Tunnel Syndrome Information Link |
Carpal Tunnel Syndrome Support Group. Message Board Forum from Daily Strength. |
| Carpal Tunnel Syndrome Forum. From eHealth. Message board forum. | |
| Carpal Tunnel Syndrome "Carpal Tunnel Syndrome happens when the median nerve, which goes from the forearm into the hand, becomes squeezed at the wrist. Carpal Tunnel Syndrome can occur through injury, pregnancy, rheumatoid arthritis, or other conditions that can irritate the ligaments or tendons within the carpal tunnel to the extent that they become swollen, and compress the nerve. Some Carpal Tunnel Syndrome cases are suspected to be caused by repetitive motion over a long period of time, such as typing. " | |
| Carpal Tunnel Syndrome Support Group A community of patients, family members and friends dedicated to dealing with Carpal Tunnel Syndrome, together. | |
| Carpal Tunnel Syndrome Health Community and Support Group Through this Carpal Tunnel Syndrome support group, you can get Carpal Tunnel Syndrome information, share experiences about Carpal Tunnel Syndrome, connect with peers, and get answers to your Carpal Tunnel Syndrome questions from health professionals. | |
| Carpal Tunnel Syndrome Anonymous Support Group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Carpal Tunnel Syndrome. You're not alone. | |
| Celiac Disease Information Links: Celiac Disease Gluten Free Diet |
Celiac Disease Foundation A lifelong autoimmune intestinal disorder, found in individuals who are genetically susceptible. Damage to the mucosal surface of the small intestine is caused by an immunologically toxic reaction to the ingestion of gluten and interferes with the absorption of nutrients. |
| Celiac Sprue Association CSA/USA CSA is a member-based support organization dedicated to helping individuals with celiac disease (CD) and dermatitis herpetiformis (DH) and their families worldwide through information, education and research. | |
| National Foundation for Celiac Awareness NFCA, a national organization, is affiliated with the leading researchers in the US who are working toward this goal. The Foundation will support collaboration and partnership among scientists and institutions to optimize research potential. We have created an expert panel and competitive grant-making process to fund cutting edge research in the diagnosis and treatment of the disease. | |
| Gluten Intolerance Group The mission of the Gluten Intolerance Group of North America® is to provide support to persons with gluten intolerances, including celiac disease, dermatitis herpetiformis, and other gluten sensitivities, in order to live healthy lives. | |
| Celiac Disease Support Group A community of patients, family members and friends dedicated to dealing with Celiac Disease, together. | |
| A List of Local Celiac Disease Support Groups/Chapters (Two pages) United States only | |
| Celiac Disease Support From Supportgroups.com | |
| Cerebral Palsy Information Link |
United Cerebral Palsy (UCP) is the leading source of information on cerebral palsy and is a pivotal advocate for the rights of persons with any disability. As one of the largest health charities in America, the UCP mission is to advance the independence, productivity and full citizenship of people with disabilities through an affiliate network. (May be slow load) |
| Hemi-Kids Foundation Hemi-Kids is a support group where parents of children who have hemiplegia or hemiplegic cerebral palsy share support and information. Hemiplegic Cerebral Palsy is one type of cerebral palsy affecting one side of the body resulting from disease or injury to the motor centers of the brain. | |
| 4 My Child If your child has special needs, having ongoing support and feeling understood is critical to your emotional well-being, and to the health of your child. You may often wish you could just make the frustration go away. And sometimes, you not only want someone to listen, but to really hear you. To give you answers, with real solutions that can make a difference. | |
| Daily Strength - Cerebral Palsy Support Group Discussion boards |
|
| Cerebral Palsy Support Groups/Associations Worldwide | |
| Cerebral Palsy Support Group A community of patients, family members and friends dedicated to dealing with Cerebral Palsy, together. | |
| Cerebral Palsy Support Group Discussion boards | |
| Cervical Cancer Information Link |
National Cervical Cancer Coalition The National Cervical Cancer Coalition (NCCC) founded in 1997, is a grassroots nonprofit organization dedicated to serving women with, or at risk for, cervical cancer and HPV disease. |
| Daily Strength - Cervical Cancer Support Group Message boards and discsuuions. |
|
| Cervical Cancer Support Group A community of patients, family members and friends dedicated to dealing with Cervical Cancer, together. | |
| Cervical Cancer Support Message boards and discsuuions. | |
Support Groups Ch to Cl
"Ch" through "Cl"
| Charcot-Marie-Tooth Disease Information Link |
Charcot-Marie-Tooth Association CMT patients slowly lose normal use of their feet/legs and hands/arms as nerves to the extremities degenerate and the muscles in the extremities become weakened because of the loss of stimulation by the affected nerves. Many patients also have some loss of sensory nerve function. |
| Charcot-Marie-Tooth Disease Support Group A community of patients, family members and friends dedicated to dealing with Charcot-Marie-Tooth Disease, together. | |
| CHARGE Syndrome | CHARGE Syndrome Foundation CHARGE is an acronym referring to children with a specific pattern of birth defects. The acronym is: "C" for coloboma, "H" for heart defects, "A" for atresia choanae, "R" for retardation of growth and development, "G" for genitourinary problems, and "E" for ear abnormalities. A severe case with major developmental delay and growth retardation has a poor prognosis while one with surgically correctable malformations may lead a happy, healthy life. |
| Charge Syndrome Support Group A community of patients, family members and friends dedicated to dealing with Charge Syndrome, together. | |
| Daily Strength - CHARGE Syndrome Support Group Discussion boards |
|
| Charley Horses (See "Cramps") | |
| CHF – Chronic Heart Failure (see Heart Failure) | |
| Cholecystitis (Gallstones) Information Link |
Daily Strength DailyStrength.org is the most comprehensive health network of people sharing their advice, treatment experiences, and support. Keep a wellness journal, read members’ stories, and chat with new friends with over 500 support groups. |
| Cholecystitis Support Group A community of patients, family members and friends dedicated to dealing with Cholecystitis, together. | |
| Chiari Malformation - see Arnold Chiari Malformation | |
| Chiari | Syringomyelia Alliance Project The symptoms of SM are numerous and a person may have various combinations of different symptoms. Symptoms tend to develop slowly, although sudden onset may occur with coughing and straining. Some common symptoms include: loss of sensitivity, especially to hot and cold, muscle weakness and spasticity, motor impairment, loss of bowel and bladder control, as well as osteoporosis and scoliosis. The majority of patients suffer from headaches and chronic pain. |
| Child Abuse Also see our Abuse Index Also see Shaken Baby Syndrome Information Link: Child Abuse |
The Wounded Healer Journa. TWHJ is the oldest point of presence on the web for psychotherapists and others who have experienced the devastation of trauma including child abuse. |
| Fort Refuge A journey of healing from abuse we suffered: child abuse, incest, sexual assault, rape, domestic violence, ritual abuse, or psychological and verbal abuse. We feel that all types of abuse are damaging, and we do not minimize any person's experiences. It is our goal to reach out to as many fellow survivors as we can with compassion, understanding, and encouragement, | |
| Child Abuse Online Support Group A community of patients, family members and friends dedicated to dealing with Child Abuse, together. | |
| Preventing Child Abuse & Neglect Resources on child abuse prevention, protecting children from risk of abuse, and strengthening families. Includes information on supporting families, protective factors, public awareness, community activities, positive parenting, prevention programs, and more. | |
| How We Prevent Child Abuse and Neglect We believe that child abuse is preventable because typically child abuse grows gradually as a result of increasing stresses on the parent. Parents universally love their children but they may have poor parental role models from their childhood | |
| Circle of Parents Provides a friendly, supportive environment led by parents and other caregivers. It's a place where anyone in a parenting role can openly discuss the successes and challenges of raising children. Where they can find and share support. | |
| Parents Anonymous Leads a network of 267 organizations and local affiliates that implement quality programs for adults and children Provides training and technical assistance, develops publications and conducts research on meaningful Parent and Shared Leadership, systems reform and effective community-based strategies to strengthen families. | |
| Prevent Child Abuse America Building awareness, providing education and inspiring hope to everyone involved in the effort to prevent the abuse and neglect of our nation's children. Working with our chapters, we provide leadership to promote and implement prevention efforts at both the national and local levels. With the help of our state chapters and concerned individuals like you we're valuing children, strengthening families and engaging communities nationwide. | |
| Choledochal Cyst | Children’s Liver Disease Foundation Our vision is that childhood liver disease will be understood and fought effectively thereby ensuring that young people with liver disease and families will be able to take control of their lives and achieve their full potential. |
| I Have Choledochal Cyst Read hundreds of true stories, share your own story anonymously, get feedback and comments, chat in the discussion forum, help others, meet new friends, and so much more-- all free. | |
| Chorea Also see Huntington's Disease Information Link |
Worldwide Education and Awareness for Movement Disorders WE MOVE is the Internet's most comprehensive resource for movement disorder information and the hub of movement disorder activities on the web. |
| Huntington Chorea Support Group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Huntington Chorea. You're not alone. | |
| Chorea Familial Benign Support Group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Chorea Familial Benign. You're not alone. | |
| Choreoathetosis (Self Mutilation) |
Worldwide Education and Awareness for Movement Disorders WE MOVE is the Internet's most comprehensive resource for movement disorder information and the hub of movement disorder activities on the web. |
| Choreoathetosis Self-Mutilation Hyperuricemia Syndrome support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Choreoathetosis Self-Mutilation Hyperuricemia Syndrome. | |
| Chronic Fatigue Syndrome (Myalgic Encephalomyelitis ) Information Link |
ChronicFatigueSupport.com Imagine feeling exhausted after walking two blocks, having chronic sore throats and muscle and joint pain. Imagine your head feels stuffed with wet sand and when you try to read, words swim on the page. Imagine feeling heavy and sluggish rather than rested after a night's sleep. And imagine that these ailments last for years. These are some of the symptoms of chronic fatigue syndrome, also known as chronic fatigue and immune dysfunction syndrome or myalgic encephalomyelitis, a serious and disabling illness. |
| ChronicFatigueTreatments.com Message board forum | |
| Immunesupport.com We offer over 6,000 Fibromyalgia and Chronic Fatigue Syndrome articles and medical abstracts, current treatment advice from the world's leading FM & CFS specialists, and the world's busiest FM & CFS message boards. | |
| National ME/FM Action Network is a Canadian organization dedicated to advancing the recognition and understanding of Myalgic Encephalomyelitis / Chronic Fatigue Syndrome and Fibromyalgia Syndrome through education, advocacy, support, and research. | |
| Chronic Fatigue Syndrome Support Group A community of patients, family members and friends dedicated to dealing with Chronic Fatigue Syndrome, together. | |
| Daily Strength -
Chronic Fatigue Syndrome Support Group Discussion boards. |
|
| Chronic Fatigue Syndrome Discussion boards. | |
| CFS/M.E Support Groups Information and links | |
| Chronic Fatigue Syndrome Support Groups Telephone numbers for contacting local groups | |
| National ME/FM Action Network A Canadian organization dedicated to advancing the recognition and understanding of Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS) and Fibromyalgia Syndrome through education, advocacy, support, and research.The Network seeks to effect positive change in the attitudes, policies, and practices of government, medical governing bodies, business, the media, and the general public. | |
| Myalgic Encephalomyelitis Support Services (M.E.S.S.): M.E.S.S. is a volunteer organization dedicated to helping those who suffer from Myalgic Encephalomyelitis, also known as Chronic Fatigue Syndrome (CFS). By keeping abreast of current medical research into ME/CFS, as well as the latest treatment strategies , M.E.S.S. strives to foster understanding of this condition and the difficulties in living with it. | |
| The National Alliance for Myalgic Encephalomyelitis was established to address the issues of recognition and definition, and to raise awareness of this devastating neuroimmune disease that has afflicted nearly a million people in the U.S., and millions worldwide. | |
| Chronic Obstructive Pulmonary Disease (COPD) (Also see Asthma and Lung Diseases) Information Link |
Chronic Obstructive Pulmonary Disease Support Group Discussion boards |
| Chronic Obstructive Pulmonary Disease Online Health Community and Support Group Through this Chronic Obstructive Pulmonary Disease support group, you can get Chronic Obstructive Pulmonary Disease information, share experiences about Chronic Obstructive Pulmonary Disease, connect with peers, and get answers to your Chronic Obstructive Pulmonary Disease questions from health professionals. | |
| COPD Alert Support and advocacy group. | |
| Chronic Renal Insufficiency Information Link |
The Magic Foundation Major Aspects of Growth In Children (MAGIC) is made up of more than 25,000 families. The majority of us are parents of children with growth disorders and others are affected adults. Also see Kidney Diseases |
| Chromosome Disorders Also see specific conditions. |
Rare Chromosome Disorder Support Group (UK) You may have been given a diagnosis or indication of a chromosome disorder by a geneticist or other medical professional and they may have used a medical term which is unfamiliar to you. Rare chromosome disorders can be grouped as structural disorders, numerical disorders and other miscellaneous disorders. |
| Chromosome Disorder Support Group Facebook To inform, support and alleviate the isolation of anyone affected by a rare chromosome disorder and to raise public awareness. | |
| Chromosome Disorder Outreach Education, Advocacy, Information & Support For all those affected by a rare chromosome disorder | |
| Churg-Strauss Syndrome Information Link |
Churg Strauss Syndrome Association Dedicated to supporting and educating patients and their families who are afflicted with Churg Strauss Syndrome. |
| Churg-Strauss Syndrome Support Group A community of patients, family members and friends dedicated to dealing with Churg-Strauss Syndrome, together. | |
| Citrullinemia | Save Babies Through Screening Foundation, Inc. To improve the lives of babies by working to prevent disabilities and early death resulting from disorders detectable through newborn screening. Without proper screening affected children will likely suffer mental retardation, physical disability or even death. Most affected children can lead normal, healthy lives when diagnosed and started on treatment early. |
| Citrullinemia Support Group A community of patients, family members and friends dedicated to dealing with Citrullinemia, together. | |
| Classic Citrullinemia Support Group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Classic Citrullinemia. You're not alone. | |
| Cleft Palate Information Link |
American Cleft Palate-Craniofacial Association The Cleft Palate Foundation (CPF) is a non-profit organization dedicated to optimizing the quality of life for individuals affected by facial birth defects. It was founded by the American Cleft Palate-Craniofacial Association in 1973 to be the public service arm of the professional Association. |
| National Craniofacial Association The National Craniofacial Association has been dedicated to assisting children and adults who have craniofacial disorders resulting from disease, accident, or birth. | |
| Daily Strength - Cleft Lip / Palate Support Group Discussion board |
|
| Smiles A group of families who have developed a first-hand understanding of the needs of children with cleft lip, cleft palate and craniofacial deformities. Through our personal sensitivity, energy, knowledge, and love we are dedicated to improve the lives of children. | |
| Cleft Lip & Cleft Palate Meetup Groups Meet other local families affected by cleft lips/palates for support, info, and general conversation. | |
| Cleft Palate/Lip Support Group Message boards with graphic capability. | |
| Cleidocranial Dysplasia Information Link |
Shared Health Groups Must sign up to access group. |
| The National Craniofacial Association Information and links | |
| Cloaca | Pull-thru Network The Pull-thru Network is a volunteer-based organization dedicated to providing education, information, support and advocacy for those individuals, and the families of those individuals, who are affected by any congenital anorectal, colorectal or urogenital disorder and any of the variety of related diagnoses. |
Support Groups Cm - Cz
"Cm" through "Cz"
| Cockayne Syndrome | Share and Care Cockayne Syndrome Network Cockayne Syndrome is a rare form of dwarfism. It is genetic and recessively inherited. Classic CS is the most common form in which the first year of life is basically normal with the onset of symptoms in the second year of life. With CS type II or early-onset CS, the symptoms are displayed within the first year. |
| Cockayne Syndrome Website Select a language. Valuable information about Cockayne Syndrome and the community dealing with it worldwide. | |
| Amy & Friends (UK) Formed to facilitate the support of children and families suffering from Cockayne Syndrome in the UK. Our group consists of CS sufferers, their parents and siblings, their extended families, family friends, representatives from medical disciplines, non medical therapists and other interested parties. | |
| Cold Sores | Cold Sore Forum This is a community for people affected by the herpes and cold sore virus. You can post questions, read articles, get support and talk to people in live chat rooms |
| Cold Sores are also commonly known as fever blisters, oral herpes or herpes labialis. They are lesions that occur on the mouth, lip and facial area and are caused by the Herpes simplex virus. | |
| I Hate Cold-sores Read true personal stories, chat & get advice, support and help from people who all say 'I Hate Cold-sores' | |
| Colic Information Link |
Colic Support Millions of us go through it. Is it colic? What is colic? Is it the wrong diet? Is your baby hurting? So many questions. But it is important to know that you are not alone. It is a very serious matter and we need to support each other. Come here to vent out your frustrations and hear words of encouragement. |
| Colic Support Group Message board. Also has Facebook link. | |
| Establishing a Colic Support Group Parents with colicky babies often feel isolated and overwhelmed by their responsibilities. By establishing a colic support group, you can help other parents who are dealing with similar circumstances, while giving yourself a much needed outlet for the stress of dealing with your baby’s colic. | |
| Colitis Also seeCrohn's Disease Information Links: Colitis Ulcerative Colitis Colitis From Antibiotics |
Colitis Foundation Ulcerative colitis is an inflammatory disease of the colon and rectum. Ulcerative colitis may involve a larger portion of colon or even the entire colon. The rectum is almost always inflamed at the onset of this illness. Also, colitis is continuous and not patchy-(in laymen terms)-It stays where it is and doesn't manifest itself in one place then another. If its located in the rectum, then that's where it will stay. If it is the rectum and sigmoid colon which is infected, then only these two places will contain the disease. |
| National Asso. for Colitis and Crohn's Disease (UK) The National Association for Colitis and Crohn's Disease brings together people of all ages who have Ulcerative Colitis or Crohn’s Disease, their families and the health professionals involved in their care. These two illnesses are both forms of Inflammatory Bowel Disease. | |
| Ulcerative Colitis Online Support Group A community of patients, family members and friends dedicated to dealing with Ulcerative Colitis, together. | |
| Colitis Information Information and discussion area. | |
| Colitis Support Group Join the 'Colitis' group to help and get support from people like you. | |
| I Have Ulcerative Colitis Read true personal stories, chat & get advice, support and help from a group of 96 people who all say 'I Have Ulcerative Colitis' | |
| Color Blindness Information Link |
Daily Strength DailyStrength.org is the most comprehensive health network of people sharing their advice, treatment experiences, and support. Keep a wellness journal, read members’ stories, and chat with new friends with over 500 support groups. |
| Colblindor: Color Blindness viewed through Colorblind Eye Information with communication opportunities. | |
| Color Blindness Support Group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Color Blindness. | |
| Color Blindness Support Group Get advice and support from thousands of patients like you. | |
| Color Blindness Support Group A community of patients, family members and friends dedicated to dealing with Color Blindness, together. | |
| Colorectal Cancer Information Links Cancer of the Anus Cancer Of The Bladder Cancer of the Colon |
Colon Cancer Alliance (CCA) Colorectal Cancer is the second leading cancer killer trailing only lung cancer in annual US cancer deaths. The American Cancer Society estimates that in United States 148,610 of colorectal cancer will be diagnosed in 2006 and 55,170 deaths will occur. Fortunately, colorectal cancer is easily detectable with screening techniques that can catch the cancer when it is still treatable. |
| Speaking Up About Colorectal Cancer "Don't be shy about colorectal cancer. Be part of the cure by volunteering and donating to those working to stop this disease. Learn more about how to stay healthy now, and how to be able to detect this cancer in it earliest, most treatable stages if necessary." | |
| C3: Colorectal Cancer Coalition C3™ pushes for research to improve screening, diagnosis, and treatment of colorectal cancer; for policy decisions that make the most effective colorectal cancer prevention and treatment available to all; and for increased awareness that colorectal cancer is preventable, treatable, and beatable. | |
| Hereditary Colon Cancer Association HCCA's mission is to promote awareness, education and prevention of hereditary colon cancer and raise awareness for the need for more research to find better treatments for those who are at risk and currently have a hereditary colon cancer. | |
| Colorectal Cancer Support Group Inspire connects patients, families, friends, caregivers and health professionals for health and wellness support. Inspire works with trusted health partners to build safe and secure health and wellness groups. | |
| Daily Strength - Colon Cancer Support Group Message boards and discussions |
|
| WebMD® Colorectal Cancer Community Message boards and discussions | |
| Colorectal Cancer Advocacy, Education, and Support Groups The following organizations provide a variety of support programs and educational materials for people with colorectal cancer and their family members, caregivers, and friends. | |
| Support and Advocacy Groups: Colorectal Cancer Lists of organizations with contact information. | |
| Coma Information Link |
Coma Recovery Association Our purpose is to help families of coma and head injury survivors by providing information and referrals, enabling them to make informed choices regarding treatment, rehabilitation and socialization alternatives as well as support from others who struggle with similar concerns. |
| Coma Waiting Page We provide information About Brain Injury: Intracranial Pressure, Coma, The Rancho Los Amigos Scale, Neurosurgery, Brain Anatomy, Brain Functions and Pathology, and a complete Glossary of terms you may encounter. | |
| Daily Strength - Coma Support Group Discussion boards |
|
| Coma Boards This online group on coma will help you reach doctors who are familiar with the condition and others who are coping with loved ones in coma. | |
| Concussion Information Link |
Brain Injury and Post Concussion Discussion board |
| Brain Concussion Support Group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Brain Concussion. You're not alone. | |
| Congenital Heart Defect Information Links |
Congenital Heart Defects.com Congenital heart defects are responsible for more deaths in the first year of life than any other birth defects, the National Institutes of Health reports. This site is devoted to providing information to members of the world-wide congenital heart defect community. |
| Congenital Heart Information Network C.H.I.N. is a national organization that provides reliable information, support services, financial assistance and resources to families of children with congenital heart defects and acquired heart disease, adults with congenital heart defects, and the professionals who work with them | |
| Kids with Heart National Association for Children's Heart Disorder Our organization was formed in 1985 with the main mission of providing support, information, and education for the families of the children living with congneital heart defects and to promote public awareness of the issues that these families live with on a day to day basis. | |
| Adult Congential Heart Association The Adult Congenital Heart Association (ACHA) is a nonprofit organization which seeks to improve the quality of life and extend the lives of adults with congenital heart defects. Through education, outreach, advocacy and promotion of research, ACHA serves and supports the more than one million adults with congenital heart defects, their families and the medical community. | |
| Support Groups: Adults with Congenital Heart Defects World-wide: Here are some links which you might find helpful. | |
| PD Heart Founded in 1995, is a very active online support group and discussion forum for parents, family members and adults with congenital heart defects. If you have a child with CHD, if you have CHD yourself, or if you are a concerned individual, please join us! | |
| Little Hearts Newly diagnosed with a baby having a congenital heart defect? Looking to talk with another family who understands what you're going through? You're not alone. Let us help and put you in touch with other heart families today or join us on our email support group. | |
| Congenital Heart Defect Information Whether you are looking for definitions of medical terms, hospitals caring for people with CHDs, other people with whom you can network and share experiences, links to support groups, articles regarding CHDs, or resources for the CHD community, you have come to the right place! | |
Congestive Heart Failure (CHF)
Also see |
Understanding Heart Disease. "Heart failure is a condition in which the heart can't pump enough blood throughout the body. Heart failure does not mean that your heart has stopped or is about to stop working. It means that your heart is not able to pump blood the way it should." |
| Daily Strength - Heart Failure Support Group. "Congestive heart failure, also called congestive cardiac failure or just heart failure, is a condition that can result from any structural or functional cardiac disorder" | |
| Congestive Heart Failure. "Despite its name, “congestive heart failure” doesn’t refer to a condition in which the heart suddenly fails or stops. Instead, it refers to a more gradual decline in the heart’s ability to pump blood efficiently. While the heart continues to pump, the blood flow out of the heart slows, causing blood to back up in the veins and fluid to build up (congest) in tissues throughout the body." | |
| Congestive Heart Failure Support Groups and Forums In a support group, members provide each other with various types of help, usually nonprofessional and nonmaterial, for a particular shared, usually burdensome, characteristic. The help may take the form of providing and evaluating relevant information, relating personal experiences, listening to and accepting others' experiences, providing sympathetic understanding and establishing social networks | |
| Conduct Disorders See Behaviorial Disorders | |
| Cooley's Anemia (also called thalassemia Information Link |
Cooley's Anemia Foundation This information is for patients and their families, medical personnel, donors, Foundation volunteers, and anyone interested in learning about Cooley's Anemia and other forms of the genetic blood disorder, thalassemia. |
| Cooley's Anemia Support Group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Cooley's Anemia. You're not alone. | |
| Cornelia de Lange Syndrome | Cornelia de Lange Syndrome Foundation A disorder that causes a delay in physical, intellectual, and language development. The vast majority of children with CdLS are mentally retarded, with the degree of mental retardation ranging from mild to severe. Reported IQ's from 30 to 85. The head and facial features include small head size, thin eyebrows often meet at the midline, long eyelashes, short upturned nose, thin downturned lips, low set ears and high arched or cleft palate. |
| Cornelia De Lange Syndrome Support Group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Cornelia De Lange Syndrome 1. You're not alone. | |
| Cornelia de Lange Syndrome Support Group Cornelia de Lange syndrome is a developmental disorder that affects many parts of the body. The features of this disorder vary widely among affected individuals and range from relatively mild to severe. Cornelia de Lange syndrome is characterized by slow growth before and after birth, mental retardation that is usually severe to profound, abnormalities involving the arms and hands, and distinctive facial features. | |
| The Cornelia de Lange Syndrome Association (Australasia) A family support organisation which exists to ensure the early and accurate diagnosis of CdLS, promote research into the cause and manifestations of the syndrome, and help people with a diagnosis of CdLS, and other with similar characteristics, make informed decisions throughout their lifetime. | |
| Cornelia de Lange Syndrome Canada Exists to ensure an early and accurate diagnosis of CdLS throughout Canada, promote research into the causes and manifestations of the syndrome, and enable individuals, families, friends and professionals to make informed decisions throughout their lifetimes and thus plan for the affected person's present and future. | |
| Corpus Callosum | National Organization of Disorders of the Corpus Callosum NODCC aims to enhance the quality of life and promote opportunities for individuals with disorders of the corpus callosum and raise the profile, understanding and acceptance of these disorders through research, education, advocacy and networking. |
| Agenesis of the Corpus Callosum Network An international network to provide information and a communication link for individuals with brain anomalies involving the corpus callosum, their families and the professionals who work with them. | |
| Angels Around The World A place for parents to connect and learn and find other parents through the many links so that they don't have to be alone in their thoughts, their feelings and their numerous questions. | |
| Corpal (UK) Corpal is a not-for-profit support group and charity run by parents, families and carers of children and adults who have ACC or Aicardi Syndrome.This website has been set up to provide support and information for parents and sufferers of these conditions. | |
| Corticobasal Degeneration | Worldwide Education and Awareness for Movement Disorders WE MOVE is the Internet's most comprehensive resource for movement disorder information and the hub of movement disorder activities on the web. |
| Costochondritis & Tietze Syndrome Information Link |
Costochondritis Tietze Syndrome Support Group Our community has shared over 6 million life experiences, so we've got what you're looking for. Read true personal stories, and connect free with the people who've had them |
| Costochondritis and Tietze's Syndrome Support Message boards | |
| Costochondritis and Tietze's Syndrome Support On MySpace | |
| Coxsackie Virus Information Link |
Coxsackievirus Infections Support Group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Coxsackievirus Infections. You're not alone. |
| Cramps (Charley Horses) Information Links: Muscle Cramps |
Night leg cramps: What causes them? "A muscle cramp is an involuntary, sustained tightening (contraction) of one or more of your muscles. It can result in intense pain and an inability to use the affected muscles." |
| Leg Cramps (From About.com) "A muscle cramp is a sudden, uncontrolled contraction of a muscle. This type of pain is most commonly experienced in the legs, and therefore often called a leg cramp or a "charley horse." " | |
| Nocturnal Leg Cramps Support Group To help and get support from people like you. Discussion boards. | |
| I Get Leg Cramps Read true personal stories, chat & get advice, support and help from a group of 23 people who all say 'I Get Leg Cramps' | |
| Creutzfeldt-Jakob Disease Information Link |
Creutzfeldt-Jakob Disease Foundation Prion diseases are a group of rare, invariably fatal brain disorders which occur both in humans and certain animals. Tissue from infected animals may have contaminated cattle feed, leading to the silent spread of the BSE epidemic. |
| Many Faces of Creutzfeldt-Jakob Disease Creutzfeldt-Jakob Disease is a horrendous infectious rapidly progressive fatal brain-deteriorating disease for which there is no treatment or cure. CJD often escapes detection. The personal stories on this website put a face on CJD. The stories are written by teenagers and adults. Most of the stories tell of people who have died of CJD or currently have CJD. These stories describe the symptoms and progression of the disease as well as the problems in getting it correctly diagnosed. | |
| Creutzfeldt-Jakob Disease Support Group A community of patients, family members and friends dedicated to dealing with Creutzfeldt-Jakob Disease, together. | |
| Creutzfeldt-Jakob Disease Support Group The Creutzfeldt-Jakob disease support group and health community is for individuals and family members of individuals who have been diagnosed with Creutzfeldt-Jakob disease | |
| CJD Support Network A patient support group providing help and support for people with all strains of Creutzfeldt-Jakob disease, their carers and concerned professionals. | |
| CJD Support Group Network (Australia) Provides information and support to families who are caring for, or coming to terms with the loss of a loved one to CJD and assists people who are ‘at increased risk of CJD’ by promoting an environment in the health care setting where patients feel comfortable and confident of receiving equity of care when disclosing their ‘at risk of CJD’ status. | |
| Daily Strength -
Creutzfeldt-Jakob Disease Support Group Discussion boards. |
|
| Cri-du-chat syndrome | Cri Du Chat Syndrome Support Group (UK) Cri Du Chat Syndrome is an abnormality resulting in the deletion of part of the short arm of chromosome 5. At birth, the main clinical diagnostic feature of the syndrome is a high pitched, monochromatic ‘cat-like’ cry that is always present in the new-born but may disappear with age. Most children with CDCS will have feeding problems from birth including failure to thrive, poor sucking and slow weight gain. |
| Daily Strength DailyStrength.org is the most comprehensive health network of people sharing their advice, treatment experiences, and support. Keep a wellness journal, read members’ stories, and chat with new friends with over 500 support groups. | |
| Cri du Chat Support Group of Australia We provide support, information and contact to families who have a family member with Cri du Chat syndrome or other abnormality of chromosome five in Australia. | |
| Crohn's Disease Information Link |
Crohn's and Colitis Foundation of America A nonprofit, volunteer-driven organization dedicated to finding the cure for Crohn's disease and ulcerative colitis. When you or your loved one is first diagnosed with inflammatory bowel disease, you probably feel overwhelmed. |
| Crohn's Disease Resource Center From HealingWell.com. | |
| Teens With Crohn's Disease I was first diagnosed with Crohn's Disease nearly ten years ago and, being a teenager at the time, I found it difficult to talk to others about the disease that did not have it. I created this site as a place to share stories and information - for teens, by teens - with Crohn's Disease. | |
| National Asso. for Colitis and Crohn's Disease (UK) The National Association for Colitis and Crohn's Disease (NACC) brings together people of all ages who have Ulcerative Colitis or Crohn’s Disease, their families and the health professionals involved in their care. These two illnesses are both forms of Inflammatory Bowel Disease (IBD) | |
| Paratuberculosis Awareness & Research Association (PARA)Crohn's disease is a painful, chronic, often debilitating, inflammatory disease of the intestinal tract that affects at least 500,000 Americans, and millions more worldwide. It primarily targets young people in the prime of life, between the ages of 15 and 25. | |
| Crohn's Disease Support Group A community of patients, family members and friends dedicated to dealing with Crohn's Disease, together | |
| Crohns Disease Discussion boards. | |
| Daily Strength -
Crohn's Disease & Ulcerative Colitis Support Group Discussion boards |
|
| Crohn's Forum A community of friends, connected by our lives being affected by IBD - either personally or with someone we care about, and we welcome new members to the forum. We offer support, understanding, and friendship. | |
| Crohn's Disease Support Network This network's goal is to help people living with Crohn's Disease, along with the families and friends of Crohn's patients. Family members and friends need support also because it is never easy to see someone you care about suffer. | |
| Croup Information Link |
Croup Support Group A community of patients, family members and friends dedicated to dealing with Croup, together. |
| Croup Support Group Discussion board | |
| Crouzon Syndrome | National Craniofacial Association The National Craniofacial Association has been dedicated to assisting children and adults who have craniofacial disorders resulting from disease, accident, or birth. |
| Crouzon Support Network Information and support for individuals and families affected by Crouzon Syndrome and related craniofacial anomalies. | |
| Daily Strength - Crouzon Syndrome Support Group Discussion boards. |
|
| Cushing's Syndrome Information Link |
Cushing's Help and Support Cushing's syndrome occurs when the body's tissues are exposed to excessive levels of cortisol for long periods of time. Many people suffer the symptoms of Cushing's syndrome because they take glucocorticoid hormones such as prednisone for asthma, rheumatoid arthritis, lupus or other inflammatory diseases. Symptoms vary, but most people have upper body obesity, rounded face, increased fat around the neck, and thinning arms and legs. |
| Daily Strength -
Cushing's Syndrome Support Group Discussion boards |
|
| Cushing's Understanding Support & Help Organization To provide current information on this rare disease, to further the medical professions awareness, knowledge and understanding, to aid in the education of persons with Cushing’s, their families and the general public and to encourage local support meetings. | |
| Cystic Fibrosis Information Link |
Cystic Fibrosis Foundation Cystic fibrosis (CF) is a life-threatening disease that causes mucus to build up and clog some of the organs in the body, particularly in the lungs and pancreas. When mucus clogs the lungs, it can make breathing very difficult. The thick mucus also causes bacteria (or germs) to get stuck in the airways, which causes inflammation (or swelling) and infections that leads to lung damage. |
| Cystic Fibrosis Support Group. "A community of patients, family members and friends dedicated to dealing with Cystic Fibrosis, together" | |
| Boomer Esiason Foundation The Boomer Esiason Foundation is a partnership of leaders in the medical and business communities joining with a committed core of volunteers to provide financial support to research aimed at finding a cure for cystic fibrosis. The Foundation works to heighten education and awareness of cystic fibrosis and to provide a better quality of life for those affected by cystic fibrosis. | |
| International Association of Cystic Fibrosis Adults (IACFA)Cystic Fibrosis Worldwide works to promote access to appropriate care and education to those people living with the disease in developing countries and to improve the knowledge of CF among medical professionals and governments worldwide. | |
| Save Babies Through Screening Foundation, Inc. To improve the lives of babies by working to prevent disabilities and early death resulting from disorders detectable through newborn screening. Without proper screening affected children will likely suffer mental retardation, physical disability or even death. Most affected children can lead normal, healthy lives when diagnosed and started on treatment early. | |
| International Cystic Fibrosis Support Group Our purpose is to disseminate information concerning Cystic Fibrosis. To give support to those involved with the disease and to provide a forum for the discussion of topics relative to Cystic Fibrosis. | |
| Daily Strength -
Cystic Fibrosis Support Group Discussion boards. |
|
| Cystic-L A free email service dedicated to the exchange of information and support specific to cystic fibrosis. | |
| Cystic Fibrosis Support Group This is a place to find others to discuss and chat about cystic fibrosis. | |
| CF Living Information and support site from drug maker Genentech. | |
| Cystinosis |
Cystinosis Foundation Family Support Information, links and message board forum. |
| Cystinosis Research Network The Support Groups are an easy way to communicate with the cystinosis community | |
| Australian Cystinosis Support Group To provide information and support for families and friends living with Cystinosis. | |
| Daily Strength -
Cystinosis Support Group Discussion boards. |
|
| Cystinosis Support Group A community of patients, family members and friends dedicated to dealing with Cystinosis, together. | |
Support Groups "Da" through "De"
"Da" through "De"
| Deaf & Hearing Loss Information Links: Deafness Detecting Hearing Loss in Children Ear Ache Ear Infection Tinnitus Ear Wax Objects Or Insects In Ear |
Alexander Graham Bell Association for the Deaf and Hard of Hearing (AG Bell) A lifelong resource, support network and advocate for listening, learning, talking and living independently with hearing loss. Through publications, outreach, training, scholarships and financial aid, AG Bell promotes the use of spoken language and hearing technology. |
| Hearing Loss Association of America is a national consumer organization representing people who are hard of hearing and provides technical assistance for selecting Assistive Listening systems. | |
| National Association of the Deaf is a national consumer organization representing people who are deaf and hard of hearing. | |
| Center for Hearing and Communication The Center for Hearing and Communication is a leading hearing center offering state-of-the-art hearing testing, hearing aid fitting, speech therapy and full range of services for people of all ages with hearing loss. Visit our offices in New York City and Florida for services that meet all of your hearing and communication needs. | |
| The Vestibular Disorders Association (VEDA) Vestibular (inner ear) disorders can cause dizziness, vertigo, imbalance, hearing changes, nausea, fatigue, anxiety, difficulty concentrating, and other symptoms, with potentially devastating effects on a person's day-to-day functioning, ability to work, relationships with family and friends, and quality of life. | |
| American Tinnitus Association Tinnitus is the perception of ringing, buzzing, roaring, or other noises in the ears or head – when there is no external source of the noise. | |
| Better Hearing Institute The Better Hearing Institute educates the public about the neglected problem of hearing loss and what can be done about it. We are working to: erase the stigma and end the embarrassment that prevents millions of people from seeking help for hearing loss, Show the negative consequences of untreated hearing loss for millions of Americans, and promote treatment and demonstrate that this is a national problem that can be solved. | |
| American Society for Deaf Children We believe deaf or hard-of-hearing children are entitled to full communication access in their home, school, and community. We also believe that language development, respect for the Deaf, and access to deaf and hard-of-hearing role models are important to assure optimal intellectual, social, and emotional development. For this role, parents need education, access to information, and support. | |
| National Deaf Education Network & Clearinghouse Committed to developing the full Potential of deaf and hard of hearing students from diverse linguistic and cultural backgrounds who have a variety of abilities, skills, and experiences. Our goal is to provide an education that is academically challenging and fully accessible, where students develop a positive sense of self-worth and broad-based literacy. | |
| Deaf/Blind | Deafblind International DbI brings together professionals, researchers, families, deafblind people and administrators to raise awareness of deafblindness. Central to our work is to support the development of services to enable a good quality of life for deafblind children and adults of all ages. |
| Deafblind Childrem Fund The DeafBlind Children's Fund is improving the lives of deafblind children through education, awareness, and advocacy to ensure every deafblind child is given the opportunity to achieve their highest potential. | |
| Helen Keller National Center for Deaf-Blind For over 110 years, Helen Keller Services for the Blind (HKSB) has been a pioneer in the field of blindness rehabilitation. Our mission is to help individuals of all ages who are blind or visually impaired, and who may have additional disabilities, to develop independence and to participate actively in their communities. | |
| National Family Association for Deaf-Blind The National Family Association for Deaf-Blind (NFADB) is a non-profit, volunteer-based family association. Our philosophy is that individuals who are deaf-blind are valued members of society and are entitled to the same opportunities and choices as other members of the community. | |
| National Consortium On Deaf-Blindness Our goal is to help parents, teachers, and others by providing them with information to foster the skills, strategies and confidence necessary to nurture and empower deaf-blind children. | |
| Dementia Also see Alzheimer's Information Links: Dementia Binswanger's Disease |
Dementia Support Group is an online collection of resources and help for supporting people with dementia, their carers, family or friends. |
| Dementia Advocacy and Support Network DASNI activities currently include an Internet-based support group for people with various dementias and those involved with our well-being. DASNI has an email community. Twice-daily Internet chats in a chat room help ease the isolation of dementia and educates participants about living with their diseases. | |
| Dementia Support Share your stories, helpful websites, news reports and anything else that you think might help friends and family members of those with Dementia. | |
| Daily Strength - Dementia Support Group - Discussion boards | |
| Frontotemporal Dementia - Pick's Disease Maybe you have a spouse or loved one who is acting strangely, maybe repeating certain acts or inappropriate behaviors, exhibiting compulsive behaviors, or just not being the same person you once knew. You may be here to learn more about dementia and more specifically about Frontotemporal Dementia. | |
| Dementia Support Groups Although most of the people who develop dementia are over the age of 60, it's important to remember that dementia is not a normal part of growing old, and most older people never develop dementia. | |
| Dementia Support Group A community of patients, family members and friends dedicated to dealing with Dementia, together. | |
| AstridGuide Having a disease can really be difficult. One has to undergo several treatments and medications just to alleviate the pain and suffering brought about by the condition. But it must be much more difficult if the patient’s condition is that of a memory loss and degradation in mental ability. | |
| Early Onset Dementia Resource center | |
| I Have Early Onset Dementia Read true personal stories, chat & get advice, support and help from people who all say 'I Have Early Onset Dementia' | |
| DeMorsier's Syndrome | The Magic Foundation Major Aspects of Growth In Children (MAGIC) is made up of more than 25,000 families. The majority of us are parents of children with growth disorders and others are affected adults. |
| De Morsier's Syndrome Rare disorder, present at birth, in which the optic nerve is underdeveloped, the pituitary gland does not function properly, and often a portion of brain tissue is not formed. De Morsier's Syndrome, also known as septo-optic dysplasia, may cause blindness in one or both eyes and is also often accompanied by nystagmus and various other symptoms. | |
| Dengue Fever Information Link |
DailyStrength - Dengue Fever Support Group People sharing their advice, treatment experiences, and support. Keep a wellness journal, read members’ stories, and chat. |
| Dengue Fever Support Group A community of patients, family members and friends dedicated to dealing with Dengue Fever, together. | |
| Dengue Fever Support Group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Dengue Fever. You're not alone. | |
| Dental and Oral Conditions Information Links: Teeth and Gum Care Caring for Teeth With Braces or Retainers Caring for Dentures Choosing Toothbrush Choosing Toothpaste Dental Fillings Dental Bonding Dental Braces Dental Bridges Dental Care for Babies Dental Injuries Oral Health Problems in Children |
Dental Health Support Group You can use our online Support Group for Dental Health to find resources and services, and share ideas with others on dental care. |
| Gum Disease Online Support Group A community of patients, family members and friends dedicated to dealing with Gum Disease, together. | |
| Oral and Dental Conditions Support Group Discussion boards | |
| Dental Implant Support From WebMD | |
| I Have Dental Implants For those of us that don't have all of our teeth!! | |
| TMJ Support Group A community of patients, family members and friends dedicated to dealing with TMJ, together. | |
| Daily Dtrength - TMJ Support Group Discussion boards |
|
| TMJ Support Group Get advice and support from thousands of patients like you Join this community | |
| Temporomandibular Joint Dysfunction A problem in the jaw and surrounding areas of the head and neck that causes pain, discomfort, and disability in millions of people each year. We want everyone to feel comfortable posting whatever questions you may have, or any information that may help someone else. | |
| TMJ Forum A health community featuring member and doctor discussions ranging from a specific symptom to related conditions, treatment options, medication, side effects, diet, and emotional issues surrounding medical conditions. | |
| Dental Fear Central The web's biggest Dental Phobia, Dental Fear and Dental Anxiety Resource | |
| Daily Strength - Dental Anxiety Support Group Message boards. |
|
| Beyond Fear (Australia) a free online dental phobia self-help resource provided by Solutions Simply For You - simple, safe and effective life changing solutions. | |
| Dental Phobia Forum If this is your first visit, be sure to check out the FAQ by clicking the link above. You need to register before you can post: click the register link above to proceed. | |
| Oral Cancer Online Health Community and Support Group Through this Oral Cancer support group, you can get Oral Cancer information, share experiences about Oral Cancer, connect with peers, and get answers to your Oral Cancer questions from health professionals. | |
| The Oral Cancer Support Forum Message boards. | |
| Lip Oral Cancer Support Group A community of patients, family members and friends dedicated to dealing with Lip Oral Cancer, together. | |
| Oral Health Community From WebMD | |
| Bad Breath Forum Message boards | |
| Bad Breath Support Group A community of patients, family members and friends dedicated to dealing with Bad Breath, together. | |
| Dry Mouth Support You are currently viewing our boards as a guest which gives you limited access to view most discussions and our other features. By joining our free community you will have access to post topics, communicate privately with other members (PM), respond to polls, upload content and access many other special features. | |
| Dry Mouth Support Group A community of patients, family members and friends dedicated to dealing with Dry Mouth, together. | |
| Depression Information Links: Depression Depression During Holidays Depression in Children Depression in Teenagers Depression in the Elderly Depressive Episodes Mania (Depression) Manic Depressive (Bipolar Disorder) |
Depression Alliance We work to relieve and to prevent this treatable condition by providing information and support services. We also campaign to raise awareness amongst the general public about the realities of depression. |
| Families for Depression Awareness Families that work together are best able to cope with depressive disorders. Our organization, Families for Depression Awareness, helps people in caregiver roles and people with depressive disorders understand the conditions, reduce stigma, and share issues. | |
| Freedom From Fear The mission of FFF is to impact, in a positive way, the lives of all those affected by anxiety, depression, and related disorders through advocacy, education, research and community support | |
| National Foundation For Depressive Illness, Inc. Dedicated to researching causes of depression, to support those dealing with depression, and to combat the stigma associated with depression. Though several organizations deal with mental illness, few, if any, actually focus internationally on depression in an encouraging, enlightening way. | |
| Wing of Madness: For Teenagers With Depression Dedicated to disseminating information about depression. "A depression guide for consumers" The goal is to disseminate clear, understandable information about depression on this page. If you're suffering from depression, the last thing you need is to wade through confusing, contradictory information or medical mumbo-jumbo. | |
| Depressive and BiPolar Support Alliance The leading patient-directed national organization focusing on the most prevalent mental illnesses. The organization fosters an environment of understanding about the impact and management of these life-threatening illnesses by providing up-to-date, scientifically based tools and information written in language the general public can understand. | |
| National Mental Health Association Mental Health America is the country’s leading nonprofit dedicated to helping ALL people live mentally healthier lives. | |
| Help For Depression We aim to provide a comprehensive (or as comprehensive as possible) explanation of the various approaches and treatments for depression as a critical starting point for individuals and/or their loved ones. | |
| National Alliance for the Mentally Ill The nation’s largest grassroots mental health organization dedicated to improving the lives of persons living with serious mental illness and their families who join together to meet the NAMI mission through advocacy, research, support, and education. | |
| Dermatitis Herpetiformis | Dermatitis Herpetiformis Online Community (UK) The typical features are small grouped itchy blisters, often on red plaques, situated on the back of the elbows and forearms, buttocks and front of the knees. Although these are the common sites the rash may in addition, occur anywhere on the body including face, scalp and trunk. The eruption is extremely itchy and may keep patients awake at night. |
| Dermatitis Herpetiformis You are currently viewing our boards as a guest which gives you limited access to view most discussions and our other features. By joining our free community you will have access to post topics, communicate privately with other members, respond to polls, upload content and access many other special features | |
| Dermatitis Herpetiformis Support Group A community of patients, family members and friends dedicated to dealing with Dermatitis Herpetiformis, together. | |
| Developmental Disorders Also see Autism Asperger's Syndrome Information Links: Developmental Coordination Disorder (Learning Disability) Pervasive Development Disorders |
Eunice Kennedy Shriver Center The Eunice Kennedy Shriver Center has been a pioneer in research, education, and service for people with developmental disabilities and their families for over three decades. |
| Mahalo Pervasive developmental disorder (PPD) is a group of five developmental children's diseases that present as delays in socialization and communication skills. Children with PPD have problems talking, playing with others and expressing how they feel. | |
| Developmental Disabilities Resource Board As you navigate our website you will see that the DDRB offers information on a variety of developmental disability issues including a resource directory, current state legislation, support groups, planning for the future and much more. | |
| Developmental & Learning Disorders Resource support discussions. Links to several groups. | |
| PDD Support Home Page These pages are meant to provide a central meeting place for those interested in, or coping with, children diagnosed with PDD (Pervasive Developmental Disorders). Although related to Autism, there are relatively few sources of information on the Web specifically devoted to PDD. | |
Support Groups "Di" through "Dz"
"Di" through "Dz"
| Diabetes in formation and Organizations See below for Diabetic Support Groups Information Links: Diabetes and Eye Problems Diabetes and Glaucoma Diabetes and Kidney Disease Diabetes and Eye Problems Diabetes and Sex Diabetes Drugs Diabetes Insipidus Diabetes Medications Diabetes Mellitus Diabetes Of Pregnancy Diabetes Prevention Diabetes Treatment Diabetic Encephalopathy Diabetic Home Care and Monitoring Hyperglycemi Diabetic Neuropathy Insulin Resistance |
Diabetes Action Research and Education Foundation The Diabetes Action Research and Education Foundation is committed to the prevention and treatment of diabetes and to the funding of innovative, promising research aimed at finding a cure for diabetes and diabetes related complications. |
| Diabetes Exercise and Sports Association (DESA) Diabetes Exercise & Sports Association (DESA) exists to enhance the quality of life for people with diabetes through exercise and physical fitness. | |
| Diabetes Insipidus Foundation The mission is to improved treatment, and ultimately the prevention and cure of all forms of diabetes insipidus through research. We will promote a greater public awareness and understanding of the disease. Diabetes Insipidus is a disorder in which there is an abnormal increase in urine output, fluid intake and often thirst. | |
| Diabetes Research Institute Foundation The Diabetes Research Institute is a recognized world leader in cure-focused research. Since its inception in the early 1970s, the DRI has made significant contributions to the field of diabetes research, pioneering many of the techniques used in islet cell transplantation. | |
| American Association of Diabetes Educators AADE is a professional association dedicated to promoting the expertise of the diabetes educator, ensuring the delivery of quality diabetes self-management training to the patient and contributing to the future direction of the profession. | |
| American Diabetes Association The American Diabetes Association is the nation's leading nonprofit health organization providing diabetes research, information and advocacy. The mission of the Association is to prevent and cure diabetes and to improve the lives of all people affected by diabetes. | |
| Defeat Diabetes Foundation The mission is to inform, educate and alert the general public, diabetics, pre-diabetics and elected officials about the disease, its prevention and the consequences of undiagnosed and/or poorly managed diabetes and to provide accurate, up-to-date and practical information on the treatment and self-management of the disease. | |
| International Diabetes Foundation A worldwide alliance of 200 diabetes associations in 158 countries, who have come together to enhance the lives of people with diabetes everywhere. The Federation is committed to raising global awareness of diabetes, promoting appropriate diabetes care and prevention, and encouraging activities towards finding a cure for the different types of diabetes. It is the mission of IDF to promote diabetes care, prevention and a cure worldwide. | |
| Society for Pediatric and Adolescent Diabetes (Germany) A professional organization whose aims are to promote clinical and base science, education and advocacy in childhood and adolescent diabetes. The strength of ISPAD lies in the scientific and clinical expertise in childhood and adolescent diabetes of its members. ISPAD is the only international society focusing specifically on all types of childhood diabetes. | |
| Joslin Diabetes Center The only diabetes institution in the world that goes beyond a single focus. With efforts in these three critical areas, a synergy develops: researchers, clinicians and educators collaborate in ways that produce cutting-edge scientific discovery, unique clinical care models and pioneering educational strategies. | |
| Juvenile Diabetes Foundation If you or someone you love has recently been diagnosed with type 1 (juvenile) diabetes, we at JDRF can help. Our Online Diabetes Support Team is made up of volunteers who have “been there” and are available to offer you immediate, one-on-one support. We also provide loads of practical info about diabetes and its management. | |
| Glycemic Index On-Line Not all carbohydrate foods are created equal, in fact they behave quite differently in our bodies. The glycemic index or GI describes this difference by ranking carbohydrates according to their effect on our blood glucose levels. Choosing low GI carbs - the ones that produce only small fluctuations in our blood glucose and insulin levels - is the secret to long-term health reducing your risk of heart disease and diabetes and is the key to sustainable weight loss. (University of Sydney, Australia) | |
| National Institute of Diabetes and Digestive and Kidney Diseases Conducts and supports research on many of the most serious diseases affecting public health. The Institute supports much of the clinical research on the diseases of internal medicine and related subspecialty fields as well as many basic science disciplines. | |
| Islet Foundation, The The Islet Foundation focuses its resources to advance one specific line of research from the laboratory to human trials and, ultimately, to a routine cure for insulin-dependent diabetes. Rather than spread its resources among many diabetic management and research initiatives, TIF is betting on a single body of research, one which many researchers feel is the most likely to result in a near-term cure. | |
| Nephrogenic Diabetes Insipidus. NDI stands for Nephrogenic Diabetes Insipidus. It is a medical condition in which the kidney is unable to conserve water. | |
| Diabetes Support Groups | Diabetes Support Groups and Education Programs Diabetes can seem to be an overwhelming disease because it impacts so many areas of your daily life. It's important to have support from family, friends and from other people with diabetes. Don't underestimate the importance of peer support. We've developed a listing of Diabetes Education Programs and Peer Support Groups in all 50 states and the District of Columbia. |
| Defeat Diabetes Self Empowerment and Peer Support we believe in a self-empowerment and peer support approach to dealing with the issue of diabetes. Self-empowerment means increasing your strength and self confidence. This is accomplished by gaining the skills and knowledge that allow you to overcome obstacles in life. | |
| Diabetes Health Diabetes Support Groups Diabetes Health is the essential resource for people living with diabetes—both newly diagnosed and experienced—as well as the professionals who care for them. We provide balanced expert news and information on living healthfully with diabetes. Each issue includes cutting-edge editorial coverage of new products, research, treatment options, and meaningful lifestyle issues | |
| TuDiabetes It is my hope that people who have all types of diabetes, newly diagnosed and veterans alike, moms with gestational diabetes as well as parents of children with diabetes, no matter the ethnicity or nationality, come on board and engage in a fruitful exchange using all the media that the social network technology puts at our disposal. | |
| College Diabetes Network To improve the health, well-being, and longevity of students with Type 1 Juvenile Diabetes. | |
| Type 1 University Features a series of online courses designed to provide "higher education" to people using intensive insulin therapy (pumps or MDI). Each 40-60 minute course is available live (via webex) or in pre-recorded format, accessible on any computer system or mobile device with internet access. | |
| Diabetes Support Group Discussion boards | |
| Diet (see Weight Support Groups) | |
| Diphtheria Information Link |
Diphtheria Support Group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Diphtheria. |
| Diphtheria Support Group Questions answered | |
| Dissociation Disorders Information Link |
National Mental Health Association Mental Health America is the country’s leading nonprofit dedicated to helping ALL people live mentally healthier lives. |
| Dissociative Identity Disorder - See Multiple Personality Disorder |
|
| Diverticulitis Information Link |
Diverticular Disease and Diverticulit1s Many people have small pouches in their colons that bulge outward through weak spots, like an inner tube that pokes through weak places in a tire. Each pouch is called a diverticulum. Pouches (plural) are called diverticula. |
| Domestic Violance Also see our Abuse Index Information Link: Domestic Violence |
Hope for Healing Making hope happen for survivors every day. For survivers of domestic violance and sexual abuse. |
| Fort Refuge A journey of healing from abuse we suffered: child abuse, incest, sexual assault, rape, domestic violence, ritual abuse, or psychological and verbal abuse. We feel that all types of abuse are damaging, and we do not minimize any person's experiences. It is our goal to reach out to as many fellow survivors as we can with compassion, understanding, and encouragement, | |
| Daily Strength - Physical & Emotional Abuse Support Group Discussion boards. |
|
| Abuse Survivors Meetup Groups Meet other local survivors of sexual, physical, or emotional abuse to share advice on surviving and coping. | |
| Abuse Support Boards Discussion areas. | |
| Online Domestic Violence Support Group There are many common denominators among those of us who have experienced domestic violence regardless of gender, age, sexual orientation or lifestyle, so a Group open to ALL may work out with no problem. | |
| The Healing Club is an online support community for domestic violence victims, survivors, and others who want to take part in the “healing” process or know someone who has been touched by domestic violence. The Healing Club is about “healing and rebuilding.” | |
| Domestic Violence Meetup Groups Meet others who have experienced domestic violence or know someone who has. Gather for mutual support and to help fight abuse! | |
| Domestic Abuse Support Groups United States contact lists. | |
| Domestic Violence Agencies on the Internet Covering the United States, Canada, Australia, United Kingdom and New Zealand | |
| Dorcum's Disease | Daily Strength DailyStrength.org is the most comprehensive health network of people sharing their advice, treatment experiences, and support. Keep a wellness journal, read members’ stories, and chat with new friends with over 500 support groups. |
| Down Syndrome Information Link |
National Association for Down Syndrome (NADS) The oldest organization in the country serving individuals with Down syndrome and their families. It was founded in Chicago in 1961 by parents who chose to go against medical advice and raised their children with Down syndrome at home. Our mission is to ensure that all persons with Down syndrome have the opportunity to achieve their potential in all aspects of community life. We offer information, support, and advocacy. |
| Down Syndrome Information Network The Down Syndrome Information Network offers a range of information resources and online services to the international Down syndrome community. It aims to provide information and services for families, careers, professionals and researchers worldwide. This website has over 1,000 pages of information, equivalent to at least 6,000 printed pages. | |
| Down Syndrome International (DSI) Down Syndrome International is a federation of international organizations and individuals committed to ensuring the quality of life and human rights for all people with Down syndrome. | |
| UPSIDE! Down Syndrome Society An informal society of individuals, parents, and friends involved with the world of Down Syndrome. | |
| National Down Syndrome Congress Our sons and daughters with Down syndrome are now an integral part of daily life. They attend our schools, participate in their communities, hold jobs, pay taxes, vote. They bowl, play softball, go to football games. Some live with their families or in small group homes. And, increasingly, others live independently. Importantly, they contribute to their communities, giving back a measure of what they have gotten. | |
| International Mosaic Down Syndrome Association Children with mosaic Down syndrome have two distinct cell groupings. In some cells there is a total of 46 chromosomes, which is the “typical” group. In other cells there is an extra copy of the chromosome #21, making 47 cells total for this group. | |
| Drug Addiction Information Links Drug Abuse Drug Abuse in Teens |
My Addiction Our goal is to bring people together around the issues of addictions by providing concise, up-to-date information and a meeting place for addicts, their friends and families, and professionals who offer pathways to recovery. |
| Drug Addiction Support Group A community of patients, family members and friends dedicated to dealing with Drug addiction, together. | |
| Drug Addiction Support Groups Listing of groups available online | |
| Cocaine Anonymous is a fellowship of men and women who share their experience, strength and hope with each other that they may solve their common problem and help others to recover from their addiction. | |
| Drug Addiction Support Discussion boards | |
| Narcotics Anonymous Every addict in the world has the chance to experience our message in his or her own language and culture and find the opportunity for a new way of life. | |
| Making Connections for Recovery In the battle against addiction, sometimes the best source of help is not trained clinicians or counselors, but everyday people - everyday people who have gone through the same trials and tribulations as you. This type of help is often found through support groups. | |
| Drug Addiction Support Group Meetups around the world List of in=person groups. | |
| Addiction and Recovery Groups Message boards | |
| The Nar-Anon Family Groups are a worldwide fellowship for those affected by someone else’s addiction. As a Twelve-Step Program, we offer our help by sharing our experience, strength, and hope. The only requirement for membership is that there be a problem of addiction in a relative or friend. | |
| Co-Dependents Anonymous A fellowship of men and women whose common purpose is to develop healthy relationships. The only requirement for membership is a desire for healthy and loving relationships. | |
| Dubowitz Syndrome | Dubowitz Syndrome Support Network Dubowitz Syndrome is a rare syndrome found in approximately less than 200 people around the world. Generally, the child has intrauterine growth retardation and has a low birth weight. Afterwards, the child is sometimes labeled as failure to thrive |
| Dwarfism Information Link |
Little People of America Little People of America will assist dwarfs with their physical and developmental concerns resulting from short stature. By providing medical, environmental, educational, vocational, and parental guidance, short-statured individuals and their families may enhance their lives and lifestyles with minimal limitations. Through peer support and personal example, our members will be supportive of all those who reach out to LPA. |
| Daily Strength DailyStrength.org is the most comprehensive health network of people sharing their advice, treatment experiences, and support. Keep a wellness journal, read members’ stories, and chat with new friends with over 500 support groups. | |
| Dysautonomia Also see Familial Dysautonomia |
Dysautonomia Foundation Familial Dysautonomia is a genetic disease present at birth, primarily causing dysfunction of the autonomic and sensory nervous systems. |
| Dysautonomia Support Groups A list of support groups for dysautonomia patients. | |
| I Have Dysautonomia Read hundreds of true stories, share your own story anonymously, get feedback and comments, chat in the discussion forum, help others, meet new friends, and so much more | |
| Non Familial Dysautonomia Support Group A community of patients, family members and friends dedicated to dealing with Non Familial Dysautonomia, together. | |
| Dyskinesias | Worldwide Education and Awareness for Movement Disorders WE MOVE is the Internet's most comprehensive resource for movement disorder information and the hub of movement disorder activities on the web. |
| Dyslexia Information Link |
Helen Arkell Dyslexia Centre (UK) HADC is the oldest established dyslexia centre in the UK and believes that anyone with dyslexia should be offered expert assessment and tuition |
| International Dyslexia Association The International Dyslexia Association is a non-profit organization dedicated to helping individuals with dyslexia, their families and the communities that support them. IDA is the oldest learning disabilities organization in the nation. Our goal is to provide the most comprehensive forum for parents, educators, and researchers to share their experiences, methods, and knowledge. | |
| Dyspraxia | Dyspraxia: Can We Talk? This site is a brochure and handout resource for Speech Language Pathologists, parents and friends. We specialize in free, quickly read and easily understood materials about working with speech delayed children. |
| Dyspraxia Foundation (UK) Dyspraxia is generally recognized to be an impairment or immaturity of the organization of movement. Associated with this may be problems of language, perception and thought. Other names for dyspraxic include Clumsy Child Syndrome; Developmental Co-ordination Disorder (DCD); Minimal Brain Dysfunction: Motor learning Difficulty; and Pereceptuo-motor Dysfunction. | |
| Dystonia Information Link |
Dystonia Medical Research Foundation Dystonia is a movement disorder that causes the muscles to contract and spasm involuntarily. The neurological mechanism that makes muscles relax when they are not in use does not function properly. Opposing muscles often contract simultaneously as if they are “competing” for control of a body part. The involuntary muscle contractions force the body into repetitive and often twisting movements as well as awkward, irregular postures. |
| Dystonia Society (UK) As the Society’s membership has grown, individuals have come together locally around the UK to establish local support groups and contacts providing opportunities for people to meet, share experiences, provide mutual encouragement and support. Many branch meetings have speakers on various aspects of dystonia, its treatment, and related issues such as access to services, employment issues, benefits and mobility. | |
| Care4Dystonia Dystonia is a neurological disorder characterized by over-activity of a specific group of muscles and/or muscle. It is the over-activity of these specific muscles that causes involuntary movements and tremors, sustained muscle contractions, and abnormal postures. | |
| Worldwide Education and Awareness for Movement Disorders WE MOVE is the Internet's most comprehensive resource for movement disorder information and the hub of movement disorder activities on the web. | |
The Obvious Legal Statement.
The folks at Slightly Creaky are volunteers. None of us get any salary or compensation in any form. We are not a corporation, just a few folks working out of our houses. If anything on this site bothers you, if you notice mistakes, please let us know.
While we do maintain editorial rights, things slip past. The submitted columns and news articles belong to the contributor(s), not to the Slightly Creaky team. We are simply a vehicle bringing you information to the best of our ability. We have no control over the sites we link to. Web site contents frequently change. If you find anything improper, objectionable or not working, please notify us.
Be sure to read our complete Legal Information and Policies