Support Groups L, M

How to Use -- Contents

Slightly Creaky does research to find the links you would most likely need and provides them for you in an easy-to-find format. You can access the various categories from any of our pages using the top or side menus. Each category has generalized headings, followed by more specific ones.

Many support groups are named for people, are generalized and provide assistance for several related conditions, or are otherwise difficult to interpret. This page provides links alphabetically based upon specific ailments. Please scroll down, use the index link, or use your browser's "find" or "search" feature to get the the area you are seeking.

In addition to support groups, we include links to informational sites on these conditions.

Updated January 1, 2012

        Please Contact us if you find a broken or bad link.

Links to Support Group pages:

Alphabetical
List:

Quick Links to selected categories:
Support Group Home Page
Includes directions, hints for use, etc.
 See the "Medical Information" page for Medical Definitions, Pharmaceuticals and Home Remedies, Advocacy Groups, Medical Articles

Have We Missed a Support Group or Ailment? We are constantly looking for more information and more links. Please help us improve our site and service. The Internet had millions of web pages dedicated to medical conditions and support groups; we can only sample a few of them. If you know any sites we should include write to suggestions@slightlycreaky.com
Caution - Proceed with care.    Slightly Creaky is not responsible for the content of web sites listed here nor the actions taken by the people owning, managing, or participating on them.

This listing is the result of more than 500 hours of research. It is the property of Slightly Creaky and may not be reproduced in any form. Every attempt has been made to provide an accurate description of each organization.

NOTE: If the table lines do not show properly, please refresh the page.

Updates: We review and update this page every 4 months. Many support groups change names or even terminate their services. Should you discover a bad link or wish to suggest that we add one, please contact suggestions@slightlycreaky.com

We try to avoid commercial sites, but in many cases they are the only ones who provide information and support. If you are looking to buy or sell medical products, please use a generalized search engine.

Support Groups "L"


"L"


Lactose Intolerance




Information Link 		Daily Strength DailyStrength.org is the most comprehensive health network of people sharing their advice, treatment experiences, and support. Keep a wellness journal, read members’ stories, and chat with new friends with over 500 support groups.
No Lactose   To provide a source of information to those people who are affected by lactose intolerance but also to bring this intolerance which is often not well known and even ignored to the attention of the general public.
Lactose Intolerance Support Group     Get advice and support from thousands of patients like you.
Lactose Intolerance Support Group    A community of patients, family members and friends dedicated to dealing with Lactose Intolerance, together.
Daily Strength - Lactose Intolerance Support Group - Discussion boards.
I Have Lactose Intolerance    Read hundreds of true stories, share your own story anonymously, get feedback and comments, chat in the discussion forum, help others, and meet new friends

Landau-Kleffner Syndrome


Information Link		 What is Landau Kleffner Syndrome    We are a UK registered charity, for children with Landau Kleffner Syndrome (or closely related disorders), their families, and interested professionals
Landau-Kleffner Syndrome    Information including Links where you can find more general information, comprehensive resources, selected full text journal articles, and news updates
Landau-Kleffner Syndrome Support Group   A community of patients, family members and friends dedicated to dealing with Landau-Kleffner Syndrome, together.
Langer-Giedion Syndrome Langer-Giedion Syndrome. "Langer-Giedion syndrome (LGS) is named after the two doctors who undertook the main research into the condition in the 1960s. It is a very rare condition and diagnosis is usually made at birth or in early childhood."
Langer-Giedion Syndrome Support Group    A community of patients, family members and friends dedicated to dealing with Langer-Giedion Syndrome, together.
Daily Strength - Langer-Giedion Syndrome Support Group    Discussion bopards
Latex Allergies American Latex Allergy Association   The American Latex Allergy Association is a national organization that creates awareness of latex allergy through education, and provides support to individuals who have been diagnosed with latex allergy. This website is designed to provide educational materials, publications and product information to assist you with your understanding of natural rubber latex allergy.
Latex Allergy Support Group on Facebook.   The aims of the Group are to raise awareness of latex allergy, provide support for those affected, and promote the safe and appropriat
Latex Allergy Support Group Forum (UK) Discussion boards.
Lead Poisoning




Information Link		 United Parents Against Lead    To end the continuing threat of lead poisoning and environmental hazards through intervention, education, advocacy and resource referral.
Daily Strength - Lead Poisoning Support Group     Discussion boards.
The LEAD Group (Australia)    Campaigns for the removal of lead from petrol and other products and conducts an advice and information  service about lead,
Learning Disabilities



Also see entries for specific causes of Learning Disabilities including Attention Deficit Disorder


Information Link		 National Mental Health Association    Mental Health America is the country’s leading nonprofit dedicated to helping ALL people live mentally healthier lives.
National Center for Learning Disabilities The National Center for Learning Disabilities  works to ensure that the nation's 15 million children, adolescents and adults with learning disabilities have every opportunity to succeed in school, work and life. 
Focus Adolescent Services      It is not always easy to identify one group of people who are clearly LD and another group who are not.  All of us have learning differences and difficulties.
Children's Disability List of Support Groups and Listservs   An annotated directory of internet support groups for families of children with disabilities and special needs.
Learning Disability Online Support Group    A community of patients, family members and friends dedicated to dealing with Learning Disability, together.
LD Online    LD OnLine seeks to help children and adults reach their full potential by providing accurate and up-to-date information and advice about learning disabilities and ADHD.
Legg-Calve-Perthes Disease   - see Perthes Disease
Legionnaires' Disease



Information Link		 Legionella.org     Our mission is to improve awareness and recognition of Legionnaires' disease as a community or hospital-acquired pneumonia, provide current information about Legionella infections to healthcare professionals, suggest a proactive approach for prevention of Legionnaires' disease by routine environmental cultures.
Legionnaires' Disease Support Group    A community of patients, family members and friends dedicated to dealing with Legionnaires' Disease, together.
I Have Legionnaire's Disease    Read hundreds of true stories, share your own story anonymously, get feedback and comments, chat in the discussion forum, help others, and meet new friends
Leprosy
(Hansen's disease)




Information Link		 Leprosy Mission International    TLM is a worldwide partnership, active in over 50 countries, with a vision for a world without leprosy and a passion to eradicate the causes and consequences of leprosy. As long as leprosy afflicts individuals and communities, we are committed to doing all we can to break its power and impact. This means more than just a cure for the disease; it means addressing the underlying causes, working to prevent disability and restoring dignity and wholeness.
American Leprosy Missions  provides care to people around the world with leprosy and with Buruli ulcer and related disabilities.  The ministry supports scores of projects in approximately 15 countries. Donor gifts provide training and transportation for leprosy workers, case-finding and diagnosis, physical and vocational rehabilitation, community development and much more
Support For People With Hansen's Disease/Leprosy   It is not only difficult to fight the disease physically, but it is a battle emotionally as well. The purpose of the support group is to get just that--support. Feeling that you are not alone can take an enormous amount of stress away.
Leprosy is a chronic bacterial disease affecting the skin and nerves which causes skin lesions and loss sensitivity to heat and pain. Traditionally, people with leprosy have been stigmatized and separated from other people, but today the disease can be cured.To learn more about the disease and meet people who can help, join our online support group for leprosy.
Daily Strength - Leprosy Support Group     Discussion boards
Leprosy Support Group    A community of patients, family members and friends dedicated to dealing with Leprosy, together
Lesch-Nyhan Syndrome Purine Research Society    When we consider the many different roles purines play in our metabolism, it is not surprising that the diseases of purine metabolism are as varied, ranging from asymptomatic conditions, which are only discovered accidentally, to disorders with severe neurological abnormalities, which are ultimately fatal. As with other metabolic diseases, each disorder is caused by a defective gene which results in an enzyme with too little or too much catalytic activity.
Lesch-Nyhan Disease Support Group     The network for people living with the Lesch-Nyhan Disease, their parents, teachers and anyone interested in learning more about LND.
I Have Lesch Nyhan Syndrome    Read hundreds of true stories, share your own story anonymously, get feedback and comments, chat in the discussion forum, help others, and meet new friends
Lesch-Nyhan Syndrome Support Group    A community of patients, family members and friends dedicated to dealing with Lesch-Nyhan Syndrome, together.
Leukemia


Also see
Blood Cancers  




Information Link		 Leukemia and Lymphoma Society, The     The Leukemia & Lymphoma Society is the world's largest voluntary health organization dedicated to funding blood cancer research, education, and patient services. The Society's mission: Cure leukemia, lymphoma, Hodgkin's disease and myeloma, and improve the quality of life of patients and their families.  
Childhood Leukemia Center   Created to serve the childhood cancer community by providing information, emotional support, and advocacy.
Lauri Strauss Leukemia Foundation      Our mission is to find a cure for leukemia and allied cancers by means of awarding LSLF  Discovery Grants providing “seed money” to young investigators in the fields of leukemia and allied cancers.  Additionally the Foundation provides for patient care, promotes marrow donor education and conducts marrow drives within blood drives.
JMML Foundation, The       Juvenile Myelomonocytic Leukemia (JMML) is a rare form of leukemia which affects young children, generally under the age of 5. JMML affects around 4 in every million children and the average age at diagnosis is around 2 years old.        
Daily Strength - Leukemia Support Group Message boards and discussions.
HOPE: Leukemia, Lymphoma & Mulitple Myeloma Support Group
"Helping Others by Providing Encouragement: "
Childhood Online Leukemia Community and Support Group   Through this Leukemia, Childhood support group, you can get Leukemia, Childhood information, share experiences about Leukemia, Childhood, connect with peers, and get answers to your Leukemia, Childhood questions from health professionals.
Young Adult Survivors of Childhood Leukemia  Message boards and discussions.
>>Return to Support Group index<<
Lewy Body Dementia


Information Link		 Lewy Body Dementia Association, Inc.        Dedicated to raising awareness of the Lewy body dementias, supporting patients, their families and caregivers, and promoting scientific advances.
Living With Lewy Body     Blog. Opportinities for sharing.
Lice - See Head Lice
Limb Diseases

Also see Amputations		 Limbkids      Limbkids Support Association Inc is a non-profit, voluntary organization comprised of parents, professionals and interested people concerned with the care of children who have congenital or acquired limb differences.
Limbless Association (UK)   The Limbless Association provides information, advice and support for people of all ages who are without one or more limbs. It has a nationwide network of volunteer visitors who are all amputees themselves, offering support and encouragement to prospective amputees, carers and those already trying to come to terms with limb loss or deficiency.
Limb Anomalies    List of resources.
Periodic Limb Movement Disorder  A place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Amputation / Limb Deficiency    List of resources.
Stiff Limb Syndrome    A place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Liver Diseases including Cancer



Information Links:

Liver Cancer

Liver Disease

Liver Transplant		 American Liver Foundation The American Liver Foundation (ALF) is the nation's leading nonprofit organization promoting liver health and disease prevention. ALF provides research, education and advocacy for those affected by liver-related diseases, including hepatitis.
Children's Liver Association for Support Services        C.L.A.S.S. is an all-volunteer, nonprofit organization dedicated to serving the emotional, educational, and financial needs of families coping with childhood liver disease and transplantation. Our goal is to be both a service to families and a valuable resource for the medical community.           
Children’s Liver Disease Foundation Our vision is that childhood liver disease will be understood and fought effectively thereby ensuring that young people with liver disease and families will be able to take control of their lives and achieve their full potential.
Daily Strength - Liver Cancer Support Group     Message boards and discussion groups
Liver Cancer Support Group    A community of patients, family members and friends dedicated to dealing with Liver Cancer, together.
Liver Cancer    From Support Groups.com
Liver Cancer Advocacy, Education, and Support Groups  The following organizations provide a variety of support programs and educational materials for people with liver cancer and their family members, caregivers, and friends.
Leukodystrophy United Leukodystrophy Foundation   The leukodystrophies are a group of rare genetic disorders that affect the central nervous system by disrupting the growth or maintenance of the myelin sheath that insulates nerve cells. These disorders are progressive, meaning that they tend to get worse throughout the life of the patient.
Australian Leukodystrophy Support Group    Plays an important role in supporting those affected by Leukodystrophy which is a group of rare genetic disorders that affect the central nervous system. In most instances, these disorders are progressive and symptoms often include loss of muscle tone, blindness and other debilitating factors.
Daily Strength - Leukodystrophies Support Group     Discussion boards.
I Have Leukodystrophy     Read hundreds of true stories, share your own story anonymously, get feedback and comments, chat in the discussion forum, help others, and meet new friends
Loeys-Dietz Syndrome


Information Link		 Loeys-Dietz Syndrome Foundation     Bringing greater awareness to Loeys-Dietz syndrome (LDS) by encouraging education, fostering research and providing support for those impacted by LDS.
I Have Loeys-dietz Syndrome     A Loeys-Dietz Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Loeys-Dietz Syndrome. You're not alone.
Loss, Grief, and Bereavement - See Bereavement
Lou Gehrig's Disease - see Amyotrophic Lateral Sclerosis
Lowe Syndrome Lowe Syndrome Association    Boys with Lowe Syndrome are born with cataracts in both eyes, which are usually removed at a few months of age. Most boys are fitted with glasses, contacts, or a combination of the two. Glaucoma is present in about 50% of the boys with Lowe syndrome, though usually not at birth. Prescription eye drop and/or surgery is required to maintain appropriate eye pressure in these cases.
Lowe Syndrome Trust (UK)    Supports families and initiates and funds medical research into Lowe Syndrome.
Lung Diseases including Cancer




Information Link:

Lung Cancer		 American Lung Association As part of our American Lung Association® community, you have the benefits of in-depth and timely information on lung issues including asthma, tobacco control, and environmental health
Lung Disease at the Deborah Heart & Lung Center. Information about a variety of lung-related conditions.
Lung Disease Helpline. "This information is provided as a resource and does not constitute an endorsement for any group."
Lung Cancer Alliance  The Lung Cancer Alliance is the only national non-profit organization dedicated solely to patient support and advocacy for people living with lung cancer and those at risk for the disease.
LUNGevity Foundation   To save the lives of the 213,000 Americans newly diagnosed with lung cancer each year, Partnering with the foremost physicians and research scientists in the world, the Foundation funds innovative research designed to treat and cure lung cancer, the nation's leading cancer killer.
Alliance for Lung Cancer Advocacy, Support, & Education We are is the only national non-profit organization dedicated solely to patient support and advocacy for people living with lung cancer and those at risk for the disease.
Daily Strength - Lung Cancer Support Group    Message boards and discussions.
Lung Cancer Support Groups     Includes online, telephone, and in-person groups
Lung Cancer Support    Message boards and discussions.
Lung Cancer Support Group   A community of patients, family members and friends dedicated to dealing with Lung Cancer, together.
Lupus




Information Link		 Lupus Alliance of America   Lupus can be a frightening, uncertain disease. Feeling scared and a bit lost is normal when you first hear the diagnosis…but there is more to having this disease than these feelings. The Lupus Alliance of America offers understanding and support, provides information and assists patients to get past “having lupus” and back to living.
Lupus Foundation of America   With nearly 300 chapters, branches and support groups in 32 states, the Lupus Foundation of America is dedicated to finding the causes and cure for lupus. Our mission is to improve the diagnosis and treatment of lupus, support individuals and families affected by the disease, increase awareness of lupus among health professionals and the public, and find the causes and cure. Research, education, and patient services are at the heart of LFA's programs.  
Alliance for Lupus Research (ALR)   To find better treatments and ultimately prevent and cure systemic lupus erythematosus (SLE, or lupus), a debilitating autoimmune disease.
Cure 4 Lupus (May be commercial)   Promoting Lupus Awareness and Research to Find a Cure. Providing Information, Support, & Lupus Awareness
Lupus Support Group Locator    The Lupus Foundation of America (LFA) provides most of its direct services through a nationwide network of chapters, branches and support groups. Chapters conduct programs of public education and information, patient education, professional education, and advocacy. Chapters provide support to people with lupus, their families, and healthcare professionals.
We Have Lupus.com Forums and a blog.
Lupus: Support and Survival    This page is dedicated to a wonderful group of people..  They are a collection of souls who have no other wiles other than to help one another as friends. They are a Lupus Support Group with the Loving Hearts of Sisters and Brothers, the Courage of the Wolf, and the Strength of the Pack.
Life With Lupus     Patient-to-patient support for people living with Lupus.
Daily Strength - Lupus Support Group     Discussion boards.
Lupus Support Group    A community of patients, family members and friends dedicated to dealing with Lupus, together.
Lyme Disease




Information Link		 Lyme Disease Foundation, Inc.  The Lyme Disease Foundation (LDF) is the premier nonprofit dedicated to finding solutions for tick-borne disorders. Realizing the ability to find solutions involves a multi-discipline effort, the LDF includes the four cornerstones of progress (businesses, patients, government, and the medical community) to work together to find solutions to tick-borne disorders.  (Also has information about Rockey Mountain Spotted Fever.)
Lyme Disease Network        Welcome to The Lyme Disease Network, dedicated to public education of the prevention and treatment of Lyme disease and other tick-borne illnesses.
American Lyme Disease Foundation, Inc. The American Lyme Disease Foundation, Inc. is dedicated to the prevention, diagnosis and treatment of Lyme disease and other tick-borne infections. The Foundation plays a key role in providing reliable and scientifically accurate information to the public, medical community and government agencies about tick-borne diseases and their effects on human health and quality of life.
Lyme Disease Support Groups    The following is a listing of Lyme organizations throughout the States that have websites. However, there are a number of Lyme support groups that do NOT have websites. These groups are not found on this page. If you do not see a group for your area, check out Lymenet's Support Group list. Also see Lyme Disease Meetup Groups. For online support, see the forum list in our Directory.
Lyme Disease Support Group    A community of patients, family members and friends dedicated to dealing with lyme disease, together.
Daily Strength - Lyme Disease Support Group    Discussion boards.
Lymphangioleio-
myomatosis 		LAM Foundation       Lymphangioleiomyomatosis, better known as LAM, is a progressive lung disease that affects women of all races, usually during their childbearing years. Symptoms include a collapsed lung, fluid in the lungs, shortness of breath, fatigue, cough, and chest pain. LAM often goes misdiagnosed as asthma, emphysema, and pulmonary bronchitis.
Lymphatic Malformation Children Afflicted With Lymphatic Malformations - CALM          For over 100 years, doctors referred to these disorders as tumors. They often identified the disorders with the term "lymphangioma" and "cystic hygroma." Now, doctors believe that these conditions are not really tumors, but rather they are deformed tissues that result from abnormal embryonic development of the lymphatic vascular system. Thus, the term,"lymphatic malformation" (LM), is more appropriate.
Lymphedema National Lymphedema Network (NLN)      Lymphedema is an accumulation of lymphatic fluid in the interstitial tissue that causes swelling, most often in the arm(s) and/or leg(s), and occasionally in other parts of the body.
Lymphedema People      A site for people with lymphedema, made by people with lymphedema.
Lymphedema Support Groups    The following organizations are local lymphedema support groups. Click on the organization name for additional information.
Daily Strength - Lymphedema Support Group    Discussion boards.
Lymphedema Support Group    A community of patients, family members and friends dedicated to dealing with Lymphedema, together.
Lymphomic Diseases

Also see
Blood Cancers

Non-Hodgkin's Lymphoma

 

Lymphoma Coalition The Lymphoma Coalition, a non-profit network organization of lymphoma patient groups, is a global initiative dedicated to raising awareness of lymphoma, a common form of cancer. 
Lymphoma Support Groups   Builds awareness and support for lymphoma patients and survivors. Share personal experiences, evaluate information and get support during times of need, illness, treatment or recovery.
Lymphoma Research Foundation  If you or a loved one has been diagnosed with lymphoma, the most common blood cancer and third most common cancer of childhood, the Lymphoma Research Foundation (LRF) is here to help. On this Web site you will find valuable information about the different types of lymphoma, diagnostic techniques your health care practitioners may use, and treatment options.
Patients Against Lymphoma   Founded by patients and caregivers directly affected by lymphomas. Our mission is to provide timely access to evidence-based information on  lymphoma and its treatments. We also actively engage the research community - providing patient perspectives on the direction of clinical research and the design of clinical trials.  
>>Return to Support Group index<<

Support Groups "Ma" through "Mi"


"Ma" through "Mi"

Macular Degeneration



Also see
Vision & Eye Disease



Information Link		 Macular Degeneration Foundation, Inc.     Eyesight.org receives top ranking by all major search engines for a reason ...  It continues to be the leading resource for information concerning Macular Degeneration to a growing population of individuals affected by the disease and related low vision conditions.
Macular Degeneration Partnership       Macular degeneration is a progressive eye condition affecting as many as 15 million Americans and millions more around the world. The disease attacks the macula of the eye, where our sharpest central vision occurs. Although it rarely results in complete blindness, it robs the individual of all but the outermost, peripheral vision, leaving only dim images or black holes at the center of vision.
American Health Assistance Foundation "Funds research seeking cures for Alzheimer’s disease, age-related macular degeneration and glaucoma, and provides the public with information about risk factors, preventative lifestyles, available treatments and coping strategies."
Macular Disease Society (UK)  The Macular Disease Society aims to build confidence and independence for those with central vision impairment.  We are the only UK charity dedicated to helping people with macular degeneration.
American Macular Degeneration Foundation (AMDF)Prevention and cure of macular degeneration and offers hope and support to those afflicted and their families. Promoting an alliance among the scientific community, government, and victims of the disease and their families to ensure the prevention and cure.
International Macular Degeneration Support Group     To provide free information and support through presentations to groups of senior adults affected by macular degeneration and related retinal diseases.
Daily Strength - Macular Degeneration Support Group    Discussion groups
Macular Degeneration Support Group    A community of patients, family members and friends dedicated to dealing with Macular Degeneration, together.
Malaria




Information Link		 Malaria is a vector-borne infectious disease caused by protozoan parasites. It is widespread in tropical and subtropical regions, including parts of the Americas, Asia, and Africa. Malaria is one of the most common infectious diseases and an enormous public health problem
Malaria Support Group    A community of patients, family members and friends dedicated to dealing with Malaria, together.
Malaria Support Group   Get advice and support from thousands of patients like you
Daily Strength - Malaria Support Group    Discussion boards
The Malaria Support Group and Health Community is for those who have been diagnosed with malaria. Family members of individuals with malaria are also encouraged to join this support group.
I Have Malaria     A Malaria anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Malaria. You're not alone.
Male Menopause




Information Link

(Also see Menopause)		 Andropause, or male menopause, happens when men experience a decline in the body’s production of testosterone as they age. Male menopause is not as well defined as female menopause, but cause – a decline in the sex-specific hormone – is similar.
Male Menopause And Low Testosterone    This article is for all men and their partners. When men and women reach the age of 40, they need to be prepared for male menopause. This is a phenomena which involves both the man and his sexual partner. Male menopause is not a myth. It exists to wreck havoc in lives of the ill-prepared.
Male Menopause: A Personal Perspective    Four years ago, when I began research for the book, I expected that whatever it was that men go through between the ages of 40 and 55, it was very different than what women experienced. I was sure I would never use a term like "male menopause." However, as the research findings poured in and the personal interviews showed similar results, I came to see that men and women are more alike than different at this time of life.
Treatment of Male Menopause    There are many ways to cope with the symptoms of male menopause. The following tips may ease the symptoms and help you to cope in general with the many changes (physiological, emotional and mental) that occur during male menopause.
Manic , Manic Depressive, Mania - see Depression
Maple Syrup Urine Disease MSUD Family Support Group    Maple Syrup Urine Disease is an inherited metabolic disorder, that, if untreated, causes mental retardation, physical disabilities and death.  The disorder affects the way the body processes the three branched-chain amino acids leucine, isoleucine, and valine.  These amino acids accumulate in the blood causing a toxic effect that interferes with brain functions.           
Daily Strength DailyStrength.org is the most comprehensive health network of people sharing their advice, treatment experiences, and support. Keep a wellness journal, read members’ stories, and chat with new friends with over 500 support groups.
Save Babies Through Screening Foundation, Inc.    Its mission is to improve the lives of babies by working to prevent disabilities and early death resulting from disorders detectable through newborn screening. Without proper screening affected children will likely suffer mental retardation, physical disability or even death. Most affected children can lead normal, healthy lives when diagnosed and started on treatment early.
Maple Syrup Urine Disease Support Group   A community of patients, family members and friends dedicated to dealing with Maple Syrup Urine Disease, together.
Marfan Syndrome



Information Link		  National Marfan Foundation     The National Marfan Foundation is dedicated to saving lives, and improving the quality of life for individuals and families affected by the Marfan syndrome and related disorders.  Marfan syndrome is a heritable condition that affects the connective tissue.
 Federation of Marfan Syndrome Organizations  To sShare current, accurate information about the Marfan syndrome worldwide and facilitate international communication among medical professionals and the general public; establish standards for diagnosis and treatment of the Marfan syndrome; and support and foster research and facilitate communication with research centers and researchers worldwide.         
Marfan Syndrome Support Group (Ireland)    To provide physical and emotional support to Marfan Sufferers and their families.
The Support Group was also set up to provide information and create awareness for patients, relatives, the Medical Profession and the wider community.
Daily Strength - Marfan Syndrome Support Group     Discussion boards.
Conner's Marfan Syndrome Support Group    Where Kids Support Kids   I was diagnosed at the age of 10. My sister Alanah also has Marfan Syndrome; she is 10 and was diagnosed at the same time as me. My dad also has Marfan Syndrome, and so does my Granddad. I told my parents that for Christmas (2008) I wanted a Marfan website for kids. And here it is!!!!!
Marfan Syndrome Support Group    A community of patients, family members and friends dedicated to dealing with Marfan Syndrome, together.
Maffucci's Syndrome



Also see Ollier's Disease		 Multiple Enchondroma Diseases AAMED is THE source for news and information about bone tumor diseases, research and services for adults and children with Maffucci's syndrome, and their families.On this site, you'll find links to our quarterly newsletters, message board, pen-pal program for children, latest research information, and much more.
Ollier's Disease & Maffucci Syndrome    This is a Rare Disease Support Community eGroup available for anyone interested in making friends, sharing information and providing support for persons affected by rare bone tumor (enchondromas) diseases.
Malignant Hyperthermia Malignant Hyperthermia Association   MHAUS is the only association in the United States dedicated to the control of malignant hyperthermia, a life-threatening genetic disorder.  Malignant hyperthermia, an event triggered in susceptible individuals by various anesthetics, strikes fast and without warning, and is a sudden and life threatening condition.
BMHA (UK)    Whether you are a patient or a medical professional, we have sections dedicated to giving you information about Malignant Hyperthermia
Marie-Sainton Syndrome - See Cleidocranial Dysplasia
Marinesco-Sjögren Syndrome Marinesco-Sjögren Syndrome Support Group                Marinesco-Sjogren Syndrome is a very rare genetic disorder characterized by ataxia (balance and coordination problems), juvenile cataracts, generally some degree of cognitive delay, and very small stature. About 100-200 cases of MSS have been diagnosed worldwide.  
Massage Heart Touch Project     Dedicated to the training and delivery of compassionate and healing touch to homebound or hospitalized, men, women and children. Providing massage in hospitals is a way for children to have a positive touch experience during their hospital stay.  Currently, Heart Touch™ volunteers are massaging infants and children who are terminally ill and in hospice care.
Medical Massage.com     The most comprehensive site that exists for medical massage research, education and supplies.  More than a few massage therapists claim to perform Medical Massage.  But Medical Massage does not refer to any specific technique.  By definition, Medical Massage is therapy prescribed by a physician and is massage performed following the directives of that physician.
Massage Today     Currently, there are well over 100,000 massage therapists practicing in the United States alone. Training requirements vary from state to state, although an increasing number of schools and states recommend massage therapy programs of at least 500 hours training
Massage: Get in Touch With its Many Health Benefits (Mayo Clinic)    A soothing massage can help you unwind, but that's not all. Explore the possible health benefits and risks of massage therapy, plus what to expect.
Mastocytosis The Mastocytosis Society   The Mastocytosis Society's is dedicated to helping patients, caregivers and medical personnel understand Mast Cell Disorders and the impact they have on patient's lives. Systemic Mastocytosis is a neoplastic disease, meaning that it involves new or abnormal cell growth.
Living with Mastocytosis (Blog)     A Diary About Living with Mastocytosis.   Personal Stories, Research Links and DataOpen to posts by other patients and caregiver.
I Have Mastocytosi    Read hundreds of true stories, share your own story anonymously, get feedback and comments, chat in the discussion forum, help others, meet new friends
McCune-Albright Syndrome The Magic Foundation Major Aspects of Growth In Children  (MAGIC)  is made up of more than 25,000 families. The majority of us are parents of children with growth disorders and others are affected adults.
I Have Mccune-albright Syndrome     McCune-Albright Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with McCune-Albright Syndrome.
Measles



Information Link		 Measles    Here's everything you need to know about the disease, it's symptoms and the MMR vaccine which protects your child against measles
Measles Initiative    The Measles Initiative founding partners provide technical and financial support to governments and communities conducting mass vaccination campaigns, improving routine immunization services, and establishing effective disease surveillance.
Measles Support Group   A community of patients, family members and friends dedicated to dealing with Measles, together.
Measles (NetDoctor UK)     It is a notifiable disease in the UK. This means that, by law, cases are required to be reported to a health officer or local government authority.
Medicaid and Medicare -
               See the Slightly Creaky Medical Information Page
                                  (Check the index there for specific needs)
Melanoma - See Cancer or Skin Issues
MELAS Syndrome



Information Link


Also see the Mitochondrial Disease section (below)		 MELAS Syndrome     Information with a listing of local support groups.
I Have Melas Syndrome     MELAS Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with MELAS Syndrome.
MEALS Support Board     A place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Memory and Memory Loss


Also See Dementia

Also see specific condition that might cause memory loss.


Information Link
 The Memory Disorders Support Group and Health Community is for individuals who suffer from memory disorders or memory loss due to another medical condition. Family members of people with a memory disorder are also encouraged to join this support group.
Memory Loss    Discussion boards
I Have Memory Loss    Memory Loss anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Memory Loss.
Meniere's Disease



Information Link		 Menieres.org    Meniere's Disease is a disorder of the inner ear associated with a change in the volume of fluid inside a portion of the inner ear called the labyrinth, which includes the membranous labyrinth and the bony labyrinth.          
Prosper Meniere Society    Our primary goal is to promote the academic dissemination and discussion of clinical research data on Ménière's disease and all aspects of inner ear dysfunction, pathophysiology, diagnosis and treatment.
Meniere's Australia    If you have Meniere's you may benefit from consulting with and learning from other people who have the condition.
Daily Strength - Meniere's Disease Support Group    Discussion boards.
Meniere's Disease Support Group   A community of patients, family members and friends dedicated to dealing with Meniere's Disease, together.
Meningitis



Information Links:

Encephalitis &      Meningitis

Meningitis      Meningococcus 		Meningitis Foundation of America We are here to help support sufferers of meningitis and their families, to educate the public and medical professionals about meningitis so that its early diagnosis and treatment will save lives, and to support the development of vaccines and other methods of preventing meningitis
Meningitis Trust    (UK)   For everyone affected by meningitis to have access to support for life and for awareness levels of the disease to be such that lives are saved.
Mollaret's Meningitis Support Group   Daily Support Designed to HELP Mollaret's Meningitis Sufferers
The Meningitis Support Group and Health Community is for individuals and family members of individuals diagnosed with meningitis.
Daily Strength   Meningitis Support Group    Discussion boards
Meningitis Survivors & Supporters   on FaceBook,   For all those who have survived any form of meningitis, whether aseptic (viral) or bacterial. Also, for those who support educating and vaccinating everyone so that lives may be saved.
I Have Bacterial Meningitis    A Bacterial Meningitis anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Bacterial Meningitis.
I Have Viral Meningitis    Meningitis, Viral anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Meningitis, Viral
Meningitis Awareness   If you've been touched by the illness read about the support available. Do get in touch with the organisations to see how they can help and if you want to talk to other mothers about what you are going through,
Menopause



Also see Male Menopause



Information Links:

Menopause

Menopause and Sex

Hot Flashes

Male Menopause

Premature Menopause		 The Daisy Network Premature Menopause Support Group (UK)   For women who have experienced a premature menopause.Premature menopause is defined as the onset of menopause before the age of 45 and affects one per cent of women. If you have recently been diagnosed with premature menopause, or suspect that you may be going through it, or know someone who may be, then the Daisy Network is here to help you.
New Zealand Early Menopause There are a lot of things to consider following a diagnosis of early menopause and you may be feeling overwhelmed right now. You may be feeling worried or uncertain about what this means for you and perhaps also for your partner. We certainly don’t believe we have all the answers. In fact, we know that we don’t. But, our experience has been that a friendly ear and a shared story with someone who has been through a similar experience can help a lot.
WebMD Menopause Community    Discussion boards and information.
Menopause Support Boards    Discussion areas.
Menopause Support Group    A community of patients, family members and friends dedicated to dealing with Menopause, together.
Daily Strength - Menopause Support Group     Discussion boards.
Menopause Meetup Groups     Meetup for all women undergoing menopause, especially those going through menopause early because of hysterectomy/endo/pof/cancer treatment, offering friendly support.
Women's Health: Menopause    Join our online support group for women going through menopause to talk with other women and doctors and learn more about this stage of your life.
Meniopause and Nutrition    "There are certain stages in our lives when we must adjust our lifestyle and nutritional habits in order to keep up with any changes to the body. When a woman reaches the menopause she may find that making some simple changes to her diet and way of life could actually help to decrease certain symptoms associated with menopause and could also help to protect against any related diseases"
Menstrual Cramps





Information Links		 I Hate Menstrual Cramps    Read true personal stories, chat & get advice, support and help from a group of 170 people who all say 'I Hate Menstrual Cramps'
Providing Support for Your Daughter With Menstrual Cramps   No loving parent wants to see their offspring hurting. The effects of menstrual cramps both in the physical pain experienced as well as the physiological pain are not only difficult for your daughter, but can create a difficult situation for those connected with her.
Dysmenorrhea refers to severely painful menstruation. Women with dysmenorrhea have so much pain that they are not able to do everyday things and need medicatio
>>Return to Support Group index<<
Mental Health (general)



Also see Specific Condition



Information Links:

Mental Health        (Psychology)

Mental Illness

Mental Illness in         Children		 Cope-Care-Deal   The Annenberg Foundation Trust at Sunnylands created its Adolescent Mental Health Initiative to synthesize and disseminate scientific research on the prevention and treatment of mental disorders in adolescents. The Initiative creates books and Web materials for adolescents on topics including depression, bipolar disorder, anxiety, schizophrenia, and suicide prevention.
ARC (formerly Association for Retarded Citizens of the United States) is the country's largest voluntary organization committed to the welfare of all children and adults with mental retardation and their families.   
American Association on Mental Retardation      AAIDD promotes progressive policies, sound research, effective practices, and universal human rights for people with intellectual and developmental disabilities.
National Mental Health Association    Mental Health America is the country’s leading nonprofit dedicated to helping ALL people live mentally healthier lives.
National Alliance for the Mentally Ill    NAMI is the nation’s largest grassroots mental health organization dedicated to improving the lives of persons living with serious mental illness and their families who join together to meet the NAMI mission through advocacy, research, support, and education.        
Mesothelioma

Also see Asbestosis




Information Links:

Mesothelioma

Cancer of the Peritoneum

Cancer of the Pleura
Mesothelioma Web      A mesothelioma diagnosis can be overwhelming, and we are here to answer any questions you might have, and to help you take the steps necessary to find the options that are best suited to your individual needs.
Mesothelioma Diagnosis     A rare form of cancer that primarily affects the tissue that lines the lungs, called the mesothelium. It can also affect the heart and abdomen.
Mesothelioma Doctor: "In any kind of delicate situation, such as dealing with mesothelioma, receiving valuable information is very important. All the information you need is available on our website. Find a list of doctors and treatment centers that can offer the necessary mesothelioma treatment methods in order to treat your health. All the support you need and even legal help for asbestos victims is one click away."
Mesothelioma.com   Mesothelioma.com is the web's most trusted information resource for individuals who have been diagnosed with mesothelioma and their families. Our mission, as a leading authority on this topic, is to continually provide relevant, timely, and factual information about asbestos exposure and its causal links to mesothelioma cancer.
Mesothelioma & Asbestos Awareness Center    The Mesothelioma and Asbestos Awareness Center has long been recognized as the web's leading organization for relevant and authoritative information regarding asbestos and health complications associated with asbestos exposure.
Mesothelioma Cancer Online Chat and Forum Support Groups
Below are some of the mesothelioma support groups sites and resources that we have found so far.
Mesothelioma Support Group    A community of patients, family members and friends dedicated to dealing with Mesothelioma, together.
Mesothelioma Center    Many groups provide educational programs, counseling, and can be a good source of the latest information on mesothelioma. Family support can be an important part of a patient's treatment and health; many of the support groups provide resources to caregivers and other family members.
Daily Strength - Mesothelioma Support Group    Message boards and discussions
Mesothelioma Prognosis Mesothelioma is a deadly disease that afflicts 3,000 people each year and that number is expected to grow in conjunction with the widespread use of asbestos throughout the last century. If you or a loved one is dealing with mesothelioma, your prognosis doesn't have to be impossible.
Surviving Mesothelioma  In his book Surviving Mesothelioma and Other Cancers: A Patient's Guide, Mr. Kraus offers practical advice on what he did to beat the odds so that others can too. Today, "Surviving Mesothelioma" is the best-selling mesothelioma book in the world.
Asbestos.com (Mesothelioma Center) " Whether you, a family member or a friend are diagnosed with mesothelioma or another asbestos-related disease, this site was designed for you. The Mesothelioma Center is committed to being a comprehensive one-stop resource for all asbestos- and mesothelioma-related issues"
How to Choose Your Mesothelioma Doctor   There are many licensed oncologists practicing medicine, but only a small percentage of these doctors actually specialize in mesothelioma. Few physicians will ever treat a mesothelioma patient during their career, and even fewer can call themselves a mesothelioma specialist.
My Cancer Place    Join a community of people with cancer, share information, give and receive support, learn from the experiences of others, and create a free web page with text and photos that you can change anytime.
staMptrip    As Mesothelioma and other rare forms of cancer have begun to take the focus of so many people’s attention, we now know more about this rare form of cancer than ever before.
Mesothelioma Symptoms    As physicians, scientists and various medical research experts learn more about this fatal disease, we’ve been able to determine that the greatest asset we have in battling this disease is information.
Metabolic Syndrome



Informstion Link		 Healia Health Community for Metabolic Syndrome.    Through this Metabolic Syndrome support group, you can get Metabolic Syndrome information, share experiences about Metabolic Syndrome, connect with peers, and get answers to your Metabolic Syndrome questions from health professionals.
Metabolic Syndrome is a group of symptoms that put you at increased risk for heart disease and diabetes: fat deposits around the waist, high blood pressure, insulin resistance or high blood sugar, high triglycerides and LDL or ‘bad’ cholesterol in the blood, low HDL or ‘good’ cholesterol in the blood.
Metabolic Syndrome is a group of risk factors for cardiovascular disease. The factors are related to the breakdown and use of food and the action of the hormone insulin. These conditions are risk factors for health issues
I Have Abdominal Obesity Metabolic Syndrome    An Abdominal Obesity Metabolic Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Abdominal Obesity Metabolic Syndrome.
Metabolic Syndrome in Children   Intrauterine events for the unborn child and factors during early development years predispose a child to disorders such as obesity, prediabetes, and metabolic syndrome. At the same time, urbanization, unhealthy diet and sedentary lifestyle are increasing the risks for the coming generations.
Metachromatic Leukodystrophy MLD Foundation       The MLD Foundation serves families affected by metachromatic leukodystrophy, a terminal genetic condition.
The Evanosky Foundation    Metachromatic Leukodystrophy is a rare, genetic, degenerative, neurometabolic disorder that affects approximately one in 40,000 people (primarily children) worldwide. It is an inherited disease, but parents are typically not affected. At present, it is a disease for which there is no cure.
Australian Leukodystrophy Support Group     Rather than being caused by too little of a myelin sheath component, it is caused by too much of one. A lack of the enzyme arylsulfatase A leads to a build up of sulfatides, a component of the myelin sheath, in the patient's nervous system in various organs in the body such as the kidney, liver, and gall bladder.
Microtia National Craniofacial Association  The National Craniofacial Association has been dedicated to assisting children and adults who have craniofacial disorders resulting from disease, accident, or birth.
Microtia and Atresia Support Group on FaceBook.   Support Group for Microtia and Atresia. Please feel free to refer back to older posts on this page's wall history as there is a ton of valuable information posted including reputable surgeons, surgical videos, conferences, surgical techniques, etc.
Microtia   Support group for parents of children with Microtia, or for those with Microtia. Support group for parents of children with Microtia, or for those with Microtia.
Microtia   This is a group for moms like myself who has a child that was born with Microtia (small ear). If you are looking for support, someone to talk to,then this is the group for you. No bashing allowed!
Migraine



Also see Headache    




Information Link		 Migraine Action Association       The Migraine Action Association bridges the gap between the sufferer and the medical world by providing unbiased information on all aspects of migraine, its causes, diagnosis and treatment.       
MAGNUM Inc.   Migraine Awareness Group: A National Understanding for Migraineurs, was created to bring public awareness utilizing the electronic, print and artistic mediums, to the fact that Migraine is a true biologic neurological disease, to assist Migraine sufferers, their families, and coworkers, and to help improve the quality of life of Migraine sufferers worldwide.
Visual Migraines. "This is a result of blood vessels in the visual part of the brain suddenly spasming, causing bloodflow changes in the region and, hence, visual weirdities. I was most concerned about this because it does impair my vision and, when on the road, this could be a serious problem."
Ocular Migraine. "Ophthalmic (eye) migraines are very common and often painless, although the solo term "migraine" usually brings to mind a severe type of headache."
Migraine Resources. Links to message boards, chat rooms, and information.
Learn Anout Migraine. "Perhaps only a fellow sufferer can really understand what it’s like to live with migraine. Far from being an ordinary headache, migraine is an illness that may take its toll on family and relationships; it may affect your work, your quality of life, even your ability to function."
Miscarriage




Information Link		 Dealing with the Pain of a Miscarriage?   Connect with other women who have miscarried to find support from others who understand the pain of losing a pregnancy.
Miscarriage Support    A non-profit site devoted to the support of those who are suffering from the loss of a child due to miscarriage.
Share Pregnancy and Infant Loss Support     To serve those whose lives are touched by the tragic death of a baby through early pregnancy loss, stillbirth, or in the first few months of life.
Miscarriage Support Group    A community of patients, family members and friends dedicated to dealing with Miscarriage, together.
HopeXchange     If you are here because you, or someone you love, has suffered the death of a child, please accept our deepest sympathy. Coping with the grief of miscarriage, stillbirth or infant death can be one of the most difficult trials in a person’s life, and one most of us are unprepared to face. We are here to offer you information, encouragement, support, and most of all hope.
Woman's Health: Miscarriage       Miscarriage is the spontaneous end of a pregnancy before the fetus can survive – in human beings, this is generally the 20th week of pregnancy. It is common complication in the first and early second trimesters of pregnancy.
Miscarriage Support, Auckland    We are so sorry you have lost your baby. This website offers support and information to all women who have experienced a loss at any stage of their pregnancy and for any reason, particularly miscarriage.
Daily Strength - Miscarriage Support Group   Discussion boards.
Miscarriage    Discussion boards.
Infertility, Pregnancy Loss and Adoption    Bulletin Boards and Forums.
Mitochondrial Disease



Information Links:

Mitochondrial Disease

Mitochondrial Encephalomyopathy      (MELAS Syndrome)
(Also see the MELAS section, above)		 Children's Mitochondrial Disease Network, The Mitochondrial diseases are result from defects in the function of the mitochondrion, cells that fulfill energy requirements of the tissue.
United Mitochondrial Disease Foundation      Since 1996, the United Mitochondrial Disease Foundation has funded nearly $4 million in research toward a cure and has helped thousands of families through the family support network. UMDF supports scientific collaboration and family networking through international symposia and is building an endowment to sustain research through the millennium.
Mitochondrial Diseases Support Group   A community of patients, family members and friends dedicated to dealing with Mitochondrial Diseases, together.
Mitochondrial/Metabolic Parent Group   Are you feeling overwhelmed? Do you want to learn more about a disease you can't even pronounce? We are all in the same boat. Our families have children affected by mitochondrial/metabolic disorders
Daily Strength - Mitochondrial Diseases Support Group    Discussion boards.
Mitral Valve Prolapse Syndrome



Information Link		 Society for Mitral Valve Prolapse Syndrome        In a normal valve the flow of blood goes from the left atrium to the left ventricle. Upon closing it prevents blood from going back into the left atrium. With MVP the flaps don't close evenly. One or both flaps collapse backwards, sometimes allowing a small amount of blood to leak through the valve. Mitral valve prolapse is a genetic disorder and seems to affect women three times more than men. It is one of the most common cardiac findings.
MVPS    Discussion boards.
Mitral Valve Prolapse Support Groups     In the United States
>>Return to Support Group index<<

Support Groups "Mo" through "My"


"Mo" through "My"


Mobility Mobility-Advisor.com     Mobility-Advisor.com serves as an educational guide on wheel chair options, mobility aids, disability resources, and recreational outlets that enhance the lives of individuals of all ages who need mobility assistance.
National Mobility Equipment Dealers Association           Known internationally  as an organization committed to ensuring quality and professionalism in the manufacturing and installation of safe and reliable mobility equipment in vehicles for drivers and passengers with disabilities.
Wheel Me On     The organization promotes activity and unity of all Americans and strives for greater access in society. Web Pages provide education through informative articles to assist everyday living for people with or without disabilities.
Accessible Aviation International, Inc.      Accessible Aviation provides access to flight instruction for normally-abled and disabled people.    
Mobility Alliance Group    (Commercial, with good information) Join the thousands of Americans who enjoy the freedom a Scooter or Power Wheelchair makes possible for them and their caregivers. Mobility Alliance Group members will work with Medicare and your secondary insurance — which may mean you can get a new Scooter or Power Wheelchair at little or no cost to you.
MobilityWorks    (Commercial, with good information) is able to provide mobility equipment and accessible van training for occupational and physical therapists (OT/PT) in conjunction with many local colleges and universities. We are also able to provide a mobility consultant for in-service events, such as spinal cord injury support groups and rehabilitation center group meetings.
Ableize (UK)   Support Groups for disabled adults and children in the UK offering disabled and disability advice, help, support and assistance to both the disabled person, their familiy members and carers. Ableize houses one of the largest selection of support groups in the UK providing advice, support and social meetings to people of all disabilities. Select from the categories below.
Monkeypox


 Information Link		 Healthline Information    Certain African squirrels and primates carry a virus that causes monkeypox in humans. This virus is related to the smallpox virus, but it usually produces a less severe illness with fewer fatalities. However, symptoms are similar: fever, pus-filled blisters all over the body, and respiratory problems.
Monkeypox Virus Infections    Monkeypox is a rare viral disease. It occurs mostly in central and western Africa. Wild rodents and squirrels carry it, but it is called monkeypox because scientists saw it first in lab monkeys. In 2003, it was reported in prairie dogs and humans in the U.S.
Mood Disorders


See also
Mental Health or specific condition		 National Mental Health Association    Mental Health America is the country’s leading nonprofit dedicated to helping ALL people live mentally healthier lives.
Mood Disorder Meetups Around the World    Find a Mood Disorder Meetup Group near you
Internet Support for Mood Disorders    Caution: While many approach Internet encounters in a spirit of honesty, the anonymity of the medium can provide easy cover for individuals with factitious disorders. Some desire attention or sympathy, while others seek revenge or control over others.
The Mental Health Foundation of Australia (Victoria) is an organisation of professionals, sufferers, families of sufferers, related organistations concerned with mental health and concerned members of the public.
Find the Light Online Support Group.  To provide online peer support for adults that are suffering from mental illnesses such as anxiety, mood disorders (bipolar, depressive disorders), and substance abuse. We also provide accurate, credible information relating to various mental health issues. We also welcome caregivers and/or parents of children and adults with these crippling disorders. There is a strong connection between good mental and physical health (mind/body). We offer tips and support for those that are suffering from both. We all have been there and understand.
Mononucleosis




Information Link		 Mononucleosis Online Health Community and Support Group    Through this Mononucleosis support group, you can get Mononucleosis information, share experiences about Mononucleosis, connect with peers, and get answers to your Mononucleosis questions from health professionals.
Mononucleosis Forum - A health community featuring member and doctor discussions ranging from a specific symptom to related conditions, treatment options, medication, side effects, diet, and emotional issues surrounding medical conditions.
Daily Strength - Mononucleosis Support Group   Discussion boards.
Mononucleosis Support Group   A community of patients, family members and friends dedicated to dealing with Mononucleosis, together.
Morton's Neuroma



Information Link		 Community for Morton’s Neuroma     Through this Morton’s Neuroma support group, you can get Morton’s Neuroma information, share experiences about Morton’s Neuroma, connect with peers, and get answers to your Morton’s Neuroma questions from health professionals.
Neurotalk: Morton's Neuroma  You are currently viewing our boards as a guest which gives you limited access. By joining our free community you will have access to post topics, communicate privately with other members, respond to polls, upload content and access many other special features.
I Have Morton's Neuroma    Morton's Neuroma anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Morton's Neuroma.
Motion Sickness


Information Link		 Motion sickness   (travel sickness, sea sickness or car sickness) Symptoms include dizziness, nausea and vomiting. Frequent vomiting can lead to dehydration and low blood pressure, so seek medical attention if you are severely affected. Watching the scenery going by, instead of fixing on one point, can help motion sickness. Fresh air can also help. Ginger and some medications may help prevent motion sickness.
Motion Sickness   Motion sickness can occur when the sensory inputs about body position contradict what is expected. It can be provoked by abrupt changes in movement, such as occur during bumpy rides, turbulent flights, and rough seas. It can also occur when one is exposed to moving visual scenes while the body is in a relatively fixed state.
I Have Motion Sickness    Motion Sickness anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Motion Sickness.
Extreme Motion Sickness Support Group on Facebook.    This groups is for all those people who have done one or more of the following: fought over the front seat in hope of the contents of your stomach staying there for a journey; started to feel queasy on a swing set; filled multiple sick bags on a plane flight; etc.
Movement Disorders




Also see specific conditions that cause the problem.		 Worldwide Education and Awareness for Movement Disorders WE MOVE is the Internet's most comprehensive resource for movement disorder information and the hub of movement disorder activities on the web.   
Movement Disorders Forum    Including essential tremor, dystonia and Restless Leg Syndrome
Motor Stereotypies Support Group on FaceBook.   Motor stereotypies are characterized by repetitive, predictable, purposeful yet purposeless movements in children that are otherwise developing normally. These movements can include hand flapping, body rocking and head nodding, and are usually diagnosed or at least noticed within a child's first three years of life.
Moebius Syndrome Moebius Syndrome Foundation      A rare disorder characterized by lifetime facial paralysis. People with Moebius Syndrome can't smile or frown, and they often can't blink or move their eyes from side to side. The Moebius Syndrome Foundation was started by parents and people with Moebius Syndrome. We've come together to do what we can to fight back - by spreading the word among the medical and lay communities and by supporting research into the causes, treatments, and possible cures.
A Life Without Smiles. "Moebius Syndrome is a rare disorder characterized by lifetime facial paralysis. People with Moebius Syndrome can't smile or frown, and they often can't blink or move their eyes from side to side. In some instances, the syndrome is also associated with physical problems in other parts of the body."
Association Syndrome Mœbius France.    (English version. French also available.) We hope that the website of our association will help us improve existing records of Moebius cases census, create bonds between families and heighten public awareness of this orphan disease.
I Have Moebius Syndrome      A Moebius Syndrome 1 anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Moebius Syndrome
Mobius Syndrome Support Group   A community of patients, family members and friends dedicated to dealing with Mobius Syndrome, together.
Moebius Syndrome Support Group on FaceBook.    This group is for anyone with moebius syndrome, or their relatives to meet and share their experiences.
Daily Strength - Moebius Syndrome Support Group    Discussion boards.
Molluscum Contagiosum WebMD - Molluscum contagiosum page: Molluscum contagiosum is a viral skin infection that causes either single or multiple raised, pearl-like bumps (papules) on the skin.
Molluscum Contagiosum     Learn more about Molluscum Contagiosum, such as causes, symptoms, diagnosis, complications, and more. Learn how to take action with information on Molluscum Contagiosum treatment options, prevention methods, support groups, and more.
I Have Molluscum Contagiosum     With information on diagnosis, treatment, symptoms, along with personal stories and experiences with Molluscum Contagiosum.
Daily Strength - Molluscum Contagiosum Support Group    Discussion boards.
Molluscum Contagiosum Support Group   A community of patients, family members and friends dedicated to dealing with Molluscum Contagiosum
Mourning, Loss, Grief - See Bereavement
Mowat-Wilson Syndrome MW Parents   Mowat-Wilson Syndrome is a mental retardation syndrome usually associated with multiple health defects and recognizable facial properties caused by a genetic mutation. The major health defects include Hirschsprung's Disease, intellectual disabilities, seizures, congenital heart disease, Agenesis of the Corpus Callosum, male genital abnormalities and smaller than normal heads.  Facial properties include prominent narrow chin, open mouth, cupped ears with protruding lobes, broad nasal bridge with rounded nasal tip, and wide set eyes.
Mowat-Wilson Syndrome   With multiple health defects and recognizable facial properties caused by a genetic mutation. The major health defects include Hirschsprung's Disease, intellectual disabilities, seizures, congenital heart disease, Agenesis of the Corpus Callosum, male genital abnormalities and smaller than normal heads.  
The Mowat-Wilson Syndrome Syndrome Support Group (UK)     We have had a lot of contact from family's with Mowat-Wilson Syndrome children, people from the medical profession & education staff from all over the world.
Face-to-Face The Mowat-Wilson Syndrome Support Group and health community    Ffor parents of children with this disorder.
Mucolipidosis Right Health   Mucolipidosis (ML) is a group of inherited metabolic disorders that affect the body's ability to carry out the normal turnover of various materials within cells. Cause In ML, abnormal amounts of carbohydrates or fatty materials (lipids) accumulate in cells. Because our cells are not able to handle such large amounts of these substances, damage to the cells occurs.
Mucolipidoses Fact Sheet      Prepared by the National Institute of Neurological Disorders and Stroke
Support Group for I-Cell Disease/ Mucolipidosis II on FaceBook.    All content in this group is stricktly personal experience and opinion. This group is intended for friendship & Ml awareness.
Mucopolysac-  charidoses National MPS Society    Exists to find cures for MPS and related diseases. We provide hope and support for affected individuals and their families through research, advocacy and awareness of these devastating diseases. 
Mucopolysaccharidosis Support Group    A community of patients, family members and friends dedicated to dealing with Mucopolysaccharidosis
Dailt Strength - Mucopolysaccharidosis Support Group    Discussion board.
Multiple Chemically Sensitivity MCSurvivors Compiled in 1996 in an attempt to organize the growing body of information and resources on multiple chemical sensitivity (environmental illnesses).
Multiple Chemical Sensitivity Environmental Illness, caused by living in a toxic world. The chemicals that were synthesized after World War II (including, pesticides, synthetic fragrances, cleaning products, detergents, etc.) are mostly "petro-chemicals" (petroleum based) and are quite toxic to humans.
People with Multiple Chemical Sensitivity    The Canary Report is a friendly, supportive, and inspiring online community about Multiple Chemical Sensitivity. We compassionately bring you unfiltered and uncensored news and information
Multiple Chemical Sensitivities Meetups around the world    Meet other local people who suffer from Multiple Chemical Sensitivities (MCS). Offer support and advice to one another on how to deal with this environmental illness.
Multiple Chemical Sensitivity Support Group    A community of patients, family members and friends dedicated to dealing with Multiple Chemical Sensitivity, together.
Multiple Chemical Sensitivities Organizations     The Chemical Injury Information Network is a support and advocacy organization dealing with Multiple Chemical Sensitivities. It is run by the chemically injured for the benefit of the chemically injured, and focuses primarily on education, credible research into MCS, and the empowerment of the chemically injured.
Multiple Hereditary Exostoses  The MHE Research Foundation     The severity of Multiple Hereditary Exostoses  varies from family to family and patient to patient and can cause numerous problems, including: compression of peripheral nerves or blood vessels; irritation of tendons and muscles resulting in painand loss of motion; skeletal deformity; short stature; limb length discrepancy; chronic pain and fatigue; early onsetarthritis.
Hereditary Multiple Exostoses is a condition in which people develop multiple benign (noncancerous) bone tumors called exostoses. The number of exostoses and the bones on which they are located vary greatly among affected individuals. The exostoses are not present at birth, but approximately 96 percent of affected people develop multiple exostoses by the time they are 12 years old.
MHE and Me     A Support Group for Kids with Multiple Hereditary Exostoses and their Families. Whether you are a kid with MHE looking for new friends who understand what it's like to live with bumpy bones,  the family of a child with MHE looking for information, or a medical provider trying to understand some of the life issues faced by your MHE patients,  this site was created for you!
Multiple Myeloma



See also:
Cancer
Breast Cancer



Information Link		 International Myeloma Foundation    The IMF is often asked by patients if we know of support groups in their areas where they can meet others dealing with myeloma. There is a worldwide network of more than 150 myeloma support groups that hold regular meetings for members of the myeloma community.
Multiple Myeloma Cancer Support Group on FaceBook.   The Multiple Myeloma Support Group is here to provide information and support for Myeloma patients, their families and loved ones.
Multiple Myeloma Support Group    A community of patients, family members and friends dedicated to dealing with Multiple Myeloma, together.
Daily Strength - Multiple Myeloma Support Group    Discussion boards.
Multiple Personality Disorder
(Dissociative Identity Disorder)


Information Link

 Seeing Through Multiple Eyes:     We created this site to cover multiplicity, survivorship, and a personal view into both. We are survivors of childhood abuse, and in order to survive we had to create many people inside one body.
Multiple Personality Disorder: Fact or Fiction?    The past two decades have shown an increase in the number of cases of MPD but there are many professionals that are skeptical about whether it even exists.
Multiple Personality Disorder Meetup Groups     Meet with other local people with Multiple Personality or Identity Disorder. Get together and discuss living and functioning as Multiples.
Multiple PersonalitySupport Groups (Canada)   These sites include those using a disorder-based perspective and a non-pathological ("Multiplicity is normal, just a different way of existing in the world or a different organization of one's mind....
Personality Disorder     Message boards
Multiple Personalities Support Group    A community of patients, family members and friends dedicated to dealing with Multiple Personalities, together.
Daily Strength - Multiple Personalities Support Group     Discussion boards
I Multiple Personality Disorder     Read true personal stories, chat & get advice, support and help from a group of 24 people who all say 'I Multiple Personality Disorder'
>>Return to Support Group index<<
Multiple Sclerosis




Information Link		 Multiple Sclerosis Foundation       As a predominantly service-based, non-profit organization, our primary mission is to ensure the best quality of life for those coping with MS by providing comprehensive support and educational programs. We strive to help make A Brighter Tomorrow by supporting research into its cause and cure as well as investigations of various medical and complementary treatment options. The scope of our services goes beyond that of a clearinghouse of pamphlets. Our priority is to serve with empathy, resourcefulness, and responsibility. We are here to listen, assist, and empower. 
Montel Williams MS Foundation    The Montel Williams MS Foundation was established to further the scientific study of MS in October 2000. The goals of The Montel Williams MS Foundation are to provide financial assistance to select organizations and institutions conducting the most current research, to increase allocations for research from the federal government, to raise national awareness about MS, and to educate the public.
Myelin Project    The Myelin Project aims to accelerate research on myelin repair. Myelin can be destroyed by hereditary neurodegenerative disorders such as the leukodystrophies, and by acquired diseases such as multiple sclerosis. All together, demyelinating diseases affect more than two million people worldwide.     
Betaseron  Betaseron Multiple Sclerosis Champions of Courage is founded on the philosophy that quality health care, combined with a positive attitude and the support of others, can be empowering forces that enable people with MS to enhance their quality of life. 
Consortium of Multiple Sclerosis Centers     The preeminent professional organization for Multiple Sclerosis healthcare providers and researchers in North America, and a valued partner in the global MS community. Our core purpose is to maximize the ability of MS healthcare providers to impact care of people who are affected by MS, thus improving their quality of life.         
Destination Cure: The Race Against M.S.  Dedicated to raising money and awareness for MS. 
National Multiple Sclerosis Society  The National MS Society is committed to building a movement by and for people with MS that will move us closer to a world free of this disease.
MS Lifelines    Discover the many services and resources of MS LifeLines, including: A network of health care professionals who can provide ongoing support; One-on-one access to inspiring people living with relapsing multiple sclerosis, Engaging web events, online videos and local, live events; and Informative online and print publications
Daily Strength - Multiple Sclerosis (MS) Support Group    Discussion boards
Multiple Sclerosis Support Group    A community of patients, family members and friends dedicated to dealing with Multiple Sclerosis, together.
Multiple Sclerosis Meetup Groups    Meet other local people facing the challenges of MS. All friends, family, and caregivers are welcome.
Multiple System Atrophy The Shy-Drager Syndrome (SDS) Support Group    Devoted to fostering an ongoing relationship between patients, caregivers, their family members, and medical professionals. Shy-Drager Syndrome is so rare that few patients, prior to diagnosis and few physicians have any knowledge of the disease.
Shy-Drager/Multiple System Atrophy Support Group             Multiple system atrophy is a rare neurodegenerative disease marked by a combination of symptoms affecting movement, blood pressure, and other body functions; hence the label "multiple system" atrophy.
Multiple System Atrophy/Shy-Drager Syndrome   Prepared by Vanderbilt University Medical Center.
MSA/ShyDrager Online Support Group    Listing of local S tate Contacts and Support Group Leaders
World Wide Wombat    Intended as a guide to assist visitors to this site looking for information on MSA and related issues. 
The Multiple System Atrophy Trust (UK)   produces a guide to MSA that aims to make it easier to understand the condition and what it might mean to you and your family.
Ray's Illness -Multiple System Atrophy   Excellent sources of information on MSA written in laymen's terms
Yahoo Online Multiple System Atrophy(MSA) Support Group
Munchausen Syndrome




Information Links:

Munchausen Syndrome

Munchausen Syndrome by Proxy		 Doctor Exposes Munchausen By Internet    The Internet is a medium of choice for millions of people who need health-related information. Unfortunately, cyberspace resources are sometimes deliberately misused by people intent on deceiving others with a fake illness, which is known as Munchausen by Internet.
Sympathy-Seekers Invade Internet Support Groups   "Munchausen by Internet" -- a variation of the type of psychiatric disorders that include Munchausen syndrome and Munchausen by proxy. In these disorders, people cook up or induce fictitious illnesses in themselves or others in an effort to gain sympathy.
Munchausen Syndrome    Munchausen Syndrome By Proxy (MSBP) is a form of fabricated or induced illness. This is a very rare form of child abuse in which a carer fakes or actually causes the symptoms of illness in a child who is in their care. It is a variant of Munchausen Syndrome.   
Mahalo. A person with Munchausen Syndrome often fakes having a disease or intentionally causes self-harm with the motive of gaining attention and sympathy from others.
Munchausen Syndrome by Proxy   Munchausen syndrome by proxy is a form of child abuse in which a parent induces real or apparent symptoms of a disease in a child.
I Have Munchausen By Proxy Syndrome    A Munchausen By Proxy Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Munchausen By Proxy Syndrome.
I Have Munchausen Syndrome    Munchausen Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Munchausen Syndrome.
Munchausen Syndrome Forum     Munchausen by Proxy message board, open discussion, and online support group.
Mothers Against Munchausen Allegations           Begun in response to the fast growing number of false allegations of Munchausen Syndrome by Proxy. Parents are being accused of making their own children ill. Increasingly, families across America, Britain, Australia, Canada and New Zealand are being destroyed by doctors and other professionals who make false and even malicious allegations against desperate mothers of chronically/critically ill children.
Muscle Cramps - see Cramps
Muscular Dystrophy Muscular Dystrophy Association USA        MDA is the world's largest non-governmental sponsor of research seeking the causes of and effective treatments for neuromuscular diseases, sponsoring some 400 research projects annually.
Muscular Dystrophy Campaign       (UK) The Muscular Dystrophy Campaign is the only UK charity focusing on all muscular dystrophies and allied disorders
Muscular Dystrophy Family Foundation    You don't have to face muscular dystrophy alone. Each year, hundreds of people with a neuromuscular disease, and their loved ones, turn to the MDFF for support. We offer comprehensive support programs to ensure clients' medical and emotional needs are taken care of. Our medical directors and case managers will help you through every stage of the process.
Facioscapulohumeral Muscular Dystrophy Society         Organized to fund, encourage and promote scientific and clinical research on FSHD.  FSHD is the second most prevalent adult muscular dystrophy affecting men, women and children. 
Parent Project Muscular Dystrophy    Parent Project Muscular Dystrophy’s mission is to improve the treatment, quality of life and long-term outlook for all individuals affected by Duchenne muscular dystrophy through research, advocacy, education and compassion.
Facioscapulohumeral Muscular Dystrophy (UK)    We help provide support to those with FSH-MD as well as their carers, family and friends.
Duchenne Muscular Dystrophy Support Group    A community of patients, family members and friends dedicated to dealing with Duchenne muscular dystrophy, together.
I Have Duchenne Muscular Dystrophy    A Duchenne Muscular Dystrophy anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Duchenne Muscular Dystrophy.
Muscular Dystrophy Canada Support Groups   Enable people with neuromuscular disorders, their families, friends, and any other interested parties to get together for the purpose of supporting each other.
Mutism Selective Mutism Foundation (SMF)         Our mission, as conscientious co-founders, is to promote further  research, advocacy, social acceptance, and the understanding of Selective Mutism as a debilitating disorder.    
Selective Mutism Group      We have come together to form a community to help one another and our children.  We share experiences and knowledge, fulfilling our mission to promote public awareness, to research and educate about Selective Mutism, and to speak out for our children who can’t speak for themselves.        
SM Support Groups By State   Some State Coordinators organize in-person support groups in their area. Others wish to start them via phone, email or in-person when there is enough interest.
>>Return to Support Group index<<
Myalgic Encephalomyelitis


Also See Chronic Fatigue Syndrome		 National ME/FM Action Network       A Canadian organization dedicated to advancing the recognition and understanding of Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS) and Fibromyalgia Syndrome through education, advocacy, support, and research.The Network seeks to effect positive change in the attitudes, policies, and practices of government, medical governing bodies, business, the media, and the general public.    
Myalgic Encephalomyelitis Support Services (M.E.S.S.): M.E.S.S. is a volunteer organization dedicated to helping those who suffer from Myalgic Encephalomyelitis, also known as Chronic Fatigue Syndrome (CFS). By keeping abreast of current medical research into ME/CFS, as well as the latest treatment strategies , M.E.S.S. strives to foster understanding of this condition and the difficulties in living with it.
The National Alliance for Myalgic Encephalomyelitis    was established to address the issues of recognition and definition, and to raise awareness of this devastating neuroimmune disease that has afflicted nearly a million people in the U.S., and millions worldwide.
Myasthenia Gravis



Information Link		 Myasthenia Gravis Foundation of America (MGFA)         Dedicated solely to the fight against myasthenia gravis. The most common form of MG is a chronic autoimmune neuromuscular disorder that is characterized by fluctuating weakness of the voluntary muscle groups. Myasthenia Gravis occurs in all races, both genders, and at any age. MG is not thought to be directly inherited nor is it contagious. It does occasionally occur in more than one member of the same family.  
I Have Myasthenia Gravis     A Myasthenia Gravis anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Myasthenia Gravis.
Myasthenia Gravis Support Group   A community of patients, family members and friends dedicated to dealing with Myasthenia Gravis, together.
Myasthenia Gravis WA Friends and Support Group (Australia) . From here you can access educational and support material specifically related to the MG disease.
Daily Strength - Myasthenia Gravis Support Group    Discussion boards
Myelodysplastic Syndromes



Also see Leukemia		 Myelodysplastic Syndromes Foundation  The MDS Foundation is a multi disciplinary, international organization devoted to the prevention, treatment, and study of the myelodysplastic syndromes. The organization is based upon the premise that international cooperation will accelerate the process leading to the control and cure of these diseases.
ThirdAge: Myelodysplastic Syndromes. Research the condition by topics such as causes, symptoms, diagnosis, complications, and more. Learn how to take action with information on Myelodysplastic Syndromes treatment options, prevention methods, support groups, and more.
Daily Strength - Myelodysplasia Support Group   Discussion boards
Myocarditis



Information Link		 GCM Home      Giant Cell Myocarditis is a rare but devastating disease that usually affects young otherwise healthy individuals. The rate of death or heart transplantation is approximately 70% at one year. I am a Giant Cell Myocarditis patient, this web site is dedicated to the central location of information and exchange of information on Giant Cell Myocarditis. The message board allows anyone to ask and reply to questions.
Myocarditis-Adult       Research the condition by topics such as causes, symptoms, diagnosis, complications, and more. Learn how to take action with information on Myocarditis-Adult treatment options, prevention methods, support groups, and more.
I Have Myocarditis    A Myocarditis anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Myocarditis.
Myoclonus Worldwide Education and Awareness for Movement Disorders WE MOVE is the Internet's most comprehensive resource for movement disorder information and the hub of movement disorder activities on the web.   
Myoclonus     Message boards
Myoclonus.     Research the condition by topics such as causes, symptoms, diagnosis, complications, and more. Learn how to take action with information on Myoclonus treatment options, prevention methods, support groups, and more.
I Have Myoclonus    Myoclonus anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Myoclonus.
Myopia - see Vision & Eye Diseases
Myositis




Information Link		 Myositis Association of America     To find a cure for inflammatory and other related myopathies, while serving those affected by these diseases.  Myositis is the general term used to describe swelling of the muscles. Injury, infection, and even exercise can cause muscle swelling. The swelling will go away once the injury or infection is treated, or once you rest your muscles from exercise.
Myositis Support Group      This is the largest Myositis Support Group on the Internet offering a place to learn more about the mysteries of a Myositis disease and meeting other individuals who have been diagnosed with one of the diseases:
The Myositis Support Group    A UK charity providing advice and support to individuals and their families affected by Dermatomyositis, Polymyositis, Inclusion Body Myositis and Juvenile Dermatomyositis.
Myositis-Online Support Group for Patients Affected by Myositis  Patient-to-patient support for people living with myositis
Myositis NW   Finding someone who "really" understands what you are going through or knows how you are feeling emotionally, as well as physically, is very difficult. Support groups, whether on-line or thru meeting in person, help patients and families deal with the physical & emotional difficulty of adapting to rare chronic diseases such as Inflammatory Myopathies.
Myotonic Dystrophy International Myotonic Dystrophy Organization  Myotonic dystrophy is a rare disease with an incidence of about one in 8000. Myotonic Dystrophy  is known as a multisystem disease. That means that the various types of tissue and organs are affected. Thus, the disease may affect the eyes, heart, and muscles.
Muscular Dystrophy     A group of muscle diseases characterized by muscle weakness and wasting of muscles. Among the several forms of muscular dystrophy, the three most important ones are Duchenne Muscular dystrophy (DMD), facioscapulohumeral dystrophy, and myotonic dystrophy.
The Myotonic Dystrophy Foundation   A patient advocacy group dedicated to leading and mobilizing resources toward effective management, treatment, and a cure for myotonic dystrophy, a common form of muscular dystrophy. With guidance from our advisors, who together have devoted more than ninety years to the research and treatment of myotonic dystrophy, the MDF offers information to help navigate the disease process.
The Myotonic Dystrophy Support Group (UK)    Dedicated to offering the hand of friendship and support to all those affected by Myotonic Dystrophy. We have a central Helpline and a network of regional contacts throughout the United Kingdom, as well as extensive links abroad. We are supported by professional specialist Advisers, including in the fields of genetics, neurology, anaesthetics, research and rehabilitation.
Muscular Dystrophy Campaign    We now know a lot about myotonic dystrophy, but still have a long way to go.  Helpful genetic counselling and family testing are now possible, but the best approach to treatment is to know about the condition, its risks and complications, and to be sure that your doctors do too.
Myotonic Dystrophy Support by Location    The following list shows support and resources funded from many different organizations by location. 
Myotubular Myopathy Myotubular Myopathy Resource Group     Myotubular Myopathy is a family of rare, inherited diseases. Manifesting itself as a defect in the cell structure of voluntary muscles, it causes low muscle tone and, in most forms, is usually apparent at birth. Affected children have diminished respiratory capacity and are often partially or totally ventilator dependent.
Myotubular Myopathy and Centronuclear Myopathy  Information and support.
The Nicolas Avery Brown Foundation    A myopathy is a disease of the muscle tissue itself. Myo derives from the word muscle and pathos means disease. There are literally dozens of different myopathies
The Information Point for Centronuclear and Myotubular Myopathy on FacebBook.     Feel free to ask questions on the discussion boards, post links, photos and videos.
Myeloproliferative Disease Myeloproliferative Disease Support. Anyone - patient, family member, or health professional, is welcome to join our growing list of subscribers. Our archives are available for you to research information. 
I Have Myelodysplastic Myeloproliferative Disease     A Myelodysplastic Myeloproliferative Disease anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Myelodysplastic Myeloproliferative Disease.
>>Return to Support Group index<<

 

Page Index

Alphabetical
List:

Quick Links to selected categories:
Support Group Home Page
Includes directions, hints for use, etc.
 See the "Medical Information" page for Medical Definitions, Pharmaceuticals and Home Remedies, Advocacy Groups, Medical Articles

Have We Missed a Support Group or Ailment? We are constantly looking for more information and more links. Please help us improve our site and service. The Internet had millions of web pages dedicated to medical conditions and support groups; we can only sample a few of them. If you know any sites we should include write to suggestions@slightlycreaky.com

The Obvious Legal Statement.

The folks at Slightly Creaky are volunteers. None of us get any salary or compensation in any form. We are not a corporation, just a few folks working out of our houses. If anything on this site bothers you, if you notice mistakes, please let us know.

While we do maintain editorial rights, things slip past. The submitted columns and news articles belong to the contributor(s), not to the Slightly Creaky team. We are simply a vehicle bringing you information to the best of our ability. We have no control over the sites we link to. Web site contents frequently change. If you find anything improper, objectionable or not working, please notify us.

Be sure to read our complete Legal Information and Policies