Support Groups E, F, G
How to Use -- Contents
Slightly Creaky does research to find the links you would most likely need and provides them for you in an easy-to-find format. You can access the various categories from any of our pages using the top or side menus. Each category has generalized headings, followed by more specific ones.
Many support groups are named for people, are generalized and provide assistance for several related conditions, or are otherwise difficult to interpret. This page provides links alphabetically based upon specific ailments. Please scroll down, use the index link, or use your browser's "find" or "search" feature to get the the area you are seeking.
In addition to support groups, we include links to informational sites on these conditions.
Please Contact us if you find a broken or bad link.
Links to Support Group pages:
Alphabetical List: |
Quick Links to selected categories: |
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Eye Disorders – see Vision |
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Support Group Home Page Includes directions, hints for use, etc. |
See the "Medical Information" page for Medical Definitions, Pharmaceuticals and Home Remedies, Advocacy Groups, Medical Articles | ||
| Have We Missed a Support Group or Ailment? We are constantly looking for more information and more links. Please help us improve our site and service. The Internet had millions of web pages dedicated to medical conditions and support groups; we can only sample a few of them. If you know any sites we should include write to suggestions@slightlycreaky.com | |||
Caution - Proceed with care. Slightly Creaky is not responsible for the content of web sites listed here nor the actions taken by the people owning, managing, or participating on them.
This listing is the result of more than 500 hours of research. It is the property of Slightly Creaky and may not be reproduced in any form. Every attempt has been made to provide an accurate description of each organization.
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Updates: We review and update this page every 4 months. Many support groups change names or even terminate their services. Should you discover a bad link or wish to suggest that we add one, please contact suggestions@slightlycreaky.com
We try to avoid commercial sites, but in many cases they are the only ones who provide information and support. If you are looking to buy or sell medical products, please use a generalized search engine.Support Groups "E"
"E"
Eye Disorders – see Vision |
Ear - see Deaf & Hearing Loss
| Eating Disorders Information Links: Anorexia Nervosa Binge Eating Disorders Bulimia Emotional Eating |
Eating Disorder Referral and Information Center Provides information and resources to thousands of individuals suffering from Anorexia, Bulimia and Compulsive Eating Disorder, their families, and health professionals. We provide referrals to eating disorder practitioners all across the world |
| Eating Disorders: Resources for Recovery When combined with other forms of treatment, support groups are a great way to enhance relationship skills, increase motivation, and provide feelings of connection in a semi-structured environment. Look for groups that are led by qualified professionals who are knowledgeable about eating disorders or individuals who have fully recovered. | |
| Rader Programs If you or a loved one is one of the millions of Americans who suffer from eating disorders such as anorexia, bulimia or binge eating disorder, you know how devastating they can be. Eating disorders can lead to severe medical complications, depression, isolation and substance abuse. If left untreated, eating disorders can even be fatal. | |
| Eating Disorders Online EatingDisordersOnline.com is the internet's fastest-growing eating-disorders community. Our goal is to bring people together around the issues of eating disorders by providing concise, up-to-date information and a meeting place for those seeking pathways to recovery. | |
| Something Fishy Dedicated to raising awareness and providing support to people with Eating Disorders, and their loved-ones | |
| Eating Disorder Hope Promotes ending eating disordered behavior, embracing life and pursuing recovery. Our mission is to foster appreciation of one's uniqueness and value in the world, unrelated to appearance, achievement or applause. | |
| National Eating Disorders Association Dedicated to supporting individuals and families affected by eating disorders. We campaign for prevention, improved access to quality treatment, and increased research funding to better understand and treat eating disorders. We work with partners and volunteers to develop programs and tools to help everyone who seeks assistance. | |
| Eating Disorders Pro-recovery Group Discussion boards. | |
| Eating Disorders 411 When you have an ED or love someone who does, you can end up feeling really alone. Because the disorder overtakes your life - it consumes your thoughts, your actions and every waking moment - you end up feeling like there is no way out. Lost. Alone. With nowhere to turn. With nowhere to go. It's such an isolating feeling. | |
| Recovery Space A South African website that promotes recovery from eating disorders. People with eating disorders (or their family and friends) can find out more about anorexia, bulimia, binge-eating and other eating disorders, as well as find treatment options, access information and find tips on recovery from eating disorders. | |
| Project: Free from ED Guide to eating disorder treatment facilities. | |
| Daily Strength - Eating Disorders Support Group Discussion boards. |
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| Eating Disorders Anonymous is a fellowship of individuals who share their experience, strength and hope with each other that they may solve their common problems and help others to recover from their eating disorders. People can and do fully recover from having an eating disorder. | |
| National Association of Anorexia Nervosa & Associated Disorders ANAD has been working for the prevention and alleviation of eating disorders since 1976. | |
| Anorexia Nervosa Support Group A community of patients, family members and friends dedicated to dealing with Anorexia nervosa, together. | |
| Anorexia Nervosa Support Meetups around the world | |
| Anorexia and Bulimia Family Support Group (South Africa) a well established free Internet support group for Parents, Family Members and Friends. A Psychological Eating Disorder often involves the complete family and we believe that if one does not stabilize the family environment then recovery becomes even more difficult leading to many complications. | |
| I Have Bulimia Read hundreds of true stories, share your own story anonymously, get feedback and comments, chat in the discussion forum, help others, meet new friends, and so much more | |
| Bulimia Support To be healthy and get bulimia support, you may need to stay away from those with eating disorders who are not working on recovery. This includes the online support groups, forums and blogs you frequent. | |
| Bulimia Support Group Please refrain from mentioning numbers in your posts, including weights, clothing sizes, BMI, calories etc. | |
| Bulimia Nervosa Support Group A community of patients, family members and friends dedicated to dealing with Bulimia Nervosa, together. | |
| Binge Eating Support Group Please refrain from mentioning numbers in your posts, including weights, clothing sizes, BMI, calories etc. | |
| Binge Eating Meetups around the world | |
| Binge Eating Disorder Online Support Group A community of patients, family members and friends dedicated to dealing with Binge Eating Disorder, together. | |
| Night Eating Syndrome Support Group A community of patients, family members and friends dedicated to dealing with Night eating syndrome, together. | |
| Night Eating Syndrome Support Group A community of patients, family members and friends dedicated to dealing with Night eating syndrome, together. | |
| Ectodermal Dysplasia | National Foundation for Ectodermal Dysplasias The ectodermal dysplasia syndromes are a group of about 150 heritable disorders that affect the ectoderm, the outer layer of tissue in a developing baby. ED syndromes affect both males and females of all races and ethnic groups. The ectoderm contributes to the formation of many parts of the body, including the skin, sweat glands, hair, teeth, and nails. |
| Ectodermal Dysplasia Society Dedicated to improving the health and wellbeing of people whose lives are affected by Ectodermal Dysplasia (ED). We work together with people who have ED, their families, researchers, health and other professionals to develop and share expertise, increase awareness and understanding, and assist with the day-to-day management of ED. | |
| Daily Strength - Ectodermal Dysplasia Support Group Discussion boards. |
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| OZ ED Support group in Australia. | |
| Ectodermal Dysplasia - International Network Listing andcontact information for support groups around the world. | |
| Ectodermal Dysplasia Support Group A community of patients, family members and friends dedicated to dealing with Ectodermal Dysplasia, together. | |
| Ectopic Pregnancy Information Link: Ectopic Pregnancy |
Honored Babies The first support group is for Mothers who have experienced the death of their babies (via miscarriage, ectopic pregnancy, pregnancy termination, stillbirth, neonatal death, and/or infant death). It came to my attention that Grandmothers needed a support group, too, |
| Silent Voices An ectopic pregnancy is one in which the fertilized egg becomes implanted outside the uterus instead of in the wall of the uterus. | |
| Ectopic Pregnancy Support The word "ectopic" means "out of place". An ectopic pregnancy is a pregnancy where the fetus, instead of growing in the uterine cavity, occurs in a number of unusual locations, such as the fallopian tubes. | |
| Ectopic Pregnancy Facebook Group Do you need somewhere to grieve with other people who've experienced one also? Feel free to share your story in a group where everyone can relate. |
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| Ectopic Pregnancy and Miscarriage Support Women who've experienced Ectopic pregnancies; sharing knowledge, friendship, or just chat. We all need a shoulder sometime! Talk about treatment of the actual Ectopic pregnancy, the emotional aftermath, the medications or surgical procedures inolved and how you chose to deal with you certauu | |
| Education Services | The Office of Special Education and Rehabilitative Services The Office of Special Education and Rehabilitative Services (OSERS) supports programs that assist in educating children with special needs, provides for the rehabilitation of youth and adults with disabilities, and supports research to improve the lives of individuals with disabilities. |
| Internet Special Education Resources A directory of professionals, organizations, and schools that serve the learning disabilities and special education communities. We help parents find local special education professionals for learning disabilities and attention deficit disorder assessment, therapy, advocacy, critical teen issues, and other special needs | |
| Services In School For Children With Special Needs: What Parents Need To Know hese difficulties may be due to one or more of the following: physical disorders, psychiatric disorders, emotional problems, behavioral problems, and learning disorders (or disabilities). These children with special needs are usually entitled to receive special services or accommodations through the public schools | |
| Special Educational Needs and Disability (UK) To promote the welfare and interests of disabled children, and to improve the support they receive, this area of the site provides a wide range of SEN and disability advice and materials for teachers, parents, local authorities and others working with children with SEN in England. | |
| Edward's Syndrome -- see Trisomy | |
| Ehlers-Danlos Syndrome Information Link: Ehlers-Danlos Syndrome |
Ehlers-Danlos National Foundation Individuals with EDS have a defect in their connective tissue, the tissue that provides support to many body parts such as the skin, muscles and ligaments. The fragile skin and unstable joints found in EDS are the result of faulty collagen. Collagen is a protein, which acts as a "glue" in the body, adding strength and elasticity to connective tissue. |
| EDS Today Frequently, people with Ehlers-Danlos Syndrome are encouraged to perform as contortionists. Probably, most of these people are unaware of their condition, as few doctors are educated enough to diagnose it. And those who are aware tend not to know how dangerous repeated dislocation of the joints is for their future well-being and mobility | |
| Ehlers-Danlos Support Group - 'Free' Message Board . REGISTER to read & post messages | |
| Ehlers-Danlos Syndrome Local Support Listings World wide organizations | |
| Daily Strength - Ehlers-Danlos Syndrome Support Group Discussion boards. |
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| Ehlers-Danlos Syndrome Support Group A community of patients, family members and friends dedicated to dealing with Ehlers-Danlos Syndrome, together. | |
| Ehlers-Danlos Foundation of New Zealand The aim of the organization is to provide emotional support for sufferers of the Ehlers-Danlos Syndrome and HMS, their spouses and family members. Also to create awareness of these conditions by the distribution of information amongst the medical profession and general public. | |
| Emotional Abuse Also see our Abuse Index |
Stalking Victims Survivers America has been hit with an escalating crisis it doesn't know how to handle. Across the country, hundreds of thousands of people have fallen victim to individuals who have obsessively focused on them. The phenomenon is called stalking. And once you've been a victim, you'll know how life-destroying this can be. |
| Survivorship Within this site you will find information on ritual abuse. The articles give background and deal with the effects of ritual abuse, child pornography, and child prostitution, and government/military mind control. Many of the articles describe living with Post Traumatic Stress Disorder and Dissociative Identity Disorder. There are numerous links to other pages on ritual abuse and to healing resources. | |
| Daily Strength - Physical & Emotional Abuse Support Group Discussion boards. | |
| Emotional Abuse Support Group A community of patients, family members and friends dedicated to dealing with Emotional Abuse, together. | |
| Abuse Survivors Meetup Groups Meet other local survivors of sexual, physical, or emotional abuse to share advice on surviving and coping. | |
| Abuse Support Boards Discussion areas. | |
| Physical & Emotional Abuse Support Group Despite the form it takes, abuse negatively affects all involved. If you or a loved one is being physically or emotionally abused, reach out to others to get advice and learn how to break the cycle. | |
| Abuse Support Boards Discussion areas. | |
| Womans Emotional Abuse Support You are not alone. Let us help eachother. | |
| I Am a Victim of Emotional Abuse Read hundreds of true stories, share your own story anonymously, get feedback and comments, chat in the discussion forum, help others, meet new friends, and so much more. | |
| Emphysema Information Link |
Emphysema Foundation For Our Right To Survive As well as providing a very vital support, through a joint email discussion list and educational resource for its members, we are also working to educate and inform patients and care providers as well as promote deeper research for more effective treatment and hopefully a cure for Emphysema and other Chronic Obstructive Pulmonary Disease |
| COPD & Emphysema Support Group Millions of Americans are diagnosed with COPD and emphysema every year. Learn how to manage your condition, get the latest treatment information, and connect with others for support. | |
| Daily Strength - COPD & Emphysema Support Group Discussion boards |
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| Encephalitis | Encephalitis Society The Society’s stated aim is to improve the quality of life of all people affected directly and indirectly by encephalitis. In some instances where people are affected by encephalitis the long-term prognosis can be very good, with many people coming through the illness with little or no difficulties. However because there are occasions where more severe problems can occur, we have had to make our information as broad and far-reaching as possible. |
| Encephalitis Ireland To raise awareness of the illness amongst relevant professionals, statutory agencies and the general public and to encourage more scientific research. The site will also provide a forum for information and discussion and will post details of regular meetings in Dublin, Cork and Galway. | |
| Encephalitis Support Group A community of patients, family members and friends dedicated to dealing with Encephalitis, together. | |
| Daily Strength - Encephalitis Support Group Discussion boards. |
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| The Encephalitis Global Support Community connects patients, families, friends and caregivers for support and inspiration. | |
| Enchondroma Diseases | American Association of Multiple Enchondroma Diseases AAMED is the source for news & information about bone tumor diseases, research and services for adults and children with Enchondromatosis, Multiple Enchondroma, Ollier's disease, Maffucci's syndrome, and their families. |
| Endometriosis Information Link |
Endometriosis Association Endometriosis is a painful, chronic disease that affects 5 1/2 million women and girls in the USA and Canada, and millions more worldwide. It occurs when tissue like that which lines the uterus is found outside the uterus -- usually in the abdomen on the ovaries, fallopian tubes, and ligaments that support the uterus; the area between the vagina and rectum; the outer surface of the uterus; and the lining of the pelvic cavity. Other sites for these endometrial growths may include the bladder, bowel, vagina, cervix, vulva, and in abdominal surgical scars. |
| Enchondromatosis Support Group A community of patients, family members and friends dedicated to dealing with Enchondromatosis, together. | |
| Environmental Health | American Lung Association As part of our American Lung Association® community, you have the benefits of in-depth and timely information on lung issues including asthma, tobacco control, and environmental health. |
| Environmental Health Online Health Community and Support Group Through this Environmental Health support group, you can get Environmental Health information, share experiences about Environmental Health, connect with peers, and get answers to your Environmental Health questions from health professionals. | |
| Institute for Children's Environmental Health The American Academy of Pediatrics and the National Academy of Sciences have found that children are uniquely susceptible to hazardous environmental exposures. In addition, they have determined that many of these exposures – exposures that may occur before conception and continue through late adolescence – can cause or contribute to disease and disrupt development, learning and behavior | |
| Environmental Support Center Promotes the quality of the natural environment, human health, community sustainability and social justice by building the capacity of environmental justice groups and their allies. | |
| Human Ecology Action League One of the oldest organizations in the world concerned about the health effects of environmental exposures. (HEAL®) is your source for information about your environment and health | |
| Epidermolysis Bullosa | Epidermolysis Bullosa Support & Information. Generic listing of international support groups and online information sites. |
| Dystrophic Epidermolysis Bullosa Research Association of America. "DEBRA's mission is to raise funds to encourage and support research into the causes, treatment and cure of Epidermolysis Bullosa and other genetic disorders of the skin, promote education and advocacy, and to provide support and services to people with EB and their families by assisting them in finding medical, social, and genetic counseling." | |
| EB Info World Epidermolysis Bullosa is a rare genetic skin disorder. One thing to describe its rareness is that a doctor or a nurse can be working a lifetime and never bump into this condition. It is estimated that about 10,000 Americans, mostly kids, have some form of EB. With modern medical care, some with the worse kinds of EB can live into their thirties. Unfortunately, by this age most will succumb to a particularly aggressive skin cancer (Squamous Cell) that is somehow touched off by EB. | |
| Epidermolysis Bullosa Support Group A community of patients, family members and friends dedicated to dealing with Epidermolysis bullosa, together. | |
| EB Patient Links to EB e-mail support groups and message boards where you can communicate, share questions, ideas and support with other EB families. | |
| Epilepsy Also see Seizure Disorders Information Links: Epilepsy Epilepsy Test Epilepsy Treatment |
Epilepsy Foundation of America (EFA) National voluntary agency solely dedicated to the welfare of the 3 million people with epilepsy in the U.S. and their families. The organization works to ensure that people with seizures are able to participate in all life experiences; and to prevent, control and cure epilepsy through research, education, advocacy and services. |
| The Epilepsy Foundation of Metropolitan New York The Epilepsy Institute, a non-profit social service organization, is dedicated to improving the quality of life of people with epilepsy and their families. | |
| American Epilepsy Society The American Epilepsy Society promotes research and education for professionals dedicated to the prevention, treatment and cure of epilepsy. Membership in the Society is made up of clinicians and researchers investigating basic and clinical aspects of epilepsy, and other health-care professionals interested in seizure disorders. | |
| National Society for Epilepsy (UK) The National Society for Epilepsy is committed to providing information and support to people with epilepsy. We also provide care for people with epilepsy through medical and residential services. | |
| Parents Against Childhood Epilepsy (PACE) A research and Education organization | |
| Epilepsy Support Group - Community Forum Discussion boards | |
| Find Your Local Epilepsy Foundation The Epilepsy Foundation is a network of affiliated community-based organizations that work for people with epilepsy and their families to provide access to important services where they live and work. | |
| Epilepsy Support Group A community of patients, family members and friends dedicated to dealing with Epilepsy, together. | |
| Daily Strength - Epilepsy & Seizures Support Group Discussion board |
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| Epilepsy Support Group This section is for those who are living with epilepsy and for family of the people with epilepsy who need care and support. It is a platform for the people with epilepsy to share their experiences. It’s nice to read stories about people with epilepsy who have done well – people with good educations, good jobs, and happy families. | |
| Epispadias | Hypospadias.org Hypospadias and epispadias are birth anomalies that result from defective development of the penis during embryological development. |
| The Association for the Bladder Exstrophy Community The ABC is an international support network of individuals with bladder exstrophy (including classic exstrophy, cloacal exstrophy, and epispadias), local parent-exstrophy support groups, and health care providers working with patients and families living with bladder exstrophy. | |
| Hypospadias & Epispadias Association Information | |
| Erectile Dysfunction - see Impotence | |
| Erythropoietic Protoporphyria | Erythropoietic Protoporphyria Research and Education Fund the Erythropoietic Protoporphyria Research and Education Fund is a support group exclusively for patients with EPP and their families. |
| Erythropoietic Protoporphyria (UK) Sources of information and / or support | |
| I Have Erythropoietic Protoporphyria Read hundreds of true stories, share your own story anonymously, get feedback and comments, chat in the discussion forum, help others, meet new friends, and so much more. | |
| Essential Tremor Information Link |
International Essential Tremor Foundation (IETF) Of the 20-plus different kinds of tremor, essential tremor is the most common. Essential Tremor is also known as familial tremor, benign essential tremor or hereditary tremor. There are medical treatments that can help people with tremor live a fuller life, but only a small percentage of those with this condition get medical help. This site is devoted to helping people diagnosed with essential tremor. |
| Worldwide Education and Awareness for Movement Disorders WE MOVE is the Internet's most comprehensive resource for movement disorder information and the hub of movement disorder activities on the web. | |
| National Tremor Foundation, The We aim to offer a support and advice to all sufferers of tremor. The most common of these is essential tremor, quite often hereditary, but we also have members with more complex and unusual tremors such as writing tremor, primary orthostatic tremor and myoclonic dystonic to name a few. | |
| Tremor Action Network Recognized for centuries, essential tremor and tremor related neurological movement disorders afflict millions of children, adults, and next generations, yet little is known about the etiology. | |
| Daily Strength - Essential Tremor Support Group Discussion boards |
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| New Zealand Essential Tremor Support Group This website has been set up to provide information and support for people effected by Essential Tremor. | |
| Essential Tremor Support Group A community of patients, family members and friends dedicated to dealing with Essential Tremor, together. | |
| Euthanasia | Not Dead Yet People already have the right to refuse unwanted treatment, and suicide is not illegal. What we oppose is a public policy that singles out individuals for legalized killing based on their health status. This violates the Americans With Disabilities Act, and denies us the equal protection of the law. Some bioethicists have even started to argue that intellectually disabled people are not persons under the law. |
| Euthanasia.com Information For Research On Euthanasia, Physician-Assisted Suicide, Living Wills, Mercy Killing We are committed to the fundamental belief that the intentional killing of another person is wrong. We have deep sympathy for those people who are suffering | |
| Daily Strength - Euthanasia Support Group Discussion board |
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| 'I Believe Euthanasia Should Be Legal Read hundreds of true stories, share your own story anonymously, get feedback and comments, chat in the discussion forum, help others, meet new friends, and so much more. | |
| History of Euthanasia and Physician-Assisted Suicide From ProCon.org. Should euthanasia or physician-assisted suicide be legal? | |
| Reasons Against Euthanasia Euthanasia refers to deliberate ending of life by an individual with his own wish. It is usually sought by terminally ill patients. While some support the practice of Euthanasia as a way to relieve one of the agony of a painful life, others reason against it saying that it violates the sanctity of life. | |
| The Facts About Pet Euthanasia Most people really have had no guidelines to follow, had no firm ground on which to stand while partaking in their pet's final time. For those of you who have had no experience with euthanasia of a pet, here are a few guidelines to help you when the time comes to euthanize your pet. | |
| Euthanasia for Pets with Cancer Euthanasia refers to the process of ending pet's life in a painless way using drugs that stop the heart. It is one of the most difficult decisions that any pet owner will ever have to make. | |
| Eye Disorders – see Vision | |
Support Groups "F"
"F"
| Fabry Disease Information Link: Fabry's Disease |
Fabry Support & Information Group Our mission is to raise awareness of Fabry disease and its symptoms. Fabry disease results from abnormal deposits of a particular fatty substance in blood vessel walls throughout the body. |
| Fabry Support Sites in the United States Many of the websites listed here offer support groups, newsletters, and clinical trial updates, including recruitment announcements for upcoming trials | |
| The Fabry Support Group of Australia's aim is to share information about Fabry Disease and available treatment, amongst the Australian Fabry Community. | |
| The National Fabry Disease Foundation Support Community connects individuals with Fabry disease, family members, friends and caregivers for support, inspiration and community | |
| Fabry Family An organization founded by those suffering from Fabry Disease and their families with the purpose of supporting those with the disease, their families, and the caregivers. | |
| Fabry Disease Support Group A community of patients, family members and friends dedicated to dealing with Fabry Disease, together. | |
| Factitious Disorders Also see Munchausen Information Link: Factitious Disorders |
Factitious Disorder Forum Discussion boards |
| Factitious Disorder An umbrella category that covers a group of mental disturbances in which patients intentionally act physically or mentally ill without obvious benefits. | |
| An Overview of Factitious Disorders Factitious disorders are mental disorders in which a person acts as if he or she has a physical or mental illness when, in fact, he or she has consciously created his or her symptoms. | |
| Are You a Victim of Munchausen by Internet People willfully fake or produce illness to command attention, obtain lenience, act out anger, or control others. | |
| Münchausen by Internet Münchausen by Internet is a pattern of behavior in which Internet users seek attention by feigning illnesses in online venues such as chat rooms, message boards, and Internet Relay Chat | |
| Facial Disorders (also see cancer) |
Let's Face It An online resource for the dissemination of a wide range of information about facial differences. Our intended audience includes individuals with facial differences; their friends and family; medical, dental and mental health care providers. We hope to promote the full and equal participation of people with facial differences in all facets of life. |
| Fainting Disorders Information Link: Fainting |
Long QT Syndrome Support Group Long QT Syndrome is an inherited defect in the heart rhythm that predisposes to sudden fainting spells, dizziness, and palpitations and in worst cases seizures and sudden death. |
| Fainting Discussion board | |
| Fainting Stories Read hundreds of true stories, share your own story anonymously, get feedback and comments, chat in the discussion forum, help others, meet new friends, and so much more. | |
| Familial Dysautonomia Alo see Dysautonomia |
Familial Dysautonomia Hope Foundation Familial Dysautonomia is a progressive and fatal neurological disorder that affects the autonomic and sensory nervous systems. An astonishing 1 in 25 to 30 Eastern European (Ashkenazi) Jews carry the common mutation that causes FD, a rate similar to that of Tay-Sachs. |
| Familial Dysautonomia Support Group A community of patients, family members and friends dedicated to dealing with Familial Dysautonomia , together. | |
| Fanconi Anemia Also see Anemia |
Fanconi Anemia Foundation To find effective treatments and a cure for Fanconi anemia and to provide education and support services to affected families worldwide. |
| Fanconi Anemia Research Fund Though considered primarily a blood disease, it can affect all systems of the body. Many patients eventually develop acute myelogenous leukemia and at a very early age. | |
| Fanconi Anemia Support Group A community of patients, family members and friends dedicated to dealing with Fanconi Anemia, together. | |
| Fanconi Canada Funds research in Canada into an effective treatment and, ultimately, a cure for Fanconi anemia and serves as a support network for affected Canadian families. | |
| Fanconi Anemia on Facebook Supporting people who have this disease and learning more about it. this group is for the younger teen/kids with fanconi. | |
| Fanconi Anaemia FAmily Support (UK) The Charity has been set up to support FAmilies & relevant research | |
| Fatty Liver Disease | Children’s Liver Disease Foundation Our vision is that childhood liver disease will be understood and fought effectively thereby ensuring that young people with liver disease and families will be able to take control of their lives and achieve their full potential. |
| Daily Strength - Fatty Liver Disease Support Group Discussion boards |
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| Fatty Liver Disease Support Group A community of patients, family members and friends dedicated to dealing with Fatty Liver Disease, together. | |
| Fatty Liver Disease Support Group on Facebook NAFLD and Nash are both liver diseases that are being blamed on obesity...this group is bringing together people who are suffering or supporting those who are suffering. We are learning a lot through each other and hope you do too! | |
| Fatty Oxidation Disorders | FOD Family Support Group Fatty Oxidation Disorders are genetic metabolic deficiencies in which the body is unable to oxidize fatty acids to make energy because an enzyme is either missing or not working correctly. |
| Fatty Oxidation Disorders Information and links | |
| Daily Strength - Fatty Acid Oxidation Disorders Support Group Discussion boards |
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| Fatty Oxidation Disorders Family Support Group Our mission is to connect and network with FOD Families & Professionals around the world and to provide emotional support and inform families of new info in screening, diagnosis, research, & treatment | |
| Felty's Syndrome Information link: Felty's Syndrome |
Felty's Syndrome (UK) PatientPlus articles are written for doctors and so the language can be technical, however some people find that they add depth to the patient information leaflets. |
| Felty's Syndrome Support Group A community of patients, family members and friends dedicated to dealing with Felty's Syndrome, together. | |
| I Have Felty's Syndrome Read hundreds of true stories, share your own story anonymously, get feedback and comments, chat in the discussion forum, help others, meet new friends, and so much more | |
| Fetal Alcohol Syndrome Information Link: Fetal Alcohol Syndrome |
FASCETS Fetal Alcohol Syndrome Consultation, Education and Training Services. Our objectives are to: support improved outcomes for those with FASD, develop partnerships among parents and professionals, disseminate information about FASD throughout the community, enhance existing programs through augmentation or adaptation....and provide relevant, current information and resources for supporting children, adolescents and adults with FASD, their parents, families, professionals, agencies and institutions. |
| Arium Arium is a non-profit organization dedicated to the prevention of addictions and their effects upon individuals, families and our communities, through the provision of resources, information and research concerning drug and alcohol abuse, fetal alcohol syndrome and other substance abuse issues | |
| National Organization on Fetal Alcohol Syndrome Develops and implements innovative ideas in prevention, education, intervention, and public policy in the United States and internationally | |
| Fetal Alcohol Syndrome Family Resource Institute There is nothing more fragile and beautiful than innocence; but nothing is more tragic than innocence betrayed by ignorance and fear. Therefore, in defense of innocence, it is the mission of the Family Resource Institute to identify, understand and care for each person with FASD. | |
| FAS Link FASD is 100% preventable. If you are pregnant or plan to become pregnant, don't drink any beverage alcohol. There is no known safe level. | |
| Fetal Alcohol Syndrome Support Group A community of patients, family members and friends dedicated to dealing with Fetal Alcohol Syndrome, together. | |
| Daily Strength -
Fetal Alcohol Syndrome Support Group Discussion boards |
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| Fetal alcohol syndrome Resources Canada and the United States | |
| Fetal Alcohol Syndrome Support Group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Fetal Alcohol Syndrome. | |
| Parent Support Groups Fetal Alcohol Listed by state | |
| Support Groups for Caregivers of Children with Fetal Alcohol Spectrum Disorder Frequent symptoms include: learning disabilities, juvenile delinquency, unemployment, promiscuity, early pregnancy, mental illness, homelessness, violent behaviours and addiction. These are disruptive problems with which our society must deal | |
| Fetal Alcohol Syndrome Meetup Groups In the United States | |
| FG Syndrome (Also called Opitz-Kaveggia syndrome |
FG Syndrome Family Alliance, FG Syndrome is an X-linked genetic syndrome, believed to affect both boys and girls; which causes a variety of physical anomolies, developmental delays, and special health needs. |
| Opitz G/BBB Family Connection Canada We are a parent run group who work together to get information out to other families and to support each other with encouragement. | |
| Fibroids (Uterine Fibroids) Information link: Fibroids Uterine Fibroids |
Hope for Friboids Intended to give every woman and man a chance to research uterine fibroid disease and ask questions |
| National Uterine Fibroids Foundation Organized to engage in charitable, educational and scientific activities related to the care and treatment of women who have uterine fibroids or related conditions of the reproductive system. | |
| Uterine Fibroids Online Support Group A community of patients, family members and friends dedicated to dealing with Uterine Fibroids, together | |
| Uterine Fibroids Meetup Groups Meet with other local women who have Uterine Fibroids. Learn more about uterine fibroids, treatment options, and connect with others who also have this disease. | |
| Fibroid Network Online World Fibroids Information Provide you with interactive, Discussion groups, books, interviews, surveys, worldwide fibroids news, events, research, your news, Fibroid directory(weblinks), FAQ's, online mail & lots more! Please post your news or weblink. Our mission is to improve Fibroid Networking. Fibroid News, articles, support group details, events, & research on this site. | |
| I Have Fibroids, Uterine Read hundreds of true stories, share your own story anonymously, get feedback and comments, chat in the discussion forum, help others, meet new friends, and so much more | |
| Fibrous Dysplasia | Fibrous Dysplasia Foundation The organization of volunteers whose mission is to provide information, advocacy and support for patients, medical professionals and the general public and promote research for diagnosis, treatment and a cure for Fibrous Dysplasia (FD) and McCune-Albright's Syndrome (MAS), Cherubism and related diseases. Our goal is to improve the quality of life for affected individuals and their families. |
| Fibromyalgia Also see Pain Management Information Link: Fibromyalgia |
Immunesupport.com We offer over 6,000 Fibromyalgia and Chronic Fatigue Syndrome articles and medical abstracts, current treatment advice from the world's leading FM & CFS specialists, and the world's busiest FM & CFS message boards. |
| Action For CFIDS/M.E. Fibromyalgia help. | |
| American Fibromyalgia Syndrome Association, Inc. To seed research in FMS and CFS. Patient and physician education, public awareness and advocacy are all important ingredients in aiding the lives of people with FMS and CFS. | |
| National Fibromyalgia Association The National Fibromyalgia Association’s mission is:To develop and execute programs dedicated to improving the quality of life for people with fibromyalgia. | |
| National ME/FM Action Network is a Canadian organization dedicated to advancing the recognition and understanding of Myalgic Encephalomyelitis / Chronic Fatigue Syndrome and Fibromyalgia Syndrome through education, advocacy, support, and research.The Network seeks to effect positive change in the attitudes, policies, and practices of government, medical governing bodies, business, the media, and the general public. | |
| FibroCenter There are many organizations and online resources created to help individuals cope with fibromyalgia and chronic pain. The links found on this page have been collected to help you connect with the fibromyalgia community. | |
| Fibromyalgia Network Check our Basic Info section for a description of the most common fibromyalgia symptoms, how it is diagnosed, and frequently prescribed treatments. Check our Resource section for advice on how to reap the most out of life, diet and exercise, relationships, and more. | |
| The National Fibromyalgia Research Association is THE source for what’s new in fibromyalgia research and education | |
| Fibromyalgia Support Group A community of patients, family members and friends dedicated to dealing with Fibromyalgia, together. | |
| Daily Strength - Fibromyalgia Support Group Discussion boards |
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| Friends With Fibro Please come sit, listen, enjoy the company of others who understand. Family members, loved ones, and supportive others are always welcome!! | |
| Fibromyalgia Support Groups Meetups Around the World | |
| Fibrodysplasia Ossificans | International Fibrodysplasia Ossificans Progressiva Assoc. Fibrodysplasia Ossificans Progressiva (FOP). Simply stated, FOP causes muscles and other connective tissue to turn into bone, eventually causing immobility as FOP bone fuses joints. |
| I Have Fibrodysplasia Ossificans Progressiva Read hundreds of true stories, share your own story anonymously, get feedback and comments, chat in the discussion forum, help others, meet new friends, and so much more | |
| Daily Strength - Fibrodysplasia Ossificans Progressiva Support Group Discussion boards |
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| Fibrodysplasia Ossificans Progressiva Group A community of patients, family members and friends dedicated to dealing with Fibrodysplasia Ossificans Progressiva, together. | |
| Fibromuscular Dysplasia | Fibromuscular Dysplasia Society of America The FMDSA website is designed to help patients and physicians find the latest information on Fibromuscular Dysplasia as well as information on how you can participate in research, spread awareness, and find support resources |
| I Have Fibromuscular Dysplasia of Arteries Read hundreds of true stories, share your own story anonymously, get feedback and comments, chat in the discussion forum, help others, meet new friends, and so much more | |
| Fibrous Dysplasia | Daily Strength DailyStrength.org is the most comprehensive health network of people sharing their advice, treatment experiences, and support. Keep a wellness journal, read members’ stories, and chat with new friends with over 500 support groups. |
| Fibrous Dysplasia Information and support from the Mayo Clinic. | |
| Fibrous Dysplasia Support Group A community of patients, family members and friends dedicated to dealing with Fibrous Dysplasia, together. | |
| Fibrous Dysplasia Foundation on Facebook We provide information, advocacy and support and promote research and cure for FD, MAS, cherubism and related conditions. | |
| Fifth Disease Information Link |
Fifth Disease Support Group A community of patients, family members and friends dedicated to dealing with Fifth Disease, together. |
| I Have Fifth Disease Read hundreds of true stories, share your own story anonymously, get feedback and comments, chat in the discussion forum, help others, meet new friends, and so much more | |
| Fistula | Fistula Foundation, The An obstetric fistula develops when blood supply to the tissues of the vagina and the bladder (and/or rectum) is cut off during prolonged obstructed labor. The tissues die and a hole forms through which urine and/or feces pass uncontrollably. Women who develop fistulas are often abandoned by their husbands, rejected by their communities, and forced to live an isolated existence. |
| Worldwide Fistula Fund Our mission is to promote excellent, ethical whole-person care for women with obstetric fistulas. Our strategy is to band together and support a network of committed individuals with fistula expertise who share this common ideal. | |
| Perianal FistulasInformation Site A pet support site | |
| I Have Tracheoesophageal Fistula Read hundreds of true stories, share your own story anonymously, get feedback and comments, chat in the discussion forum, help others, meet new friends, and so much more- | |
| Floating Harbor Syndrome | Floating Harbor Syndrome Support Group "Our support group has 50 member families from the following countries: England, USA, Åustralia, Brazil, The Netherlands, Canada, Israel, Ireland, France, Belgium, Scotland, Mexico and New Zealand. " |
| Food Disorders |
Also see Eating Disorders Weight Allergies |
| National Mental Health Association Mental Health America is the country’s leading nonprofit dedicated to helping ALL people live mentally healthier lives. | |
| Eating Disorders Support Group The eating disorders support group and health community is for individuals who suffer from an eating disorder. Family members of people with an eating disorder are also encouraged to join the support group. Eating disorders cause extreme and abnormal behavior and attitudes towards food. Eating disorders are both emotional and physical | |
| Food Poisoning | What is Food Poisoning? Food poisoning is a disease that is carried or transmitted to humans by contaminated foods or beverages |
| I Have Food Poisoning Read true personal stories, chat & get advice, support and help from a group of5 people who all say 'I Have Food Poisoning' | |
| I Gave Someone Food Poisoning Read true personal stories, chat & get advice, support and help from a group of people who say 'I Gave Someone Food Poisoning' | |
| Forestier Disease (Hyperostosis) Information Link |
Forestier's Disease Support Group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Forestier's Disease. |
| Diffuse Idiopathic Skeletal Hyperostosis (information) | |
| Hyperostosis Support Group A community of patients, family members and friends dedicated to dealing with Hyperostosis, together | |
| Forestier's Disease (UK) Information and links | |
| Foster Care | Hope4KidZ, Inc Hope4KidZ is a grassroots effort to increase the protection, safety, and well-being of children who are in the care, custody, and control of the foster care system. The issue of abused children is not heart-warming, but it is heart-wrenching, and together, we can implement solutions and demand absolute accountability of anyone who would harm a child with impunity. |
| Fostering Together: Foster, Adoptive, and Relative CareSupport Groups (Washington State) | |
| Foster Parent Net We are a web site devoted entirely to helping foster parents do the difficult, yet vital, job of caring for foster kids | |
| Support for Foster Kids Children of foster parents often come from families in crisis, so adults thinking of becoming foster parents must research this choice carefully. This Web guide can help you decide whether you’re ready to be a foster parent, find support resources, and if you are (or were) in the foster care system as a youth, connect you with others who have had similar experiences. | |
| Daily Strength - Foster Care Support Group Discussion boards |
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| Foster Care Support Australia Family-based care is the most common type of care arrangement for children who cannot live at home because of abuse or neglect. Family-based care includes foster care, kinship care and support care. | |
| Canadian Foster Parent Home Page This site is dedicated to Foster Parents all over the world. Our common goal has become a global interest. We need to work together for the children in our care. We want this site to be a resource and support system for foster parents. | |
| National Voice of Foster Parents To support foster parents in achieving safety, permanence and well-being for the children and youth in their care. | |
| Mockingbord Society verything we do is based on knowing what children and youth in foster care need most: unconditional care, safe and loving homes, and hope for a bright future (Washington State) | |
| Fragile X Information Link: Fragile X Syndrome |
National Fragile X Foundation These genetic conditions are related in that they are all caused by gene changes in the same gene. Fragile X syndrome is the most common cause of inherited mental impairment. This impairment can range from learning disabilities to more severe cognitive or intellectual disabilities. (Sometimes referred to as mental retardation.) FXS is the most common known cause of autism or "autistic-like" behaviors. Symptoms also can include characteristic physical and behavioral features and delays in speech and language development. |
| FRAXA Research Foundation, Inc. Fragile X is the most common inherited cause of mental impairment. It is also the most common known cause of autism. | |
| The Fragile X Community Information and discussion areas. | |
| Daily Strength - Fragile X Syndrome Support Group Discussion boards |
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| Fragile X Syndrome Support Group A community of patients, family members and friends dedicated to dealing with Fragile X Syndrome, together. | |
| NFXF LINKS Groups and Parent Contacts Click on a State with the Green logo to see the contact information or view the whole Directory | |
| Freeman Sheldon Syndrome | National Craniofacial Association The National Craniofacial Association has been dedicated to assisting children and adults who have craniofacial disorders resulting from disease, accident, or birth. |
| Freeman-Sheldon Parent Support Group Freeman-Sheldon Syndrome (also known as "Whistling Face Syndrome") is a rare genetic condition which characteristically includes a small "whistling" mouth, a flat mask-like face, club feet, joint contractures usually involving the fingers and hands, and under-development of the cartilage of the nose. Intelligence is usually normal. Most of the features of this syndrome are due to muscle weakness. | |
| Freeman-Sheldon Syndrome Friedreich Ataxia anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Freeman-Sheldon Syndrome Friedreich Ataxia. | |
| Fructose Intolerance | MedHelp - Fructose Intolerant message board and support. |
| Fructose Intolerance Support Group A community of patients, family members and friends dedicated to dealing with Fructose Intolerance, together. | |
| Daily Strength - Fructose Intolerance Support Group Discussion boards |
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| Dietary Fructose Intolerance Support Group on Facebook | |
Support Groups "G"
"G"
| Galactosemia | Parents of Galactosemic Children Provides information and networking between affected families and professionals. Classic Galactosemia is a rare genetic metabolic disorder. |
| Help with Galactosaemia The Galactosaemia Support Group brings families with galactosaemic children and adult galactosaemics into contact with each other and offers support where most needed. Through the group the families are able to share experiences, help each other with problems and exchange information and ideas. | |
| Galactosemia Support Group A community of patients, family members and friends dedicated to dealing with Galactosemia, together. | |
| Daily Strength - Galactosemia Support Group Discussion boards |
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| Galactosemia Support Group Let's support & educate each other on Galactosemia. | |
| Gallstones - see Cholecystitis Information Link: Gallstones |
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| Gambling Addiction Information Link: Gambling Addiction |
Gambling Addiction and Problem Gambling You may think you can’t stop, but problem gambling and gambling addiction are treatable. If you’re ready to admit you have a problem and seek help, you can overcome your gambling problem and regain control of your life. |
| Gambling Addiction Before treatment can help, the gambler has to believe there is a real addiction that requires treatment. | |
| AMBLING ADDICT Support Group site is dedicated to providing information to anybody who believes that gambling is part of their life, using a multimedia approach that allows the power of support to be utilized effectively. | |
| Problem Gambling Guide Directory of information available on the internet | |
| About The Problem Of Compulsive Gambling (From Gamblers Anonymous) The explanation that seems most acceptable to Gamblers Anonymous members is that compulsive gambling is an illness, progressive in its nature, which can never be cured, but can be arrested. | |
| Daily Strength - Gambling Addiction & Recovery Support Group Discussion boards |
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| Gambling Help Boards Message board | |
| Gambling Addiction Support Group Get advice and support from thousands of patients like you | |
| Family Support for a Gambling Addiction Gambling is the act of wagering on the outcome of an event. The thrill of risk-taking sometimes becomes an addiction. Like all addictions, it takes a toll on the addict's family. An addicted gambler often consistently places his need to wager above the needs and wants of his loved ones. There are several ways for concerned family members to help a gambling addict get treatment. | |
| Gambling Addiction Treatment The gambling industry rakes in billions of dollars in annual revenue, and Americans spend more entertainment dollars on gambling than on spectator sports, theme parks, video games, music and movie tickets combined. | |
| Gardner Syndrome Information Link |
Gardner Syndrome Support Group A community of patients, family members and friends dedicated to dealing with Gardner Syndrome, together. |
| I Have Gardner's Syndrome Read hundreds of true stories, share your own story anonymously, get feedback and comments, chat in the discussion forum, help others, meet new friends, and so much more | |
| Gardner Syndrome Information A rare, genetic disorder characterized by multiple growths in the colon (often 1,000 or more), extra teeth, bony tumors of the skull, and fatty cysts and/or fibrous tumors in the skin. | |
| Gastrointestinal Disorders Information Links: Gastroesophageal Reflux Disease (GERD) GERD in Infants and Children |
Foundation for Functional Gastrointestinal Disorders The International Foundation for Functional Gastrointestinal Disorders addresses the issues surrounding life with gastrointestinal functional and motility disorders and increases the awareness about these disorders among the general public, researchers, regulators, and the clinical care community. |
| Pediatric Adolescent Gastroesophageal Reflux Association Provides information and support to parents and children dealing with Gastroesophageal Reflux, a condition in which stomach contents - food and gastric acid - frequently flow back up out of the stomach into the esophagus. | |
| Gastrointestinal Disorders' group to help and get support from people like you. | |
| Digestive Health Basics Like the brain, the gut is highly sensitive and full of nerves, so when a stressful or emotional event occurs, it has a profound effect on the digestive system. | |
| Gauchers Disease Information Link: Gaucher Disease |
Children's Gaucher Research Fund Raises funds to coordinate and support research to find a cure for Gaucher disease as well as providing support to families who have children who battle this disease. |
| National Gaucher Foundation The National Gaucher Foundation is dedicated to supporting and promoting research into the causes of, and a cure for Gaucher Disease. The mission of the NGF is meet the ever- increasing needs of individuals with Gaucher disease and their families. | |
| Gaucher Disease Support Group A community of patients, family members and friends dedicated to dealing with Gaucher Disease, together. | |
| Resources and Support for Gaucher's Disease Having a complex condition doesn't always mean giving up a full, active life. There are many great organizations dedicated to helping support those living with Gaucher's Disease and other illnesses. | |
| Support Gaucher's Disease on Facebook Gaucher disease is an inherited, genetic disorder. People inherit two copies of every gene—one from each parent. | |
| German Measles - see Rubella | |
| Gilbert’s Disease (Gilbert's Syndrome) Information Link: Gilbert Syndrome |
Gilberts Disease/Syndrome Liver Support Forum Education and forum. |
| Action on Gilbert's Syndrome (UK) For people experiencing Gilbert’s Syndrome, and for no profit. I've gathered this information painstakingly from years of searching, and some is necessarily anecdotal. It’s not meant to be a definitive guide to how to deal with Gilbert’s Syndrome, because one of the problems we are set up to overcome is the lack of information and support on this subject." | |
| Glaucoma Information Links: Glaucoma Glaucoma and Diabetes |
Glaucoma Research Foundation Glaucoma is a group of diseases that can steal sight without warning or symptoms. Three million Americans have it. Only half know. |
| Glaucoma Support Group. "The first and third Wednesday of every month a Wills Eye Institute glaucoma specialist or a guest specialist, hosts a question-and-answer session for glaucoma patients, families, and friends. " | |
| Glaucoma Support at Daily Strength | |
| The Glaucoma Foundation. Support groups can play an important role in helping glaucoma patients understand their disease and learn how to manage it over their lifetime. TGF is working to connect individuals who share experiences not common to all patients, are not represented in local support groups, and who are finding it difficult to locate other patients who can relate to their personal situation." | |
| American Health Assistance Foundation "Funds research seeking cures for Alzheimer’s disease, age-related macular degeneration and glaucoma, and provides the public with information about risk factors, preventative lifestyles, available treatments and coping strategies." | |
| Glaucoma Support Group. A community of patients, family members and friends dedicated to dealing with Glaucoma, together. | |
| The Glaucoma Support Center. Every person is unique, but when you face a challenge like glaucoma, you are never alone. Countless people have faced exactly same diagnosis and have survived and thrived. The following guide is designed to help you navigate your journey with the best information and resources that helped other survivors when they faced the same challenge. | |
| Glutaric Aciduria | Glutaric Acidemia Glutaric acidemia type I is an inherited disorder in which the body is unable to process certain proteins properly. People with this disorder have inadequate levels of an enzyme that helps break down the amino acids lysine, hydroxylysine, and tryptophan, which are building blocks of protein |
| Bailey Baio Angel Foundation To immediately and effectively heighten awareness on the importance of expanded newborn screening and its availability and necessity for every newborn. | |
| Gluten Intolerance | Gluten Intolerance Group The mission of the Gluten Intolerance Group of North America is to provide support to persons with gluten intolerances, including celiac disease, dermatitis herpetiformis, and other gluten sensitivities, in order to live healthy lives. |
| Support Groups Below are links to the listings of support groups for those with gluten intolerance and celiac disease. (US, Canada, UK, other countries) | |
| Gluten Free Support Groups Maintaining a gluten-free diet is not easy. Similarly, family members also need support and education, especially as adjustments are made to a new gluten-free lifestyle. Support groups can be valuable and helpful to maintain your gluten-free diet. Listed below are some gluten-free support groups to help with your gluten-free eating regimen. | |
| Glycine Disorders | NKH International Family Network Nonketotic Hyperglycinemia is an inherited metabolic disorder. Patients suffering from this disorder have elevated level of glycine, a basic amino acid, in blood, cerebrospinal fluid (CSF), and urine. Some patients died in the newborn period after a course characterized by lethargy, weak cry, generalized hypotonia, absent reflexes, and periodic myoclonic jerks. Survivors are subject to various degrees of mental retardation. |
| Glycoprotein Storage Diseases | International Society for Mannosidosis & Related Diseases ISMRD advocates for families and patients affected by one of the Glycoprotein Storage Diseases: Alpha-Mannosidosis, Aspartylglucosaminuria, Beta-Mannosidosis, Fucosidosis, Galactosialidosis, Mucolipidosis, Schindler Disease and Sialidosis. These diseases are the ultra-orphans of the Lysosomal Storage Disease family, which encompass over 40 similar disorders, and currently have few treatments beyond symptomatic care. |
| The International Advocate for Glycoprotein Storage Diseases We envision a future where children are detected early, treated effectively and go on to live long, healthy and productive lives. In this new reality science, medicine and families will have collaborated to find cures where none exist today and the need for an organization such as ISMRD will no longer exist. | |
| Glycosylation | CDGS Family Network, The CDG are a group of inherited disorders that affect a process called glycosylation. Glycosylation is a process by which all human cells build long sugar chains that are attached to proteins. If one of these enzymes malfunction then the cells in the body cannot glycosylate correctly. There are approximately 500 cases of all types of CDG worldwide. |
| I Have Congenital Disorder of Glycosylation Type 2e Read hundreds of true stories, share your own story anonymously, get feedback and comments, chat in the discussion forum, help others, meet new friends, and so much more | |
| Goiter Information Links: Goiter (Pendred Syndrome) Goiter (Hypothyroidism) |
Daily Strength DailyStrength.org is the most comprehensive health network of people sharing their advice, treatment experiences, and support. Keep a wellness journal, read members’ stories, and chat with new friends with over 500 support groups. |
| Thyroid Foundation of America Your thyroid gland tells every cell in your body the rate at which it should function. Having too little hormone, called hypothyroidism, puts you into a dragging slowdown. Having too much hormone, called hyperthyroidism, races your engine, so you feel all revved up-as if you were burning out. | |
| Goiter Support Group A community of patients, family members and friends dedicated to dealing with Goiter, together. | |
| Goldenhar Syndrome | National Craniofacial Association The National Craniofacial Association has been dedicated to assisting children and adults who have craniofacial disorders resulting from disease, accident, or birth. |
| Goldenhar Syndrome Support Network Society (Canada) Our goal is to provide Support and Information to families and individuals involved with Goldenhar Syndrome and its many related conditions. | |
| Goldenhar Family Support Website (UK) The site has been set up to support families throughout the U.K. who face the day to day challenges of supporting relatives with Goldenhar Syndrome and related problems. The site is written an run by families who have first hand experience of this medical condition and are NOT medical professionals. | |
| Goldenhar Syndrome Support Group A community of patients, family members and friends dedicated to dealing with Goldenhar Syndrome, together. | |
| Daily Strength - Goldenhar Syndrome Support Group Discussion boards |
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| Goodpasture’s Syndrome | Goodpasture Syndrome Support Group A community of patients, family members and friends dedicated to dealing with Goodpasture Syndrome, together. |
| Daily Strength DailyStrength.org is the most comprehensive health network of people sharing their advice, treatment experiences, and support. Keep a wellness journal, read members’ stories, and chat with new friends with over 500 support groups. | |
| Gorlin Syndrome | National Craniofacial Association The National Craniofacial Association has been dedicated to assisting children and adults who have craniofacial disorders resulting from disease, accident, or birth. |
| Gorlin Syndrome Support Group on Facebook The group is organised by patients affected by Gorlin Syndrome and their families, with support from a medical advisory board. | |
| Gorlin Syndrome Group A support network offering guidance, advice and information to patients, their families and carers whose lives are affected by Gorlin Syndrome (also known as Nevoid Basal Cell Carcinoma Syndrome). We anticipate that the information contained within the website will also be a valubale resource to healthcare profressionals | |
| I Have Gorlin Chaudhry Moss Syndrome Read hundreds of true stories, share your own story anonymously, get feedback and comments, chat in the discussion forum, help others, meet new friends, and so much more | |
| Gorlin Syndrome Group Supporting patients, their families and carers | |
| Gout Information Link: Gout |
Arthritis.org: Gout Gout causes sudden, severe attacks of pain and tenderness, redness, warmth, and swelling in some joints. Usually affects one joint at a time -- often the big toe. Gout results from a build-up in the body of too much uric acid, which forms crystals that deposit in joints and cause inflammation. |
| Gout Gout Strongly associated with obesity, hypertension, hyperlipidemia and diabetes. Here, the blood contains abnormally high levels of uric acid. It is characterized by recurring attacks of joint inflammation (arthritis), deposits of hard lumps of uric acid, decreased kidney function. | |
| Gout Support Group A community of patients, family members and friends dedicated to dealing with Gout, together. | |
| Daily Strength - Gout Support Group Discussion boards |
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| The UK Gout Society Launched to try and increase public awareness and understanding of this condition as well as to provide information about the disorder for those who suffer from gout. | |
| Granuloma Anularea | Granuloma Anularea. "Granuloma annulare is a raised, bumpy, or ring-shaped lesion, which can occur singly or in groups on the skin. It is more common in children and young adults, although it may affect people of all ages. Women are twice as likely as are men to develop granuloma annulare." |
| Granuloma Anularea. (Mayo Clinic) "Granuloma annulare is occasionally associated with diabetes and thyroid disease, but most people with granuloma annulare are otherwise healthy." | |
| Granuloma Anularea Forum. (From medHelp) "This forum is for questions regarding Dermatology issues" | |
| Granuloma Annulare Online Support Group A community of patients, family members and friends dedicated to dealing with Granuloma Annulare, together. | |
| Granuloma Annulare Support on Facebook Hopefully this group will give people with granuloma annulare somewhere to share thoughts and experiences, and also any treatment and management they have found effective | |
| Graves' Disease Information Link: Graves' Disease |
National Graves' Disease Foundation The leading cause of hyperthyroidism, Graves' Disease represents a basic defect in the immune system, causing production of immunoglobulins which stimulate and attack the thyroid gland, causing growth of the gland and overproduction of thyroid hormone. Similar antibodies may also attack the tissues in the eye muscles and in the pretibial skin (the skin on the front of the lower leg). |
| How to Support a Family Member Who Has Graves' Disease If someone in your family is one of the 13 million Americans affected by Graves' disease each year, offer your support as he or she struggles to deal with the uncomfortable symptoms. | |
| Living With Graves' Disease Graves' Disease brings a unique set of problems. Misconceptions about the disease and lack of understanding from others can leave the affected person feeling isolated and invalidated. | |
| Graves' Disease Support Group A community of patients, family members and friends dedicated to dealing with Graves' Disease, together. | |
| Daily Strength - Graves' Disease Support Group Discsuuion boards |
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| Greaving - see Bereavement | |
| Growth Hormone Deficiency | The Magic Foundation Major Aspects of Growth In Children (MAGIC) is made up of more than 25,000 families. The majority of us are parents of children with growth disorders and others are affected adults. |
| I Have Growth Hormone Deficiency Read hundreds of true stories, share your own story anonymously, get feedback and comments, chat in the discussion forum, help others, meet new friends, and so much more | |
| Pediatric Growth Hormone Deficiency Support Group
Join to help and get support from people like you. |
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| Guillain-Barré Syndrome Information Link: Guillain-Barre Syndrome |
GBS/CIDP Foundation Guillain-Barré Syndrome is an inflammatory disorder of the peripheral nerves those outside the brain and spinal cord. It is characterized by the rapid onset of weakness and, often, paralysis of the legs, arms, breathing muscles and face. GBS is the most common cause of rapidly acquired paralysis in the United States today, affecting one to two people in every 100,000. |
| GBS Support Group UK We provide information and support to those affected by GBS, CIDP and related conditions. Our support activities are restricted to the United Kingdom and the Republic of Ireland. We spread awareness of the illnesses throughout Britain and Ireland and make grants for research projects. | |
| Guillain-Barre Syndrome Information Guillain-Barre syndrome is a serious disorder that occurs when the body's defense (immune) system mistakenly attacks part of the nervous system. | |
| Guillain-Barre Syndrome Support Group A community of patients, family members and friends dedicated to dealing with Guillain-Barre Syndrome, together. | |
| Guillain Barré Syndrome Support Group Trust (New Zealand) The information we supply is for general educational purposes only and should not be regarded as advice on the diagnosis or treatment | |
| Daily Strength - Guillain-Barré Syndrome (GBS) Support Group Discussion boards |
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| I Am a Guillain Barre Syndrome Survivor Read hundreds of true stories, share your own story anonymously, get feedback and comments, chat in the discussion forum, help others, meet new friends, and so much more | |
| Gulf War Syndrome | GulfLINK GulfLINK was established in 1995 to provide on-line access to medical, operational, and intelligence documents from the 1990-1991 Gulf War. Its purpose was and is to provide Service members, veterans, and any interested person with information on what happened during that war that might have affected the health of those who served. |
| Deployment Health Clinical Center Deployment Health Clinical Center arose from the studies and treatment for Gulf War illnesses. DHCC is chartered by the DoD Health Affairs as the clinical arm of the overall effort to serve soldiers during post-deployment. This site provides content relevant to health-related issues that soldiers encounter when returning from deployment. | |
| Gulf War Syndrome Message Boards From HealthBoards.com | |
| The Gulf War Veteran Resource Pages We've been a presence on the Internet since early 1994, aiding Gulf War veterans in their pursuit for the truth. The site is run privately by volunteers and is not affiliated with any government entity. | |
Links to Support Group pages:
Alphabetical List: |
Quick Links to selected categories: |
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Eye Disorders – see Vision |
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Support Group Home Page Includes directions, hints for use, etc. |
See the "Medical Information" page for Medical Definitions, Pharmaceuticals and Home Remedies, Advocacy Groups, Medical Articles | ||
| Have We Missed a Support Group or Ailment? We are constantly looking for more information and more links. Please help us improve our site and service. The Internet had millions of web pages dedicated to medical conditions and support groups; we can only sample a few of them. If you know any sites we should include write to suggestions@slightlycreaky.com | |||
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