Support Groups N, O, P, Q
How to Use -- Contents
Slightly Creaky does research to find the links you would most likely need and provides them for you in an easy-to-find format. You can access the various categories from any of our pages using the top or side menus. Each category has generalized headings, followed by more specific ones.
Many support groups are named for people, are generalized and provide assistance for several related conditions, or are otherwise difficult to interpret. This page provides links alphabetically based upon specific ailments. Please scroll down, use the index link, or use your browser's "find" or "search" feature to get the the area you are seeking.
In addition to support groups, we include links to informational sites on these conditions.
Please Contact us if you find a broken or bad link.
Links to Support Group pages:
Alphabetical List: |
Quick Links to selected categories: |
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Q |
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Support Group Home Page Includes directions, hints for use, etc. |
See the "Medical Information" page for Medical Definitions, Pharmaceuticals and Home Remedies, Advocacy Groups, Medical Articles | ||
| Have We Missed a Support Group or Ailment? We are constantly looking for more information and more links. Please help us improve our site and service. The Internet had millions of web pages dedicated to medical conditions and support groups; we can only sample a few of them. If you know any sites we should include write to suggestions@slightlycreaky.com | |||
Caution - Proceed with care. Slightly Creaky is not responsible for the content of web sites listed here nor the actions taken by the people owning, managing, or participating on them.
This listing is the result of more than 500 hours of research. It is the property of Slightly Creaky and may not be reproduced in any form. Every attempt has been made to provide an accurate description of each organization.
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Updates: We review and update this page every 4 months. Many support groups change names or even terminate their services. Should you discover a bad link or wish to suggest that we add one, please contact suggestions@slightlycreaky.com
We try to avoid commercial sites, but in many cases they are the only ones who provide information and support. If you are looking to buy or sell medical products, please use a generalized search engine.Support Groups "N"
"N"
| Nager Syndrome | National Craniofacial Association The National Craniofacial Association has been dedicated to assisting children and adults who have craniofacial disorders resulting from disease, accident, or birth. |
| Foundation for Nager and Miller Syndromes These syndromes effect one's ability to see, hear, breath, eat, walk, talk and write. | |
| Nail Conditions Information Links: Nail Fungus |
Pickaderms Pickaderms is for people who have skin picking problems on any part of the body, and includes nail and cheek biting. This disorder is more common than you think. Pickaderms is an unlisted, private, restricted list open only to people (and parents of children) who pick or bite at their skin. |
| Nail Issues Message boards - discussions. | |
| Skin Picking/ Nail Biting Discussion boards | |
| Nail Biting Online Support Group A community of patients, family members and friends dedicated to dealing with Nail Biting, together. | |
| Nail Biters Support Group From StudentMidwife.NET | |
| Treating Compulsive Nail Biting People who suffer from compulsive nail-biting may experience bleeding, bruises, infections, or even permanent damage to the fingers. The behavior is often unconscious, and people with this compulsion may have difficulty stopping because they may be unaware of their actions. |
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| I Have Nail Fungus Nail Fungus anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Nail Fungus. | |
| Fungi-Nail Support Group Join the 'Fungi-Nail' group to help and get support from people like you. | |
| Nail Patella Syndrome | Nail Patella Syndrome Support Group A community of patients, family members and friends dedicated to dealing with Nail Patella Syndrome, together. |
| Daily Strength - Nail Patella Syndrome Support Group Discussion boards |
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| Neonatal Diseases | NOMID Alliance The NOMID Alliance is the foundation for Neonatal Onset Multisystem Inflammatory Disease, also known as Chronic, Infantile, Neurological, Cutaneous and articular Syndrome, Muckle-Wells Syndrome, and Familial Cold Autoinflammatory (or Urticaria) Syndrome |
| Neonatal Diseases and Abnormalities Lengthy list of resources (from Karolinska Institute Library, Stockholm, SWEDEN ) | |
| Narcolepsy Information Link |
Narcolepsy Internet This email-based discussion group is a distribution list for people with narcolepsy, their partners and families, and care-providers for those who suffer from narcolepsy. Its charter is to act as an electronic support group and a place for dissemination of information about narcolepsy. We discuss things like treatments for narcolepsy, new research, coping with narcolepsy, and simply how it feels to live with narcolepsy. |
| Narcolepsy Network Our members are people who have narcolepsy or related sleep disorders, such as Idiopathic Hypersomnia, their families and friends, and professionals involved in treatment, research, and public education regarding narcolepsy. | |
| Narcolepsy Support Group - New Zealand In our site you will find information about narcolepsy, how to obtain a diagnosis, what kinds of treatments are available, latest news on research, advice on how to approach your doctor, links to all kinds of sleep health and sleep disorder information, plus a glossary of scientific and medical terms. | |
| Narcolepsy Support Group on FaceBook. This is a group for people with narcolepsy and hypersomniacs to meet, talk, and empathize with each other. We all work hard to be supportive of each other. | |
| Narcolepsy Support Groups For people with narcolepsy, support groups can provide a network of social contacts who can offer practical help and emotional support. The empathy and understanding that support groups offer can be crucial to a person's overall sense of well-being as he or she copes with the disorder. These groups may offer support in person, over the telephone, or on the Internet | |
| Daily Strength - Narcolepsy Support Group Discussion boards. |
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| Narcolepsy Support Group A community of patients, family members and friends dedicated to dealing with Narcolepsy, together. | |
| Necrotizing Fasciitis Information Link |
National Necrotizing Fasciitis Foundation (NNFF) Necrotizing fasciitis is a bacterial infection that attacks the soft tissue and the fascia, which is a sheath of tissue covering the muscle. NF can occur in an extremity following a minor trauma, or after some other type of opportunity for the bacteria to enter the body such as surgery. The Group A Strep infection (flesh eating bacteria) is most common with minor trauma. |
| Necrotizing Fasciitis This is a rare and rapidly progressive infeaction of the superficial fascia and subcutaneous tissue. Several bacteria are known to cause this disease and frequently, cultures may reveal a mixed flora. Recently, this disease has the popular name, dubbed by the media, as flesh-eating bacteria disease. | |
| The Lee Spark Necrotising Fasciitis Foundation (UK) To help those whose lives have been affected by necrotising fasciitis and other severe streptococcal infections and medical staff who are involved with investigating, diagnosing and treating NF. | |
| Neuroblastoma Also see Cancer Information Link |
Children's Neuroblastoma Cancer Foundation Through our experience with neuroblastoma and network of families and medical professionals, we are committed to use our experience as a tool in supporting the needs of the children and their families and provide funding to the medical community for new and advanced research studies. |
| Neuroblastoma Children's Cancer Society A group made up of volunteers, many of whom have children or relatives who are victims or survivors of this disease. Our organization is an advocate for the children who suffer from neuroblastoma and is dedicated to serving as a support center for their families. | |
| Neurofibromatosis | National Neurofibromatosis Foundation Neurofibromatosis encompasses a set of distinct genetic disorders that cause tumors to grow along various types of nerves and, in addition, can affect the development of non-nervous tissues such as bones and skin. Neurofibromatosis causes tumors to grow anywhere on or in the body. |
| Neurofibromatosis, Inc. NF, Inc. is a charitable organization whose mission is to create a community of support for those affected by NF, through education, advocacy, coalitions, and supporting research for treatments and a cure. | |
| The Neurofibromatosis Association (UK) To improve the lives of those affected by Neurofibromatosis.Everyday a baby is born in the UK with Neurofibromatosis. There are over 25,000 people in the UK affected by the condition and as yet, there is no cure. | |
| I Have Neurofibromatosis Neurofibromatosis anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Neurofibromatosis. | |
| Daily Strength - Neurofibromatosis Support Group Discussion boards. |
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| Neurofibromatosis Support Group A community of patients, family members and friends dedicated to dealing with Neurofibromatosis, together. | |
| Neurogenic Bladder | Pull-thru Network The Pull-thru Network is a volunteer-based organization dedicated to providing education, information, support and advocacy for those individuals, and the families of those individuals, who are affected by any congenital anorectal, colorectal or urogenital disorder and any of the variety of related diagnoses. |
| What Causes Urinary Incontinence Neurogenic incontinence occurs as a result of some disease (e.g. diabetes) which affects the nerves controlling the bladder. Overflow incontinence occurs when the bladder is full, due to a partial obstruction, resulting in a constant steady leakage of urine. | |
| Neuropathy | Neuropathy Association, The Peripheral Neuropathy, also known as Peripheral Nerve Disease, is one of the most common diseases most people have never heard of (15-20 million Americans have peripheral nerve disease). Caused by deterioration of the peripheral nerves, neuropathy disrupts the body’s ability to communicate with its muscles, organs and tissues. Neuropathy is like the body’s wiring system going haywire, causing unusual or unpleasant irritations. |
| Hereditary Neuropathy Foundation Dedicated to finding a cure for Charcot-Marie-Tooth disease while providing support and services for those living with CMT and their families. | |
| Peripheral Neuropathy Trust (UK) Neuropathy is a common condition. It can often cause great distress and is sometimes even disabling. When you consider that you could not even move a muscle without your nervous system you can perhaps understand why the proper functioning of this vast communications network is so important to each one of us. | |
| Neuropathy Support Groups United States Listing | |
| Living with Neuropathy The pain can be so intense, the losses so devastating, the obstacles so huge, the setbacks so frustrating. But you can have a good quality of life with neuropathy. | |
| Peripheral Neuropathy Group To help and get support from people like you. | |
| Canadian Neuropathy Association If your life has been changed by neuropathy, you are not alone! The Canadian Neuropathy Association, and its members and volunteers, are here to help you through this challenge. | |
| Peripheral Neuropathy Online Support Group A community of patients, family members and friends dedicated to dealing with Peripheral Neuropathy, together. | |
| Diabetic Neuropathy Online Support Group A community of patients, family members and friends dedicated to dealing with Diabetic Neuropathy, together. | |
| Diabetic Neuropathy Support Group If you, a loved one or a friend has this disease, you have found an online home. We are all on this journey together, and together we find great solace and often information that makes dealing with this condition easier. Often, simply sharing your experience with people who truly understand is a great comfort. | |
| Neutropenia Information Link |
Neutropenia Support Assoc. Inc Neutropenia is a blood disorder you don't often hear about, but it can affect anyone. Some people are born with it. It can happen after a viral infection, or can be drug induced. Some offending agents include some antibiotics, antithyroid agents, tranquilizers, anti-inflammatory agents, antirheumatics, sedatives etc. Exposure to certain poisons can also cause Neutropenia. |
| Neutropenia Support Australia We hope that people will contact us and be willing to share their story in a way that might raise awareness of neutropenia, inspire others living with neutropenia and encourage those who are carers. | |
| National Neutropenia Network. Neutropenia is a very rare blood condition that causes a reduced number or complete lack of neutrophils. Neutrophils are a type of blood cell that defends the body against bacterial infections. | |
| Nightmares Information Link |
Nightmares or Night Terrors? From WebMD I noticed there have been several posts recently about night terrors and nightmares. This can be scary for the whole family and interrupts everyone's sleep schedule. Let's see if I can help. First off, night terrors and nightmares are very different. |
| Horrible Nightmares Welcome to our community! Come in and introduce yourself to other members!! | |
| I Constantly Have Nightmares Read true personal stories, chat & get advice, support and help from a group of people who all say 'I Constantly Have Nightmares' | |
| Sleep Talking, Sleep Terrors and Nightmares Many children, and a few adults, talk in their sleep. Sleep talking is sometimes, but not always, associated with dreaming and the rapid eye movement-phase of sleep. It is not usually considered a disorder, and most children outgrow it. But if the sleep talking is vulgar or violent, it can be a sign of other problems. | |
| Niemann-Pick Disease | National Niemann-Pick Disease Foundation, Inc. The mission of the Foundation is to support and promote research to find a cure or treatment for all types of Niemann-Pick Disease and provide support services to affected individuals and families. Niemann-Pick Disease ("Niemann-Pick") is actually a term for a group of diseases which affect metabolism and which are caused by specific genetic mutations. |
| Ara Parseghian Medical Research Foundation The Ara Parseghian Medical Research Foundation, a volunteer, nonprofit corporation, funds research projects that will lead to a treatment and cure for Niemann-Pick Type C disease. | |
| Niemann-Pick Disease Group (UK) The aim of the Niemann-Pick Disease Group (UK) is to make a positive difference to families affected by the disease through the provision of Care, Information and Research. | |
| Niemann-Pick Diseases Support Group A community of patients, family members and friends dedicated to dealing with Niemann-Pick Diseases, together. | |
| Noise-related Conditions - See Deaf & Hearing Loss | |
| Non-Hodgkin's Lymphoma Also see Blood Cancers Information Link |
Non-Hodgkin's Lymphoma Cyberfamily We are the non-Hodgkin's lymphoma Cyberfamily. We are a worldwide family of patients and caregivers who have NHL in common. |
| Lymphoma Information Network A medical diagnosis or symptoms of Non-Hodgkin's Lymphoma can be scary - it need not be. There are some very effective treatments available, many new in the last 5 to 10 years. While a cancer diagnosis is never a good thing, there is true hope that the cancer can be eradicated. | |
| Daily Strength - Non-hodgkin's Lymphoma Support Group Discussion boards. | |
| Non Hodgkins Lymphoma Message boards and discussions. | |
| Non-Hodgkin's Lymphoma Support Group Lymphoma is a cancer of a part of the immune system called the lymphatic system. There are many types of lymphoma. One type is called Hodgkin's disease. The rest are called non-Hodgkin's lymphoma. | |
| Non-Hodgkin's Lymphoma Support Group A community of patients, family members and friends dedicated to dealing with Non-hodgkin's Lymphoma, together. | |
| Non-Hodgkin’s Lymphoma Advocacy, Education, and Support Groups The following organizations provide a variety of support programs and educational materials for people with non-Hodgkin’s lymphoma and their family members, caregivers, and friends. | |
| Noonan Syndrome Information Link |
The Noonan Support Group Committed to providing support, current information, and understanding to those affected by Noonan syndrome. It is also our goal to raise the awareness of, and educate the medical community as to the complex nature of this syndrome and how it affects the lives of those who have it. |
| Noonan Syndrome Support Group on FaceBook. We provide information and support to people whose lives are affected by Noonan's syndrome. | |
| Noonan Syndrome Support Group of Australia on FaceBook. This support group is dedicated to members who have a family member, or who know of someone, who has Noonan Syndrome. The group is to link up Australian members, as there is a great lack of support and information here in Australia, but anyone is welcome to join. | |
| Noonan Syndrome Support Group A community of patients, family members and friends dedicated to dealing with Noonan Syndrome, together. | |
| Norovirus Infection Information Link |
Norovirus Infection Information from the Mayo Clinic. |
| About Norovirus The Centers for Disease Control and Prevention (CDC) estimates that noroviruses cause 23 million cases of acute gastroenteritis annually, making noroviruses the leading cause of gastroenteritis in the United States | |
| Nose- Related Conditions Information Links: Nosebleed |
I Like Having Nosebleeds Read true personal stories, chat & get advice, support and help from a group of people who say 'I Like Having Nosebleeds' |
| Nose Bleed / Epistaxis Have any questions about nose bleeds? Join our online group to meet people who can answer them. | |
| Ear, Nose and Mouth A variety of support groups from Medindia Health Network. | |
| I Have a Deviated Septum Read true personal stories, chat & get advice, support and help from a group of people who all say 'I Have a Deviated Septum' | |
| What is a Deviated Septum? Information from the Paparella Ear Head & Neck Institute | |
Support Groups "O"
"O"
| Obesity Also see Weight Issues Information Link Be aware that many online Obesity sites exist only to sell you (occasionally useless) products. |
Obesity Action Coalition was formed to bring together individuals who are facing the often life-long struggle with obesity. Whether you are beginning to address your weight issues, you have been fighting the battle for a long-time, or you have 30 pounds or 300 pounds to lose, you are not alone in this journey. Provides links to nation-wide support groups. |
| Obesity Support Group If you're one of the 59 million Americans struggling with obesity, rest assured that you're not alone. Join a community that understands what you're going through and can share advice on overcoming obesity. | |
| Obesity Support Groups Obesity support groups are social organizations for patients and their family members to share their stories and experiences. It is about providing personal support to others in a similar situation. Has links to support groups in Indoa, UK, and US, | |
| Obesity Support Group A community of patients, family members and friends dedicated to dealing with Obesity, together. | |
| ObesityHelp offers resources for patients, and those seeking weight loss solutions for the morbidly obese. We provide a comprehensive program of support and education as well as assistance in locating whatever resources it takes to overcome this life threatening condition. | |
| Morbid Obesity Support Groups Article with links. Also tries to sell products. | |
| Obsessive Compulsive Information Link |
Obsessive Compulsive Anonymous (OCA) OCD is characterized by recurrent, unwanted and unpleasant thoughts (obsessions), and or repetitive, ritualistic behaviors, which the person feels driven to perform (compulsions), people with OCD know their obsessions and compulsions are irrational or excessive, yet find they have little or no control over them. |
| Awareness Foundation for OCD and Related Disorders Provides speakers and resources for OCD | |
| Obsessive-Compulsive Foundation The Obsessive-Compulsive Foundation (OCF) is an international not-for-profit organization composed of people with obsessive compulsive disorder and related disorders, their families, friends, professionals and other concerned individuals. | |
| National Mental Health Association Mental Health America is the country’s leading nonprofit dedicated to helping ALL people live mentally healthier lives | |
| Finding an Obsessive-Compulsive Disorder Support Group Article with linkls to additional information. | |
| OCD Organizations and Support Groups Links to groups, world-wide as well as related information. | |
| OCD Tribe Online support community. | |
| Daily Strength - Obsessive Compulsive Disorder (OCD) Support Group Discussion boards. |
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| Obsessive Compulsive Disorder Support A community of patients, family members and friends dedicated to dealing with Obsessive Compulsive Disorder, together. | |
| Obsessive-Compulsive Disorder Web Sites Huge list of movies, TV shows, books and other resources that deal with OCD | |
| Oculo-Dento-Digital Dysplasia | Oculo-Dento-Digital Dysplasia Support Group A rare disorder that may be inherited or caused by a new change in the gene that occurs for no apparent reason. Major symptoms are webbing of the forth and firth fingers, and abnormally small transparent part of the eye, a slender nose with narrow nostrils, underdevelopment of the outer flaring wall of each nostril, defective enamel and dry hair that grows slowly. |
| Ollier's Disease Also called Multiple Enchondromatosis Also see Maffucci's Syndrome |
Ollier's Disease Support. Message board. |
| Multiple Enchondromatosis aka Ollier's Disease support group On FaceBook. Suffer's of Ollier's Disease often have limbs that break easier and often need surgery to lengthen bones. The most common place that you will find Ollier's Disease is in the hands and leg. It is rarely found in the skull , ribs , spine and pancreas. | |
| I Have Ollier's Disease With information on diagnosis, treatment, symptoms, along with personal stories and experiences with Ollier's Disease. | |
| Opitz Syndrome or Opitz-Trigonocephaly Syndrome or Opitz-Kaveggia See FG Syndrome |
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| Oral Health - see Dental and Oral Conditions |
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| Organic Acidemia | Organic Acidemia Association Organic acid disorders are a group of rare inherited conditions caused by enzymes that do not work properly. A number of enzymes are needed to process protein from the food we eat for use by the body. Problems with one or more of these enzymes can cause an organic acid disorder. People with organic acid disorders cannot break down protein properly. This causes harmful substances to build up in their blood and urine. These substances can affect health, growth, and learning. |
| I Have Organic Acidemia With information on diagnosis, treatment, symptoms, along with personal stories and experiences with Organic Acidemia. | |
| Orphan Diseases: See Rare Diseases. | |
| Osgood-Schlatter Disease Information Link |
Osgood-Schlatter Disease Awareness and Support Group on FaceBook. Osgood-Schlatter disease is an inflammation of the growth plate at the tibial tuberosity (near the knee). The disease is most common in active boys aged 10-14, but is also found in active girls, and can last a lifetime. It most commonly occurs in just one leg but can occur in both at the same time. |
| About Osgood-Schlatter Disease Though it's one of the most common causes of knee pain in adolescents, it's really not a disease, but an overuse injury. OSD can be quite painful, but usually resolves itself within 12 to 24 months. | |
| Osgood-Schlatter Disease Osgood-Schlatter disease is inflammation of the bone and surrounding soft tissue just below the knee. It occurs at the point where the tibia (shinbone) attaches to the tendon of the kneecap (patellar tendon). |
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| Osteoarthritis Information Link |
What is Osteoarthritis Osteoarthritis is the most common type of arthritis, especially among older people. Sometimes it is called degenerative joint disease or osteoarthrosis. Osteoarthritis is a joint disease that mostly affects the cartilage. |
| Osteoarthritis A disease that leads to the degeneration of the cartilage that cushions bones in joints. As the cartilage degenerates, the bone becomes inflamed and painful and the joints become stiff and tender. Most often, osteoarthritis affects the hands, feet, knees and spine. (Has support group.) | |
| Osteoarthritis and Rheumatoid Arthritis (Daily Strength) A Place to found support and give support for anyone that has Osteoarthritis and/or Rheumatoid arthritis and their families. | |
| Osteogenesis Imperfecta | Osteogenesis Imperfecta Foundation Osteogenesis Imperfecta, commonly known as the "brittle bone" disorder-- is a genetic disorder characterized by bones that break easily, often from little or no apparent cause. A person with OI may break a rib while coughing, or a leg by rolling over in their sleep. OI has been documented in all ethnic groups, and affects a person throughout their lifetime. |
| I Have Osteogenesis Imperfecta Support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Osteogenesis Imperfecta. | |
| Daily Strength -
Osteogenesis Imperfecta Support Group Discussion boards. |
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| Osteomyelitis Information Link |
Osteomyelitis Online Support Group A community of patients, family members and friends dedicated to dealing with Osteomyelitis, together. |
| Osteomyelitis This leaflet explains about osteomyelitis, its causes and how it is treated at Great Ormond Street Hospital. (UK) | |
| I Have Osteomyelitis A Osteomyelitis anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Osteomyelitis | |
| Osteoporosis Information Link |
Osteoporosis Education Project Osteoporosis Education Project is dedicated to exploration of the full of the human potential for optimum bone health. Our mission is to further research on, and awareness about, the nutritional and lifestyle factors influencing bone health development, maintenance and regeneration. |
| National Osteoporosis Foundation NOF’s Mission’s is to prevent osteoporosis, to promote lifelong bone health, to help improve the lives of those affected by osteoporosis and related fractures, and to find a cure. Established in 1984, the National Osteoporosis Foundation (NOF) is solely dedicated to osteoporosis and bone health. | |
| International Osteoporosis Foundation (IOF) Osteoporosis is a disease in which the density and quality of bone is reduced, increasing the risk of fracture. It affects around one in three women and one in five men around the world. | |
| RANK Ligand and Bone Loss While it has long been known that excessive osteoclast activity is the primary driver of bone loss associated with postmenopausal osteoporosis, only recently have the underlying mechanisms of bone loss been identified | |
| Types of Exercises That Help Prevent Osteoporosis Weight-bearing exercises performed at least three days every week are beneficial for those wanting to avoid bone loss and weakness caused by osteoporosis. | |
| Daily Strength - Osteoporosis Support Group Discussion boards. |
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| Osteoporosis Support Group A community of patients, family members and friends dedicated to dealing with Osteoporosis, together. | |
| Men`s Osteoporosis Support Group This site is dedicated to helping men learn more about osteoporosis, a disease commonly associated with postmenopausal women. There are, however, over five million American men at risk for this potentially crippling disease. | |
| Ostomy Issues | United Ostomy Association, Inc. UOAA is a national network for bowel and urinary diversion support groups. Its goal is to provide a nonprofit association that will serve to unify and strengthen its member support groups, which are organized for the benefit of people who have, or will have intestinal or urinary diversions and their caregivers. |
| Ostomy Online Support Group A community of patients, family members and friends dedicated to dealing with Ostomy, together. | |
| Oto-Palatal-Digital Syndrome | Oto-Palatal-Digital Syndrome Family Resource Network Oto Palatal Digital Syndrome is a very rare syndrome that mainly affects males. There are very few cases of OPD known, about 20-30 in the world. The label Oto Palatal Digital simply describes the characteristics of the syndrome. Oto refers to the conductive hearing loss associated with OPD, palatal refers to the cleft soft palate which is common and digital refers to the abnormalities of the fingers and toes of an affected child. |
| I Have Oto-palatal-digital Syndrome With information on diagnosis, treatment, symptoms, along with personal stories and experiences with Oto-Palatal-digital Syndrome. | |
| Ovarian Cancer Information Link |
Ovarian Cancer National Alliance The Ovarian Cancer National Alliance is a patient-led, organization uniting ovarian cancer activists, women's health advocates and health care professionals in the effort to increase public and professional understanding of ovarian cancer and to advocate for more effective diagnostics, treatments and a cure. Key activities include an annual national conference, a public education program targeted to women and primary care physicians, and training programs to help survivors become effective advocates and spokespeople for the disease. |
| National Ovarian Cancer Coalition Our mission is to raise awareness and promote education about ovarian cancer. The Coalition is committed to improving the survival rate and quality of life for women with ovarian cancer. | |
| National Ovarian Cancer Association (Canada) The National Ovarian Cancer Association has undertaken some key initiatives that have dramatically contributed to the advancement and understanding of the issues surrounding ovarian cancer in Canada. Our groundbreaking programs, our support of scientific research and our nationwide awareness campaigns have changed the face of the disease, turning it from a "whisper" to a "roar". | |
| Daily Strength - Ovarian Cancer Support Group Message boards and discussions. |
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| SHARE - Self-Help for Women with Breast or Ovarian Cancer We are breast and ovarian cancer survivors and we're here to help you. We know what it's like to have early stage, recurrent, and metastatic disease. If you've been diagnosed with breast or ovarian cancer -- or if you simply want to know more about these diseases -- we can help. |
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| WebMD® Ovarian Cancer Community With information and other links. | |
| Ovarian Cancer Support Group A community of patients, family members and friends dedicated to dealing with Ovarian Cancer, together. | |
| Ovarian Cysts Information Link |
Ovarian Cyst Support Group Are you currently dealing with an Ovarian Cyst? Have you had them in the past? Do they reoccur often? Have you had Surgery? ( laparoscopy) Come and Join this group so that we can help each other out and give support. |
| I Have Ovarian Cysts Read true personal stories, chat & get advice, support and help from people who all say 'I Have Ovarian Cysts' | |
| Cyst Ovarian Recurrent Links to articles on this topic. | |
Support Groups "Pa" through "Pl"
"Pa" through "Pl"
| Pachyonychia Congenita | PC Project Pachyonychia Congenita Project has developed this website as a tool for PC patients, their family members and friends, as well as for doctors, clinical researchers, other medical professionals and schools. A rare, hereditary, autosomal dominant palmoplantar keratoderma that can affect the nails, skin, mouth, hair, larynx, and eyes. |
| Paget Disease Information Link |
Paget Foundation for Paget's Disease of Bone and Related Disorders (Canada) Here you will find a wealth of accurate and reliable information on Paget's disease of bone, primary hyperparathyroidism, fibrous dysplasia, osteopetrosis and the skeletal complications of cancer. As the premier organization in the United States addressing these conditions, the Foundation is dedicated to providing useful information for patients, health professionals and researchers. |
| National Association for the Relief of Paget's Disease (UK) The charity was founded in 1973 with the following aims: to offer support and information to Paget's disease sufferers; to sponsor research into the causes and treatment of the disease; and to raise awareness of the disease among the medical profession and the public | |
| Paget's Disease Support Group on Face-to-Face Health | |
| I Have Paget's Disease of Bone Paget's Disease Of Bone anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Paget's Disease Of Bone. | |
| Pain Management Also see condition that might be causing the pain. Information Links: Chronic Pain Complex Regional Pain Syndrome Aches, Pain, Fever Muscle Pain Chest Pain Headache Neuropathic Pain Pain, Stomach (Abdominal Pain) Pain, Tooth (Toothache) Whiplash |
American Pain Foundation, Inc. Founded in 1997, the American Pain Foundation is an independent organization serving people with pain through information, advocacy, and support. Our mission is to improve the quality of life of people with pain by raising public awareness, providing practical information, promoting research, and advocating to remove barriers and increase access to effective pain management. |
| American Pain Society The American Pain Society is a multidisciplinary community that brings together a diverse group of scientists, clinicians and other professionals to increase the knowledge of pain and transform public policy and clinical practice to reduce pain-related suffering. | |
| American Chronic Pain Association Our mission is to facilitate peer support and education for individuals with chronic pain and their families so that these individuals may live more fully in spite of their pain; to raise awareness among the health care community, policy makers, and the public at large about issues of living with chronic pain; and to offer support and information for people with chronic pain. | |
| Friends International Support Friends International is a friendly cyber-community for people with chronic pain, FMS, CFS, ME and/or back pain. We are offering support and information on chronic pain, FMS and CFS symptoms, treatment and research. | |
| Action On Pain (UK) Action on Pain takes an active role in providing advice and support to both people living with pain and those affected by it's intrusive effects on daily life. Working closely with other organisations both in the UK and Internationally, the Chairman strives to raise the profile of pain with politicians, NHS Managers and health professionals. | |
| National Pain Foundation An on-line educational and support community for persons in pain, their families and physicians. Your source for treatment options and pain information that is peer reviewed by leading pain specialists. | |
| Chronic Pain Meetup Groups Meet others who suffer from Chronic Pain or Illnesses (of any cause). Share advice and offer support for each other. | |
| The Pain Connection Goals include: Improve the quality of life of those suffering from chronic pain; Decrease their sense of isolation and alienation; Increase control of their condition and treatment, and Maintain their independence. | |
| Back Pain Support Group This web-site has been set-up as an alternative to the many other "corporate" health-related sites out there, whose restrictions and moderation limitations too greatly stifle the open exchange of valuable information between us fellow back pain sufferer's. | |
| Chronic Pain Support Group Looking for members who suffer from Chronic Pain that are interested in sharing their stories and successes with others. | |
| Pain Support Groups Support groups can be an amazing resource for people in pain and their families. Most national disease organizations and many health-related Web sites can help put you in touch with groups in your area, and several even offer online communities where you can reach out from the comfort of your own home. | |
| Daily Strength - Chronic Pain Support Group Discussion boards. |
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| Chronic Pain Support Group A community of patients, family members and friends dedicated to dealing with Chronic Pain, together. | |
| Chronic Pain Support Discussion boards. | |
| Chronic Pain Connection Need someone to talk to—someone who understands what it’s like to deal with chronic pain? Joining a support group could be just the ticket to finding the people who understand what you're experiencing. | |
| Pancreatic Diseases including Cancer Information Links: Pancreatic Cancer |
National Pancreas Foundation, The To support the research of diseases of the pancreas and to provide information and humanitarian services to those people who are suffering from such illnesses. |
| Ronald S. Hirshberg Pancreatic Cancer Foundation Dedicated efforts have significantly raised awareness and understanding about pancreatic cancer, a disease that continues to be one of the most fatal and least funded of all cancer types. Our continued funding of basic and translational research is our chance to offer life extension, better treatment options and, eventually, a cure. | |
| Pancreatitis Supporters' Network (UK) The Pancreatitis Supporters' Network provides medical information and support for sufferers of the condition called pancreatitis. On this site there is a database of medical information, advice for sufferers and carers and a pen pals network. | |
| Support for People with Pancreatic Cancer Living with a serious disease such as pancreatic cancer is not easy. Some people find they need help coping with the emotional and practical aspects of their disease. Support groups can help. In these groups, patients or their family members get together to share what they have learned about coping with their disease and the effects of treatment. Patients may want to talk with a member of their health care team about finding a support group. | |
| Daily Strength - Pancreatic Cancer Support Group Message boards and discussions. |
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| In-person Support and Networking Groups Connecting with other survivors, caregivers and loved ones in-person can be a wonderful source of support and encouragement for those dealing with pancreatic cancer. In-person support and networking groups offer opportunities for people with pancreatic cancer and their family members to share experiences with others. Most in-person support groups are guided and facilitated by a professional counselor, social worker or nurse. | |
| Pancreatic Cancer Support Group A community of patients, family members and friends dedicated to dealing with Pancreatic Cancer, together. | |
| Pancreatitis Information Link |
The Pancreatitis Association provides services to anyone with pancreatitis, but there are always many others whose lives are affected by this disease: families, caregivers, friends, neighbors, church members, healthcare workers, etc. We are all affected by this disease. Therefore, we feel it is important to offer educational support and information to enable everyone, then, to make informed healthcare decisions and understand the support needed by the person with pancreatitis. |
| The National Pancreas Foundation Sometimes knowing you are not alone makes all the difference in the world. NPF sponsors its own online support group, as well as support groups near our office in Boston. | |
| Kids Who Care: What is Pancreatitis Support forum. | |
| I Have Pancreatitis Pancreatitis anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Pancreatitis. | |
| Pancreatitis at Health Network is inflammation of the pancreas, the gland behind the stomach which produces the acids used to digest food. Alcohol abuse, enzyme disorders, viral infections, and some medicines can lead to pancreatitis. The main symptoms are severe abdominal pain with diarrhea and vomiting. | |
| Daily Strength - Pancreatitis Support Group Discussion boards |
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| Feline Pancreatitis Support Group, a place for caregivers of cats dealing with pancreatitis or triaditis complex as well as those wanting to learn more about these disorders. | |
| Panic Attacks Information Link: Panic Disorder |
DailyStrength The most comprehensive health network of people sharing their advice, treatment experiences, and support. Keep a wellness journal, read members’ stories, and chat with new friends with over 500 support groups. |
| National Mental Health Association Mental Health America is the country’s leading nonprofit dedicated to helping ALL people live mentally healthier lives. | |
| Panic Attack Discussion forum. | |
| Panic Survivers All of our members share a common problem with an anxiety disorder. We will try to provide information and education. This should NOT be a substitute for professional medical advice. We promote a goal-focused approach to surviving anxiety, and we encourage our members to discuss their specific goals as well as their successes and failures. | |
| Panic Disorders Meetup Groups Meet other local people who experience panic attacks, social anxiety, general anxiety, agoraphobia, and/or any other type of panic disorders. | |
| Panic Attacks Anxiety Support Group on FaceBook. Open discussion to help when feeling anxious or panic | |
| Paralysis | American Paralysis Association There are an estimated 50 million Americans affected by diseases or disorders of the spinal cord and brain. The list of disorders includes the following: spinal cord injury, memory loss, addiction, schizophrenia, learning disability, depression, violence, stroke, brain injury, dementia, suicide and many others. More than 90% of the American population has experienced or will experience the effects of a brain-related, mental, emotional or behavioral, disease, disorder or injury at some point in their lives. |
| Christopher Reeve Paralysis Foundation (CRPF) The Christopher and Dana Reeve Paralysis Resource Center is your one-stop connection to information on paralysis. | |
| Paralysis Support Group A community of patients, family members and friends dedicated to dealing with Paralysis, together. | |
| Periodic Paralysis Association The Periodic Paralysis Association was founded to foster awareness of the periodic paralyses, promote science-based information regarding this class of disorder. | |
| Paralysis Project of America The Paralysis Project of America was founded by a group of concerned parents whose children were injured in accidents. The Paralysis Project funds novel lines of Scientific Research to assist those suffering from Spinal Cord Injury and Paralysis. Scientific Grants are awarded to researchers based on the funds made available from the Paralysis Project's fundraising activities. The mission of Paralysis Project is to accelerate progress toward finding a cure for paralysis caused by spinal cord injury. | |
| Paralyzed Veterans of America works to maximize the quality of life for its members and all people with SCI/D as a leading advocate for health care, SCI/D research and education, veterans’ benefits and rights, accessibility and the removal of architectural barriers, sports programs, and disability rights. We are the only Congressionally chartered veterans organization dedicated solely to serving the needs of SCI/SCD veterans. | |
| Spinal Cord Injury, Stroke, and Paralysis Guide to Support Organizations This page contains address and contact information for organizations providing support for and education of patients with spinal injuries and their families and friends | |
| Daily Strength - Paralysis Support Group Discussion boards. |
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| Dangerwood: Surviving Paralysis The site to survive spinal cord injuries and paralysis. | |
| Apparelyzed. Spinal Cord Injury : Quadriplegic and Paraplegic Injuries | |
| I Have Had Sleep Paralysis Read true personal stories, chat & get advice, support and help from a group of people who all say 'I Have Had Sleep Paralysis' | |
| The Facial Paralysis Institute (Bell’s Palsy) We will provide you with the information, resources and ongoing support necessary to start and maintain a support group in your regional area. We believe that giving and receiving encouragement from other persons who are experiencing many of the same health concerns as you or your loved one is of great benefit to all involved. | |
| Paraphilias - See Sex Addiction | |
| Parenting There are far too many possibilities within this topic for us to cover all. Therefore we just provide a few links. Information Link |
Parents Helping Parents We know parenting isn’t easy. That’s why Parents Helping Parents is here. Our services are free, confidential and anonymous. No parenting problem is too big or too small to reach out for help... |
| BILY “Because I Love You” is a non-profit organization dedicated to supporting parents with troubled children of any age. We promote structure, consequences and consistency in raising our kids and we have helped thousands of families over the past 29 years. We help parents deal with drugs, runaways, truancy, verbal and physical abuse, curfew, dress codes and problem friends. We also help with the important things like cleanliness, responsibility, and success in school. | |
| Parenting Support Groups Over the years we have found that most people who are searching for the words "parenting support groups" are searching for two things. The first is a group of friendly faces with whom to discuss the issues, concerns and fears of raising children. The second is to find sources of help for financial, medical and nutritional issues. We designed this section of our website to be the single best source of information on all these issues. | |
| How to Grow Your Own Parent Support Group Parent support groups are often started and lead by people who may have little experience organizing and managing a group. This can lead to poor outcomes for individual group members and great frustration for the group leader. | |
| Establishing a Worksite Parenting Support Group Support groups bring together men and women who have similar concerns or difficulties and enable participants to share personal stories and helpful information. Members often find it reassuring to learn that their problems and concerns are not unique | |
| Parent Support Groups Parent support groups provide informal mutual support and opportunities to discuss parenting challenges and strategies. Find resources and tools for conducting parent support groups and information on national parent support programs. | |
| Parenting Support Meetups around the world Single Parent Support Group Meetups around the world |
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| Attachment Parenting International API offers parenting information and support through API Support Groups around the world, information found on this website, and through the API Forum where you can read and post on parenting topics and connect with AP families in your community. When we strengthen families, we nurture and fulfill our children's need for trust, respect, and affection, and ultimately provide a lifelong foundation for healthy, enduring relationships. | |
| Parenting Teenagers Support Group A community of patients, family members and friends dedicated to dealing with Parenting Teenagers, together. | |
| Paratuberculosis – see Crohn's Disease | |
| Parkinson's Disease Information Link: Parkinson's Disease |
National Parkinson Foundation NPF is the largest and oldest national Parkinson foundation in the United States. NPF supports research, patient care, education, training, and outreach. |
| Parkinson's Disease Foundation The Parkinson's Disease Foundation is a leading national presence in Parkinson's disease research, education and public advocacy. We are working for the nearly one million people in the US living with Parkinson's by funding promising scientific research and supporting people with Parkinson's, their families and caregivers through educational programs and support services. | |
| Worldwide Education and Awareness for Movement Disorders WE MOVE is the Internet's most comprehensive resource for movement disorder information and the hub of movement disorder activities on the web. | |
| Parkinsons Meetup Groups Meet other people and families interested in learning more about Parkinson's Disease in your area. Come to a local Meetup and discuss with others the different approaches you've used to cope with this life changing disease. | |
| International Support Groups (PDF) A resource for anyone who is caring for someone with Parkinson's disease |
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| Parkinson's Patients Support Groups Serving the community of Parkinson's patients, care-givers and their friends and families | |
| Parkinson's Disease Support Group A community of patients, family members and friends dedicated to dealing with Parkinson's Disease, together. | |
| Parry-Romberg Syndrome | National Craniofacial Association The National Craniofacial Association has been dedicated to assisting children and adults who have craniofacial disorders resulting from disease, accident, or birth. |
| NINDS Parry-Romberg Information Page Prepared by the National Institute of Neurological Disorders and Stroke | |
| The Romberg's Connection is an international support group made up of over 530 individuals and families whose lives are affected by Parry Romberg Syndrome. We have come together to offer our strength, courage, support and friendship to one another. | |
| Parry-Romberg Syndrome Resource Dedicated to providing awareness of Parry-Romberg Disease. The goal of our site is to provide comprehensive and current information to support and educate the community, particularly Parry-Romberg patients, their families, and medical professionals. | |
| Patau Syndrome Also see Trisomy |
Living with Trisomy 13 This site focuses on bringing together the families of children diagnosed with Patau Syndrome. Also called Trisomy 13 Syndrome, having a third (extra) number 13 chromosome, occurs about 1 in 5,000 live births. Trisomy 13 children have multiple abnormalities. Some include heart defects, brain defects, cleft lip, cleft palate. The most severe are visual abnormalities, omphalocele, proboscis and holoprosencephaly. |
| Pediatric Neurotransmitter Diseases | Pediatric Neurotransmitter Disease Association Representing children and families who are affected by a pediatric neurotransmitter disease. “Pediatric Neurotransmitter Disease” is an umbrella term for genetic disorders that affect the synthesis, metabolism and catabolism of neurotransmitters in children. These inborn errors of metabolism affect the central nervous system in children and if left untreated can lead to severely compromised neurological function. |
| Pelvic Inflammatory Disease Information Link |
Pelvic Inflammatory Disease (PID) A general term for a bacterial infection of the female reproductive organs, which can include infection of the uterine lining, the fallopian tubes, and/or ovaries. Each year in the United States, it is estimated that more than 1 million women experience an episode of acute PID |
| Pelvic Pain Pain in the pelvic cavity and the perineum is a problem that can affect both women and men. It is one of the most common causes of pain in women and is one of the most difficult to diagnose and manage. Researchers estimate that 12-20% of women have chronic pelvic pain, and up to 33% of women will have pelvic pain during their lifetime | |
| Peripheral Arterial Disease | Legs For Life Legs For Life is a national screening program for Peripheral Arterial Disease (PAD), Abdominal Aortic Aneurysm (AAA), Carotid/Stroke, and Venous Disease. |
| Peripheral Artery Disease Information provided by the Mayo Clinic. | |
| Perthes Disease | Perthes Association (UK) The Association aims to help and advise families of children suffering from Perthes' disease and Associated conditions in all parts of the British Isles and overseas. Perthes disease (a potentially crippling disease of the hip) is a form of osteochondritis, which affects 5.5 per 100,000 children (mainly boys) between the ages of 2 and 15 years. |
| Legg Calve Perthes Disease Support Group On Facebook. Legg-Calvé-Perthes disease is a rare disease of the hip that afflicts approximately 1 in 1200 children. | |
| I Have Legg-perthes Disease Legg-Perthes Disease anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Legg-Perthes Disease. | |
| Pemphigus Vulgaris | National Pemphigus Foundation The International Pemphigus & Pemphigoid Foundation was founded in 1994 as The National Pemphigus Vulgaris Foundation. Our founder, Janet Segall, with the support of several leading physicians in the field, created the first organization with the specific mission to serve and assist people living with all forms of pemphigus and pemphigoid, and the people who care for them. |
| Pemphigus Vulgaris Network The United Kingdom support group for people living with Pemphigus and Mucous Membrane Pemphigoid. | |
| International Pemphigus & Pemphigoid Foundation Dedicated to providing information and support to the community of people living with pemphigus and pemphigoid -- including the family members, friends and medical professionals who care for them. | |
| I Have Pemphigus Vulgaris A Pemphigus Vulgaris, Familial anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Pemphigus Vulgaris. | |
| Pemphigus Support Group A community of patients, family members and friends dedicated to dealing with Pemphigus, together. | |
| Daily Strength - Pemphigus Support Group Discussion boards. |
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| Pendred Syndrome Information Link |
I Have Pendred Syndrome - Pictures and Photos See I Have Pendred Syndrome photos and pictures. Images are uploaded by members, or drawn from across the web |
| Pendred Syndrome- Is there support? There is no support group for Pendred syndrome in the UK. Information and support for deafness associated with Pendred syndrome is provided by deafness support organisations. | |
| Pentasomy X Syndrome | Tetrasomy/Pentasomy X Support List As parents of children who are diagnosed with tetrasomy x and pentasomy x syndromes, we understand how essential it is for them and their families seeking support and also for educators and professionals working with the families to have access to information. |
| Tetrasomy X /Pentasomy X Support Group on Yahoo.com. Boards. | |
| Peptic Ulcer - see Ulcer | |
| Pericarditis Information Link |
I Have Pericarditis Pericarditis anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Pericarditis. |
| Adult Pericarditis Research the condition by topics such as causes, symptoms, diagnosis, complications, and more. Learn how to take action with information on Pericarditis-Adult treatment options, prevention methods, support groups, and more. | |
| Pericarditis Support Group A community of patients, family members and friends dedicated to dealing with Pericarditis, together. | |
| Peripheral Neuropathy - see Neuropathy | |
| Personality Disorders (including Borderline Personality Disorder) Also see specific named conditions. |
National Mental Health Association Mental Health America is the country’s leading nonprofit dedicated to helping ALL people live mentally healthier lives. |
| Antisocial Personality Disorder Yahoo Groups. | |
| Personality Disorders Support Group A community of patients, family members and friends dedicated to dealing with Personality Disorders, together. | |
| Daily Strength - Personality Disorders Support Group Discussion boards. | |
| Personality Disorder Message boards. | |
| Emotions Anonymous is a twelve-step organization, similar to Alcoholics Anonymous. Our fellowship is composed of people who come together in weekly meetings for the purpose of working toward recovery from emotional difficulties. EA members are from many walks of life and are of diverse ages, economic status, social and educational backgrounds. The only requirement for membership is a desire to become well emotionally. | |
| DependentPD is a support group for those struggling with Dependent Personality Disorder, Codependency, or a related issue. Loved ones of those diagnosed with DPD are also welcome | |
| Avoidant Personality Disorder discussion/Anxiety/Social phobia Support On Yahoo Groups | |
| Oz Family Support Group Community for people who have someone in their life who has borderline personality disorder (or traits of BPD). This can cause much anxiety, depression, confusion, isolation, etc. We know what you're going through and are here to help! | |
| BPD Central Having a family member with Borderline Personality Disorder can make you feel all alone, with no one to talk to who really understands. And real life support groups are nearly impossible to find. | |
| BPD Today Most people don't even know what borderline personality disorder is and if you tell them many think you have more than one personality. You feel instantly stigmatized. | |
| BPD World Life can be stressful and complicated enough without having to worry about which diagnosis or label most accurately fits you. BPDWORLD now offers assessments which can help you to figure out the likelihood that you are suffering from a mental health condition, and assist you in deciding what to do next. | |
| The Healing Narcissism And Disorders of the Self Community The advice given is from personal experience and should never be used as a replacement for therapy from a qualified licensed professional. | |
| Narcissistic Personality Disorder Narcissistic Personality Disorder is a pattern of self-centered or egotistical behavior that shows up in thinking and behavior in a lot of different situations and activities. People with NPD won't (or can't) change their behavior even when it causes problems at work or when other people complain about the way they act, or when their behavior causes a lot of emotional distress to others. | |
| Peter's Anomaly | Peter's Anomaly Support Group Peter’s Anomaly: a rare congenital disorder in which the cornea may be scarred, and cataracts and glaucoma may be present. |
| Peter's Anomaly Support Group Message boards at BraveNet | |
| I Have Peters Anomaly A Peters Anomaly anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Peters Anomaly. | |
| Peyronie's Disease Information Link |
The Peyronies Disease Society Peyronies Disease, sometimes called Induratio Penis Plastica, is actually a scarring condition that results in deformity of the penis (typically, onset of a bent or curved penis). Peyronie's Disease is a condition that requires a lot of support for the physical and emotional challenges faced by patients and their partners. |
| I Have Peyronie's Disease Peyronie's Disease anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Peyronie's Disease. | |
| What is Peyronie’s Disease A common question, but one that’s not openly discussed, is, “What is Peyronie’s disease?” You’ve come to the right place to learn about the disease and treatment options, chat live with physicians and participate in an anonymous forum. | |
| Peutz-Jeghers Syndrome | Peutz-Jeghers Syndrome Online Support Group Peutz-Jeghers Syndrome, a rare disorder that is either inherited from a parent or occurs spontaneously. Patients with PJS have hamaratomas predominately in the small intestine as well fewer amounts of the polyps in the large intestine and stomach. Purple/black pigment spots often dot the lips and other areas of the face and body. Most of the time, the spots disappear in the teen years. |
| Peutz-Jeghers Syndrome Support Group A community of patients, family members and friends dedicated to dealing with Peutz-Jeghers Syndrome, together. | |
| I Have Peutz Jeghers Syndrome A Peutz Jeghers Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Peutz Jeghers Syndrome. | |
| Pfeiffer Syndrome | National Craniofacial Association The National Craniofacial Association has been dedicated to assisting children and adults who have craniofacial disorders resulting from disease, accident, or birth. |
| Phenylketonuria Information Link |
National Society for Phenylketonuria (UK) The NSPKU actively promotes the care and treatment of PKUs and works closely with medical professionals in the UK. |
| Support Groups and Programs to Assist Families We would like to expand this list to include all groups and programs that support families with PKU in the US, Canada and abroad. If you are involved in a support group and can provide information about it, we would be very pleased to add your group to our list. We are interested also in regularly published newsletters, summer camps and other special programs that support families or persons with PKU. | |
| Phenylketonuria Support Group A community of patients, family members and friends dedicated to dealing with Phenylketonuria, together. | |
| PKU News National PKU News is a non-profit organization located in Seattle, Washington. It is dedicated to providing up-to-date, accurate news and information to families and professionals dealing with phenylketonuria. | |
| Daily Strength - Phenylketonuria (PKU) Support Group Discussion boards. |
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| Children's PKU Network Provides public awareness, education and assistance. | |
| PKU.com (commercial) Provided by BioMarin Pharmaceutical. Includes information, recipes, and public forum. | |
| Pick Disease Also see Niemann-Pick Disease (on this page) Information Link |
Pick's Disease Support Groups and Message Boards Pick's disease is named after Arnold Pick, the doctor who first described the disease in 1892. It is similar to Alzheimer disease. Pick's disease is a brain disorder that causes slowly worsening decline of mental abilities. |
| The Pick's Disease Support Group (UK) Caring for people with frontotemporal dementia is hard, there are few facilities tailored for the younger sufferer and those are not always appropriate for people with frontotemporal dementia. Also there are no specific treatments yet for frontotemporal dementia. All this adds to the distress, isolation and burden of caring. The PDSG tries to decrease the burden by providing information and support. | |
| Phobias Information Link |
Fear Into Freedom Phobia List This list of phobias is included primarily for entertainment purposes (have fun reading the comments!). From a peak performance perspective, finding another label to put on yourself is not usually helpful. However, it can provide you with a sense of comfort in knowing that you aren't alone. |
| Social Phobia/Social Anxiety Association If a person usually becomes anxious in social situations, but seems fine when they are alone, then "social anxiety" may be the problem. | |
| National Mental Health Association Mental Health America is the country’s leading nonprofit dedicated to helping ALL people live mentally healthier lives. | |
| Anxiety UK The National Phobics Society works to relieve and support those living with anxiety disorders by providing information, support and understanding via an extensive range of services, including 1:1 therapy services. We work regularly with external agencies and healthcare professionals to improve the service provision offered in the main to those living with anxiety disorders. | |
| Phobias Online Support Group A community of patients, family members and friends dedicated to dealing with Phobias, together. | |
| Daily Strength People sharing their advice, treatment experiences, and support. Keep a wellness journal, read members’ stories, and chat with new friends with over 500 support groups. | |
| Phobia Support Group and Health Community is for those who suffer from phobias. Family members of individuals who suffer from phobias are also encouraged to join this support group. There is a wide range of phobias that people may experience | |
| Phobia Support Meetup Groups Meet other local people who suffer from Phobias. Gather for support and advice sharing on how to overcome your fears. Don't let your fears overcome your life! | |
| Phbia Support message boards | |
| Pierre Robin Sequence | Pierre Robin Network Pierre Robin Sequence (PRS) is the name given to a combination of birth defects which usually include a small lower jaw, cleft palate and a tendency for the tongue to "ball up" in the back of the mouth. Many of these children have breathing and feeding problems early in their lives. Each child can be affected differently and will react different to different situations. |
| National Craniofacial Association The National Craniofacial Association has been dedicated to assisting children and adults who have craniofacial disorders resulting from disease, accident, or birth. | |
| Pierre Robin, Australia PRS is referred to as a “Sequence” not a “Syndrome” because the underdeveloped lower jaw begins a sequence of events, which leads to the abnormal placement of the tongue, resulting in the cleft palette and respiratory obstruction. | |
| Pituitary Disorders | Pituitary Disorders Education & Support The PDES has brought thousands of patients, families, and medical professionals together for the purpose of gaining a better and broader understanding of pituitary tumors and related endocrine disorders. |
| The Pituitary Society is dedicated to furthering the understanding of diseases of the pituitary gland. Its members are scientists and doctors whose major interest is in pituitary diseases. | |
| The Pituitary Network Association An international non-profit organization for patients with pituitary tumors and disorders, their families, loved ones, and the physicians and health care providers who treat them. | |
| The Pituitary Foundation (UK) Working to provide information and support to those living with pituitary disorders, including patients, their relatives, friends and carers. | |
| The Australian Pituitary Foundation To provide support to those who have experienced pituitary gland conditions. We promote awareness and disseminate information among the medical community, public, pituitary patients and their families. | |
| Pituitary Adenoma Support Group Find help and get support from people like you | |
| I Have Pituitary Tumor A Pituitary Tumor support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Pituitary Tumors. | |
| Pituitary Adenomas Support Group A community of patients, family members and friends dedicated to dealing with Pituitary Adenomas, together. | |
| I Have Pituitary Diseases Pituitary Diseases anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Pituitary Diseases | |
| Plague Information Link |
Modern History of the Plague There have been no major epidemics of plague in the United States for many years, although occasional cases still occur in the southwestern states. Globally, from 1,000 to 3,000 cases annually are reported to the World Health Organization (WHO), most of which occur in Africa, Southeast Asia, and Latin America. |
| I Have Bubonic Plague Bubonic Plague anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Bubonic Plague. | |
| Plague is a bacterial infection that can be deadly. The disease occurs naturally after a bite by an infected flea or from handling or eating an infected animal. | |
| Pleurisy Information Link |
Pleurisy Support Group A community of patients, family members and friends dedicated to dealing with Pleurisy, together. |
| Daily Strength - Pleurisy Support Group Discussion boards. |
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| I Have Pleurisy Pleurisy anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Pleurisy. | |
"Pn" through "Pz"
| Pneumonia Information Link |
Bacterial Respiratory Tract Infections There are many different kinds of bacterial respiratory tract infections (RTIs), including sinusitis, bronchitis, and pneumonia. Common symptoms of RTIs include nasal congestion, runny nose, scratchy throat, cough, and fever. |
| Types of Pneumonia Pneumonia is named for the way in which a person gets the infection or for the germ that causes it. | |
| What Types of Pneumonia are There? With links to additional information. | |
| Pneumonia Group To help and get support from people like you. | |
| Pneumonia Support Inflammation of the lungs usually caused by an infection. Pneumonia often follows infection of the upper respiratory tract, and the main symptoms are fever, chills, pain in the chest, and labored breathing. Untreated, pneumonia can be deadly. | |
| Pneumonia Support Group A community of patients, family members and friends dedicated to dealing with Pneumonia, together. | |
| Healia Health Community for Pneumonia. Through this Pneumonia support group, you can get Pneumonia information, share experiences about Pneumonia, connect with peers, and get answers to your Pneumonia questions from health professionals. | |
| I Have Pneumonia Pneumonia anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Pneumonia. | |
| Pneumonia Forums and Support Groups Forums and support groups serve as venues for interaction among pneumonia patients, their families, and healthcare professionals. Online discussions are a means of conveying information and insights on the disease, and are conveniently accessible, especially for those who have pneumonia and are unable to leave home | |
| Pneumonia Support Group Get advice and support from thousands of patients like you | |
| Daily Strength - Pneumonia Support Group Discussion boards, |
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| Poison Ivy Information Link |
Poison Ivy Support From Prevention magazine. |
| Poison Ivy From the the NeuroTalk Communities | |
| Contact Dermatitis Support Group Also applies to: Allergic Dermatitis, Dermatitis, Allergic, Dermatitis, Contact, Poison Ivy, Poison Oak, Poison Sumac | |
| Poisons Also see Food Poisoning Information Links: Poison Control Centers |
Poisoning: First Aid (from the Mayo Clinic) Many conditions mimic the signs and symptoms of poisoning, including seizures, alcohol intoxication, stroke and insulin reaction. So look for the signs and symptoms listed below and if you suspect poisoning, call your regional poison control center or, in the United States, the National Poison Control Center at 800-222-1222 before giving anything to the affected person. |
| Types of Poisons The majority of poisonings are accidental and therefore preventable. (Provided by the Carolinas Poison Center.) | |
| Although we have a small sampling below of Poisoning Support groups - First Aid by a Poison Control Center takes priority over everything. | |
| I Have Mercury Poisoning A Mercury Poisoning support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Mercury Poisoning. | |
| Carbon Monoxide Poisoning Support Groups Carbon monoxide (CO) is a gas that has no odor or color, but it is very dangerous. It can cause sudden illness and death. CO is found in combustion fumes, such as those made by cars and trucks, lanterns, stoves, gas ranges and heating systems | |
| Carbon Monoxide Poisoning Survivors Group A community of patients, family members and friends dedicated to dealing with Carbon Monoxide Poisoning Survivors, together. | |
| Gentamicin Poisoning victims endure severe physical and mental symptoms. They can also feel isolated and misunderstood because the disease is relatively uncommon. Various support groups have evolved to help victims of gentamicin poisoning understand their illness, and to network with others. Many gentamicin poisoning sufferers find communicating with others who face similar challenges extremely beneficial. | |
| Daily Strength - Lead Poisoning Support Group Lead poisoning is a medical condition, also known as saturnism, plumbism or painter's colic, caused by increased blood serum lead levels. The symptoms of lead poisoning include neurological problems, such as reduced IQ, nausea, abdominal pain, irritability, insomnia, excess lethargy or hyperactivity, headache and, in extreme cases, seizure and coma. | |
| Arsenic Poisoning Group To help and get support from people like you. | |
| Poland Syndrome Information Link |
The Poland Syndrome Support Group Support Advise and Information to anyone with Poland Syndrome, their Families and friends. |
| Poland's Syndrome Named after Sir Alfred Poland, Poland's Syndrome is described as an absence or underdevelopment of the chest muscle (pectoralis) on one side of the body and webbing of the fingers (cutaneous syndactyly) of the hand on the same side (ipsilateral hand). Sometimes referred to as "Poland anomaly," it is a rare condition present at birth (congenital) | |
| Poland Syndrome Support Group, UK on Facebook. The primary objective of the group is to provide a network of support for anyone who finds their life affected by Poland Syndrome whether they have Poland Syndrome them self, or are a parent, family member or friend of someone who has Poland Syndrome. |
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| Poland's Syndrome Support on Facebook Support and Information for those affected by Poland Syndrome. | |
| I Have Poland Syndrome A Poland Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Poland Syndrome. | |
| Polio Also see Post-Polio Syndrome Information Link |
Immunization Against Diseases of Public Health Importance Prepared by the World Health Organizations, United Nations. |
| Polio Immunization Polio is a severe, contagious, life-threatening disease. It usually affects children under 5 years of age. The development of the polio vaccine by Dr. Jonas Salk in 1955 has helped significantly reduce the rates of polio. However, the disease remains common in some developing countries, so there is a risk that it can spread to the United States. In 2005, a few unvaccinated children in Minnesota developed the disease. This outbreak highlights the continued importance of vaccination. | |
| Where Can I Find a Polio Support Group? Provided by Polio Experience Network Information, inspiration, ideas and resources to help you understand polio and post-polio syndrome, and to confidently manage life with it. Or to help a loved one cope with the effects of polio. | |
| Polio Epic An organization of polio survivors and their families, community professionals and other interested parties. Our mission is to provide education, support and community connections that empower polio survivors with tools necessary to make adjustments needed to continue a life of dignity, independence and interdependence. | |
| Polio Support Group A community of patients, family members and friends dedicated to dealing with Polio, together. | |
| Pompe Disease | Pompe Community Pompe disease is a rare neuromuscular genetic disorder that occurs in babies, children, and adults who inherit a defective gene from each parent. Progressive muscle weakness is the most common symptom of both the infantile-onset and the late-onset forms of Pompe disease. |
| Acid Maltase Deficiency Association The Acid Maltase Deficiency Association,was formed to assist in funding research and to promote public awareness of Acid Maltase Deficiency, also known as Pompe's Disease. |
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| International Pompe Association A federation of Pompe disease patient's groups world-wide. It seeks to coordinate activities and share experience and knowledge between different groups. | |
| Pompe Disease Support Group To help and get support from people like you. | |
| Pompe Pasges (UK) Are you a patient - or a parent - who has been given a diagnosis of Pompe disease? Are you a healthcare professional who has a patient diagnosed with Pompe? If so, this page has an important message for you: You are not alone! | |
| Porphyia | American Porphyria Foundation The APF is dedicated to improving the health and well-being of individuals and families affected by porphyria. Porphyria is a group of at least eight disorders that differ considerably from each other. A common feature in all porphyrias is the accumulation in the body of "porphyrins" or "porphyrin precursors." |
| Porphyria Support Group of New Zealand. You are likely reading this information because you or a loved one has porphyria.Our aim is to support you in discovering and learning about porphyria, its impact and effect on our lives. We also provide a bridge between sufferers, with a New Zealand focus. | |
| The British Porphyria Association The Association's aim is to reach out to as many people as possible; patients, doctors, hospitals and research establishments in order to improve the understanding of this condition. Early diagnosis is vital if we are to improve the quality of life for those affected by it | |
| Porphyria Support Group The porphyrias are inherited or acquired disorders of certain enzymes in the heme biosynthetic pathway (also called porphyrin pathway). They are broadly classified as hepatic porphyrias or erythropoietic porphyrias, based on the site of the overproduction and mainly accumulation of the porphyrins (or their chemical precursors). | |
| Porphyria Support Group A community of patients, family members and friends dedicated to dealing with Porphyria, together. | |
| I Have Acute Intermittent Porphyria A support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Acute Intermittent Porphyria. | |
| Postpartum Depression Information Link |
The Center For Postpartum Adjustment In the past, perinatal mood disorders were overlooked and even ignored. Today, things are different. Contemporary medical and psychological professionals are increasingly aware of the damage that these disorders can cause during the emotional and hormonal roller coster of pregnancy and childbirth. The first step is identifying the symptoms and knowing that you are not alone. |
| Postpartum Support International dedicated to helping women suffering from perinatal mood and anxiety disorders, including postpartum depression, the most common complication of childbirth. We also work to educate family, friends and healthcare providers so that moms and moms-to-be can get the support they need and recover. You are not alone. You are not to blame. With help, you will be well. | |
| Postpartum Depression Support Groups Around the U.S. & Canada If you are a new mom looking for people in your area who understand what you are going through, you've come to the right place. | |
| The Motherhood Center Postpartum Support Group Our postpartum depression support group can provide you with a safe, private, and accepting place to talk about the emotional and physical changes you have experienced during your pregnancy and as a mother. | |
| Daily Strength Postpartum Depression A form of major depression which can affect women, and less frequently men, after childbirth. It is widely considered to be treatable. | |
| Post Partum Depression Support Group A community of patients, family members and friends dedicated to dealing with Post Partum Depression, together. | |
| Online PPD Support Group Being a mother is one of the hardest jobs anyone can do, and having a mood disorder can make a hard job feel impossible. Many women experience some form of postpartum mood disorders. Having a mental illness is not a measure of your worth, social status, race or religion. Getting treatment is not a sign of weakness, but a sign of strength and bravery. Mental health in many societies is still often surrounded by misinformation and stigma. | |
| The Ruth Rhoden Craven Foundation for Postpartum Depression Awareness Postpartum depression is defined as the emotional and physical reactions occurring any time within the first year after the birth of a baby and is characterized by feelings of sadness, despair, hopelessness, and discouragement. | |
| The Post-Natal Depression Support Association of South Africa While many mothers, do, in fact, experience the birth of a baby as a “happy event”; PNDSA is concerned with the ten to thirty percent of parents, for whom this is not true. | |
| Postpartum Depression and the Baby Blues Having a baby is stressful—no matter how much you've looked forward to it or how much you love your child. Giving birth puts you through a physical and emotional wringer. But your exhaustion has to take a backseat to the needs of your newborn. Considering the sleep deprivation, new responsibilities, and lack of time for yourself, it's only natural that a lot of new moms feel like they're on an emotional rollercoaster. | |
| Postpartum Dads This website is intended to help dads and families by providing firsthand information and guidance through the experience of PPD. This site also includes information and resources that can be used by professionals to assist families dealing with PPD. We hope that you find the information on this website useful and we welcome comments and suggestions. | |
| Post-Polio Syndrome Information Link |
Post-Polio Health International (PHI) Post-Polio Health International's mission is to enhance the lives and independence of polio survivors and home ventilator users through education, advocacy, research and networking. |
| Post-Polio Syndrome Fact Sheet Post-polio syndrome (PPS) is a condition that affects polio survivors years after recovery from an initial acute attack of the poliomyelitis virus. PPS is mainly characterized by new weakening in muscles that were previously affected by the polio infection and in muscles that seemingly were unaffected. | |
| Where Can I Find a Polio Support Group? Provided by Polio Experience Network Information, inspiration, ideas and resources to help you understand polio and post-polio syndrome, and to confidently manage life with it. Or to help a loved one cope with the effects of polio. | |
| Post Polio Syndrome Resources (of Louisiana - but has good material for everyone) More than 300,000 polio survivors in the United States may be at risk for PPS. Doctors are unable to establish a firm incidence rate, but they estimate that the condition affects 25 percent to 50 percent of these survivors, or possibly more depending on how the disorder is defined. | |
| Polio Support Group Poliomyelitis, often called polio or infantile paralysis, is a viral paralytic disease. The causative agent, a virus called poliovirus (PV), enters the body orally, infecting the intestinal wall. It may proceed to the blood stream and into the central nervous system causing muscle weakness and often paralysis | |
| Polio Today PolioToday.org has been created to raise awareness of post-polio syndrome (PPS), a condition that affects 40-50 percent of polio survivors. | |
| Polio Epic An organization of polio survivors and their families, community professionals and other interested parties. Our mission is to provide education, support and community connections that empower polio survivors with tools necessary to make adjustments needed to continue a life of dignity, independence and interdependence. | |
| The Post Polio Support Society of NZ is dedicated to seeking support for people who have had poliomyelitis. It does this through information sharing and where possible, assistance to polio society members and their families, whether or not they are experiencing problems at present. | |
| Post Polio Support Group (Ireland) Set up by Polio Survivors to assist their fellow survivors, particularly in relation to the Late Effects of Polio. The Group was formed in 1993 and is run by a voluntary Board of Polio Survivors and friends, and is supported by four voluntary committees, other voluntary workers and an executive staff of three at the office in Dublin. | |
| Polio Experience Network offers information, inspiration, ideas and resources to help you understand polio and post-polio syndrome, and to confidently manage life with it. Or to help a loved one cope with the effects of polio. We also offer resources for students doing research on the disease. We even have some links about disability in general. Browse - we should have something to help. | |
| Post-Polio Syndrome (Mayo Clinic) Dealing with the fatigue and weakness of post-polio syndrome can be difficult, physically and psychologically. You may need to lean on your friends and family for support. In most cases, they're probably already looking for ways to help you, and you can help them by telling them how. | |
| Post Traumatic Stress Disorder Information Link This is only a sampling of the hundreds of online support sites for PTSD. |
Post Traumatic Stress Disorder Gateway PTSD is a medical diagnosis, established in 1980, defining symptoms that last at least a month after experiencing a major trauma. These symptoms include remembering or reliving the trauma when you do not choose to; feeling numb and withdrawn; and, having forms of anxiety that interfere with daily life. |
| National Center for PTSD The National Center for PTSD (NCPTSD) aims to advance the clinical care and social welfare of U.S. Veterans through research, education and training on PTSD and stress-related disorders. This site is an educational resource on PTSD and traumatic stress, for veterans and also for mental health care providers, researchers and the general public. | |
| Gift From Within Giving trauma survivors, their loved ones and supporters a credible online website that was friendly and supportive. PTSD is real and we wanted to explain the condition without being too technical or too superficial. | |
| Sidran Foundation Because many people underestimate the developmental, emotional, psychological, and spiritual injuries that can result when people experience or witness traumatic events, Sidran Traumatic Stress Institute helps people understand, recover from, and treat traumatic stress (including PTSD), dissociative disorders, and co-occurring issues, such as addictions, self injury, and suicidality. | |
| Deployment Health Clinical Center Deployment Health Clinical Center arose from the studies and treatment for Gulf War illnesses. DHCC is chartered by the DoD Health Affairs as the clinical arm of the overall effort to serve soldiers during post-deployment. This site provides content relevant to health-related issues that soldiers encounter when returning from deployment. | |
| Post-Traumatic Stress Disorder (PTSD) Support Group (Daily Strength) Post-traumatic stress disorder (PTSD) is a term for certain psychological consequences of exposure to, or confrontation with, stressful experiences that the person experiences as highly traumatic. | |
| Post-Traumatic Stress Disorder (Mayo Clinic) If stress and other problems caused by a traumatic event affect your life, seeing your health care professional is an important first step. But you can take actions to help yourself cope as you continue with treatment for post-traumatic stress disorder. | |
| PTSD Suppport Services I am a combat wounded Vietnam Era Veteran with a 100% service connected disability. Since 1967, when I was discharged, I have felt that I was in control of my life, living the normal life that everyone else around me did. But not until I had a near death experience in a hospital in 1996 that in reality something else was controlling me. Don't ask me what was going on but I was having a difficult time living within my "Personal World! | |
| Post Traumatic Stress Disorder Chat Support Group PTSD is complicated by the fact that it frequently occurs in conjunction with related disorders such as depression, substance abuse, problems of memory and cognition, and other problems of physical and mental health. The disorder is also associated with impairment of the person's ability to function in social or family life, including occupational instability, marital problems and divorces, family discord, and difficulties in parenting. | |
| Post Traumatic Stress Disorder Your friend or family member is home but they seem nervous and agitated by crowds. Maybe they're snappy with kids, drive dangerously, or they're having trouble sleeping or experiencing nightmares or flashbacks. They may be distant, forgetful, or lash out at the slightest thing. This behavior is normal, and it could be a sign of something warriors have been facing for thousands of years: post-traumatic stress disorder. | |
| Post Traumatic Stress Support Group A community of patients, family members and friends dedicated to dealing with Post Traumatic Stress, together. | |
| Heal My PYSD Post-traumatic stress, at the bottomline, is this: After a trauma occurs, survivors get lost in the gap between Before and After, Now and Then, Today and Yesterday, who they were pre-trauma and who they become as a result of experience. | |
| Postural Tachycardia Syndrome | POTS Place Often more simply referred to as postural tachycardia syndrome, or POTS, this disorder is characterized by the body's inability to make the necessary adjustments to counteract gravity when standing up. The defining symptom of POTS is an excessive heart rate increment upon standing. However, there are a multitude of other symptoms that often accompany this syndrome. |
| Postural Orthostatic Tachycardia Syndrome Group To help and get support from people like you. | |
| I Have Postural Orthostatic Tachycardia Syndrome Support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences. | |
| Prader-Willi Syndrome Information Link |
Prader-Willi Syndrome Association Dedicated to serving individuals affected by Prader-Willi syndrome, their families, and interested professionals. PWS is a A disorder of chromosome 15 Its major characteristics include hypotonia, hypogonadism, hyperphagia, cognitive impairment, difficult behaviors. The major medical concern is morbid obesity. |
| Prader-Willi Syndrome Support Group A community of patients, family members and friends dedicated to dealing with Prader-Willi Syndrome, together. | |
| Prader-Willi Syndrome Support Group (Daily Strength) PWS is characterized by hyperphagia and food preoccupations, as well as small stature and mental retardation | |
| Precocious Puberty | The Magic Foundation Major Aspects of Growth In Children (MAGIC) is made up of more than 25,000 families. The majority of us are parents of children with growth disorders and others are affected adults. |
| Precocious Puberty (Mayo Clinic) Children who begin puberty early may feel different from their peers, which can cause social and emotional problems such as low self-esteem, depression and substance abuse. As a parent, you also may have trouble dealing with your child's early development. | |
| Precocious Puberty Support Group A community of patients, family members and friends dedicated to dealing with Precocious puberty, together. | |
| Precocious Puberty' Group To help and get support from people like you. | |
| I Have Precocious Puberty With information on diagnosis, treatment, symptoms, along with personal stories and experiences, | |
| Precocious Puberty Support Group (Daily Strength) Early pubic hair, breast, or genital development may result from normal but early maturation or from several abnormal conditions. Early puberty which is normal in every way except age is termed idiopathic central precocious puberty. | |
| Pregnancy Information Links: Pregnancy Trying to Conceive Pregnancy Symptoms Pregnancy Planning Pregnancy Basics Pregnancy Drug Dangers Pregnancy Induced Diabetes Pregnancy Induced Hypertension Ectopic Pregnancy Birthing and Parenting Classes Pain Relief Options for Birth Placenta Previa Preeclampsia and Eclampsia Pregnancy: Your Guide to Eating Right What To Buy For Baby |
This is only a sampling of the hundreds of online support sites for pregnancy issues. If you have a specific condition that you wish to research, check to see if that topic is listed elsewhere on the Slightly Creaky support groups. |
| Pregnancy Support Blog with multiple posts daily and a wealth of resources. | |
| Pregnancy Support Group A community of patients, family members and friends dedicated to dealing with Pregnancy, together. | |
| Pregnancy Support Connection We offer programs that encourage all young women to overcome their physical, intellectual and emotional challenges in order to provide a positive environment for themselves and their babies. | |
| Think You’re Pregnant? All our services are FREE, CONFIDENTIAL, and NONJUDGMENTAL and are available to you whether you are single or married, regardless of age, race, income, or religion. | |
| Pregnancy Support Group (Daily Strength) Discussion boards. | |
| Planned Parenthood For more than 90 years, we’ve worked to improve women’s health and safety, prevent unintended pregnancies, and advance the right and ability of individuals and families to make informed and responsible choices. | |
| Real Alternatives We can educate you about reproductive health concerns, and we can assist you in finding appropriate medical help. You'll speak to women who will be on your side every step of the way. We're here for YOU. | |
| Pregnancy Help Australia A national body which provides support, education and resources to life affirming Pregnancy Support Centres throughout Australia. | |
| Crisis Pregnancy Facing an unplanned pregnancy can be difficult and emotional. If you've found this site, you're likely researching the options that are available to you. If you're pregnant, there are a lot of things to consider during this time and arming yourself with information about your options is the first step in empowering yourself to make an informed and well thought out decision regarding your unplanned pregnancy. | |
| Option Line Option Line provides caring, confidential support if you or someone you know is facing an unplanned pregnancy. We’re available to talk 24/7 and will offer reliable information you can trust. You can ask us anything; we are here for you. | |
| Coping with an Unplanned Pregnancy Perhaps you are secretly excited about this but scared to tell your husband. Maybe you are not married and scared about facing motherhood alone. Maybe you do not want any more children and the prospect of having another baby is the worst thing you could imagine right now. There are many scenarios that lead up to unplanned pregnancies. | |
| Kinship Center Dedicated to helping women who are faced with an unplanned pregnancy and want to explore their pregnancy options. | |
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| I Had Pregnancy Complications For women with difficult pregnancies, including cervical insufficiency, ectopic pregnancy, excessive amniotic fluid, gestational diabetes & hypertension, intrauterine growth restriction, iron-deficiency anemia, low amniotic fluid, placenta previa, placental abruption, preeclampsia, preterm labor & birth, and more. | |
| Incredible Births Twins - Triplets - Quadruplets - Quintuplets - Sextuplets - Septuplets - Octuplets Nonuplets - Decaplets - Artificial Insemination - Surrogate Mothers - Conjoined Twins - Post Cryogenic Births. | |
| Twins / Triplets / Multiple Births National and International Support Organizations | |
| Premenstrual Syndrome Information Link |
National Association for Premenstrual Syndrome NAPS is the only independent specialist patient and clinical PMS medical charity. Led by our members we support sufferers and improve understanding of PMS. |
| Premenstrual Syndrome (PMS) Premenstrual Syndrome or PMS was formally recognized by the medical community in 1953. PMS is characterized by a range of physical and emotional symptoms which usually manifest one to two weeks before the onset of the menstrual periods, and disappear after the periods begin. | |
| Pre-menstrual Syndrome (PMS) Support Group (Daily Strength) PMS is exceedingly common, occurring in 75% of women of reproductive age during their lifetime. | |
| Presbyopia Information Link |
General Info about Presbyopia This is a vision condition in which the lens of a persons eye loses its flexibility and makes it difficult for them to focus on nearby objects. |
| The Official Patient's Sourcebook on PRESBYOPIA This book has been created for patients who have decided to make education and research an integral part of the treatment process. Although it also gives information useful to doctors, caregivers and other health professionals, it tells patients where and how to look for information covering virtually all topics related to presbyopia | |
| What is Presbyopia? Presbyopia Opens New Window is the normal worsening of vision with age, especially near vision. As you approach middle age, the lenses in your eyes Opens New Window Opens New Window begin to thicken and lose their flexibility. The ability of the lens to bend allows our eyes to focus on objects at varying distances. The loss of this ability means that vision gets worse and objects cannot be brought into focus. | |
| Priapism Information Link |
Priapism is a condition when a man’s penis is erect for over four hours without sexual stimulation or desire. It is a medical emergency. If it is not treated, it can lead to permanent erectile dysfunction. |
| WebMD Erectile Dysfunction Community Concerned about Erectile Dysfunction? Discuss with others here your symptoms, possible causes and solutions. | |
| I Have Priapism With information on diagnosis, treatment, symptoms, along with personal stories and experiences with Priapism. | |
| Primary Biliary Cirrhosis Information Link |
PBCers Source of education and support for those who suffer from Primary Biliary Cirrhosis and other autoimmune liver diseases. |
| The PBC Foundation (UK) Support and information to PBC sufferers, their families and friends | |
| I Have Primary Biliary Cirrhosis Support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Primary Biliary Cirrhosis. | |
| Primary Biliary Cirrhosis (Mayo Clinic) Although the prognosis for people with primary biliary cirrhosis is far better than it was in the past, it can still be difficult and frustrating to live with a chronic liver disease. When symptoms of the disease develop, such as fatigue and itching, they can seriously affect your quality of life. | |
| Primary Carnitine Deficiency | Daily Strength DailyStrength.org is the most comprehensive health network of people sharing their advice, treatment experiences, and support. Keep a wellness journal, read members’ stories, and chat with new friends with over 500 support groups. |
| Primary Carnitine Deficiency Support Group A community of patients, family members and friends dedicated to dealing with Primary Carnitine Deficiency, together. | |
| Primary Ciliary Dyskinesia | PCD Foundation Primary ciliary dyskinesia is a progressive disorder affecting organ systems that rely on ciliary activity for proper function. These organ systems include the upper and lower respiratory tract, the middle ear and the reproductive organs. Other ciliated areas, such as the ventricles of the brain, may be affected but this appears to be very rare. Congenital heart defects, intestinal malrotation and splenic abnormalities and other defects have been reported in PCD. |
| PCD Family Support Group (UK) The website provides an up to date information service about the condition, how it is diagnosed and how to live with it on a daily basis. Please look at the video case studies with real life people affected by PCD telling their stories. | |
| Primary Ciliary Dyskinesia This is the translated version of the Dutch brochure about PCD. It is intended for non medical people which have PCD or relatives or friends with PCD. | |
| Primary Immunodeficiency | INFO4PI (Jeffrey Modell Foundation) When a defect in the immune system is inherited, it is called primary, or inherited, immune deficiency. There are over 100 forms of Primary Immunodeficiency, ranging widely in severity. Together, they affect more people than leukemia and lymphoma combined. |
| PI Resources Here are some of the patient organizations which work to build awareness of primary immune deficiency (PI) and offer support to individuals and families | |
| Primary Immunodeficiency (Mayo Clinic) Because treatment options have improved, most people with primary immunodeficiency can go to school and work like everyone else. Still, you may feel as if no one understands what it's like to live with this chronic illness and the threat of serious infections. Talking to someone else who faces the same daily challenges may be helpful. | |
| Common Variable Immunodeficiency Support Group (Daily Strength) Common variable immunodeficiency (CVID) is a group of 20-30 primary immunodeficiencies (PIDs) which have a common set of symptoms but with different underlying causes. | |
| Primary Sclerosing Cholangitis | PSC - Support (UK) A chronic cholestatic liver disease characterized by periductal inflammation of bile ducts. Progressive loss of bile ducts impairs bile flow, ultimately resulting in liver cirrhosis. The disease is often accompanied by inflammatory bowel disease; mostly ulcerative colitis and sometimes Crohn's disease. |
| PSC - Support (Yahoo) For patients or family members of patients with Primary Sclerosing Cholangitis | |
| Primary Sclerosing Cholangitis Literature This site provides a compilation of www resources and scientific literature on primary sclerosing cholangitis (PSC), a chronic cholestatic liver disease characterized by periductal inflammation of both intrahepatic and extrahepatic bile ducts. | |
| PSC Partners Seeking a Cure Working together to provide research, education, and support for people affected by primary sclerosing cholangitis. | |
| I Have Primary Sclerosing Cholangitis Support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Primary Sclerosing Cholangitis. | |
| Prion Disorders | See Creutzfeldt-Jakob Disease |
| Progeria | Daily Strength DailyStrength.org is the most comprehensive health network of people sharing their advice, treatment experiences, and support. Keep a wellness journal, read members’ stories, and chat with new friends with over 500 support groups. |
| Progeria Research Foundation Hutchinson-Gilford Progeria Syndrome is a rare, fatal genetic condition characterized by an appearance of accelerated aging in children. Its name is derived from the Greek and means "prematurely old." | |
| Progeria Support Group A community of patients, family members and friends dedicated to dealing with Progeria, together. | |
| Progressive Familial Intrahepatic Cholestasis | PFIC A Resource for Parents Progressive Familial Intrahepatic Cholestasis describes the clinical findings in a form of liver disease that affects children. Taken word for word, it means: Progressive: tending to get worse over time; Familial: passed down to a child from the parents by way of the genes; Intrahepatic: involves disease inside the liver and not the bile ducts outside the liver; Cholestasis: means poor bile flow and build-up of substances in the liver that should be put into bile. It is also called Byler's Disease |
| Progressive Familial Intrahepatic Cholestasis A disorder that causes progressive liver disease, which typically leads to liver failure. In people with PFIC, liver cells are less able to secrete a digestive fluid called bile. The buildup of bile in liver cells causes liver disease in affected individuals. | |
| Progressive Ossoeous Heteroplasia | Progressive Ossoeous Heteroplasia Association A rare genetic condition in which the body makes extra bone in locations where bone should not form. Extra bone develops inside skin, subcutaneous tissue, muscles, tendons, and ligaments. This ”out of place extra bone formation” is commonly referred to as heterotopic ossification. Extra bone formation near the joints leads to stiffness, locking, and permanent immobility. |
| Progressive Supranuclear Palsy | Progressive Supranuclear Palsy Association (PSP-Europe)PSP, or Progressive Supranuclear Palsy, is a degenerative disease involving the death of selected neurons (nerve cells) in the brain. Over a period of time, usually some years, this can affect progressively balance, mobility, vision, speech and the ability to swallow. There can also be other symptoms, as PSP is a very individual disease. |
| Worldwide Education and Awareness for Movement Disorders WE MOVE is the Internet's most comprehensive resource for movement disorder information and the hub of movement disorder activities on the web. | |
| Progressive Supranuclear Palsy (Mayo Clinic) Progressive supranuclear palsy presents special problems because it can cause changes in your brain that make you feel anxious or laugh or cry for no reason. Progressive supranuclear palsy can also become extremely frustrating as walking, talking and even eating become more difficult. | |
| Foundation for PSP | CBD and Related Brain Diseases The goals of CurePSP are to assist patients and their families, increase public awareness, educate healthcare professionals, and support research toward better diagnosis, effective treatments, and eventual cures. | |
| I Have Progressive Supranuclear Palsy Support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Progressive Supranuclear Palsy. | |
| Society for Progressive Supranuclear Palsy, Inc. An under-recognized brain disease. Symptoms typically begin in one’s 60’s, but can start as early as the 40’s. Those affected usually survive six to ten years after the initial symptoms occur. In people with PSP, gradual loss of certain brain cells causes slowing of movement and reduced control of walking, balance, swallowing, speaking and eye movement. People with PSP eventually become wheelchair bound or bedridden. | |
| Prolactinoma Also see Pituitary Disorders |
Pituitary Disorders Education & Support A prolactinoma is a benign tumor of the pituitary gland that produces a hormone called prolactin. It is the most common type of pituitary tumor. Symptoms of prolactinoma are caused by too much prolactin in the blood or by pressure of the tumor on surrounding tissues. |
| Prolactinoma (From the Pituitary Foundation) ery few patients with prolactinomas require surgery, as most prolactinomas (particularly microprolactinomas) shrink in size following treatment with medication. | |
| Prolactinoma and Weight Issues Discussion boards. | |
| Prolactinoma Support Group (Daily Strength) A prolactinoma is a benign tumor of the pituitary gland that produces a hormone called prolactin. It is the most common type of pituitary tumor. Symptoms of prolactinoma are caused by too much prolactin in the blood or by pressure of the tumor on surrounding tissues. | |
| Prolactinoma Support Group A community of patients, family members and friends dedicated to dealing with Prolactinoma, together. | |
| I Might Have a Prolactinoma Read true personal stories, chat & get advice, support and help from a group of 3 people who all say 'I Might Have a Prolactinoma' | |
| Propionic Acidemia | Propionic Acidemia Foundation Dedicated to finding improved treatments and a cure for PA by funding research and providing information and support to families and medical professionals. Symptoms will present themselves within days of birth or later in childhood depending on the severity of the disorder. Symptoms may include: refusal to eat, poor sucking ability, vomiting, dehydration, lethargy, acidosis, and excess ammonia in the blood. If not treated, mental impairment, coma and death can follow. |
| Propionic Acidemia Research Network The mission of Propionic Acidemia Research Network is to facilitate communication between the academic research community, physicians and educators, and to provide grants to researchers looking for better treatments and a cure for PA. | |
| Prostate Disorders Information Links: Prostate Cancer Prostate Enlargement Prostatitis |
Orchid Cancer Appeal (UK) The Orchid Cancer Appeal was the first registered charity dedicated to fund research into diagnosis, prevention and treatment of testicular, prostate and penile cancer and to increase public awareness of these previously neglected diseases. |
| Prostate Cancer Support Group A community of patients, family members and friends dedicated to dealing with Prostate Cancer, together. | |
| Us TOO International Prostate Cancer Education & Support Network A grassroots education and support network worldwide, providing men and their families with free information, materials and peer-to-peer support so they can make informed choices on detection, treatment options and coping with ongoing survivorship. The organization was founded in 1990 by five men who had been treated for prostate cancer. | |
| Prostate Cancer Support Our aim is to provide help, support and information to men, who have been diagnosed with Prostate Cancer, and their families. We are ourselves, made up of patients and those who care for us . | |
| Prostate Cancer Support Association (UK) PSA was set up by a small group of prostate cancer patients in 1995 and has developed into a national association of self-help and support groups, based mainly in the South East of England. | |
| Understanding Prostate Cancer Learn more about the latest prostate science and developments. | |
| The Prostate Cancer Research Institute Our mission is to improve the quality of men’s lives by supporting research and disseminating information that educates and empowers patients, families and the medical community. | |
| Prostatitis Foundation (Europe) Prostatitis is inflammation of the prostate gland. Inflammation causes swelling of the gland and can cause local pain. Prostatitis does not increase the chances for a man to develop prostate cancer. | |
| Prostate Cancer Support Groups, USA + Worldwide Lists and links. | |
| Prostate Support Group It is not a death sentence. You have a disease and it is called cancer. Now we don’t want you to take it lightly. What we want you to do is get educated and learn all you can about your situation. | |
| Prostate Cancer Support Group (Daily Strength) Cancer occurs when cells of the prostate mutate and begin to multiply out of control. These cells may spread (metastasize) from the prostate to other parts of the body, especially the bones and lymph nodes. Prostate cancer may cause pain, difficulty in urinating, erectile dysfunction and other symptoms.. | |
| Prostate Cancer Support Groups for Wives and Partners There are more prostate cancer support groups available for wives and partners today than ever before and we encourage you to take advantage of them. Talking to someone who really understands what you are going through may help to relieve some of your greatest fears and worries. | |
| Enlarged Prostate Support Group (Daily Strength) In BPH, the prostate grows larger and presses against the urethra and bladder, interfering with the normal flow of urine. It leads to symptoms of urinary hesitancy, frequent urination, increased risk of urinary tract infections and urinary retention. | |
| Enlarged Prostate Support Group A community of patients, family members and friends dedicated to dealing with Enlarged Prostate, together. | |
| Prosthetics These are Commercial sites for finding information about prosthetics. For support information see Amputees |
College Park Industries College Park is committed to the research and development of the finest prosthetic products in the world. Tens of thousands of people around the world prove that College Park has set the standard for prosthetic foot and ankle performance. |
| Össur We create prosthetics and orthotics that enable people to live the kind of life they want, a life without limitations. Aware of the challenges you face, we respond, improving on what exists today and redefining technology for a better tomorrow. | |
| Otto Bock Health Care For more than 90 years we have provided innovative, dependable ways to make it easier to be active for people who face mobility challenges. Our products range from the Harmony Volume Management system to the C-Leg microprocessor-controlled knee and from the Kimba children's stroller to advanced myoelectric prostheses. | |
| Fourroux Orthotics and Prosthetics Our mission is to provide the highest quality and latest state of the art technology available in orthotics and prosthetics. We recognize that each person is unique and has individual aspirations. Each devise is made with the patient and their family in mind. | |
| Ohio Willow Wood Company Ohio Willow Wood, a leader in designing and manufacturing prosthetic products, is dedicated to helping amputees worldwide. Founded in 1907, we’ve made it our business to provide the best prosthetic solutions possible for amputees. With our products such as Alpha® Liners, the Pathfinder® II foot, and P-POD™ pediatric products amputees can be freed in body and in spirit. | |
| Next Step Orthotics & Prosthetics, Inc. As one of the country's most highly regarded prosthetic firms, Next Step is at the forefront in beta-testing and utilizing state-of-the-art components, giving our clients access to the latest advances in the field. | |
| Proteus Syndrome | Proteus Syndrome Foundation Proteus Syndrome is a condition which involves atypical growth of the bones, skin, head and a variety of other symptoms. At this time there are over 120 documented cases worldwide. However, not all cases of proteus syndrome are documented, therefore it is unknown how many individuals have this syndrome. The syndrome became widely known when it was determined that Joseph Merrick (depicted in the play "The Elephant Man") had severe Proteus syndrome rather than neurofibromatosis as was initially suggested. |
| Proteus Syndrome Foundation UK The PSF has been founded to support and educate families and professionals and to raise money for research to find a cure for individuals living with Proteus Syndrome. | |
| Prune Belly Syndrome | Prune Belly Syndrome Network The incidence of prune belly syndrome is 1 in 40,000 live births; 95% of cases occur in males. Prune belly syndrome is a multisystem disease complex which derives from a primary defect in mesodermal development. The major prognostic factor is the degree of dilation of the urinary tract; 20% of patients are stillborn, 30% die of renal failure or urosepsis within the first two years of life, and the remaining 50% have varying degrees of urinary pathology |
| Prune Belly Syndrome Family Information and lots of supportive families who are dealing with PBS. Whether you are expecting a child who may possibly have PBS, you have a child with it, you are an adult affected by PBS yourself, or you are a friend or family member of someone with Prune Belly Syndrome. Our hope is that you will find the information and support you are looking for here. | |
| Prune Belly Syndrome Network (UK) A support group of parents of prune belly children to serve as a clearinghouse of information as well as emotional support. Families primarily communicate through email and the group’s website although phone contact is also available. | |
| Psoriasis Information Link |
National Psoriasis Foundation Join us at the new TalkPsoriasis.org! The TalkPsoriasis message board now offers you more features, support and connections. |
| MD India Psoriasis - Support Groups Comment & Contribute On Psoriasis | |
| Psoriasis Support Group Message boards. | |
| Psoriasis Support Group A community of patients, family members and friends dedicated to dealing with Psoriasis, together. | |
| Psoriasis Support Group on FaceBook Psoriasis - inflammatory skin disease in which skin cells replicate at an extremely rapid rate. New skin cells are produced about eight times faster than normal--over days instead of a month--but the rate at which old cells slough off is unchanged. | |
| Pseudoxanthoma Elasticum | National Association for Pseudoxanthoma Elasticum Nape is an organization committed to the support for people who have Pseudoxanthoma Elasticum, an inherited disorder that affects the skin, the retina of the eyes and the cardiovascular system. |
| PXE International Pseudoxanthoma elasticum is an inherited disorder that affects selected connective tissue in some parts of the body. Elastic tissue in the body becomes mineralized, that is, calcium and other minerals are deposited in the tissue. This can result in changes in the skin, eyes, cardiovascular system and gastrointestinal system. | |
| Pseudoxanthoma Elasticum Support Group (UK) The PXE support group aims to: help, encourage and assist those with PXE and their family members; heighten the awareness of PXE amongst the medical community, support services and the general public; link members with each other for mutual support and exchange of ideas; provide information on the various aspects of PXE. | |
| Psychotic Disorders - see Mental Health or the specific condition. | |
| Pulmonary Arterial Hypertension and Pulmonary Hypertension |
PHCenral Pulmonary arterial hypertension is an often misdiagnosed lung disorder occurring as a primary idiopathic disease or as a complication of a large number of respiratory and cardiac diseases. PAH can occur with or without an identifiable cause. The blood pressure in the pulmonary artery rises far above normal levels. |
| Pulmonary Hypertension Association Meet new PHriends and share support and information right now online through our popular discussion boards, email groups or daily online support group chats. | |
| PAH/PPH Support Groups in the United States. Lists and links | |
| Pulmonary Hypertension Support Group A community dedicated to dealing with Pulmonary Hypertension and Pulmonary Artery Hypertension | |
| Pulmonary Hypertension Support Group (Daily Strength) Discussion boards. | |
| Pulmonary Fibrosis | Pulmonary Fibrosis Foundation The Pulmonary Fibrosis Foundation is the primary organization dedicated to finding a cure for and raising awareness of Pulmonary Fibrosis, an often fatal lung disease. |
| Coalition for Pulmonary Fibrosis Whether you are a Pulmonary Fibrosis patient, a family member of a patient, or are close to someone with Pulmonary Fibrosis, the CPF is always just a phone call away. Our staff have counseled thousands of patients, and we are always here to provide you with the resources and support you need. | |
| Pulmonary Fibrosis Support Group (Daily Strength) Discussion boards. | |
| Pulmonary Fibrosis Support Group A community of patients, family members and friends dedicated to dealing with Pulmonary Fibrosis, together. | |
| Purine Diseases | Purine Research Society When we consider the many different roles purines play in our metabolism, it is not surprising that the diseases of purine metabolism are as varied, ranging from asymptomatic conditions, which are only discovered accidentally, to disorders with severe neurological abnormalities, which are ultimately fatal. As with other metabolic diseases, each disorder is caused by a defective gene which results in an enzyme with too little or too much catalytic activity. |
| Purine Metabolic Patients’ Association (UK) A charity set up to provide information and support for, and to encourage research into, a group of genetic metabolic purine and pyrimidine disorders. | |
Support Groups "Q"
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