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Support Groups

How to Use -- Contents

Alphabetical List by Ailment

This page has general information and links to all Support Group pages.

Many support groups are named for people, are generalized and provide assistance for several related conditions, or are otherwise difficult to interpret. This page provides links alphabetically based upon specific ailments. Use the index link, or your browser's "find" or "search" feature to get the the area you are seeking.

In addition to support groups, we include links to informational sites on these conditions.

Links to Support Group pages: (listed by ailment or condition)

A - B	C - D	E - F - G	H - I - J - K
L - M	N - O - P - Q	R - S	T - Z
Have We Missed a Support Group or Ailment We are constantly looking for more information and more links. Please help us improve our site and service. The Internet had millions of web pages dedicated to medical conditions and support groups; we can only sample a few of them. If you know any sites we should include write to suggestions@slightlycreaky.com

If you can not find what you are looking for, be sure to
check our listing of Rare & Orphan Diseases.

Caution - Proceed with care. Slightly Creaky is not responsible for the content of web sites listed here nor the actions taken by the people owning, managing, or participating on them.

Updates: Although this list was complete on the date listed, many support groups change names or even terminate their services. New ones start weekly. Should you discover a bad link or wish to suggest that we add one, please contact suggestions@slightlycreaky.com.

This listing is the result of more than 1,200 hours of research. It is the property of Slightly Creaky and may not be reproduced in any form. Every attempt has been made to provide an accurate description of each organization.

For General Medical Links

Including dictionaries and encyclopedias

See the Medical Information page for:

Medical Definitions
Pharmaceuticals and Home Remedies
Generalized Support & Information Sites
Organizations Supporting Many Ailments
Advocacy Groups

For Medical Articles

See the "Medical & Health" main page. Here we have articles submitted by viewers and volunteers. Some past articles are archived.

Important Information

Several conditions could be classified by more than one title. Here is a list of our "see" categories

Blindness - Eyes see Vision

Antiphospholipid Antibody Syndrome –
see Hughes Syndrome.

CHF (Chronic Heart Failure)
see Heart Failure

Edward's Syndrome see Trisomy

Legg-Calve-Perthes Disease
see Perthes Disease

Paratuberculosis see Crohn's Disease

Explanation of Procedure

Several Examples

The first column displays the condition or ailment. In the second column is a link to the specific sites as well (where possible) as an annotated description or a quotation from the site. Usually this quote is part of the organization's mission statement. Use the link to go directly to the Web site. On occasion where the support group is part of a larger web site, there will be links to the home page. See examples below.

Example One	This condition has only one support group.
Aicardi Syndrome	Aicardi Syndrome Foundation Our mission is to improve the diagnosis and treatment of Adult Polyglucosan Body Disease, support individuals and families affected by the disease and increase awareness of APBD among health professionals and the public.

Example Two	This condition has more than one support group.
Batten Disease	Daily Strength DailyStrength.org is the most comprehensive health network of people sharing their advice, treatment experiences, and support. Keep a wellness journal, read members’ stories, and chat with new friends with over 500 support groups.
Batten Disease	Batten Disease Support and Research Association Also known as Spielmeyer-Vogt-Sjogren-Batten Disease, it is the most common form of a group of disorders called Neuronal Ceroid Lipofuscinoses. Over time, affected children suffer mental impairment, worsening seizures, and progressive loss of sight and motor skills. Eventually, children with Batten Disease/NCL become blind, bedridden, and unable to communicate and presently is always fatal.

Example Three	This support group either has no annotation available or the annotation has not yet been written.
Atherosclerosis	International Atherosclerosis Society

Available Connections

We attempt to make site navigation easy. Throughout the Support Group pages you will find links back to the index so that you may select a different area or page.

>>Return to Support Group index <<

"See" information

Several conditions could be classified by more than one title. Here is an example of our "see" links. In this case you will be brought to the top of the "T - Z" page where you can use the "quicklink" in the index to go directly to the Vision section.

Blindness – see Vision

This is an example of how a section might look:

"A"

Abdominal Aortic Aneurysm	Legs For Life Legs For Life is a national screening program for Peripheral Arterial Disease (PAD), Abdominal Aortic Aneurysm (AAA), Carotid/Stroke, and Venous Disease.
Abortion Information	Abortion Federation, National
Accessibility	The Paciello Group The Paciello Group is dedicated to helping government agencies, technology vendors, e-commerce corporations, and educational institutions make their technology equally accessible to all people, including those with disabilities. The company offers professional consulting, technology solutions, and monthly monitoring services to ensure that clients reach all audiences effectively and efficiently while meeting governmental and international standards.

Type of illness or condition.	Blue is clickable link. Most of the descriptions come directly from the site. On occasion the site changes. If you discover a problem, please let us know by writing to suggestions@slightlycreaky.com Links will open a new web window or tab so that you will still have the Slightly Creaky page opened for further research.

The Obvious Legal Statement.

The folks at Slightly Creaky are volunteers. None of us get any salary or compensation in any form. We are not a corporation, just a few folks working out of our houses. If anything on this site bothers you, if you notice mistakes, please let us know.

While we do maintain editorial rights, things slip past. The submitted columns and news articles belong to the contributor(s), not to the Slightly Creaky team. We are simply a vehicle bringing you information to the best of our ability. We have no control over the sites we link to. Web site contents frequently change. If you find anything improper, objectionable or not working, please notify us.

Be sure to read our complete Legal Information and Policies