Groups R, S
How to Use -- Contents
Slightly Creaky does research to find the links you would most likely need and provides them for you in an easy-to-find format. You can access the various categories from any of our pages using the top or side menus. Each category has generalized headings, followed by more specific ones.
Many support groups are named for people, are generalized and provide assistance for several related conditions, or are otherwise difficult to interpret. This page provides links alphabetically based upon specific ailments. Please scroll down, use the index link, or use your browser's "find" or "search" feature to get the the area you are seeking.
In addition to support groups, we include links to informational sites on these conditions.
Please Contact us if you find a broken or bad link.
Links to Support Group pages:
Alphabetical List: |
Quick Links to selected categories: |
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Support Group Home Page Includes directions, hints for use, etc. |
See the "Medical Information" page for Medical Definitions, Pharmaceuticals and Home Remedies, Advocacy Groups, Medical Articles | ||
| Have We Missed a Support Group or Ailment? We are constantly looking for more information and more links. Please help us improve our site and service. The Internet had millions of web pages dedicated to medical conditions and support groups; we can only sample a few of them. If you know any sites we should include write to suggestions@slightlycreaky.com | |||
Caution - Proceed with care. Slightly Creaky is not responsible for the content of web sites listed here nor the actions taken by the people owning, managing, or participating on them.
This listing is the result of more than 500 hours of research. It is the property of Slightly Creaky and may not be reproduced in any form. Every attempt has been made to provide an accurate description of each organization.
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Updates: We review and update this page every 4 months. Many support groups change names or even terminate their services. Should you discover a bad link or wish to suggest that we add one, please contact suggestions@slightlycreaky.com
We try to avoid commercial sites, but in many cases they are the only ones who provide information and support. If you are looking to buy or sell medical products, please use a generalized search engine.Support Groups "R"
"R"
Rubella (German Measles) |
| Rabies Information Link Hydrophobia (Rabies) |
Global Alliance for Rabies Control To raise awareness about the impact of human and animal rabies, how easy it is to prevent it, and how to eliminate the main global sources. |
| Rabies Support Group A zoonotic viral disease, rabies causes acute encephalitis in warm-blooded animals. The animal-human transmission takes place through contact with its saliva. | |
| I Have Rabies A support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Rabies | |
| Rabies Support Group A community of patients, family members and friends dedicated to dealing with Rabies, together. | |
| Ramsay Hunt Syndrome Information Link |
Ramsay Hunt.org This website was created to support those suffering from Ramsay Hunt Syndrome (often misspelled Ramsey Hunt) and associated illnesses such as Bells palsy and Neuralgia. |
| I Have Ramsay Hunt Auricular Syndrome A support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Ramsay Hunt Auricular Syndrome. | |
| Rape (Although not a "medical condition" the editors of Slightly Creaky feel it is vital that support and information be available for all forms of abuse.) Information Link National Sexual Assault Hotline 1.800.656.HOPE |
The Rape, Abuse & Incest National Network The nation's largest anti-sexual assault organization. RAINN operates the National Sexual Assault Hotline at 1.800.656.HOPE and the National Sexual Assault Online Hotline at rainn.org, and publicizes the hotline's free, confidential services; educates the public about sexual assault; and leads national efforts to prevent sexual assault, improve services to victims and ensure that rapists are brought to justice. |
| Dancing In The Darkness An informative and thought-provoking resource for rape, sexual assault, incest, and sexual abuse survivors. It doesn't matter if you are a survivor of date rape, stranger rape, marital rape, incest, sexual abuse, or molestation. You are all welcome here. | |
| RAPELS The first menu in the website asks people to select a direction and, of course, the first category that can be selected is for people who have been raped or want to help people they know who have been raped. | |
| After Silence An online support group, message board, and chat room for rape, sexual assault, and sexual abuse survivors. You are not alone, you are not broken, and you can heal. | |
| Rape Support Group A community of victims, family members and friends dedicated to dealing with Rape, together. | |
| Rape Support Group (Daily Strength) Learning about the health and psychological conditions effecting survivors of assault has been cited by researchers as a positive coping skill associated with faster healing | |
| Rape Support Groups and Hotlines List and links | |
| Woman's Justice System: Support for Rape Victims The following is a guide for rape victims and for all who want to help them. Because a number of other sources cover basic information on rape, we focus here on providing information that will help you get support, protection, and justice in the aftermath of rape or sexual assault. | |
| Rare Illnesses | Directory of Rare & Orphan Support Groups. "This is a directory of our anonymous support groups for rare or orphan diseases. Find new friends who understand and can provide support, chat, help and information on these life challenges." |
| Undiagnosed Illness Forums - "Personal Stories of Living With Undiagnosed Symptoms" | |
| In Need of Diagnosis. (on FaceBook) "INOD’s mission is to provide help and support for individuals distressed with disorders that have eluded medical diagnosis and to identify and encourage the implementation of protocols that will facilitate quicker and more accurate diagnosis." | |
| Syndromes Without A Name. "Providing support to the families of children living with an undiagnosed medical condition." | |
| NORD Rare Disease Support Community. "Connects patients, families, friends and caregivers for support and inspiration." | |
| Genetic and Rare Conditions Site. "Lay advocacy and support groups, information on genetic conditions /birth defects for professionals, educators, and individuals, National and International organizations·" | |
| National Resource Center Rare Diseases. "One in ten Americans has a rare disease, defined as a disease that afflicts fewer than 200,000 people per year in the United States. Because there are close to 7,000 rare diseases, these “orphan” ailments have a significant collective impact. Research aimed at finding the causes and ultimately treatments for these disorders could benefit millions of people. " | |
| Rare Share. "RareShare is a unique social hub building communities for patients, families, and healthcare professionals affected by rare disorders." | |
| Genetic Alliance. Included a disease and organization search. | |
| Genetic and Rare Diseases Information Center. NIH. "Employs experienced information specialists to answer in English or Spanish questions from the general public, including patients and their families, health care professionals, and biomedical researchers." | |
| Madisons Foundation. "We are the only website in the world that connects parents whose children have the same rare disease. We understand how important it is to have access to medical information and to get in touch with other parents dealing with your same issues." | |
| Rare Disease Search Engine. "The Rare Disease Search Engine is specialized search engine using Google's co-op program combined with a narrowed field of search to eliminate useless results that would normally complicate one's search for needed information. " | |
| Contact A Family. (UK) "We are the only UK-wide charity providing advice, information and support to the parents of all disabled children. " | |
| Rare Disease Patient Groups in the European Union. "A patient group is run by people who are parents of a sick child or patients themselves. Patient groups vary in size from very small (a few people) to very large. Rare disease patient groups are often both a patient support group and a patient advocacy group. " | |
| Raynaud's Disease | Raynaud's & Scleroderma Association (UK) Raynaud's is a common condition in which blood is prevented from reaching the extremities of the body, mainly the fingers and toes, on exposure to the cold or any slight change in temperature. We offer a very personal service, always available to answer questions, offer advice, reassurance and support. |
| Raynaud’s Association The Raynaud’s Association is here to help. It was created primarily to raise awareness of this disorder: to help people identify their condition and to seek medical intervention to determine whether or not an underlying – potentially serious – medical condition exists. In addition, the mission of the Raynaud’s Association is to provide support, resources and credible information to Raynaud’s sufferers. | |
| Raynaud Disease Support Group A community of patients, family members and friends dedicated to dealing with Raynaud Disease, together. | |
| Raynaud's Disease Support Group (Daily Strength) Raynaud's disease (RAY-noz) is a condition that affects blood flow to the extremities which include the fingers, toes, nose and ears when exposed to temperature changes or stress. | |
| Recombinant 8 Syndrome | Recombinant 8 Syndrome Family Support Also called San Luis Valley Syndrome. The Online Mendelian Inheritance in Man (OMIM) database contains genetics resources that discuss Recombinant chromosome 8 syndrome. Click on the link to go to OMIM and review these resources. |
| San Luis Valley Syndrome People with recombinant 8 syndrome may have overgrowth of the gums and abnormal tooth development. | |
| I Have Recombinant Chromosome 8 Syndrome A support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Recombinant Chromosome 8 Syndrome. | |
| Reflex Sympathetic Dystrophy Syndrome Information Link |
American RSDHope The American RSDHope Organization is a non-profit organization dedicated to increasing awareness of Reflex Sympathetic Dystrophy. |
| Reflex Sympathetic Dystrophy Syndrome Assoc. Of America To promote public and professional awareness of Reflex Sympathetic Dystrophy Syndrome, a chronic neurological syndrome characterized by: severe burning pain, pathological changes in bone and skin, excessive sweating, tissue swelling, and extreme sensitivity to touch. | |
| Reflex Sympathetic Dystrophy - Fighting Back An RSD group for Patients in Chronic Pain | |
| Reflex Sympathetic Dystrophy Syndrome Meetup Groups Meet with other local people with Reflex Sympathetic Dystrophy Syndrome (RSDS) also known as Complex Regional Pain Syndrome. Gather for support and share advice on treatment options. | |
| Australian Reflex Sympathetic Dystrophy Support Group Established to help sufferers of R.S.D. there Parents and Friends to find out information. We recognize the needs faced by the sufferers of this disease and the many problems, frustrations and unanswered questions. | |
| Reflex Sympathetic Dystrophy Support Group Get advice and support from thousands of patients like you | |
| Reflex Sympathetic Dystrophy Support Group A community of patients, family members and friends dedicated to dealing with Reflex Sympathetic Dystrophy, together. | |
| Reflex Sympathetic Dystrophy Support Group (Daily Strength) Discussion boards. | |
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(We do not link to commercial sites) |
Rehabnet Your body is a temple. You must do all that you can to keep it holy. Here we can help you find the information you need to keep your body and mind healthy and pure |
| Vision Loss Specialists: A Guide to Rehabilitation. "Many people first coping with vision loss are largely unaware of the size and scope of the professional community dedicated to rehabilitation and how to access it. Due to the fragmented nature of the U.S. health care system, surprisingly few medical eye care professionals are sufficiently informed to give their patients appropriate recommendations." | |
| The Office of Special Education and Rehabilitative Services The Office of Special Education and Rehabilitative Services supports programs that assist in educating children with special needs, provides for the rehabilitation of youth and adults with disabilities, and supports research to improve the lives of individuals with disabilities. | |
| Best Hospitals: Rehabilitation (US News & World Report). "The unranked hospitals in this specialty are listed in alphabetical order after the ranked hospitals. " | |
| Rehabilitation Hospitals & Medical Centers. From the Agape Center. | |
| American Health Assistance Foundation. "Funds research seeking cures for Alzheimer’s disease, age-related macular degeneration and glaucoma, and provides the public with information about risk factors, preventative lifestyles, available treatments and coping strategies." | |
| MedlinePlus Rehabilitation. "After a serious injury, illness or surgery, you may recover slowly. You may need to regain your strength, relearn skills or find new ways of doing things you did before. This process is rehabilitation. " | |
| NIH Rehabilitation Medicine. "Rehabilitation Medicine professionals at the NIH Clinical Center collaborate in and support biomedical research. They initiate research in rehabilitation sciences by providing innovative rehabilitation services and developing, investigating and applying measurements and treatments of impairments, disabilies and handicaps pertaining to human function." | |
| National Center for Medical Rehabilitation Research. "The NCMRR aims to foster development of scientific knowledge needed to enhance the health, productivity, independence, and quality-of-life of people with disabilities. A primary goal of Center-supported research is to bring the health related problems of people with disabilities to the attention of the best scientists in order to capitalize upon the myriad advances occurring in the biological, behavioral, and engineering sciences." | |
| Cardiac Rehabilitation. "Cardiac rehabilitation (rehab) is a medically supervised program that helps improve the health and well-being of people who have heart problems. " | |
| Stroke Rehabilitation Information. "The goal of rehabilitation is to enable an individual who has experienced a stroke to reach the highest possible level of independence and be as productive as possible. Because stroke survivors often have complex rehabilitation needs, progress and recovery are unique for each person. Although a majority of functional abilities may be restored soon after a stroke, recovery is an ongoing process." | |
| Social Security: Benefits For People With Disabilities. "The Social Security and Supplemental Security Income disability programs are the largest of several Federal programs that provide assistance to people with disabilities. While these two programs are different in many ways, both are administered by the Social Security Administration and only individuals who have a disability and meet medical criteria may qualify for benefits under either program." | |
| Reiter's Syndrome | Reiter's Information & Support Group Spondyloarthropathies are a family of long-term (chronic) diseases of joints. These diseases occur in children and adults. They include ankylosing spondylitis, Reiter's syndrome, psoriatic arthritis, and joint problems associated with inflammatory bowel disease. Although all spondyloarthropathies have different symptoms and outcomes, they are similar in that all of them: usually involve the attachments between your low back and the pelvis and affect areas around the joint where your ligaments and tendons attach to bone such as at the knee or hip. |
| Reactive Arthritis/Reiter's Syndrome on FaceBook This group is for anyone with Reiter's Syndrome (reactive arthritis). This group is for support. Reactive arthritis is unheard of by most people. | |
| I Have Reiter's Syndrome A Reiter's Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Reiter's Syndrome. | |
| Repetitive Stress Injuries (Also called Repetitive Motion Injuries) Also see Carpal Tunnel Syndrome Information Link |
Repetitive Stress Injuries Online Health Community and Support Group Get Repetitive Stress Injuries information, share experiences about Repetitive Stress Injuries, connect with peers, and get answers to your Repetitive Stress Injuries questions from health professionals. |
| What Are Repetitive Stress Injuries? Injuries that happen when too much stress is placed on a part of the body, resulting in inflammation (pain and swelling), muscle strain, or tissue damage. This stress generally occurs from repeating the same movements over and over again. | |
| How to Prevent Repetitive Stress Injury Most of these injuries are due to improper posture, techniques, or improper work stations that cause you to strain or work muscles in a way that causes injuries. Fortunately, most repetitive stress injuries are preventable and require only minor alterations to your normal routine. | |
| Repetitive Strain Injury A potentially debilitating condition resulting from overusing the hands to perform a repetitive task, such as typing, writing, or clicking a mouse. This webpage is intended to educate computer users about RSI, and to provide useful suggestions for prevention and treatment. The page also contains a few specific pieces of advice for students. | |
| Repetitive Strain Injury Prevention, Support, & Recovery Blog with information links. | |
| RSI - UK Such injuries are also known as Cumulative Trauma Disorders, Work-Related Upper Limb Disorders, and Occupational Overuse Injuries. Doctors and other healthcare professionals tend not to use these shorthand terms, but instead refer to the problems by their separate and specific names, e.g. tendonitis. | |
| Respiratory Distress Syndrome | Respiratory Distress Syndrome Foundation A common, highly fatal complication that follows a variety of illnesses, traumas and surgeries. Many medical experts now consider RDS to be one of the largest life-taking syndromes in the world. RDS is found in every hospital, trauma unit, emergency room and neo-natal unit throughout the world. |
| I Survived Ards Acute Respiratory Distress Syndrome Only 60% of those affected survive. | |
| Restless Legs Syndrome Information Link |
Restless Legs Syndrome Foundation Diagnosis of RLS include: a strong urge to move your legs which you may not be able to resist, the need to move is often accompanied by uncomfortable sensations; symptoms start or become worse when you are resting; Symptoms get better when you move your legs; symptoms are worse in the evening especially when you are lying down. Activities that bother you at night do not bother you during the day. |
| Worldwide Education and Awareness for Movement Disorders WE MOVE is the Internet's most comprehensive resource for movement disorder information and the hub of movement disorder activities on the web. | |
| RLS Website Resources Page (Source: Southern California Restless Legs Support Group) | |
| Restless Legs Syndrome Support Group (Daiy Strength) Treatment for RLS is based on how disruptive the symptoms are. All people should review their lifestyle and see what changes could be made to reduce or eliminate their RLS symptoms. | |
| Restless Leg Syndrome Support Group A community of patients, family members and friends dedicated to dealing with Restless Leg Syndrome. | |
| Retinitis Pigmentosa Information Link |
Retina International Seeking a cure for Retinitis Pigmentosa Macular Degeneration, Usher Syndrome and allied retinal distrophies |
| Retinitis Pigmentosa Support For people living with Retinitis Pigmentosa, finding other patients who suffer from the same condition may be troubling. | |
| Retinitis Pigmentosa Support Group (Daily Strength) Many people with RP do not become legally blind until their 40s or 50s and retain some sight all their life. Others go completely blind from RP, in some cases as early as childhood. | |
| Retinitis Pigmentosa Support Group A community of patients, family members and friends dedicated to dealing with Retinitis Pigmentosa, together. | |
| Rett Syndrome | Rett Syndrome Association UK Affects mainly girls. Although present at birth, it becomes more evident during the second year. It could occur in any family at any time. Something goes wrong with the genetic makeup of the cells which become the baby. Most people with Rett syndrome are profoundly and multiply disabled and highly dependent on others for all their needs throughout life. |
| Rett Angel Children with Rett Syndrome appear to develop normally until 6 to 18 months of age. They then enter a period of regression, losing speech and hand skills they had acquired. Most children develop seizures, repetitive hand movements, irregular breathing and motor-control problems. The girls can live to adulthood, but most never regain the ability to use their hands or to speak. | |
| Rett Syndrome Research Foundation The RSRF is focused aggressively and exclusively on biomedical research would accelerate the discovery of treatments and a cure for this devastating disorder. | |
| Worldwide Education and Awareness for Movement Disorders WE MOVE is the Internet's most comprehensive resource for movement disorder information and the hub of movement disorder activities on the web. | |
| Rett Syndrome Australia Research Fund Having someone in the family with Rett Syndrome has an impact on everyone involved. There will be certain times during the life of the person with Rett syndrome that are more difficult than others for those that care for them. | |
| Girl Power 2 Cure Raising awareness and research funds for Rett Syndrome. | |
| Rett.com People with Rett syndrome can live remarkable lives, particularly when provided opportunities, tools, and training to overcome their physical disabilties. They teach us new things every day. They have a pureness of spirit that few human beings ever achieve in life. They make a remarkable difference in the lives of their family and friends. This site is dedicated to all those with Rett syndrome and those who love them, care for them, befriend them, and help them. | |
| Rett Syndrome Support Group A community of patients, family members and friends dedicated to dealing with Rett Syndrome, together. | |
| Reye's Syndrome Information Link |
National Reye's Syndrome Foundation Reye's Syndrome, a deadly disease, strikes swiftly and can attack any child or adult without warning. All body organs are affected, with the liver and brain suffering most seriously. While the cause and cure remain unknown, research has established a link between Reye's Syndrome and the use of aspirin and other salicylate-containing medications. (Also on Facebook) |
| Reye's Syndrome Group To help and get support from people like you. | |
| Rheumatoid Arthritis Information Link |
National Rheumatoid Arthritis Society UK NRAS provides support and information for people with Rheumatoid Arthritis and Juvenile Idiopathic Arthritis, their families, friends and carers, and health professionals with an interest in Rheumatoid Arthritis |
| Rheumatoid Disease Foundation, The Rheumatoid Arthritis is not one single disease, but a catch-all diagnosis for many different causes, over 190 known different diseases, and probably more. Many are curable! | |
| Rheumatoid Arthritis Support All new Rheumatoid Arthritis information to Help You Heal | |
| Rheumatoid Arthritis Support Group A community of patients, family members and friends dedicated to dealing with Rheumatoid Arthritis. | |
| Rheumatoid Arthritis Support on FaceBook. Rheumatoid Arthritis Support Sharing information to help you and your loved ones cope with RA and autoimmune disease. | |
| Rickets Information Link |
Rickets is a preventable bone disease of early childhood, caused by vitamin D deficiency. It can lead to soft and weakened bones, fractures, bone and muscle pain, and bony deformities. Children with naturally dark skin or inadequate exposure to sunlight are most at risk. Other causes may be nutritional deficiencies and disorders of the liver, kidney or small intestine. |
| Rickets and Osteomalacia Support Group A community of patients, family members and friends dedicated to dealing with Rickets and osteomalacia, together. | |
| Right Ventricular Dysplasia | John Hopkins ARVD. " The mission of the Johns Hopkins ARVD Program is three fold. One goal is to provide education for patients and physicians about ARVD. A second goal is to facilitate the evaluation and management of patients with known or suspected ARVD. And the third, and most important goal is to provide new knowledge of ARVD." |
| ARPKD/CHF Alliance The Multidisciplinary Study of Right Ventricular Dysplasia is a multidisciplinary, multicenter, collaborative study to investigate the cardiac, clinical, and genetic aspects of arrhythmogenic right ventricular dysplasia. | |
| Ring Chromosome 20 Syndrome | Ring Chromosome 20 Foundation (UK) Ring Chromosome 20 syndrome is one of a number of chromosomal disorders associated with epilepsy. Ring Chromosome 20 syndrome occurs when the arms of one of the pair of chromosome 20s which are present in each cell fuse to form a ring during pre-natal development. |
| Ring Chromosome 20 Foundation (US) Created to provide information, resources and assistance to families affected by ring chromosome 20 syndrome. Our hope is to share as much information as possible so that medical professionals, physicians, and families can better understand the syndrome and its treatment. | |
| Ringworm Information Link |
The Ringworm Community Have a question or just need support? Meet others who share your health interests or goals. |
| I Have Ringworm Ringworm anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Ringworm. | |
| Ringworm, Jock Itch and Athlete's Foot Support Forum From CureZone. Message board group. | |
| Rocky Mountain Spotted Fever Information Link |
Lyme Disease Foundation, Inc. Dedicated to finding solutions for tick-borne disorders. Work together to find solutions to tick-borne disorders. (Also has information about Rockey Mountain Spotted Fever.) |
| Rocky Mountain Spotted Fever Support Group A community of patients, family members and friends dedicated to dealing with Rocky Mountain Spotted Fever. | |
| I Have Rocky Mountain Spotted Fever A support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Rocky Mountain Spotted Fever. | |
| Rocky Mountain Spotted Fever Support Group (Daily Strength) Rocky Mountain spotted fever remains a serious and potentially life-threatening infectious disease today. Despite the availability of effective treatment and advances in medical care, approximately 3% to 5% of individuals who become ill with Rocky Mountain spotted fever still die from the infection. | |
| Rombergs Syndrome | Rombergs Connection Romberg syndrome is a rare disorder characterized by slowly progressive degeneration (atrophy) of the soft tissues of half of the face. Some individuals may experience distinctive changes of the eyes and hair; and neurological abnormalities including episodes of seizures and of severe pain in tissues supplied by the fifth cranial nerve including the mouth, cheek, nose, and/or other facial tissues. |
| NINDS Parry-Romberg Information Page There is no cure and there are no treatments that can stop the progression of Parry-Romberg syndrome. | |
| Rosacea Information Link |
National Rosacea Society To improve the lives of people with rosacea by raising awareness, providing public health information and supporting medical research on this widespread but little-known disorder. |
| Rosacea Support Group on Twitter A rich source of instantly updated information. It's easy to stay updated on an incredibly wide variety of topics. | |
| Rosacea Support Group on FaceBook. Where rosacea sufferers meet online to support each other. | |
| The Rosacea Support Community We're sorry you have rosacea, but at least you're amongst friends. At the moment, there is no cure for rosacea, but don't give up hope. Science is continually advancing and new treatments are always coming onto the market. | |
| Rosacea Support Group A community of patients, family members and friends dedicated to dealing with Rosacea, together. | |
| Daily Strength DailyStrength.org is the most comprehensive health network of people sharing their advice, treatment experiences, and support. Keep a wellness journal, read members’ stories, and chat with new friends with over 500 support groups. | |
| Rothmund-Thomson Syndrome Information Link |
Rothmund-Thomson Syndrome Support Group on FaceBook. RTS is an extremely rare inherited syndrome. It has no prejudice and can effect any nationallity or gender. Certain cancers are a pre-disposition in some RTS patients and has effected many of our members lives. |
| Rothmund Thomson Syndrome Support Group A community of patients, family members and friends dedicated to dealing with Rothmund Thomson Syndrome. | |
| Rubella (German Measles) Information Link |
Rubella Vaccination Information Due to the introduction of German measles vaccinations the situation for people who have not been vaccinated has deteriorated. As a result of the vaccination the probability has declined to come down with German measles or to boost the acquired protection through further contacts with the virus. Thus young women frequently do not have a sufficient protection against the German measles. If there is a pregnancy there is a great danger of a rubella embryopathy. |
| Rubella Support Group A community of patients, family members and friends dedicated to dealing with Rubella. | |
| Madison's Foundation Progressive Rubella Panencephalitis is a rare complication of having a rubella infection. Rubella infection can occur in the womb (congenital) or after birth (acquired). PRP represents a persistent and slowly progressive rubella infection of the central nervous system causing inflammation in the brain (panencephalitis) and progressive neurologic deterioration. | |
| German Measles Information Blog Information and dioscussion. | |
| Causes, Symptoms And Treatment of German Measles Measles is one of the most contagious viral diseases. It is caused by paramyxo virus and is the most unpleasant and the most dangerous of the children's diseases that result in a rash. This is due to the complications of the disease. | |
| Rubinstein-Taybi Syndrome | RTS Most cases are sporadic and likely due to a new mutation occurring during fetal development, which was not passed on by either parent. In some cases it is inherited. The classic feature is broad thumbs and great toes, but typically there is also short stature, unusual face, low-set ears, port-wine-stain, undescended testicles in the male, and downward slant of the eyes. |
| Special Friends Foundation The Special Friends Foundation is dedicated to providing information and resources to individuals with RTS and their families. The Foundation provides assistance to cover expenses incurred due to RTS that are not covered by medial insurance or Medicaid. | |
| The Rubinstein-Taybi Syndrome UK Support Group To offer support to families and carers of those affected by Rubinstein-Taybi Syndrome (RTS); and to help raise awareness of RTS amongst the medical community and the general population. | |
| Rubinstein-Taybi Syndrome Support Group A community of patients, family members and friends dedicated to dealing with Rubinstein-Taybi Syndrome. | |
| Rubinstein-Taybi Syndrome Support Group (Daily Strength) Rubinstein-Taybi syndrome (also known as Broad Thumb-Hallux syndrome) is a condition characterized by short stature, moderate to severe mental retardation, distinctive facial features, and broad thumbs and first toes. | |
| Russell-Silver Syndrome | RSS and SGA Support A place to learn and be comforted - to share yur joys, your hopes, your fears. |
| Russell-Silver Syndrome Support on FaceBook This group is devoted to answer your questions and giving you the support you need to make wise medical decisions. We have a network of people whose giving hearts will lend you advice and calm your fears about Russell-Silver Syndrome (RSS) and Small Gestational Age (SGA). | |
| The Magic Foundation Major Aspects of Growth In Children (MAGIC) is made up of more than 25,000 families. The majority of us are parents of children with growth disorders and others are affected adults. | |
Support Groups "Sa - Sl"
"Sa" - "Sl"
| Saethre-Chotzen Syndrome | National Craniofacial Association The National Craniofacial Association has been dedicated to assisting children and adults who have craniofacial disorders resulting from disease, accident, or birth. |
| Saethre-Chotzen Syndrome Support Group A community of patients, family members and friends dedicated to dealing with Saethre-Chotzen Syndrome, together. | |
| Salmonella Information Link |
About Salmonella The CDC estimates that over 1 million cases occur annually in the United States, according to a 2011 report. Of these cases, approximately 20,000 result in hospitalization and 378 result in death. |
| Salmonella Infections Online Health Community and Support Group Get Salmonella Infections information, share experiences about Salmonella Infections, connect with peers, and get answers to your Salmonella Infections questions from health professionals. | |
| I Have Salmonella Infections Information on diagnosis, treatment, symptoms, along with personal stories and experiences with Salmonella Infections. | |
| Sanfilippo | Sanfilippo Children's Research Foundation There is a continuous process in the body of replacing used materials and breaking them down for disposal. Children with Sanfilippo disease are missing an enzyme which is essential in cutting up the used mucopolysaccharides. |
| Cure for Kirby, A Children with Sanfilippo are missing an essential enzyme that breaks down a complex body sugar called heparin sulfate. This sugar slowly builds in the brain, stopping normal development and causing hyperactivity, sleep disorders, loss of speech, dementia and typically death before adulthood. | |
| Sanfilippo Syndrome Sanfilippo syndrome is an inherited disease of metabolism that makes the body unable to properly break down long chains of sugar molecules | |
| Team Sanfilippo It is our desire to advance research, education and improve the quality of life for the children affected by this disorder. | |
| The Isabel Jurado Foundation is dedicated to funding research for effective treatments for Sanfillippo Syndrome so that in the future children will be living full and healthy lives with this disease rather than dying from it. | |
| Madisons Foundation Dedicated to improving the quality and quantity of information available to parents of children with rare, life-threatening diseases, and to facilitating effective communication among parents, physicians and medical experts | |
| SAPHO Syndrome Information Link |
SAPHO Syndrome Primarily for the purposes of support & collaboration, but will also include significant information resources. (A personal site, with a forum group and links.) |
| I Have Sapho Syndrome Information on diagnosis, treatment, symptoms, along with personal stories and experiences with SAPHO Syndrome. | |
| Sarcoidosis Information Link |
National Sarcoidosis Resource Center Sarcoidosis is a chronic, multisystem disorder of an unknown etiology characterized by the accumulation of T-lymphocytes and mononuclear phagocytes, nonsecreting epithelial granulomas and derangements of the normal tissue architecture in affected organs. All parts of the body can be affected, but the organ most affected is the lung. Involvement of the skin, eye and lymph nodes is also common |
| Sarcoidosis Family Foundation Sarcoidosis is a disease which occurs when areas of inflammation grow in different organs of the body. Very small growths called granulomas are associated with it and occur in the lungs, lymph nodes, eyes, skin, and spleen. These growths may clear up on their own or cause permanent damage. | |
| Directory of U.S. Sarcoidosis Support Groups Support groups offer an important way for patients and their family members to share experiences, emotions and knowledge about their disease. | |
| The Sarcoidosis Support Group Database A Worldwide Directory of Sarcoidosis Support Groups | |
| Sarcoidosis Online Sites on Facebook. To educate those afflicted with sarcoidosis. Help search for better medications, treatments and care. To provide support through public forum and global and local listings. To increase public awareness about sarcoidosis worldwide. | |
| The Sarcoid Connection provides sarcoidosis information and support for those with sarcoid, and for the people who care for them. It also promotes awareness of this chronic, incurable, autoimmune disease with the medical community and general public. | |
| Sarcoidosis Support Group (Daily Strength) Sarcoidosis is a systemic disease that can affect any organ. Common symptoms are vague, such as fatigue unchanged by sleep, lack of energy, aches and pains, arthralgia, dry eyes, blurry vision, shortness of breath, a dry hacking cough or skin lesions. | |
| UK Sarcoidosis Information and Support Group Message boards | |
| Foundation for Sarcoidosis Research FSR Sarcoidosis Community has offered more than 6000 patients, their families and caregivers a safe, trusted online environment to share stories, conversations and as much or as little personal information as desired. | |
| A Moment in Time We can help each other deal with the illness and focus on being healthy again. | |
| Sarcoidosis Support Group A community of patients, family members and friends dedicated to dealing with Sarcoidosis, together. | |
| Scabies Information Link |
Scabies Symptoms and Treatment It's an ectoparasite skin infection that is commonly characterized by superficial burrows and intense itching that can drive you nuts! The condition is caused by a tiny little mite |
| Scabies Support Forum Discussion boards | |
| I Have Scabies Information on diagnosis, treatment, symptoms, along with personal stories and experiences with Scabies | |
| Scarlet Fever Information Link |
Scarlet Fever Scarlet fever, also known as scarlatina, is a throat infection. The most common sign of scarlet fever is a rash that appears as tiny red bumps on the chest and abdomen that spreads all over the body. It looks like a sunburn and feels like a rough piece of sandpaper that later peels. |
| I Have Scarlet Fever I information on diagnosis, treatment, symptoms, along with personal stories and experiences with Scarlet Fever. | |
| Schizophrenia Information Link |
Nat. Alliance for Research on Schizophrenia & Depression NARSAD is the world's largest donor-supported organization for research on psychiatric disorders |
| National Mental Health Association Mental Health America is the country’s leading nonprofit dedicated to helping ALL people live mentally healthier lives. | |
| National Alliance for the Mentally Ill NAMI is the nation’s largest grassroots mental health organization dedicated to improving the lives of persons living with serious mental illness and their families who join together to meet the NAMI mission through advocacy, research, support, and education. | |
| Schizophrenia.com Dedicated to providing high quality information, support and education to the family members, caregivers and individuals whose lives have been impacted by schizophrenia. | |
| Schizophrenia World (UK) The most common type of hallucination experienced by schizophrenia sufferers is auditory but patients can also have visual, tactile, gustatory (taste) and olfactory (smell) hallucinations. | |
| Schizophrenia Support Meetup Groups Meet with other local people who suffer from Schizophrenia. Gather to offer support and helpful tips in living with schizophrenia. | |
| Schizophrenia Support Group A community of patients, family members and friends dedicated to dealing with Schizophrenia, together. | |
| Schizophrenia Support Group (Daily Strength) Schizophrenia is a psychiatric diagnosis that describes a mental disorder characterized by impairments in the perception or expression of reality and by significant social or occupational dysfunction. | |
| Schizophrenia Support Groups Message boards. | |
| School Phobia | Scared of School This site is about the fear of school and it's for those who've been affected by that. |
| Didaskaleinophobia School Phobia is itself a symptom of anxiety disorder in childhood. It is also known as separation anxiety, which is an inappropriate fear of leaving their parents, a person or place of trust or home for example. | |
| What Is School Phobia? This condition is most commonly seen in children, classically between the ages of eight and 13, and it can be very debilitating, especially if it is allowed to progress | |
| Managing School Phobia While separation issues are often a major component, other factors affect school phobia, as well. Among these factors are home stressors such as divorce, a death in the family, financial problems, or transfer to another school. School related issues, such as fear of bullying, learning problems, social problems, or other stressors can also trigger or intensify a school phobia. | |
| School Refusal / School Phobia: Treatment Options Unlike truancy, school phobia involves a known absence from school as parents are often witness to the emotional breakdown of their child when school attendance is required. | |
| Who Wouldn't Be ‘School Phobic’? (Commentary, 1992) Ask parents what they would think of a system which not only imprisons innocent people for many years but then forces them to obey every whim of the warders, takes up their time with mind-numbing makework, leaving them almost no time for their own pursuits, and in some cases even force-feeds inmates, and so on. | |
| Why Some Children are Afraid of Going to School (PDF) Some children avoid school because of the work and exams, while others are doing so because they are being bullied or are having a fallout with friends. |
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| Sciatica Information Link |
Daily Strength DailyStrength.org is the most comprehensive health network of people sharing their advice, treatment experiences, and support. Keep a wellness journal, read members’ stories, and chat with new friends with over 500 support groups. |
| Sciatica Support Group A community of patients, family members and friends dedicated to dealing with Sciatica, together. | |
| Sciatica Support Group Get advice and support from thousands of patients like you. The pain is felt in the lower back, buttock, and/or various parts of the leg and foot. In addition to pain, which is sometimes severe, there may be numbness, muscular weakness, and difficulty in moving or controlling the leg. | |
| I Suffer From Sciatica Pain Read true personal stories, chat & get advice, support and help from people who all say 'I Suffer From Sciatica Pain' | |
| Sciatica Support Group (Daily Strength) You may be surprised to learn that sciatica is not a spinal condition, but instead a symptom of a low back problem! Many different low back problems can cause sciatica. | |
| Scleroderma Information Link |
Scleroderma Foundation To promote education of the disease, the foundation facilitates health and professional seminars, produces and distributes literature and conducts publicity campaigns. To help support the 300,000 people living with scleroderma, the foundation offers peer counseling, mutual support programs, and physician referrals. |
| Juvenile Scleroderma Network Our mission is to provide emotional support and educational information to parents and their children living with juvenile scleroderma; to support pediatric research to identify the cause and the cure for juvenile scleroderma; to enhance the public's awareness of juvenile scleroderma and related diseases. | |
| International Scleroderma Network We provide stellar research, support, education and awareness for scleroderma and related illnesses. | |
| Raynaud's & Scleroderma Association (UK) Scleroderma means hard skin but the hardness is not limited to the skin - the internal organs and their blood supply may become damaged. Scleroderma can be devastating not only for the person who has the condition but also for the families concerned. We offer a very personal service, always available to answer questions, offer advice, reassurance and support. | |
| Scleroderma from A to Z We provide stellar global research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension, with over 5,000 pages in 23 languages for medical professionals and consumers alike. | |
| Scleroderma Support Group (Daily Strength) Scleroderma affects the skin, and in more serious cases it can affect the blood vessels and internal organs. The most evident symptom is the hardening of the skin and associated scarring. | |
| Scleroderma Society of Canada Promote awareness of scleroderma, to support research toward finding a cure and to provide support and information to those affected by the disease. | |
| Scoliosis Information Link |
National Scoliosis Foundation. " Helping children, parents, adults, and health-care providers to understand the complexities of spinal deformities such as scoliosis." |
| iScoliosis.com Scoliosis is a condition which affects the spines of many children, teenagers and adults. The human spine features many natural curvatures which help our bodies to move and be flexible. | |
| Scoliosis Support Website. "Scoliosis is a potentially progressive condition that affects children during their active growth phase and essentially subsides upon completion of spinal growth, leaving the child with a permanent deformity." | |
| Seasonal Affective Disorders Information Link |
National Mental Health Association Mental Health America is the country’s leading nonprofit dedicated to helping ALL people live mentally healthier lives. |
| The Seasonal Affective Disorder
Association (UK) offers help and support to those suffering from SAD or winter blues. |
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| Seasonal Affective Disorder (Mayo Clinic) You can take action to cope with seasonal affective disorder. | |
| Seasonal Affective Disorder Support Group A community of patients, family members and friends dedicated to dealing with Seasonal Affective Disorder, together. | |
| Seasonal Affective Disorder Support Group (Daily Strength) Most SAD sufferers experience normal mental health throughout most of the year, but experience depressive symptoms in the winter or summer. | |
| Seizure Disorders Also see Epilepsy Information Links: Seizure Children, Seizures (Febrile) Seizure First Aid Seizures Symptoms and Types |
Seizure Support Network To help children and adults with special needs receive the support and services they need to reach their full potential by providing information, training, and resources to build strong families and improve systems of care. |
| Seizure Support.com To communicate to as many as possible that Epilepsy and Seizure disorders are conditions we can no longer hide in the hush hush old fashioned mentality. We must talk about it to cure it. | |
| Seizures Online Support Group A community of patients, family members and friends dedicated to dealing with Seizures, together. | |
| Parent Support for Febrile Seizures (article) Between 95 to 98 percent of children that has suffered febrile seizures do not go on to develop epilepsy | |
| Epilepsy & Seizures Support Group (Daily Strength) Seizures (or convulsions) are temporary abnormal electrophysiologic phenomena of the brain, resulting in abnormal synchronization of electrical neuronal activity. |
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| Self Abuse/Injury Also see Choreoathetosis |
National Mental Health Association Mental Health America is the country’s leading nonprofit dedicated to helping ALL people live mentally healthier lives. |
| Choreoathetosis Self-Mutilation Hyperuricemia Syndrome support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Choreoathetosis Self-Mutilation Hyperuricemia Syndrome. | |
| Self-Lnjury: You are NOT the Only One In spite of the title, there is no shame here. If you cause physical harm to your body in order to deal with overwhelming feelings, know that you have nothing to be ashamed of. It's likely that you're keeping yourself alive and maintaining psychological integrity with the only tool you have right now. The prospect of giving it up may be unthinkable, which makes sense; you may not realize that self-harm isn't the only or even best coping method around. | |
| S.A.F.E. Alternatives Begin with the assumption that, although temporarily helpful, self-injurious behavior is ultimately a dangerous and futile coping strategy which interferes with intimacy, productivity and happiness. There is no "safe" or "healthy" amount of self-injury. We also believe that self-injury is not an addiction over which one is powerless for a lifetime, people can and do stop injuring, with the right kinds of help and support. Self-injury can be transformed from a seemingly uncontrollable compulsion to a choice. | |
| Cutting and Self-Harm Whatever the reason, there is help—and hope—available. Cutting and other self-injury may make you feel briefly like you’re better able to handle life again, but then the pain returns without any permanent recovery. | |
| Self-Injury Meetup Groups Meet with other local people who are affected by Self-Harm to know that there is no shame, no pain, just you and the understanding that you're not alone! | |
| Self-Injury Support Group (Daily Strength) The person who self-harms is not usually seeking to end his or her own life, but is instead hoping to cope with or relieve unbearable emotional pressure or some kind of discomfort. | |
| Senility - see Dementia or Alzheimer's Disease | |
| Sensory Processing Disorders | Sensory Processing Disorder Network A complex disorder of the brain that affects developing children. Children with SPD misinterpret everyday sensory information, such as touch, sound, and movement. Depending on which type of SPD a child has, he may feel as if he is overwhelmed with information, he may seek out intense sensory experiences, or he might have other symptoms. This can lead to behavioral problems, difficulties with coordination, and other issues. |
| Parent Support Groups for Children with Sensory Integration Disorders This is an annotated list of support groups and listservs for parents of children wih sensory integration disorder. Read descriptions and join the sensory integration disorder support group that best meets your needs. | |
| The Sensory Processing Disorder Foundation Expanding knowledge, fostering awareness and promoting recognition of Sensory Processing Disorder | |
| The Sensory Processing Disorder
Resource Center Finally!... A thorough explanation and a name for the behaviors and developmental concerns that exist - which seemed almost impossible to understand or cope with. |
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| Sensory Processing Disorder Online Support Group A community of patients, family members and friends dedicated to dealing with Sensory Processing Disorder, together. | |
| Sensory Processing Disorder (SPD) Support on FaceBook We know that it is impossible to determine a course of therapy for your child online, but our hope is that this resource will help put some of the pieces of the puzzle together for you and to help make “sense” of your child’s world. | |
| Sensory Processing Disorder - Support and Awareness Group on FaceBook. This group is meant to provide support for those with SPD and those who know people with the disorder. It is also meant to spread awareness of SPD, since not many people know what it is. | |
| Separation Anxiety in Children Information Link |
Daily Strength DailyStrength.org is the most comprehensive health network of people sharing their advice, treatment experiences, and support. Keep a wellness journal, read members’ stories, and chat with new friends with over 500 support groups. |
| Separation Anxiety Symptoms In Children From children not wanting to leave mom and dad for their first day of school, to a toddler not wanting mommy to leave them at grandma's house so she can go to work, separation anxiety can be extremely hard on a child but it is something that most children grow out of. | |
| Separation Anxiety Disorder Is a fear-based anxiety problem seen in school-aged children. It appears as excessive worrying or a fearful, even panic attack, reaction to a separation event. With this condition your child becomes too anxious when he may be separated from something familiar. | |
| Separation Anxiety From eMedicine Health | |
| Separation Anxiety in Pets | Pet Separation Anxiety Pet separation anxiety is a psychological term to describe the stress and anxiety brought on by separation from the primary pet caretaker. This issue can become a serious medical condition, with cases and their accompanying symptoms ranging from mild to severe. |
| Separation Anxiety in Dogs and Cats When some dogs and cats realize they are being left alone, they exhibit distress and occasional destructive behavior—a condition known as separation anxiety disorder. | |
| Separation Anxiety in Cats Cats with separation anxiety don't howl and bay like dogs and they don't chew on doors and windowsills in frantic attempts to escape. Their misery is far less obvious and it sometimes takes a sleuth of an owner to appreciate what is going on. Separation anxiety in any species implies a lack of confidence and an over-dependence on others | |
| Separation Anxiety in Cats Contrary to what had often been thought in the past, cats are actually very social creatures and can form strong bonds with people and with other animals. | |
| Separation Anxiety (in dogs) It's not fully understood why some dogs suffer from separation anxiety and others don't. But it's important to realize that the destruction and house soiling that often occur with separation anxiety are part of a panic response. Your dog isn't trying to punish you for leaving him alone. | |
| Separation Anxiety (in dogs) Much of what is called "separation anxiety" is really boredom, or the dog discovering the chance to engage in his favorite "hobbies" safely. | |
| Separation Anxiety (in dogs) Supposedly, absence makes the heart grow fonder. However, the absence of an owner sends some dogs into keen wailing and barking, frequent house soiling and self-destructive behaviors. These are all signs that a dog is suffering from separation anxiety. | |
| Sepsis Information Link
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Surviving Sepsis Sepsis can be defined as the body's response to an infection. An infection is caused by microorganisms or "germs" (usually bacteria) invading the body, and can be limited to a particular body region (e.g., a tooth abscess) or can be widespread in the bloodstream ("blood poisoning"). |
| International Sepsis Forum The International Sepsis Forum is a unique collaborative effort between industry and academia. It is the first initiative to focus solely on management of patients with severe sepsis. While sepsis and its sequelae are still associated with high morbidity and mortality rates, new data on patient management are emerging that may ultimately significantly improve the current situation. | |
| Sepsis Alliance Connects patients, families, and medical professionals with the tools to successfully combat sepsis. | |
| I Have Sepsis Information on diagnosis, treatment, symptoms, along with personal stories and experiences with Sepsis. | |
| Septo Optic Dysplasia | The Magic Foundation Major Aspects of Growth In Children (MAGIC) is made up of more than 25,000 families. The majority of us are parents of children with growth disorders and others are affected adults. |
| FOCUS Families This page was created to help parents and caregivers with children who have Optic Nerve Hypoplasia (O.N.H.) and Septo-Optic Dysplasia, also known as deMorsier syndrome . Together, we can learn more about this rare syndrome and come to a better understanding of our children. | |
| Optic Nerve Hypoplasia and Septo Optic Dysplasia Support on FaceBook. As a parent of a child with ONH/SOD I feel that the support system we can all build together will help us all understand and help further research. | |
| Severe Acute Respiratory Syndrome (SARS) Information Link Possibly eradicated. |
Basic Information About SARS (from the CDC) A viral respiratory illness caused by a coronavirus, . SARS was first reported in Asia in February 2003. Over the next few months, the illness spread to more than two dozen countries in North America, South America, Europe, and Asia before the SARS global outbreak of 2003 was contained. |
| Healia Health Community for Severe Acute Respiratory Syndrome (SARS). You can get Severe Acute Respiratory Syndrome information, share experiences about SARS, connect with peers, and get answers to your SARS questions from health professionals. | |
| Social Support and Response to AIDS and Severe Acute Respiratory Syndrome (clinical abstract) We assessed whether social support was associated with knowledge of, worry about, and attitudes towards AIDS and severe acute respiratory syndrome. Our findings suggest that social support may be central to our understanding of public responses to emerging infectious diseases. | |
| Severe Acute Respiratory Syndrome (SARS) Support Group (Daily Strength) In May 2005 the disease itself was declared 'eradicated' by the WHO and it became the second disease in mankind to receive this label (the other was smallpox). | |
| Sexual Abuse Also see our Abuse Index Information Links Exhibitionism |
Pandora's Project Providing information, support, and resources to survivors of rape and sexual abuse and their friends and family. We have been devoted to recovery and healing |
| Survivors of Incest Anonymous This site is intended to be a resource to survivors of child sexual abuse and we hope it can be an aid in your recovery. | |
| Adult Male Survivors Of Sexual Abuse We offer you an opportunity to focus on the ability to heal and recover, by dealing with 1/3rd of your past, 1/3rd of your present, and 1/3rd of your future, covering aspects of the sexual abuse you suffered, yet focussing on the strength and courage you possess, and leaving the past where it belongs. | |
| Survivors Network of those Abused by Priests We are the largest, oldest and most active support group for women and men wounded by religious authority figures (priests, ministers, bishops, deacons, nuns and others). We are an independent and confidential organization, with no connections with the church or church officials. | |
| Help for Adult Victims Of Child Abuse We provide support, friendship and advice for any adult who's life has been affected by childhood abuse. | |
| After Silence, an online support group, message board, and chat room for rape, sexual assault, and sexual abuse survivors. You are not alone, you are not broken, and you can heal. | |
| Hope for Healing Making hope happen for survivors every day. For survivers of domestic violance and sexual abuse. | |
| Fort Refuge A journey of healing from abuse we suffered: child abuse, incest, sexual assault, rape, domestic violence, ritual abuse, or psychological and verbal abuse. We feel that all types of abuse are damaging, and we do not minimize any person's experiences. It is our goal to reach out to as many fellow survivors as we can with compassion, understanding, and encouragement, | |
| Adult Survivors of Child Abuse An international self-help support group program designed specifically for adult survivors of neglect, physical, sexual, and/or emotional abuse. | |
| Abuse Survivors Meetup Groups Meet other local survivors of sexual, physical, or emotional abuse to share advice on surviving and coping. | |
| Daily Strength - Sexual Abuse Support Group Message boards. |
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| Rape and Date Rape Date rape also occurs when one person forces another person to have sex. This crime is also a felony offense. The difference between rape and date rape is that in cases of date rape, the victim agreed to spend time with the attacker. Perhaps the victim even went out with the attacker more than once. Date rape is still rape. | |
| Date Rape Support This page was added after 4 women who had the same experience posted within 2 hours. That highlighted how widespread the problem is and the need for a rape support page on this site. | |
| Rape Support Group A community of victims, family members and friends dedicated to dealing with Rape, together. | |
Daily Strength - Rape Support Group Discussion boards |
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| Dancing In The Darkness, an informative and thought-provoking resource for rape, sexual assault, incest, and sexual abuse survivors. | |
| Sex Addiction (Paraphilias) Information Links Sexual Addiction Sexual Sadism Paraphilias |
Compulsive Sexual Behavior and Sexual Addiction Paraphilias are socially deviant, persistent, highly arousing, sexual fantasies and urges that cause personal distress and/or social difficulties |
| Sex Addicts Anonymous offers a message of hope to anyone who suffers from sex addiction. Through long and painful experience, we came to realize that we were powerless over our sexual thoughts and behaviors and that our preoccupation with sex was causing progressively severe adverse consequences for us, our families, and our friends. Despite many failed promises to ourselves and attempts to change, we discovered that we were unable to stop acting out sexually by ourselves. | |
| Sex Addiction Support Groups Articles, links, support groups, all in one place. | |
| I Have Paraphilias Paraphilias anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Paraphilias. | |
| SexHelp.com Your path to help, hope and healing. This website will provide new insights into sexual addiction and resources for recovery. | |
| Porn/Sex Addiction and Support (Australia) Once involved in pornographic materials, they kept coming back for more and still more. The material seemed to provide a very powerful sexual stimulant or aphrodisiac effect, | |
| Sex Addiction Symptoms Sex addiction occurs when a normal sex drive has become an obsessive and overly active sex drive, to the point that sexual behavior is out of control. | |
| Sex / Pornography Addiction Support Group (Daily Strength) There is no consensus in the medical community that sexual addiction actually exists, | |
| Sexual Problems Also see conditions that might cause problems. Information Links: Sexual Problems in Men Sexual Problems in Women Sexual Health Overview Sexual Maturation (Puberty) There are far more problems and Internet pages on this topic than we can cover in this section. |
Sexual Dysfunction If you're having sexual problems, your health care professional will try to rule out medical causes first by conducting a thorough medical history and exam, including a pelvic exam and blood tests. If there is no physical or biological cause, you may be referred for psychological counseling. Askfor a referral to a sex therapist. |
| Sexual Dysfunction affect both men and women. It is sometimes linked to other physical maladies, such as high blood pressure, diabetes, cancer, among others. Sexual dysfunction can also be attributed to emotional challenges with your sexual partner. Learning about the causes of this condition will empower you and get you on the road to healing. | |
| Sexual Advice Association (UK) To help improve the sexual health and wellbeing of men and women and to raise awareness of the extent to which sexual conditions affect the general population. | |
| Healthy Sex Support and discussion message boards. | |
| Local Sexual Support Groups Do you have any sexual health-related questions and concerns that need to be addressed? If you are looking for a community in your area to offer guidance and support with your sexual health condition, we can help. | |
| Sexual Health Support Group From safe-sex practices and STD testing to erectile dysfunction and birth control, no topic is off-limits in our sexual health support group. Connect with other members to ask questions and share advice. | |
| Relationships & Sexuality A listing (with links) to all the Daily Strength support groups that deal with sexual issues. Example: Healthy Sex Support Group. | |
| Female Sexual Dysfunction refers to a number of problems that may prevent a woman from enjoying sexual intercourse - lack of sexual desire, inability to become aroused, lack of orgasm, or painful intercourse. Join this online support group for female sexual dysfunction and find a compassionate community of other women and doctors who will help you find solutions to your problems. | |
| Intercourse Problems Support Group A community of patients, family members and friends dedicated to dealing with Intercourse Problems, together. | |
| An Overview of Male Sexual Problems More men today recognize the terrible burden of traditional male stereotypes. And more women refuse to silently endure years of frustrating and non-intimate sex the way their mothers did. For these and other reasons, couples today are increasingly open to new sexual information and/or consulting a therapist. | |
| Male Sexual Dysfunction (Erectile Dysfunction, Impotence) Information, videos, links. | |
| Sexual Problems in Men A sexual problem, or sexual dysfunction, refers to a problem during any phase of the sexual response cycle that prevents the individual or couple from experiencing satisfaction from the sexual activity | |
| Persistent Sexual Arousal Syndrome Support Groups backed by doctors, present cases of women who are distressed with the symptoms of PSAS, share stories and seek ways to manage the strange discomfort without sinking into depression. | |
| Sexually Transmitted Diseases Also see AIDS Information Links: STDs in Men STDs In Women Gonorrhea in Women Chlamydia In Women Sexually Transmitted Diseases and Pregnancy |
Sexually Transmitted Diseases (STDs) From the Centers for Disease Control and Prevention |
| Sexually Transmitted Disease Basics From WebMD. With links to additional information on each STD mentioned. | |
| WebMD® Sexually Transmitted Diseases Community Discussion boards with link to information. | |
| Sexually Transmitted Diseases Online Health Community and Support Group STD information, share experiences about STDs, connect with peers, and get answers to your questions from health professionals. | |
| Sexually Transmitted Diseases Group to help and get support from people like you. | |
| Sexually Transmitted Diseases - Female Support Group (Daily Strength) Discussuion boards. | |
| Sexually Transmitted Diseases Support Group A community of patients, family members and friends dedicated to dealing with Sexually Transmitted Diseases, together. | |
| STDs Disease Prevention in Pregnancy As you may know, the only way to prevent infection is through safe sex. When you're pregnant you might think about ending the use of condoms (male or female) because, obviously, do not run the risk of unwanted pregnancy. But we should be aware that you can catch any sexually transmitted disease, or simultaneously infect a sexual partner if they are carriers. | |
| Exposure to Sexually Transmitted Diseases - Prevention You can take measures to reduce your risk of becoming infected with a sexually transmitted disease (STD). You can also reduce the risk of transmitting an STD to your sex partner | |
| STD Prevention The only sure way to avoid becoming infected with an STD is monogamy with an uninfected partner. It is important for partners to discuss their sexual and STD history before having sex and to consider getting tested. | |
| Shaken Baby Syndrome Also see Child Abuse Information Link |
The Shaken Baby Syndrome Support Network derives from the many families World Wide whom have suffered from Shaken Baby Syndrome. The grief associated with the loss of a child due to SBS, or caring for a child who is a survivor, can be strenous on a family and we, as a network of families we are here to help each other. FaceBook Link |
| National Center On Shaken Baby Syndrome "To educate and train parents and professionals, and to conduct research that will prevent the shaking and abuse of infants in the United States." | |
| Shaken Baby Alliance A form of Abusive Head Trauma that occurs when a frustrated caregiver violently shakes, slams, hits, or punches a child’s head, usually to stop them from crying or to get a child to respond to the expectations of the caregiver. There are often no outward signs of trauma, but there is injury to the brain and sometimes to the eyes. | |
| Shaken Baby Task Force To support families/caregivers/extended families who have a victim (surviving or deceased) of Shaken Baby Syndrome and advocate awareness by preventative education. | |
| Help Prevent SBS Sponsored by The Epilepsy Association of Central Florida, Inc. and this is our way of educating the public regarding this syndrome as well as provide support for the victims’ families. | |
| Shaken Baby Syndrome (from The Baby Center) A child with SBS may also have a damaged spinal cord or neck, as well as bone fractures. The amount of damage depends on how long and hard the child is shaken, but in just five to ten seconds a child can suffer permanent, severe damage or even death | |
| Shaken Baby Syndrome Support Group A community of patients, family members and friends dedicated to dealing with Shaken Baby Syndrome, together. | |
| Shingles (Herpes Zoster) Information Links: Shingles Shingles & Pregnancy |
Medconsumer.info: Herpes Zoster Shingles, also called herpes zoster or zoster, is a painful skin rash caused by the varicella zoster virus (VZV). VZV is the same virus that causes chickenpox. After a person recovers from chickenpox, the virus stays in the body. Usually the virus does not cause any problems; however, the virus can reappear years later, causing shingles. |
| The Shingles Support Society (UK) Information on shingles and post-herpetic neuralgia: what they are and how to treat them. | |
| Healia Health Community for Shingles. Gget Shingles information, share experiences about Shingles, connect with peers, and get answers to your Shingles questions from health professionals. | |
| Shingles Support Group (Daily Strength) Herpes zoster, colloquially known as shingles, is the reactivation of varicella zoster virus, leading to a crop of painful blisters over the area of a dermatome. It occurs very rarely in children and adults, but its incidence is high in the elderly (over 60), as well as in any age group of immunocompromised patients. | |
| Shingles Support Group A community of patients, family members and friends dedicated to dealing with Shingles, together. | |
| Short Rib Polydactyly Syndrome | Short Rib Polydactyly Syndrome Support Network Short Rib Polydactyly Syndrome is a description for a lethal category of bone growth disorders known as skeletal dysplasias or, more commonly, dwarfism. SRPS is generally characterized by short ribs, a bell-shaped torso, and short measurements of the long bones (femur and humerus). However, not all cases of SRPS demonstrate polydactyly, the presence of extra fingers and toes. All forms of SRPS are lethal to newborns. |
| Short Rib-Polydactyly Syndrome I-IV Short rib-polydactyly syndrome describes a group of lethal skeletal disorders that are inherited in an autosomal recessive manner. | |
| Short Rib Polydactyly There is much overlap of symptoms between the SRP subtypes and it is often difficult to distinguish between them. They all have extremely shortened bones of the arms, legs, and ribs. They all also have a small, constricted chest. | |
| Shwachman Diamond Syndrome | Shwachman Diamond Syndrome Foundation A rare disease which mainly involves the pancreas, bone marrow and skeleton, but other organs may also be affected. People with Shwachman-Diamond Syndrome usually have a decreased ability to digest food because the cells of the pancreas, in which digestive enzymes are produced, do not work properly. |
| Shwachman-Diamond America In Infancy, the first symptoms are usually loose, foul smelling, greasy stools and failure to gain weight and grow normally | |
| Shwachman-Diamond Syndrome Australia Diagnosis is often difficult and can take a long time leaving families feeling helpless and anxious. | |
| Shwachman-Diamond Syndrome Support Group A community of patients, family members and friends dedicated to dealing with Shwachman-Diamond syndrome, together. | |
| I Have Shwachman-Diamond Syndrome Information on diagnosis, treatment, symptoms, along with personal stories and experiences with Shwachman-Diamond Syndrome. | |
| Shwachman-Diamond Syndrome Support Group (Daily Strength) Discussion boards. | |
| Shy-Drager see Multiple System Atrophy |
Shy-Drager/Multiple System Atrophy Support Group Multiple system atrophy is a rare neurodegenerative disease marked by a combination of symptoms affecting movement, blood pressure, and other body functions; hence the label "multiple system" atrophy. |
| SDS/MSA Support Group on FaceBook To Educate , Support & Fund Research. | |
| I Have Shy-drager Syndrome Information on diagnosis, treatment, symptoms, along with personal stories and experiences with Shy-Drager Syndrome. | |
| Shy-Drager Syndrome Support Group A community of patients, family members and friends dedicated to dealing with Shy-Drager Syndrome, together. | |
| Sickle Cell Anemia Information Link |
American Sickle Cell Anemia Association The organization currently provides a wide range of services to those individuals and families with either sickle cell trait or variants of the disease itself. |
| Sickle Cell Disease Association of America (SCDAA) Aims to promote finding a universal cure for Sickle Cell Disease while improving the quality of life for individuals and families where Sickle Cell-related conditions exist. | |
| Sickle Cell Information Center The mission of this site is to provide sickle cell patient and professional education, news, research updates and world wide sickle cell resources. It is the mission of our organizations to provide compassionate care, education, counseling, and research for patients with sickle cell disease. It is our mission to help break the sickle cycle. | |
| Sickle Cell Society of Canada The Sickle Cell Society believes that every sickle cell sufferer has the right to quality care. This can only be achieved if funding is made available to educate health carers and other professionals about the condition. | |
| Save Babies Through Screening Foundation, Inc. Its mission is to improve the lives of babies by working to prevent disabilities and early death resulting from disorders detectable through newborn screening. Without proper screening affected children will likely suffer mental retardation, physical disability or even death. Most affected children can lead normal, healthy lives when diagnosed and started on treatment early. | |
| Iron Disorders Institute An iron disorder occurs when iron is out of balance in the human body. | |
| SIDS - see Sudden Infant Death Syndrome | |
| Sinusitis Information Link |
Sinusitis Sinusitis can wreak havoc, but there are solid solutions and you'll find them here. Discover current news on treatment and research, support groups, chats with experts and more with ProHealth. |
| Sinusitis Group To help and get support from people like you. | |
| Sinusitis Forum Featuring member and doctor discussions ranging from a specific symptom to related conditions, treatment options, medication, side effects, diet, and emotional issues surrounding medical conditions. | |
| Healia Health Community for Sinusitis. Through this Sinusitis support group, you can get Sinusitis information, share experiences about Sinusitis, connect with peers, and get answers to your Sinusitis questions from health professionals. | |
| I Have Sinusitis With information on diagnosis, treatment, symptoms, along with personal stories and experiences with Dextrocardia-bronchiectasis-sinusitis. | |
| Sjogren's Syndrome Information Link |
Sjogren's Syndrome Foundation Sjögren's syndrome is a chronic disease in which white blood cells attack the moisture-producing glands. The hallmark symptoms are dry eyes and dry mouth, but it is a systemic disease, affecting many organs and may cause fatigue. It is one of the most prevalent autoimmune disorders, striking as many as four million Americans. |
| Marinesco-Sjögren Syndrome Support Group Marinesco-Sjogren Syndrome is a very rare genetic disorder characterized by ataxia (balance and coordination problems), juvenile cataracts, generally some degree of cognitive delay, and very small stature. | |
| Sjogren's Syndrome Support Group Contact Information To find your closest Sjögren’s Support Group, CLICK on a state |
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| Sjogren's Syndrome Support Group A community of patients, family members and friends dedicated to dealing with Sjogren's Syndrome, together. | |
| Sjogren's Syndrome Support Group (Daily Strength) Sjogren's syndrome is an autoimmune disorder in which immune cells attack and destroy the exocrine glands that produce tears and saliva | |
| Skin Issues including Cancer Information Links: Skin Cancer Skin Abscess (Boils) Skin Infection (Impetigo) Skin Inflammation (Eczema) Itching Birthmarks and Other Skin Pigmentation Problems Skin Tags |
Foundation for Ichthyosis & Related Skin Types Ichthyosis is a term for a large group of different scaling skin disorders. Because the term refers to a large group, the disorders are referred as the ichthyoses. Most of the problems in the ichthyoses occur in the epidermis, the top layer of the skin that forms a barrier between our bodies and the outside world. |
| Pickaderms Pickaderms is for people who have skin picking problems on any part of the body, and includes nail and cheek biting. This disorder is more common than you think. Pickaderms is an unlisted, private, restricted list open only to people (and parents of children) who pick or bite at their skin. | |
| Face & Skin Picking Support You or a loved one probably has a problem with dermatillomania, or compulsive skin picking (CSP). CSP can be hard to understand and even harder to deal with! | |
| Skin Cancer support Group Inspire connects patients, families, friends and caregivers for support and inspiration. | |
| Non-Melanoma Skin Cancer Advocacy, Education, and Support Groups The following organizations provide a variety of support programs and educational materials for people with non-melanoma skin cancer and their family members, caregivers, and friends. | |
| Daily Strength- Skin Cancer Support Group Message boards and discussions |
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| Skin Cancer Support Group A community of patients, family members and friends dedicated to dealing with Skin Cancer, together. | |
| Skin Cancer Support Message boards and discussions | |
| Listing of Skin Condition Support Groups Multiple listings. Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust. | |
| Listing of Skin Condition Support Groups Multiple listings. From MDJunction. "There are 56 groups in this category." | |
| Listing of Skin Condition Support Groups Multiple listings. From Daily Strength | |
| Healia Health Community for Skin Diseases. Get Skin Diseases information, share experiences about Skin Diseases, connect with peers, and get answers to your Skin Diseases questions from health professionals. | |
| National Skin and Hair Support Groups (UK) Hair loss, eczema, acne, moles - whatever your skin or hair issue there is help at hand. Below you'll find a selection of organisations that can offer information and support tailored to meet your needs. Most will have details of services in your local area. | |
| Skin Forum Featuring member and doctor discussions ranging from a specific symptom to related conditions, treatment options, medication, side effects, diet, and emotional issues surrounding medical conditions. | |
| American Academy of Dermatology Listing of Foundations, Institutions, and Support Groups For any condition that can affect the skin. | |
| Skin Disorders Support Group (From Prevention Magazine) Message boards. | |
| Pityriasis Rubra Pilaris Support Group The primary goal of the Support Group is to provide a forum for people to share information about PRP, including their experiences, anxieties and treatment options, and to provide mutual support to each other. | |
| Dry Skin Support Group To help and get support from people like you. | |
| Sleep Issues Information Links: Sleep Sleep Apnea Insomnia Sleep Related Breathing Disorders Excessive Daytime Sleepines Sleepwalking |
National Sleep Foundation You hear the advice that people need eight hours of sleep, but does that apply to every person? What about children, teens and older people? Many people seem to get by on less than eight so... |
| American Sleep Apnea Association The American Sleep Apnea Association is the only non-profit organization dedicated to educating the public about sleep apnea and to serving people with this common disorder. We are dedicated to reducing injury, disability, and death from sleep apnea and to enhancing the well-being of those affected by this common disorder. The ASAA promotes education and awareness, voluntary mutual support groups, research, and continuous improvement in care. | |
| Sleep Disorder Information and Resources. "The Talk About Sleep Mission: to be a world leader in the sleep field by providing quality information, support and resources to sleep disorder patients, their family, friends and healthcare professionals." | |
| Sleep Disorders. "There are more than 70 different sleep disorders that are generally classified into one of three categories: lack of sleep (insomnia), disturbed sleep (obstructive sleep apnea), and excessive sleep (narcolepsy)." | |
| Apnea Support Group. Message board with news ticker. | |
| American Sleep Association. "A national organization focused on improving public awareness about sleep disorders and sleep health, promoting sleep medicine research, and providing a portal for communication between patients, physicians/healthcare professionals, corporations, and scientists." | |
| Sleep Apnea Support Group (Daily Strength) People with sleep apnea partially awaken as they struggle to breathe, but in the morning they may not be aware of the disturbances in their sleep. | |
| Sleep Disorders Support Group A community of patients, family members and friends dedicated to dealing with Sleep Disorders, together. | |
Support Groups "Sm" - "Sz"
"Sm" - "Sz"
| Smell Disorders Information Link |
Taste And Smell Disorders An abstracted summaryof a lecture. |
| Sense of Smell Discussion boards. | |
| Smell and Taste Disorders can be Treated Many smell and taste disorders can be treated, or possibly reversed, depending on the underlying cause. | |
| Smith-Magenis Syndrome | Parents & Researchers Smith-Magenis Syndrome A chromosomal disorder caused by a missing piece of genetic material. Common features include: infant feeding problems, low muscle tone, developmental delay, variable levels of mental retardation, early speech/language delay, middle ear problems, skeletal anomalies and decreased sensitivity to pain. Also includes a pattern of chronic sleep disturbances, arm hugging/hand squeezing, hyperactivity and attention problems, prolonged tantrums, sudden mood changes and/or explosive outbursts and self-injurious behaviors. |
| PRISMS is dedicated to providing information and support to families of persons with Smith-Magenis Syndrome (SMS), sponsoring research and fostering partnerships with professionals to increase awareness and understanding of SMS. | |
| Smith Magenis (UK) An online community for friends, family and people with SMS to share experiences, advice and to support each other. | |
| Smith-Magenis Syndrome Support Group A community of patients, family members and friends dedicated to dealing with Smith-Magenis Syndrome, together. | |
| Smith-Magenis Syndrome (SMS) Support Group (Daily Strength) Disrupted sleep patterns are characteristic of Smith-Magenis syndrome, typically beginning early in life. Affected people may be very sleepy during the day, but have trouble falling asleep and awaken several times each night, due to an inverted circadian rhythm of melatonin. | |
| Smoking and related issues Information Links: Smoking and Quitting Smoking Secondhand Smoke Smokeless Tobacco Smoking Cessation and Weight Gain Marijuana |
Health Effects of Cigarette Smoking From the Centers for Disease Control and Prevention. |
| Why Smoking Is Bad For You The fact that smoking is bad for you is no secret. We'll all seen the pictures of charcoal black lungs displayed in schools and in hospital and doctors waiting rooms. Despite these scare tactics people continue to smoke and new smokers adopt the habit every single day | |
| Have You Ever Wondered What's In a Cigarette? Cigarette smoke contains over 4,000 chemicals, including 43 known cancer-causing (carcinogenic) compounds and 400 other toxins. These include nicotine, tar, and carbon monoxide, as well as formaldehyde, ammonia, hydrogen cyanide, arsenic, and DDT. | |
| Smoke-free Homes and Cars Program The developing lungs of young children are severely affected by exposure to secondhand smoke for several reasons including that children are still developing physically, have higher breathing rates than adults, and have little control over their indoor environments. Children receiving high doses of secondhand smoke, such as those with smoking mothers, run the greatest risk of damaging health effects. | |
| The Health Consequences of Involuntary Exposure to Tobacco Smoke A Report of the US Surgeon General | |
| What is Secondhand Smoke? When non-smokers are exposed to secondhand smoke it is called involuntary smoking or passive smoking.Non-smokers who breathe in secondhand smoke take in nicotine and other toxic chemicals just like smokers do. The more secondhand smoke you are exposed to, the higher the level of these harmful chemicals in your body. | |
| Quit Smoking Facts, Stop Smoking Programs, Cessation Information A teen smoking cessation website with information about ways to quit smoking, tips on quitting cigarettes and facts about tobacco smoke (effects, lung cancer and health dangers, benefits of quitting, cigarette ingredients, nicotine addiction etc.). If you, or someone close to you, needs help with how to quit smoking cigarettes, dealing with the side effects of giving up tobacco, finding programs or related information - | |
| Quit Net QuitNet creates tailored smoking cessation and corporate wellness programs for public and private organizations. | |
| Stop Smoking Center Support Group If you're looking for advice, if you have some questions or if you need help getting through the rough spots the Stop Smoking Center Support Group is for you! Our support group is moderated by trained Health Educators. | |
| Stop Smoking Support Group Meetup Groups around the world. | |
| Quit Smoking Support Group and Stop Smoking Journal. Congratulations on your decision to stop smoking cigarettes! In our international quit smoking support group you will find caring and supportive people in various stages of quitting smoking who will help you to reach your goal of a smoke free life. Receive a FREE stop smoking journal on our site which is designed and maintained by ex-smokers to provide stop smoking help so you can keep your quit. | |
| Quitting Smoking During Pregnancy Smoking cigarettes is probably the No. 1 cause of adverse outcomes for babies. | |
| Smoking and your Baby: Need Help Putting Down That Cigarette? When you smoke you inhale poisons such as nicotine and carbon monoxide. These poisons get into the placenta, which is the tissue that connects you to your baby and sends oxygen and nutrients and eliminates wastes. These poisons keep your baby from getting the proper supply of nutrients and oxygen that he or she needs to grow. | |
| Chewing Tobacco: Not a Safe Alternative to Cigarettes Get the facts about chewing tobacco and other forms of smokeless tobacco. They're more harmful and addictive than you might think. | |
| Chewing Tobacco Dangers; Hazards Of Smokeless Tobacco Smokeless tobacco hazards involve many of the same chemicals and poisons as smoking cigarettes. People who chew tobacco for many years are 50 times more likely to get oral cancer, gum disease and lose their teeth than people who do not chew. The risk of other cancers, heart disease, and ulcerative colitis is 50-70% higher among chewers. | |
| The Dangers of Smoking (all forms) Most smokers are aware of the dangers of smoking. They may think that they have a right to smoke; after all, it is not against the law. Perhaps it is not so simple. When a smoker ends up in hospital needing treatment for emphysema, or lung cancer, their treatment costs money. The National Health Service is paid for out of our taxes. Their disease costs us money. | |
| Health Risks of Pipe Tobacco Smoking a pipe is associated with leisure and sophistication. There is a misconception that it is safe, but it has significant health risks. Although smoking a pipe is not quite as dangerous as smoking cigarettes, it does carry the same risks as cigar smoking, | |
| Cigar Smoking Injuries and Dangers Thousands also suffer tobacco-related injuries from smoking cigars or second-hand cigar smoke. | |
| What are the Dangers of Cigar Smoking? Cigar smoking poses as many health hazards to people as cigarette smoking. The smoke from cigars is absorbed into the body of the smoker and released into the air, exposing others to dangerous chemicals. | |
| Start Smoking Now Why do so many people start smoking then? Each year millions of people will light their first cigarette. Will it be you this year? | |
| Smoking Stinks Smoking is one of the worst things kids or adults can do to their bodies. Yet every single day about 3,900 kids between the ages 12 and 17 start smoking. | |
| How to Start Smoking – Should I Even Consider It? That advertising doesn’t reveal, however, the yellow fingers and teeth, bad breath, the smelly clothes, hair, and body that plague a smoker. These inevitable results of smoking are proof that smoking is not really cool. | |
| Reasons Why People Start and Continue to Smoke Some children may also begin to smoke if they have low self-esteem. Smoking may get them in with the "in crowd" and help them to make friends. If they smoke, then they will be accepted by their peers. Some children have said that they smoke to appear older and more grown up, especially if they are surrounded by young adults who smoke. | |
| You Can Control Your Weight as You Quit Smoking Congratulations on your decision to quit smoking! Quitting is one of the best actions you can take to improve your health. You may be concerned about gaining weight, but try not to worry about it as you quit. Focus on stopping smoking first, and then continue to improve your health in other ways, such as reaching and maintaining a healthy weight for life. | |
| Is Weight Gain Inevitable After You Quit Smoking? It's fairly common to gain weight after you stop smoking, especially in the first few months — but it isn't inevitable. | |
| How to Stop Smoking Without Weight Gain This article highlights the latest recommendations on how to stop smoking without weight gain. | |
| What Are The Medical Dangers Of Marijuana Use? The most potent argument against the use of marijuana to treat medical disorders is that marijuana may cause the acceleration or aggravation of the very disorders it is being used to treat. | |
| Marijuana Millions of people use marijuana habitually and many are quite addicted to the drug. | |
| The Dangers of Marijuana Kids get mixed messages about marijuana, but your message needs to be clear: | |
| Snoring Information Link |
Causes of Snoring The sound is created when air flows past and vibrates the relaxed tissue. Snoring has a variety of causes and contributing factors, and it can be troublesome when it wakes the sleeping snorer. Loud snoring can be especially disruptive to the snorer's spouse, and may require medical attention if the snoring person's breathing is actually obstructed. |
| Put an End to Snoring This website describes 12 approaches to snoring reduction – from throat sprays to surgery – and lists more than 75 snoring remedies and procedures that cure snoring. | |
| Snoring & Sleep Apnea Message Boards. | |
| British Snoring & Sleep Apnoea Association Aims to help snorers and their bed partners improve their sleep, returning them again to peaceful nights together. | |
| I Have Snoring Information on diagnosis, treatment, symptoms, along with personal stories and experiences with Snoring. | |
| Snoring Guide This guide was designed to help educate and inform you on the causes of and how to stop snoring.Finding cures for your problem isn’t just going to help your family, it will help your physical health in numerous ways. | |
| Social Interaction | The National Inclusion Project The National Inclusion Project serves to bridge the gap that exists between young people with disabilities and the world around them. We partner with communities and inclusive programs creating awareness about the possibilities that inclusion can bring. |
| The Importance of Social Interaction to Human Health Good social interaction is a key part of living well. Study after study lists good friendships, family relationships and health as the most important things to have in order to be happy and fulfilled. | |
| Sotos Syndrome | Sotos Syndrome Support Association Sotos Syndrome, also known as cerebral gigantism because of the distinctive head shape and size, is a genetic condition causing physical overgrowth during the first years of life. Ironically, this rapid physical development is often accompanied by delayed motor, cognitive and social development. Muscle tone is low, and speech is markedly impaired. |
| Sotos Syndrome Support Association of Canada To provide educational and emotional support to Canadian families of persons with Sotos syndrome and to provide a better understanding to parents, government and the public at large of Sotos syndrome. | |
| Spastic Paraplegia | Spastic Paraplegia Foundation SPF is the only organization dedicated to two groups of neurodegenerative disorders called Spastic Paraplegia and Primary Lateral Sclerosis These spinal cord diseases cause progressive weakness and spasticity in the muscles in the lower body. People generally go from difficulty walking to needing a cane and eventually a wheelchair. |
| Worldwide Education and Awareness for Movement Disorders WE MOVE is the Internet's most comprehensive resource for movement disorder information and the hub of movement disorder activities on the web. | |
| I Have Hereditary Spastic Paraplegia Information on diagnosis, treatment, symptoms, along with personal stories and experiences with Hereditary Spastic Paraplegia. | |
| Spasmodic Torticollis | National Spasmodic Torticollis Association Spasmodic Torticollis is a painful and debilitating neurological movement disorder. It is also known as "Cervical Dystonia." and is referred to by many as "torticollis." Approximately 3 in every 10,000 people - about 90,000 people in the United States - are known to suffer from ST. This movement disorder is caused by a dysfunction of the brain. |
| Torticollis Kids! This is a place for parents and caregivers of children withcongenital muscular torticollis to share information and ideas. You will find encouragment and support here from others dealing with torticollis in children. |
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| I Have Spasmodic Torticollis Information on diagnosis, treatment, symptoms, along with personal stories and experiences with Spasmodic Torticollis. | |
| Spasticity Also see conditions that might cause spacticity. |
Worldwide Education and Awareness for Movement Disorders WE MOVE is the Internet's most comprehensive resource for movement disorder information and the hub of movement disorder activities on the web. |
| Spasticity Support Groups (Index) Links to related support groups | |
| Chronic Spasticity Support Group To help and get support from people like you. | |
| I Have Muscle Spasticity Muscle Spasticity anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Muscle Spasticity. | |
| Spina Bifida Seel also Anencephaly Information Link |
Spina Bifida Association Over 250,000 Americans are in the Spina Bifida Community. An estimated 70,000 people in the United States are currently living with spina bifida, the most common permanently disabling birth defect. Spina Bifida is a neural tube defect that happens in the first month of pregnancy when the spinal column doesn’t close completely. |
| Anencephaly Stories "You are not alone in carring your child with Anencephaly to term.This is what Lucas' mom has to say to parents who have been given the adverse prenatal diagnosis of Anencephaly:" | |
| Spina Bifida Meetup Groups Meet with other local people with Spina Bifida, and those whose lives or loved ones have been affected by Spina Bifida. | |
| Spina Bifida Family Support (Indiana) If you are interested in joining our support group, please contact us. We'd love to have you and your family be a part of this great group! | |
| Spina Bifida Support Group A community of patients, family members and friends dedicated to dealing with Spina Bifida, together. | |
| Spina Bifida Support Group (Daily Strength) Birth defects caused by an incomplete closure of one or more vertebral arches of the spine, resulting in malformations of the spinal cord. | |
| I Was Born With Spina Bifida Personal Stories, Support, News and Chat For Those Born with Spina Bifida | |
| Anencephaly Information "Information about the birth defect anencephaly. Help for affected parents, caregivers, family and friends. " Available in 8 languages. | |
| Spinal Cord Injury Also see Paralysis Spinal Cord Injury: Treatments and Rehabilitation |
Foundation for Spinal Cord Injury Prevention As part of its ongoing prevention efforts, the FSCIPCC has proposed a "Wipe-out Spinal Cord Injury" program with a goal of reducing spinal cord injuries by 10% annually. |
| Back Up Trust The Back-Up Trust is a national charity that supports people; young or old with spinal cord injury. We run a variety of services that encourage self-confidence, independence and motivation following a traumatic life changing incident resulting in spinal cord injury. We also support friends, families and colleagues of all those who are affected to encourage integration and promote disability awareness and collaboration. | |
| National Spinal Cord Injury Association Founded in 1948, the National Spinal Cord Injury Association is the nation's oldest and largest civilian organization dedicated to improving the quality of life for hundreds of thousands of Americans living with the results of spinal cord injury and disease (SCI/D) and their families. This number grows by thirty newly-injured people each day. | |
| Mike Utley Foundation On November 17, 1991, Detroit Lions' offensive guard Mike Utley was paralyzed during an NFL game. His courageous "THUMBS UP" gesture has become the national symbol of Mike's fighting spirit. | |
| United Spinal Association Our mission is to provide expertise, create access to resources and strengthen hope thereby enabling people with spinal cord injuries and disorders (SCI/D) to fulfill their potential as active members of their communities. | |
| The Spinal Cord Injury Support Group promotes camaraderie through friendship, education, advocacy and recreation to enhance the quality of life for those affected by spinal cord injuries and disabilities. | |
| Regional Affiliate Chapters, Support Groups and State Resources Chapters and support groups provide peer support and other services. These are fundamental aspects of living that 500,000 people with spinal cord injuries or diseases must cope with after they have been rehabilitated and have returned to community life. | |
| Spinal Cord Injury Resources by State Below are spinal cord injury related US State organizations and associations that provide resources to those generally in their state. | |
| Spinal Cord Injury Support Group on FaceBook promotes camaraderie through friendship, education, advocacy and recreation to enhance the quality of life for those affected by spinal cord injuries and disabilities. | |
| Spinal Muscular Atrophy | Families of SMA Spinal Muscular Atrophy is a motor neuron disease affecting the voluntary muscles that are used for activities such as crawling, walking, head and neck control, and swallowing. |
| Spinal Muscular Atrophy Support Group A community of patients, family members and friends dedicated to dealing with Spinal Muscular Atrophy, together. | |
| I Have Adult Spinal Muscular Atrophy Information on diagnosis, treatment, symptoms, along with personal stories and experiences with Adult Spinal Muscular Atrophy. | |
| Spinal Muscular Atrophy (SMA) Support Group )Daily Strength) A number of different disorders, all having in common a genetic cause and the manifestation of weakness due to loss of the motor neurons of the spinal cord and brainstem | |
| Spinal Lumbar Stenosis Information Link |
A Patient's Guide to Lumbar Spinal Stenosis Spinal stenosis describes a clinical syndrome of buttock or leg pain. These symptoms may occur with or without back pain. |
| What is Spinal Stenosis It can occur in any one of the three regions of the spine: cervical, thoracic, and lumbar. In this article we will be discussing stenosis in the lumbar spine. The lumbar spine is also known as the lower back. | |
| I Have Spinal Stenosis Spinal Stenosis anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Spinal Stenosis. | |
| Spondylitis - see Ankylosing Spondylitis | |
| Spousal Abuse Also see our Abuse Index |
Fort Refuge A journey of healing from abuse we suffered: child abuse, incest, sexual assault, rape, domestic violence, ritual abuse, or psychological and verbal abuse. We feel that all types of abuse are damaging, and we do not minimize any person's experiences. It is our goal to reach out to as many fellow survivors as we can with compassion, understanding, and encouragement, |
| Daily Strength - Physical & Emotional Abuse Support Group Discussion boards. | |
| Abuse Survivors Meetup Groups Meet other local survivors of sexual, physical, or emotional abuse to share advice on surviving and coping. | |
| Abuse Support Boards Discussion areas. | |
| Help for Abused and Battered Women Getting out of an abusive or violent relationship isn’t easy. Maybe you’re still hoping that things will change. Maybe you’re afraid of what your partner will do if he discovers you’re trying to leave. Whatever your reasons, you probably feel trapped and helpless. | |
| I Am a Survivor of Spousal Abuse Read hundreds of true stories, share your own story anonymously, get feedback and comments, chat in the discussion forum, help others, meet new friends, and so much more-- all free. | |
| Online Cheating as a Form of Spousal Abuse Read hundreds of true stories, share your own story anonymously, get feedback and comments, chat in the discussion forum, help others, meet new friends, and so much more. | |
| Husband Battery - Battered Men - Abused Husbands There is little or no help for a male spouse being abused by a female spouse. Help on the Internet is aimed at man abusing woman. Many men are afraid or don't want to take action fearing the outcomes and consequences. | |
| Sprue - see Celiac Disease | |
| Stein-Leventhal Syndrome Information Link |
Polycystic Ovary Syndrome is a condition in which there is an imbalance of a woman's female sex hormones. This hormone imbalance may cause changes in the menstrual cycle, skin changes, small cysts in the ovaries, trouble getting pregnant, and other problems. |
| Polycystic ovary syndrome (PCOS) — Comprehensive overview covers symptoms, treatment of this common hormonal disorder. | |
| Stevens Johnson Syndrome | Stevens Johnson Syndrome Foundation Almost any medication including over-the-counter drugs, such as Ibuprofen, can cause SJS. Most commonly implicated drugs are anti-convulsants, antibiotics (such as sulfa, penicillin and cephalosporin) and anti-inflammatory medications. |
| Stevens Johnson Syndrome Created to encourage, enlighten, and inform SJS/TENS patients, their families, friends, medical students, doctors, media and anyone who will listen! | |
| Stevens-Johnson Syndrome Support Group A community of patients, family members and friends dedicated to dealing with Stevens-Johnson Syndrome, together. | |
| Stickler Syndrome | National Craniofacial Association The National Craniofacial Association has been dedicated to assisting children and adults who have craniofacial disorders resulting from disease, accident, or birth. |
| Stickler Involved People Stickler syndrome is a connective tissue disorder, a genetic malfunction in the tissue that connects bones, heart, eyes, and ears. This disorder is associated with problems of vision, hearing, bone and joint , facial and cleft palate, and heart. | |
| Stickler Syndrome Support Group (UK) We hope this site provides a starting point for people wanting information on Stickler syndrome and easy to follow instructions for accessing other sources of information on Stickler syndrome on the Internet. | |
| Stickler Syndrome Support Group A community of patients, family members and friends dedicated to dealing with Stickler Syndrome, together. | |
| Stickler Syndrome Support Group (Daily Strength) Discussion boards. | |
| Still's Disease Information Link |
International Still's Disease Foundation Still's Disease is a rare and often misunderstood disease which strikes both children and adults. Still's Disease is a form of arthritis that is characterized by high spiking fevers and evanescent salmon-colored rash. First described in children, it is now known to occur, much less commonly, in adults |
| Adult Onset Still's Disease Support Group A community of patients, family members and friends dedicated to dealing with Adult Onset Still's Disease | |
| Stress (Does not include PTSD) Information Links: Stress Stress and Heart Disease Stress Management Techniques |
Tap This Tool (Mayo Clinic) to combat stressHaving close friends and family on whom you can count has far-reaching benefits for your health. Here's how to build and maintain these essential relationships. |
| StressFree Network. We provide confidential assistance to individuals, business and occupational groups for whom stress is an important issue. We provide a continuum of wellness and stress related services; from diagnosis and assessment to implementation and solution. We provide solutions to stress. | |
| The Coffee Room "Wanna talk about it?" Stress meeting place for women. | |
| Stress Support Groups Links Annotated links | |
| Anxiety Support Groups Can Help You Relieve Stress And Anxiety If you suffer from chronic anxiety, you really don't need to live this way. Simply realizing you're not alone with this condition is a huge step forward in regaining your once upon a time mellow state, able to deal with stresses in a new, proactive and productive way | |
| Stress Discussion Boards Provided by SupportGroups.com | |
| Stress Management Support Group (Daily Strength) Discussion boards. | |
| Stress Management Support Group If not managed properly, stress can wreak havoc on your health. Share your experiences, questions, and tips with other members of our stress management group. | |
| Anxiety and Stress group To help and get support from people like you. | |
| Stress Management Support Group A community of patients, family members and friends dedicated to dealing with Stress Management, | |
| Stroke Information Links: Stroke Stroke Prevention |
American Stroke Association Stroke impacts a person’s body, behavior, and communication. But no one has to go through it alone. The ASA is here to provide information and support and to connect you with others, helping you make the most of your recovery. |
| National Stroke Association Stroke is the third leading cause of death in America and the No. 1 cause of adult disability. 90% of strokes are preventable. | |
| Pediatric Stroke Network Childhood Stroke survivors can have a host of disabilities caused by their stroke including speech and language difficulties, vision deficits along with learning disabilities and they may require speech therapy, occupational therapy, medications, special education, orthotics and more. Early diagnosis and intervention is the key to our children having as close to an average life as possible. | |
| Stroke Support Groups. "A stroke support group is a community organization for stroke survivors and their family members, friends and others. It helps people learn more about stroke, share their experiences about stroke, and become inspired to move forward after their stroke." | |
| American Heart Association Support Group Finder National stroke support group registry. To find a group near you, simply enter your ZIP code and a mile radius. If your initial search does not pull up any groups, try increasing your mile radius. | |
| The Stroke Network. "Stroke happens that fast and that unexpectedly. There are lightning strikes in the form of stroke happening around the world at least once per minute. Millions of people have suffered this disability and many of them do not have have the benefit of a stroke support group." | |
| The Internet Stroke Support Center. "Finding and participating in a support groups is a very important part of stroke recovery. The links provided on this page are provided as merely a starting point in begining a search for a suitable group." | |
| WebMD Stroke Support. "More than a half million Americans suffer strokes each year. Have you, a friend, or family member been a victim? Visit here to learn how to prevent stroke, to share your experience and recovery, and to get support from others." | |
| Stroke Support Meetup Groups Meet with local people who've suffered a stroke (or are caring for someone who has) for discussion of topics like rehab and re-learning, as well as for information and support. | |
| Stroke Support List Provided by Mama's Health | |
| Stroke Support Group Message board forums. | |
| Sturge-Weber Syndrome | Sturge-Weber Foundation Sturge-Weber Syndrome (encephelotrigeminal angiomatosis) is a congenital, non-familial disorder of unknown incidence and cause. It is characterized by a congenital facial birthmark and neurological abnormalities. Other symptoms associated with Sturge-Weber can include eye and internal organ irregularities. Each case of Sturge-Weber Syndrome is unique and exhibits the characterizing findings to varying degrees. |
| The Sturge-Weber Syndrome Community The founders felt it important that parents and patients have free and easy access to any and all available information on SWS. Oftentimes parents and individuals are overwhelmed when first hearing that they or their child has SWS. | |
| The Sturge-Weber Foundation UK Support group for families and adult sufferers affected by Sturge-Weber syndrome, a rare neurological disorder. | |
| Sturge-Weber Syndrome Support Group A community of patients, family members and friends dedicated to dealing with Sturge-Weber Syndrome | |
| Stuttering Information Link |
National Stuttering Association The largest self-help support organization in the United States for people who stutter. Our mission is to bring "hope, dignity, support, education, and empowerment to children and adults who stutter, their families, and the professionals who serve them." |
| Stuttering Foundation of America, The Provides free online resources, services and support to those who stutter and their families, as well as support for research into the causes of stuttering. | |
| Friends: The National Association of Young People Who Stutter FRIENDS is a national organization created to provide a network of love and support for children and teenagers who stutter, their families, and the professionals who work with them. | |
| International Stuttering Association While spoken word is taken for granted by most, the use of spoken language is challenging for millions of people who stutter around the world. For many of these individuals, daily communication is a constant struggle. For many of them, speech does not open doors but closes them for interpersonal, academic and professional development and fulfilment. | |
| Passing Twice An Informal Network of Gay, Lesbian, Bisexual, and Transgender Persons Who Stutter & Their Friends | |
| Stuttering Support Group A community of patients, family members and friends dedicated to dealing with Stuttering | |
| Sudden Arrhythmia Death Syndrome | Sudden Arrhythmia Death Syndromes (SADS) Foundation We are dedicated to save the lives and support the families of children & young adults who are genetically predisposed to sudden death due to heart rhythm abnormalities. |
| SADS (UK) Sudden arrhythmic death syndromeInformation F for the family and relatives of a young person who has died of Sudden Arrhythmic Death Syndrome - SADS sometimes called sudden adult death syndrome | |
| SADS (Australia) Sudden Arrhythmic Death Syndrome is common in people aged 5 - 35 it is an inherited disease which creates an abnormality in the heart, causing it to speed up/slow down to the point where it can no longer pump blood, in some cases, however, the heart will stop completely. | |
| Cardiac Risk in the Young (UK) CRY was founded in 1995 to raise awareness of conditions that can lead to Sudden Cardiac Death or Sudden Death Syndrome. | |
| Sudden Infant Death Syndrome Information Link |
Sudden Infant Death Syndrome Alliance First Candle/SIDS Alliance is uniting parents, caregivers and researchers nationwide with government, business and community service groups to advance infant health and survival. With help from a national network of member and partner organizations, we are working to increase public participation and support in the fight against infant mortality. |
| Any Baby Can, Inc. Every child deserves to be accepted, appreciated, and loved; receive proper nutrition, adequate health care, education, and all the things that will give him or her a chance for a healthy life. | |
| Daily Strength SIDS Group. "Sudden infant death syndrome (SIDS) is any sudden and unexplained death of an apparently healthy infant aged one month to one year." | |
| American SIDS Institute. "Founded in 1983, the American SIDS Institute, a national nonprofit health care organization, is dedicated to the prevention of sudden infant death and the promotion of infant health through an aggressive, comprehensive nationwide program." | |
| SIDS Resources on the Internet. "Below are links to sites that deal with the subject of Sudden Infant Death Syndrome. In addition to support for bereaved parents, a number of sites advance ways that potentially may help to prevent or reduce the risk of SIDS." | |
| SIDS Network This site is the growing collaborative effort of individuals from across the United States and around the world. This sites offers up-to-date information as well as support for those who have been touched by the tragedy of SIDS/OID. | |
| First Candle Dedicated to safe pregnancies and the survival of babies through the first years of life. Our current priority is to eliminate Stillbirth, Sudden Infant Death Syndrome, and other Sudden Unexpected Infant Deaths with programs of research, education and advocacy. | |
| Sudden Infant Death Syndrome / Cot Death (From MD India) Sudden infant death syndrome (SIDS) or cot death, happens when a healthy baby under the age of one year suddenly dies for no apparent reason. | |
| Suicide Information Link |
Suicide.org Suicide is NEVER the answer,
getting help is the answer. If you are suicidal, have attempted suicide,
or are a suicide survivor, you will find help, hope, comfort, understanding, support, love, and extensive resources here. |
| Yellow Ribbon Dedicated to preventing youth suicide and attempts by empowering individuals and communities through leadership, awareness and education; and by identifying and collaborating with support networks to reduce stigma and help save lives. | |
| The American Foundation for Suicide Prevention We are investing in groundbreaking research, new educational campaigns, innovative demonstration projects and critical policy work. And we are expanding our assistance to people whose lives have been affected by suicide, reaching out to offer support and offering opportunities to become involved in prevention. | |
| The American Association of Suicidology is an education and resource organization. The goal of the American Association of Suicidology (AAS) is to understand and prevent suicide. (Check out their Suicide Survivor Support Groups by State | |
| Heartbeat Peer support offering empathy, encouragement and direction following the suicide of a loved one. | |
| The Parents of Suicides mailing list provides an e-mail support group for parents whose children have died of suicide. It is intended to provide a place where parents can discuss the lives and deaths of their children with other parents whose children have died by suicide | |
| Suicide Support Groups in the United States. Links and lists. Canada support available on a linked page. | |
| Grief Support for Survivors of Suicide This site is devoted to those who are grieving the loss of a loved one by suicide. Sometimes in life, events occur that break the very foundation on which we stand. Our life, as we have known it, seems forever changed and we find ourselves in an unexpected struggle, first just to survive and then to move forward. | |
| National Suicide Bereavement Support Network Although the number of young male suicides is still high there has been an increase in the number of female suicides both teenage and in older age groups. These are not just numbers, each suicide death is a life lost. |
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| Suicide Attempt Support Meetup Groups Meet locally with individuals who have survived a suicide attempt and are trying to move on with their lives. Meet for support, discussion, and to share helpful advice with one another. | |
| Suicide Grief Support Forum Information and support for those touched by suicide | |
| Survivors Of Suicide To help those who have lost a loved one to suicide resolve their grief and pain in their own personal way. | |
| Heart and Soul Suicide Support Group on FaceBook. What's going on in your heart? Share with others. Many that are survivors of suicide are feeling the same, but feel that they are alone in those feelings. SHARE...it is a gift that we can all benefit from. | |
| Families & Friends Affected By Suicide Support Group (Daily Strength) Suicide affects not only the individual, but also the family and friends who provide support and love. This community is offered as a place for those affected by suicide to gather and gain strength from each other | |
| Supranuclear Palsy - see Progressive Supranuclear Palsy | |
| Sydenham's Chorea Also called St. Vitus' Dance |
Worldwide Education and Awareness for Movement Disorders WE MOVE is the Internet's most comprehensive resource for movement disorder information and the hub of movement disorder activities on the web. |
| St. Vitus' Dance (Sydenham's Chorea; Rheumatic Chorea) Medical Information. | |
| The Official Parent's Sourcebook on Sydenham Chorea Created for parents who have decided to make education and research an integral part of the treatment process. | |
| Synesthesia | American Synesthesia Association (ASA) To foster and promote the education and the advancement of knowledge of the phenomena of synesthesia, and to promote and provide a means for the people who experience and/or study synesthesia to be in contact with each other. They have a rare condition called Synesthesia, in which the customary boundaries between the senses appear to break down, sight mingling with sound, or taste with touch. |
| Synesthesia Research document | |
| The World of Synesthesia With the help of sophisticated behavioral brain-imaging and molecular genetic methods, researchers are coming closer to understanding what drives the extraordinary sensory condition called synesthesia. | |
| I Have Synesthesia Read true personal stories, chat & get advice, support and help from a group of 189 people who all say 'I Have Synesthesia' | |
| Syringomyelia | American Syringomyelia Alliance Project The symptoms of SM are numerous and a person may have various combinations of different symptoms. Symptoms tend to develop slowly, although sudden onset may occur with coughing and straining. Common symptoms include: loss of sensitivity, especially to hot and cold, muscle weakness and spasticity, motor impairment, loss of bowel and bladder control, as well as osteoporosis and scoliosis. Patients suffer from headaches and chronic pain. |
| Syringomyelia Support Group A community of patients, family members and friends dedicated to dealing with Syringomyelia, together. | |
| Syringomyelia Support Group (Daily Strength) Syringomyelia is a disorder in which a cyst or tubular cavity forms within the spinal cord. | |
| I Have Syringomyelia Information on diagnosis, treatment, symptoms, along with personal stories and experiences with Syringomyelia. | |
Index
Alphabetical List: |
Quick Links to selected categories: |
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|---|---|---|---|
Support Group Home Page Includes directions, hints for use, etc. |
See the "Medical Information" page for Medical Definitions, Pharmaceuticals and Home Remedies, Advocacy Groups, Medical Articles | ||
| Have We Missed a Support Group or Ailment? We are constantly looking for more information and more links. Please help us improve our site and service. The Internet had millions of web pages dedicated to medical conditions and support groups; we can only sample a few of them. If you know any sites we should include write to suggestions@slightlycreaky.com | |||
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