Support Groups T, U, V, W, X, Y, Z
How to Use -- Contents
Slightly Creaky does research to find the links you would most likely need and provides them for you in an easy-to-find format. You can access the various categories from any of our pages using the top or side menus. Each category has generalized headings, followed by more specific ones.
Many support groups are named for people, are generalized and provide assistance for several related conditions, or are otherwise difficult to interpret. This page provides links alphabetically based upon specific ailments. Please scroll down, use the index link, or use your browser's "find" or "search" feature to get the the area you are seeking.
In addition to support groups, we include links to informational sites on these conditions.
Please Contact us if you find a broken or bad link.
Links to Support Group pages:
Alphabetical List: |
Quick Links to selected categories: |
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| Weight Issues | |||
Support Group Home Page Includes directions, hints for use, etc. |
See the "Medical Information" page for Medical Definitions, Pharmaceuticals and Home Remedies, Advocacy Groups, Medical Articles | ||
| Have We Missed a Support Group or Ailment? We are constantly looking for more information and more links. Please help us improve our site and service. The Internet had millions of web pages dedicated to medical conditions and support groups; we can only sample a few of them. If you know any sites we should include write to suggestions@slightlycreaky.com | |||
Caution - Proceed with care. Slightly Creaky is not responsible for the content of web sites listed here nor the actions taken by the people owning, managing, or participating on them.
This listing is the result of more than 500 hours of research. It is the property of Slightly Creaky and may not be reproduced in any form. Every attempt has been made to provide an accurate description of each organization.
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Updates: We review and update this page every 4 months. Many support groups change names or even terminate their services. Should you discover a bad link or wish to suggest that we add one, please contact suggestions@slightlycreaky.com
We try to avoid commercial sites, but in many cases they are the only ones who provide information and support. If you are looking to buy or sell medical products, please use a generalized search engine.Support Groups "T"
"T"
| Takayasu Disease (Takayasu's Arteritis) Information Link |
Takayasu's Arteritis Takayasu's arteritis mainly affects young girls and women under 40. The exact cause of the disease is not known. |
| Takayasu's Arteritis Support Group A community of patients, family members and friends dedicated to dealing with Takayasu's Arteritis | |
| Tardive Dyskinesia | Tardive Dyskinesia Center A condition that may develop in patients who use metoclopramide, a drug sold under brand names such as Reglan in the United States. |
| Worldwide Education and Awareness for Movement Disorders WE MOVE is the Internet's most comprehensive resource for movement disorder information and the hub of movement disorder activities on the web. | |
| National Mental Health Association Mental Health America is the country’s leading nonprofit dedicated to helping ALL people live mentally healthier lives. | |
| Tardive Dyskinesia Group To help and get support from people like you. | |
| I Have Tardive Dyskinesia Information on diagnosis, treatment, symptoms, along with personal stories and experiences with Tardive Dyskinesia. | |
| Taste Disorders Information Link |
Smell and Taste Many of us take our sense of taste for granted, but a taste disorder can have a negative effect on a person’s health and quality of life. If you are having a problem with your sense of taste, you are not alone. |
| Taste And Smell Disorders Medical abstract. | |
| I Have Taste Disorder Information on diagnosis, treatment, symptoms, along with personal stories and experiences with Taste Disorders. | |
| Tay-Sachs Disease | National Tay-Sachs & Allied Diseases Association NTSAD is dedicated to the treatment and prevention of Tay-Sachs, Canavan and related genetic diseases, and to providing information and support services to individuals and families affected by these diseases, as well as the public. Strategies for achieving these goals include research, family services, genetic screening, public and professional education and advocacy. |
| Tay-Sachs Disease Support Group (Daiy Strength) Discussion boards. | |
| Tay-Sachs Disease (From Kids' Health) Each year, about 16 cases of Tay-Sachs are diagnosed in the United States. Although Ashkenazi Jews (Jews of central and eastern European descent) are at the highest risk, it is now also prevalent in non-Jewish populations, including people of French-Canadian/Cajun heritage. | |
| Tay-Sachs Disease Support Group A community of patients, family members and friends dedicated to dealing with Tay-Sachs Disease | |
| Teeth and Gum Care - see Dental | |
| Teething Information Link |
Mums and Dads Teething Babies Support on FaceBook. This is a site for mums and dads going crazy with their teething babies. Advice and support for parents who are struggling with their childs symptoms. |
| Teething Message boards. | |
| Teething Message boards. | |
| Coffee House: Teething/Controlled Crying Netmums is a wonderful source of information and support. | |
| TemporoMandibular Joint Disorders Information Link |
TMJ Association We understand that patient education, advocacy, and the provision of locally accessible support systems are central to achieving that goal. |
| Temporomandibular Disorders (WebMD) occur as a result of problems with the jaw, jaw joint, and surrounding facial muscles that control chewing and moving the jaw. These disorders are often incorrectly called TMJ, for temporomandibular joint. | |
| Temporomandibular Joint Disorders Online Health Community and Support Group Information, share experiences about Temporomandibular Joint Disorders (TMJ), connect with peers, and get answers | |
| Temporomandibular Joint Disorder Group To help and get support from people like you. | |
| Tension Headache - see Headache or Stress | |
| Tethered Spinal Cord | Tethered Spinal Cord Syndrome Spinal cord tethering is a common cause of deterioration in a child with Spina Bifida. It is estimated that from 20-50% of children with Spina Bifida will, at some time, require surgery to untether the spinal cord, making this operation the second most common operation (behind shunt operations) in these children. This article will address some of the common questions that have been raised about spinal cord tethering. |
| NINDS Tethered Spinal Cord Syndrome Information Tethered spinal cord syndrome is a neurological disorder caused by tissue attachments that limit the movement of the spinal cord within the spinal column | |
| Pull-thru Network Providing education, information, support and advocacy for those individuals, and the families of those individuals, who are affected by any congenital anorectal, colorectal or urogenital disorder and any of the variety of related diagnoses. | |
| Families with Tethered Spinal Cord Syndrome on FaceBook This group was created for family members with Tethered Spinal Cord Syndrome. | |
| Tethered Spinal Cord Syndrome Resources List of online and community groups with information and help about this condition. | |
| Coffee House Tethered Spinal Cord Message boards. If you are a member with a disability or a parent/relative/carer of a child with special needs, you can talk to other netmums members about your experiences here. | |
| Tetrasomy Syndrome | Tetrasomy/Pentasomy X Support List As parents of children who are diagnosed with tetrasomy x and pentasomy x syndromes, we understand how essential it is for them and their families seeking support and also for educators and professionals working with the families to have access to information. |
| Chromosome 18 Registry & Research Society on FaceBook. Composed primarily of the parents of individuals with a chromosome 18 abnormality. We are also proud to count among our members affected individuals, extended family members, and professionals. | |
| Thalassemia | Berloni Foundation Against Thalassemia The term "Thalassemia" implies a genetic disorder which is characterised by a reduced or erroneous production of haemoglobin, the respiratory pigment contained in the red cells. It is today possible to cure the disease by way of performing bone marrow transplant using a compatible donor and in this way replacing diseased cells whit healthy ones. |
| Iron Disorders Institute An iron disorder occurs when iron is out of balance in the human body. | |
| The Thalassemia Support Foundation Founded by patients, parents, and friends affected by Thalassemia. Our primary goal is to help improve the quality of life for all patients with this terrible disease. | |
| Thalassemia Patients and Friends Discussion and support borads. | |
| Thrombocytopenia | TAR Syndrome The main characteristics of TAR Syndrome are low platelet values, the absence of radii bones (arm) and other skeletal abnormalities. Other clinical features are cardiac abnormalities and cow's milk allergies or intolerance. These children also tend to have elevated white blood cells. |
| Thrombocytopenia Mailing List "I have thrombotic thrombocytopenic purpura(ttp). This mailing list is designed to get in touch with other people who have this." | |
| Thrombocytopenic Purpura Support Group (Daily Strength) Discussion boards | |
| NAIT Parent We are NAIT parents ourselves and created this website to try to help others. Our goal is to provide information, hope and answers to other NAIT parents, friends and relatives. | |
| Thrombosis and Thrombophilia | National Blood Clot Alliance National Blood Clot Alliance is a patient led advocacy group dedicated to promote patient and public awareness of signs and symptoms of deep vein thrombosis (DVT) and pulmonary embolism (PE). |
| Thrombosis and Thrombophilia Support Group on FaceBook There is not a whole lot of research done with this disorder in regards to treatment plans or even a cure. My hopes is that by supporting this organization that supports me, we can raise money to allow more research to be done | |
| Thrombophilia Meetups Around the World Local Groups | |
| Thyroid Diseases including Cancer Information Links: Thyroid Cancer Thyroid Disease Thyroiditis |
Light of Life Foundation Thyroid cancer is a tumor or growth located within the thyroid gland. Thyroid cancer is uncommon, accounting for only about 1 out of every 100 cancers in the United States. The outlook with treatment is excellent – most thyroid cancers can be totally removed with surgery. |
| American Thyroid Association, The Provides outstanding leadership in thyroidology by promoting excellence and innovation in clinical care, research, education, and public policy. | |
| ThyCa: Thyroid Cancer Survivors' Association TCreated and is maintained by thyroid cancer survivors. We have been developing a network of services that link thyroid cancer survivors and health care professionals around the world. Our mission is simple: to Educate, to Participate, to Communicate, and to Support Research, for a future free of thyroid cancer. | |
| American Foundation of Thyroid Patients The most common problems that develop in the thyroid include: Hypothyroidism , Hyperthyroidism, Goiter, Thyroid Nodules, Thyroid Cancer, and Thyroiditis. | |
| Thyroid Foundation of America Your thyroid gland tells every cell in your body the rate at which it should function. Having too little hormone, called hypothyroidism, puts you into a dragging slowdown. This is a problem for more than 10 million Americans-of whom 8 million don't know it. | |
| Daily Strength - Thyroid Cancer Support Group Message boards and discsuuion groups. |
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| Thyroid Cancer Support Groups Listing of nation-wide groups (US) | |
| Thyroid Cancer Support Group A community of patients, family members and friends dedicated to dealing with Thyroid Cancer, together. | |
| Tietze Syndrome - see Costochondritis Syndrome | |
| Tics | Worldwide Education and Awareness for Movement Disorders WE MOVE is the Internet's most comprehensive resource for movement disorder information and the hub of movement disorder activities on the web. |
| Facial Tics New York Times health article | |
| Tics Discussion board | |
| Tic Disorders A Clear Practical Approach for the Parents. Tics are involuntary twitches that may involve any voluntary muscle groups. | |
| Tinnitus (Also see Deaf & Hearing Loss) Information Link |
American Tinnitus Association Tinnitus is the perception of ringing, buzzing, roaring, or other noises in the ears or head – when there is no external source of the noise. ATA provides tinnitus information, urges governmental and private organizations to support public policies impacting hearing issues, funds the nation’s brightest researchers, and facilitates self-help groups around the country. |
| Tinnitus Online Community Some of the best help comes from other people who've been there. These pages are an attempt to aid online communication between people with tinnitus. | |
| The Tinnitus Support Message Board is a place of comfort where those with tinnitus can meet to exchange information, advice, and support. | |
| 7 Ways You Should Know to Manage Tinnitus Problem (article) Tinnitus is a problem that can be treated and it is important that you know all the options available to help you manage tinnitus problems effectively. | |
| Cork Tinnitus Support Group (Ireland) Our group consists of people who have tinnitus, some for many years, and who have learned to live full lives in spite of the condition. We believe that the encouragement and support from someone who has learned to live with tinnitus is particularly valuable. | |
| Tinnitus Support Group A community of patients, family members and friends dedicated to dealing with Tinnitus. | |
| Tinnitus Support Group (Daily Strength) Discussion and support boards. | |
| Tobacco Addiction and Stop Smoking Support - See Smoking | |
| Tooth Problems - see Dental | |
| Tourette Syndrome Information Link |
Joshua Center The Joshua Child and Family Development Center is a non-profit organization that supports programs designed to improve the lives of individuals and families living with Tourette Syndrome, Asperger Syndrome, Obsessive Compulsive Disorder and their Associated Disorders through research, education, social and clinical programs. |
| Tourette Syndrome Association Our mission is to identify the cause of, find the cure for and control the effects of Tourette Syndrome. We offer resources and referrals to help people and their families cope with the problems that occur with TS. We raise public awareness and counter media stereotypes about TS. | |
| Worldwide Education and Awareness for Movement Disorders WE MOVE is the Internet's most comprehensive resource for movement disorder information and the hub of movement disorder activities on the web. | |
| Tourette Syndrome Foundation of Canada Assisting individuals affected by Tourette Syndrome and its associated disorders. We are dedicated to improving the quality of life for those with, or affected by, Tourette Syndrome through programs of education, advocacy, self-help and the promotion of research. | |
| Tourette Syndrome Support Group A community of patients, family members and friends dedicated to dealing with Tourette Syndrome. | |
| Tourette Syndrome Meetup Groups Meet with other local people with Tourette Syndrom. Discuss new treatments, current events, and offer support to one another. | |
| Tourette Syndrome & Tic Disorders Support Group (Daily Strength) Discussion and support boards. | |
| Tourette Syndrome Support Group This is a "support" group for thos of us with Tourette Syndrome in our lives. Some of us have young chilren, some have older children, some have grandchildren even. | |
| Toxic Shock Syndrome Information Link |
Toxic Shock Syndrome (Mayo Clinic) Call your doctor immediately if you experience the signs or symptoms of toxic shock syndrome. This is especially important if you're menstruating or have just finished menstruating and have been using tampons or if you have a skin or wound infection. |
| Toxic Shock Syndrome Support Group A community of patients, family members and friends dedicated to dealing with Toxic Shock Syndrome. | |
| Toxic Shock Syndrome Support Group (Daily Strength) Discussion boards | |
| I Have Toxic Shock Syndrome Information on diagnosis, treatment, symptoms, along with personal stories and experiences with Toxic Shock Syndrome. | |
| Tracheo-Oesophageal Fistula | Tracheo-Oesophageal Fistula and Oesophageal Atresia Support Group TOFS is a charity dedicated to supporting the families of children born unable to swallow. Through our website, we aim to provide good quality information, signposting to useful resources and help members to make contact with each other. |
| Coffee House - Tracheo-Oesophageal-Fistula If you are a member with a disability or a parent/relative/carer of a child with special needs, you can talk to other netmums members about your experiences here. | |
| TOF (Tracheo Oesophageal Fistula) Group on FaceBook. This group is for anyone that was born with the TOF condition or is a parent of a TOF child. | |
| Tracheo Oesophageal Fistula - Awareness on FaceBook Without surgical intervention, this causes air to pass from the windpipe to the foodpipe and stomach. It can also allow stomach acid to pass into the lungs. It's a rare congenital condition that affects one in every 4,500 babies. | |
| Transient Ischemic Attack (TIA, Mini-Stroke) Information Link |
Research Notes on Transient Ischemic Attack A transient ischemic attack produces symptoms similar to a stroke, but lasts only a few moments and causes no permanent damage. A TIA is sometimes considered to be a warning sign as 1 out of 3 people who suffer a TIA eventually have a strok |
| What is a TIA TIAs occur when a blood clot temporarily clogs an artery, and part of the brain doesn't get the blood it needs. The symptoms occur rapidly and last a relatively short time. | |
| I Had a Transient Ischemic Attack Information on diagnosis, treatment, symptoms, along with personal stories and experiences with Transient Ischemic Attack. | |
| Traumatic Stress Also see PTSD and Stress |
Sidran Foundation Because many people underestimate the developmental, emotional, psychological, and spiritual injuries that can result when people experience or witness traumatic events, Sidran Traumatic Stress Institute helps people understand, recover from, and treat traumatic stress (including PTSD), dissociative disorders, and co-occurring issues, such as addictions, self injury, and suicidality. |
| Tremor Also see Essential Tremor Information Link |
National Tremor Foundation, The We aim to offer a support and advice to all sufferers of tremor. The most common of these is essential tremor, quite often hereditary, but we also have members with more complex and unusual tremors such as writing tremor, primary orthostatic tremor and myoclonic dystonic to name a few. |
| Worldwide Education and Awareness for Movement Disorders WE MOVE is the Internet's most comprehensive resource for movement disorder information and the hub of movement disorder activities on the web. | |
| Treacher Collins | Treacher Collins Connection (Site down January, 2011) Treacher Collins syndrome is a genetic craniofacial syndrome that is characterized by a range of distinctive facial anomalies. The main characteristics of TCS are downward slanting eyes, small lower jaw, and malformed or missing ears. These anomalies cause hearing, breathing, and eating problems. Individuals and families also struggle with the psychological aspects of having a facial difference. |
| Treacher Collins Family Support Group (UK) (Site down January, 2011) To meet the needs of families and individuals, to offer support and friendship to families and individuals, to seek to gain greater knowledge and understanding of Syndrome, to offer advice to families and individuals on various aspects of the syndrome, and to help develop a clear policy on areas such as facial surgery, hearing aids and genetic counselling. | |
| TCS A Personal View The gene responsible for this syndrome has now been located and identified. It has been named the "Treacle" gene. You can read the articles about when the Chromosome was identified in 1991 and when the gene was identified in 1996: | |
| Treacher Collins Syndrome Support Network Our organization and programs exist to serve the Treacher Collins community of patients and families. | |
| The Treacher Collins Family Support Group Forum The Forum is here for TC Families, Individuals, Professionals or anyone who has an interest in Treacher Collins Syndrome to contact others. | |
| National Craniofacial Association The National Craniofacial Association has been dedicated to assisting children and adults who have craniofacial disorders resulting from disease, accident, or birth. | |
| Trichotillomania | Trichotillomania Friends A community to support people with trichotillomania (compulsive hair pulling). We aim to discuss, help and mutually support each other in our efforts to understand and control this impulse control disorder. |
| The Trichotillomania Learning Center To end the suffering caused by hair pulling disorder, skin picking disorder, and related body-focused repetitive behaviors. | |
| About Trichotillomania This disorder is characterized by repetitive hair pulling. Hair is most often pulled from the scalp, but it may be pulled from any area of the body; eyelashes and eyebrows are commonly pulled and in some cases, pubic hair, and hair from the extremities is pulled as well. | |
| Trichotillomania (Hair Pulling) Support Group (Daily Strength) Discussion and support boards. | |
| Trichotillomania Meetup Groups Meet with other local people with Trichotillomania (compulsive hair pulling) to share stories, treatment advice, and general support. | |
| Trigeminal Neuralgia | Trigeminal Neuralgia (Mayo Clinic) The disorder may affect your interaction with friends and family, your productivity at work, and the overall quality of your life. You may find encouragement and understanding in a support group. Group members often know about the latest treatments and tend to share their own experiences. |
| Trigeminal Neuralgia Association Trigeminal Neuralgia is a pain that is described as among the most acute known to mankind. TN produces excruciating, lightning strikes of facial pain, typically near the nose, lips, eyes or ears. | |
| Trigeminal Neuralgia: You're Not Alone A collection of support groups and information links. | |
| TNA Facial Pain Association Patients, medical professionals and loved ones can find support for trigeminal neuralgia and other facial pain conditions. | |
| UK and Ireland Trichotillomania Support Group To provide an easily accessible means for UK Trich sufferers to find out about, contact and meet up with one another. | |
| Trigeminal Neuralgia Association of Canada People with this disorder can feel helpless and isolated. The Association has a mission to provide support and information to anyone with Trigeminal Neuralgia, their family, friends and other members in the community. | |
| Trigeminal Neuralgia Support on FaceBook This group is for anyone who has suffered from this disorder and the people who love them. | |
| Trigeminal Neuralgia Support Group A community of patients, family members and friends dedicated to dealing with Trigeminal Neuralgia. | |
| Living With TN If you or a loved one is suffering (or has suffered from) Trigeminal Neuralgia, this is the place for you. We are here for information, support, and friendship. | |
| Trigeminal Neuralgia Support Group (Daily Strength) Discussion and support groups. | |
| Triple X Syndrome | Triple X Support Group A few of the most common difficulties faced are:- a slightly lower I.Q. level, varying from 10-15 points below the average, learning difficulties, speech delay, co-ordination problems both gross and/or fine motor skills, emotional behavioural problems, taller in stature than siblings and hypotonia (low muscle tone). |
| Triple X Syndrome Triple X syndrome results from an extra copy of the X chromosome in each of a female's cells. As a result of the extra X chromosome, each cell has a total of 47 chromosomes instead of the usual 46. | |
| Trisomy Trisomy 21 - see Down Syndrome |
Trisomy Online Trisomy Online is a free email based support group that was formed in 1997 for families and professionals whose lives have been touched by the diagnosis of a trisomy condition. |
| From Families To Families Information about all forms of Trisomy. Whether their child was diagnosed prenatal, at birth, or even years later, visited a short while, or presently brightens their day, here you'll find Families, Sharing - Growing in Love, while Living with Trisomy. Most of the linked family web pages will have Trisomy support organization links of their own, but this site is specifically for families to connect with other families through their own web pages. Check the individual sites for contact information. | |
| KS&A KS&A’s mission is to help individuals with one or more extra X and/or Y chromosomes and their families lead fuller and more productive lives. We endeavor to fulfill this mission of satisfying unmet needs and improving the lives of individuals and families affected by X and Y chromosome aneuploidies including 47XXY, Klinefelter syndrome, Trisomy X, XYY syndrome and associated conditions. | |
| Trisomy Kids Are Special To raise awareness of all trisomy (especially rarer trisomy) conditions, and to raise funds for the support of trisomy kids through information and other resources. | |
| Trisomy 9 International Parent Support Trisomy 9 refers to the number 9th chromosome being affected, though due to being so rare it has not yet been given another name. | |
| Living with Trisomy 13 This site focuses on bringing together the families of children diagnosed with Patau Syndrome. Also called Trisomy 13 Syndrome, having a third (extra) number 13 chromosome, occurs about 1 in 5,000 live births. Trisomy 13 children have multiple abnormalities. Some include heart defects, brain defects, cleft lip, cleft palate. The most severe are visual abnormalities, omphalocele, proboscis and holoprosencephaly | |
| Support Organization for Trisomy 13 and 18 Providing support and understanding to families involved in issues and decisions surrounding Trisomy 18, 13 and related chromosomal disorders. Support is provided during prenatal diagnosis, the child's life and after the child's passing. | |
| Trisomy 18 Support Trisomy 18 is also called Edwards syndromeand occurs in about 1:3000 live births. Trisomy 18 is usually fatal, with most of the babies dying before birth and those who do make it to birth typically living only a few days. However, a small number of babies live at least one year. | |
| T18 Moms This site is dedicated to families coping with a diagnosis of Trisomy 18, Edwards syndrome. | |
| Tuberculosis Information Link |
Managing Fear of Tuberculosis Discontinued blog with a huge amount of medical information. |
| Tuberculosis (Mayo Clinic) Undergoing treatment for tuberculosis is a complicated and lengthy process. But the only way to cure the disease is to stick with your treatment. You may find it helpful to have your medication given by a nurse or other health care professional so that you don't have to remember to take it on your own. In addition, try to maintain your normal activities and hobbies, and stay connected with family and friends. | |
| TB Online Support Group To meet other families coping with TB and doctors who treat the disease. | |
| Tuberculosis Support Group and Health Community For individuals and family members of individuals who have been diagnosed with tuberculosis. | |
| Tuberculosis Forum A health community featuring member and doctor discussions ranging from a specific symptom to related conditions, treatment options, medication, side effects, diet, and emotional issues surrounding medical conditions. | |
| Healia Health Community for Tuberculosis Get Tuberculosis information, share experiences, connect with peers, and get answers to your questions from health professionals | |
| I Have Tuberculosis Information on diagnosis, treatment, symptoms, along with personal stories and experiences with Tuberculosis. | |
| Tuberculosis Support Group A community of patients, family members and friends dedicated to dealing with Tuberculosis. | |
| Tuberculosis (TB) Support Group (Daily Strength) Discussion and support boards. | |
| Tuberous Sclerosis | Tuberous Sclerosis Alliance The Tuberous Sclerosis Alliance is dedicated to finding a cure for tuberous sclerosis while improving the lives of those affected. (TSC) is a genetic disorder that causes tumors to form in many different organs, primarily in the brain, eyes, heart, kidney, skin and lungs. You will see it referred to both as tuberous sclerosis (TS) and tuberous sclerosis complex (TSC). |
| Tuberous Sclerosis Association, The (UK) The Tuberous Sclerosis Association, the UK charity that supports sufferers, promotes awareness, and seeks the causes and best possible management of Tuberous Sclerosis | |
| Tuberous Sclerosis International (TSI) (Netherlands - In Dutch) Tuberous Sclerosis (Epiloia or Bourneville's disease) is a common genetic condition which produces abnormal growths in the body from birth throughout life. It can severely affect development and health. | |
| Turner's Syndrome also see Noonan Syndrome Information Link |
Turner's Syndrome Society of the United States Turner syndrome (TS) is a chromosomal condition that describes girls and women with common features that are caused by complete or partial absence of the second sex chromosome. TS occurs when one of the two X chromosomes normally found in females is missing or contains certain structural defects. |
| The Magic Foundation Major Aspects of Growth In Children (MAGIC) is made up of more than 25,000 families. The majority of us are parents of children with growth disorders and others are affected adults. | |
| Turner Syndrome Health Article. "Turner syndrome is a genetic disorder seen in girls that causes them to be shorter than others and to not mature sexually as they grow into adulthood. The severity of these problems varies among affected individuals." | |
| Turner Syndrome Society of the UK The Society provides accurate and up to date information on Turner Syndrome and the many aspects of living with the condition on a daily basis. We hope you find our website useful and friendly. | |
| Turner Syndrome Society of Canada provides support services for individuals with TS and their families and disseminates up-to-date medical information to families, physicians and the general public. | |
| Turner Syndrome Support Group A community of patients, family members and friends dedicated to dealing with Turner syndrome | |
| Turner Syndrome Support Group (Daily Strength) Discussion and support boards. | |
| Twin to Twin Transfusion Syndrome | Twin to Twin Transfusion Syndrome Foundation Twin to Twin Transfusion Syndrome (TTTS) is a disease of the placenta (or afterbirth) that affects identical twin pregnancies. |
| International Institute for the Treatment of Twin to Twin Transfusion Syndrome Twin Transfusion Syndrome occurs when twins (or other multiples) share a single placenta that contains blood vessels which connect the twins. These inter-connections may cause one baby (the recipient) to get too much blood, thereby overloading his or her cardiovascular system. This baby may die from heart failure, while the other baby may die from the loss of blood. | |
| Twin to Twin Transfusion Syndrome Australia Family and friends can be a wonderful source of support during this time, but it can become tiring explaining TTTS to each person. TTTS Australia Inc. is an Australian group of parents who have experienced a pregnancy affected by TTTS and whose aim is to provide assistance to those who need it. | |
| Twin to Twin Transfusion Syndrome Resources | |
| Twin to Twin Transfusion Syndrome Support Group om FaceBook This page is for those who are facing twin to twin transfusion syndrome or have faced it in the past. | |
| Twin 2 Twin, the UK Twin to Twin Transfusion Syndrome Association, is made up of parents, professional carers, and research professionals, all dedicated to raising the awareness of the syndrome, funding research, and providing care and advice to sufferers. | |
| Tyrosinemia | Tyrosinemias A group of inherited disorders of amino acid metabolism, each caused by an enzymatic defect effecting tyrosine catabolism, which leads to elevated levels of tyrosin |
| What is Tyrosinemia? There are three types of tyrosinemia. Each has distinctive symptoms and is caused by the deficiency of a different enzyme. | |
| Daily Strength DailyStrength.org is the most comprehensive health network of people sharing their advice, treatment experiences, and support. | |
| I Have Tyrosinemia Information on diagnosis, treatment, symptoms, along with personal stories and experiences with Tyrosinemia. | |
Support Groups "U - V"
"U" - "V"
Ulcer |
Helicobacter Pylori Infection Support Group Informatiomn and Message boards |
| Healia Health Community for Peptic Ulcer. Information, share experiences about Peptic Ulcer, connect with peers, and get answers to your Peptic Ulcer questions from health professionals. | |
| Peptic Ulcers Support Group (Daily Strength) Discussion and support boards. | |
| I Have Peptic Ulcer Information on diagnosis, treatment, symptoms, along with personal stories and experiences with Peptic Ulcer | |
| Corneal Ulcer An open sore in the cornea; and tissue loss because of inflammation produces an ulcer. The ulcer can either be located in the centre of the cornea and greatly affect vision or be placed in the periphery and not affect it so much. | |
| Duodenal Ulcer A sore in the lining of your stomach or your duodenum, the first part of your small intestine. A burning stomach pain is the most common symptom | |
| Ulcerative Colitis | Crohn's and Colitis Foundation of America Dedicated to finding the cure for Crohn's disease and ulcerative colitis |
| Ulcerative Colitis (Mayo Clinic) If signs and symptoms are severe, your life may revolve around a constant need to run to the toilet. In some cases, you may barely be able to leave the house. When you do, you might worry about an accident, and this anxiety only makes your symptoms worse. | |
| Ulcerative Colitis Online Support Group A community of patients, family members and friends dedicated to dealing with Ulcerative Colitis. | |
| Crohn's Disease & Ulcerative Colitis Support Group (Daily Strength) Discussion and support boards. | |
|
Also see Rare & Orphan Diseases. |
Undiagnoses Illnesses. "My Personal story of living with an undiagnosed illness. I decided to start my own website because I need to express my anger, frustration and suffering. The lifestyle changes it causes, the way other's treat you, the disrespect shown by some people who have no idea what life is. like. I'm sure so many can relate." Includes an "Undiagnosed Illness Forum" |
| WebMD: Undiagnosed Illnesses. Information and resources. | |
| Undiagnosed Symptoms Online Support Group A community of patients, family members and friends dedicated to dealing with Undiagnosed Symptoms, together. | |
| In Need of Diagnosis. "INOD’s mission is to provide help and support for individuals distressed with disorders that have eluded medical diagnosis and to identify and encourage the implementation of protocols that will facilitate quicker and more accurate diagnosis." | |
| Syndromes Without A Name. "Providing support to the families of children living with an undiagnosed medical condition." | |
| I Have An Undiagnosed Illness Read true personal stories, chat & get advice, support and help from a group of 30 people who all say 'I Have An Undiagnosed Illness' | |
| Urea Cycle Disorder | National Urea Cycle Disorder Foundation Dedicated to the identification, treatment and cure of urea cycle disorders. A urea cycle disorder is a genetic disorder caused by a deficiency of one of the enzymes in the urea cycle which is responsible for removing ammonia from the blood stream. |
| Urea Cycle Disorder Discussion Boards. This site helps network and support family members and caregivers dealing with these rare inherited diseases. | |
| Urea Cycle Disorders Consortium A team of doctors, nurses, research coordinators, and research labs throughout the US, working together to improve the lives of people with Urea Cycle Disorders. | |
| Urticari | International Chronic Urticari Society (ICUS) Chronic urticaria is a type of hives, also called nettle rash, that lasts for more than six weeks. |
| Urticaria Support Group A community of patients, family members and friends dedicated to dealing with Urticaria. | |
| Hives Support Group (Daily Strength) Discussion and support board. | |
| Usher Syndrome Information Link |
Usher Syndrome Treated Currently, there is no cure for Usher syndrome. The best treatment involves early identification so that educational programs can begin as soon as possible. |
| The Usher Syndrome Foundation. Usher syndrome is an inherited condition characterized by hearing impairment and progressive vision loss. The vision loss is due to retinitis pigmentosa (RP), a degenerative condition of the retina, and usually appears during adolescence or early adulthood. | |
| I Have Usher Syndrome Information on diagnosis, treatment, symptoms, along with personal stories and experiences with Usher Syndrome. | |
| Usher Friends This list is for people with Usher Syndrome (a uncure genetic disorder that robbed both hearing and sight) who like to sit down with their favorite drink and chat about anything that come to mind. | |
| Valley Fever Information Link |
Valley Fever Survivor Support Group To help people with Valley Fever support one another, promote the relevant information that will ensure public awareness for this disease, and support funding for a cure and vaccine for Valley Fever. |
| Valley Feaver Connections delivers medical professionals and individuals the latest on Valley Fever from the original sources, keeping you better informed. Discover more information, breaking news, articles, Valley Fever symptoms and Valley Fever treatments. Valley Fever is also known as coccidioidomycosis, fungal infection, coccidiomycosis, coccidioides immitis, c immitis, desert rheumatism. | |
| Varicose Vein Information Link |
Healia Health Community for Varicose Veins. Get Varicose Veins information, share experiences about Varicose Veins, connect with peers, and get answers to your Varicose Veins questions from health professionals. |
| Varicose Veins Support Group A community of patients, family members and friends dedicated to dealing with Varicose Veins. | |
| Varicose Veins Support Group (Daily Strength) Discussion and support groups. | |
| Vascular Diseases Information Link |
Vascular Disease Foundation Focused on vascular diseases with the sole purpose of providing public education and improving awareness about vascular diseases. To reduce death and disability from vascular diseases and improve vascular health for all Americans. |
| Cochrane Peripheral Vascular Diseases Group The group aims to evaluate all surgical and medical interventions for the prevention or treatment of arterial and venous diseases. | |
| Healia Health Community for Vascular Diseases. Get Vascular Diseases information, share experiences about Vascular Diseases, connect with peers, and get answers to your Vascular Diseases questions from health professionals. | |
| Vasculitis | The Johns Hopkins Vasculitis Center “Vasculitis” is a general term for a group of diseases that involve inflammation in blood vessels. Vessels of all sizes may be affected, from the largest in the body (the aorta) to the smallest in the skin (capillaries). The size of blood vessel affected varies according to the specific type of vasculitis. |
| Vasculitis Vasculitis is inflammation of blood vessels. In individuals with vasculitis, inflammation damages the lining of affected blood vessels, causing narrowing, the formation of blood clots (thrombosis), and/or blockage. As a result, there may be restriction of oxygenated blood supply to certain tissues, potentially resulting in pain, tissue damage, and, in some cases, malfunction of certain affected organs. | |
| The Vasculitis Foundation Established to alleviate the isolation that patients and their families experience when these rare life-threatning diseases affect them, the Vasculitis Foundation helps patients and their families build a strong positive outlook. | |
| Stuart Strange Vasculitis Trust (UK) In memory of Stuart Strange who had started raising money for research into Wegener's Granulomatosis. It very quickly became apparent that patients with associated vasculitic diseases needed support, and so as information was asked for, the Trust started discovering about other diseases. | |
| I Have Vasculitis, Autoimmune Information on diagnosis, treatment, symptoms, along with personal stories and experiences with Vasculitis. | |
| Velo-cardio-facial Syndrome | Velo-cardio-facial Syndrome Educational Foundation Velo-cardio-facial syndrome has had over 180 clinical features described. Many of the anomalies associated with the syndrome are not apparent at birth, or even in early childhood, primarily because they are behavioral, or in some cases because they are "silent" anomalies, meaning that they are not symptomatic. |
| The VCFS and 22q11 Foundation (Australia) To raise awareness of VCFS; To provide information and support to families affected by the deletion and to provide a contact register enabling families of children with similar symptoms to contact each other; and Diseminate information and provide support to individuals with VCFS and their families/carers. | |
| New Zealand VCFS Information about Velo Cardio Facial Syndrome . It covers what causes VCFS, the common symptoms, shares news from meetings and conferences, links to other worldwide sites and groups (who have more extensive information) and provides support to individuals affected by VCFS and their families/carers. | |
| Vasodepressor Syncope - See Fainting | |
| VATER | TEF VATER International Support Network If you are a mother, father, friend, aunt, uncle, grandfather, grandmother or anyone searching for information on babies, specifically your baby or a baby you know, born with VATER, esophageal atresia and/or traceoesophageal fistula, this site was created for YOU! |
| VATER Connection Support Forums. To connect families and friends who have children that have been diagnosed with VATCERLS Syndrome. | |
| Vertigo Information Link |
Vertigo Support Talking to other people that share the same struggle can make you feel 100% better. Share experiences, cures and ways to deal with relentless dizziness. |
| Vertigo Support Group A community of patients, family members and friends dedicated to dealing with Vertigo, together. | |
| Vertigo Vertigo is a symptom that may be caused by diseases or conditions that affect the vestibular system. | |
| Vestibular Disorders | Vestibular Disorders Association (VEDA) Vestibular (inner ear) disorders can cause dizziness, vertigo, imbalance, hearing changes, nausea, fatigue, anxiety, difficulty concentrating, and other symptoms, with potentially devastating effects on a person's day-to-day functioning, ability to work, relationships with family and friends, and quality of life. |
| The Dizzy Lounge If you suspect a vestibular disorder is what you have please join us on the message boards. If you would like to get to know some of the members on the board a little better before joining the board take a moment and read their stories. | |
| Vestibular Disorder Support Group on FaceBook Support group for those who are suffering or who have suffered from Vestibular disorders, panic/anxiety, ear problems, or other dizzy reasons. | |
| Veteran Issues | Blinded Veterans Association To promote the welfare of blinded veterans so that, notwithstanding their disabilities, they may take their rightful place in the community and work with their fellow citizens toward the creation of a peaceful world and to preserve and strengthen a spirit of fellowship among blinded veterans so that they may give mutual aid and assistance to one another. |
| Disabled American Veterans Organization of disabled veterans who are focused on building better lives for disabled veterans and their families. Provides free assistance to veterans in obtaining benefits and services earned through their military service. It is fully funded through its membership dues and public contributions. | |
| Deployment Health Clinical Center Arose from the studies and treatment for Gulf War illnesses. DHCC is chartered by the DoD Health Affairs as the clinical arm of the overall effort to serve soldiers during post-deployment. This site provides content relevant to health-related issues that soldiers encounter when returning from deployment. | |
| CHAMPVA - Department of Veterans Affairs - Health Administration Center A health care benefits program for the spouse or widow(er) and for the children of a veteran. | |
| Military Homefront Central source for Service members and families to obtain information about all Quality of Life programs and services. It helps veterans deal with issues and needs related to medical care and rehabilitation; education, training and job placement; personal mobility and function; home, transportation and workplace accommodations; personal, couple and family relationships; financial resources; and other aspects of their lives. | |
| Military Officers Association of America Contains resources ranging from member services to assistance with personal military-related matters, as well as a variety of related links. | |
| U.S. Veterans Resource Website of the U.S. Veterans Resource which contains a wide variety of information and links of interest to veterans and their families, including a listing of state and county Veterans Service Offices. | |
| VA Rehabilitation Research & Development Program Website of the Department of Veterans Affairs Rehabilitation Research & Development Program. | |
| Wounded Warriors Helps to provide items of comfort for wounded troops at military hospitals worldwide. | |
| TRICARE A regionally managed health care program for active duty and retired members of the uniformed services, their families, and survivors. | |
| Military Order of the Purple Heart A community of combat wounded veterans. We’re proud to have served our country and serve yet today. Our mission is to promote patriotism, service to all veterans, and service to our communities through our programs and support from our dedicated members. | |
| Society of Military Widows SMW was founded in 1968 to serve the interests of women whose husbands died while on active military duty, of a service-connected illness, or during disability or regular retirement from the armed forces. | |
| Veteran Quality of Life Access Network Inc Enables veterans to get first hand information on how to apply for basic needs, i.e. welfare, food stamps, pension, social security, etc. We will also provide assistance for locating housing, jobs, schools and much more. We deal with many issues such as V. A. claims, education, community involvement. jobs, re-habilitation and much more. | |
| Paralyzed Veterans Of America Paralyzed Veterans of America works to maximize the quality of life for its members and all people with SCI/D as a leading advocate for health care, SCI/D research and education, veterans’ benefits and rights, accessibility and the removal of architectural barriers, sports programs, and disability rights. | |
| Veteran - Rehabilitation | Atlanta VA Rehab R&D Center Website of the Atlanta VA Rehab R&D Center with information for aging Veterans with disabilities and those acquiring disabilities as they age, including a variety of interesting links. |
| Veteran - Housing | Army Fisher Houses Located within walking distance of the hospital, Army Fisher Houses provide a temporary home to families undergoing medical care at nine locations across the United States and Germany. "providing comfort, caring and compassion ...beyond the call of duty" |
| Vision & Eye Diseases Also see Macular Degeneration Information Links: Eye Allergy Eye Bruise (Black Eye) Eye Car Eye Floaters Eye Problems and Diabetes Eye Redness (Pink Eye) Eye Strain |
American Foundation for the Blind’s mission is to enable people who are blind or visually impaired to achieve equality of access and opportunity that will ensure freedom of choice in their lives. |
| The National Federation of the Blind is the largest and most influential membership organization of blind people in the United States. The NFB improves blind people’s lives through advocacy, education, research, technology, and programs encouraging independence and self-confidence. It is the leading force in the blindness field today and the voice of the nation's blind. | |
| Foundation Fighting Blindness To drive the research that will provide preventions, treatments and cures for people affected by retinitis pigmentosa, macular degeneration, Usher Syndrome, and the entire spectrum of retinal degenerative diseases. | |
| American Nystagmus Network Nystagmus is an involuntary eye movement which usually results in some degree of visual loss. The degree and direction of eye movement, amount of visual loss and resulting impairment varies greatly from person to person. | |
| International Blind Sports Association (IBSA) Our goal is the full integration of the blind and visually impaired through sport at all levels. | |
| SeeAbility Our purpose is to enable individuals who are blind or partially sighted with additional disabilities to achieve their full potential. SeeAbility enables people to realize opportunities, make choices and enhance their quality of life. | |
| Lighthouse International Lighthouse International is a leading organization that helps people of all ages who are at risk for, or are experiencing, vision loss. We provide services, research and education, and advocate to help people with low vision and blindness live safe, independent and productive lives. | |
| Unite For Sight To improve eye health and eliminate preventable blindness. Local and visiting volunteers work with partner eye clinics to provide eye care in communities without previous access, with the goal of creating eye disease-free communities. Additionally, vision screening and education programs are implemented worldwide by volunteers working in ninety chapters established at universities in North America, Africa, Asia, and Latin America. | |
| American Council of the Blind is the nation's leading membership organization of blind and visually impaired people. | |
| RP International Millions of people find they are losing eyesight to "incurable," "hopeless," and "rare" eye diseases. RP seeks the realities and possibilities within reach of medical science to change the terrible hopelessness that has been a way of life in the diagnosis and treatment of previously "incurable" eye diseases. | |
| Blinded Veterans Association Our mission is to promote the welfare of blinded veterans so that, notwithstanding their disabilities, they may take their rightful place in the community and work with their fellow citizens toward the creation of a peaceful world and to preserve and strengthen a spirit of fellowship among blinded veterans so that they may give mutual aid and assistance to one another. | |
| American Health Assistance Foundation AHAF is one of America's leading supporters of scientific and medical investigations into Alzheimer's Disease, Glaucoma, Macular Degeneration, Heart Disease, and Stroke. | |
| National Association for Parents of the Visually Impaired Enables parents to find information and resources for their children who are blind or visually impaired, including those with additional disabilities. NAPVI provides leadership, support, and training to assist parents in helping children reach their potential. | |
| Vision of Children Foundation More than 20 babies are born each day into certain blindness. Some will never know their mother's smile, while others grow up with the knowledge that they will lose sight before the end of their teens. | |
| Vision World Wide We provide invaluable information, education, guidance, support and consumer protection, not only to the blind and visually impaired, but to the many professionals (medical, social and technical) who serve them. | |
| Vitiligo Information Link |
Vitiligo Support The largest vitiligo organization in the world. Vitiligo (also called "leukoderma") is a common skin disease in which there is loss of pigment from areas of the skin resulting in irregular white spots or patches. The skin has normal texture. Vitiligo may appear at any age. Although it is a progressive condition, many people experience years or decades without developing new spots. |
| American Vitiligo Research Foundation This website was created to help vitiligo patients and their families. The AVRF strives to raise awareness, educate, and help patients live with a greater understanding and acceptance of vitiligo. | |
| Von Hippel-Lindau Syndrome | VHL Family Alliance Dedicated to improving diagnosis, treatment, and quality of life for individuals and families. Von Hippel-Lindau syndrome is an inherited multi-system disorder characterized by abnormal growth of blood vessels. While blood vessels normally grow like trees, in people with VHL little knots of blood capillaries sometimes occur. |
| von Hippel-Lindau Disease (VHL) Support Group (Daily Strength) Discussion and support boards. | |
| von Willebrand's Disease | Von Willebrand Disease Support Group "A community of patients, family members and friends dedicated to dealing with von Willebrand Disease, together. " |
| About von Willebrand Disease. (Commectial) "von Willebrand disease (VWD) is a bleeding disorder that limits the blood’s ability to clot. If blood doesn't clot properly, bleeding can be heavier than normal, or can take longer to stop." | |
| Von Willebrand's Disease Online Support GroupPatient-to-patient support for people living with Von Willebrand's Disease. | |
Support Groups "W"
"W"
| Waldenstrom's Macroglobulinemia | International Waldenstrom's Macroglobulinemia Foundation Waldenstrom's macroglobulinemia is a rare, chronic cancer that is classified as a plasma cell neoplasm. It affects plasma cells, which develop from white blood cells called B-lymphocytes, or B cells. |
| Waldenstrom Macroglobulinemia Support A community of patients, family members and friends dedicated to dealing with Waldenstrom Macroglobulinemia. | |
| WAGR Syndrome | International WAGR Syndrome Association. "Physicians are generally not familiar with this condition, or with the features and complications of it. People with WAGR syndrome benefit greatly when family caregivers, medical professionals, teachers and therapists learn as much as possible about the disorder, and become active partners in their care. “WAGR” is an acronym." |
| Weight Issues | Health Discovery. Your place for 24-hour inspiration and motivation! Make new friends and meet old ones! Learn and motivate each other every step of the way to making your weight loss a REALITY!! |
| Buddy Slim. You've just found the most supportive and inspirational group of weight loss and diet buddies to help you lose weight. | |
| Extra Pounds. Weight loss community that provides you with weight loss tools to help you stick to your diet plans. It is where Members share their experiences and support one another on their journeys to becoming weight loss success stories. | |
| Weight Loss Buddy. "Have you tried every diet and weight loss program available only to achieve failure?" Premium (pay) site also available. | |
| The Weight Support Group. Since 2002, the proud members of the weight support group have been serving one another through support and motivation. Membership is open to all and free of charge. | |
| The Low Carb Friends. The best and friendliest source for low carbohydrate support, atkins low carb diet resources and motivation for lowcarb diets! | |
| Obesity Forum. Obesity is affected more and more people both directly and indirectly. Our Obesity Forum/Weight Loss Forum/Diet Forum offers a place to talk about the latest obesity related medical research and studies, weight loss, childhood obesity, nutrition (every healthy recipe imaginable including the atkins diet), exercise, weight loss, health, support issues, and more. A Diet Forum is an ideal place to get support for your journey. As much as anything, the diet process is one where support is needed. | |
| Obesity Help, ObesityHelp offers resources for patients, and those seeking weight loss solutions for the morbidly obese. We provide a comprehensive program of support and education as well as assistance in locating whatever resources it takes to overcome this life threatening condition. We have an active community that communicates online through our web site at www.obesityhelp.com and through a regular program of conferences and workshops conducted around the country. | |
| Weight Loss Surgery If you're interested in weight loss surgery, join, and (after you activate your account by clicking the link that will be emailed to you), log in and you'll be able to see what the fuss is about. | |
| The Anorexia On-Line Support Group. Established to create the opportunity for persons with anorexia to offer support and understanding to each other. | |
| Bulimia, Overeating & Anorexia. We hope this forum provides an optimistic outlook on recovery. I believe these clubs are best utilized by writing how we feel as a way to help us sort out our feelings. I don't know that anything anyone says here will suddenly unlock the door to wellness, but it can momentarily make us view things from a different perspective, and affirm to us that the obsessive thoughts we have are not ours alone. | |
| Compulsive Eaters Anonymous. A fellowship of individuals who, through shared experience, strength, and hope are recovering from compulsive eating and food addiction. We welcome everyone who wants to stop eating compulsively. | |
| Eating Addictions Anonymous is a 12 step recovery program for men and women recovering from all forms of eating and body image addiction. | |
| West Syndrome | West Syndrome West’s syndrome is a disorder of the brain characterised by infantile spasms (a form of epilepsy occurring in infants usually under one year of age), a specific EEG pattern,developmental regression and, often, learning disability. |
| West Syndrome Support Group (UK) The group aims to provide support and information about this debilitating condition and its consequences for the child. Currently there is very little information available on the subject so we welcome any contributions to our knowledge. | |
| West Syndrome Support Group on FaceBook | |
| Williams Syndrome | Williams Syndrome Association The WSA is the only group in the US devoted exclusively to improving the lives of individuals with Williams syndrome and their families. Williams syndrome is a rare genetic condition (estimated to occur in 1/7,500 births) which causes medical and developmental problems. The majority of individuals with this have some type of heart or blood vessel problem. Young children with Williams syndrome often have low muscle tone and joint laxity. As the children get older, joint stiffness may develop. |
| The Williams Syndrome Comprehensive Web Site Seeks to create or enhance opportunities in education, housing, employment and recreation for people who have Williams Syndrome and other related or similar conditions. The WSF identifies, initiates, funds and provides strategic guidance for major, long-range development projects, either by itself, or by cooperating with other organizations. | |
| Williams Syndrome Support Group (Daily Strength) Discussion and support boards. | |
| Williams Syndrome Support Group A community of patients, family members and friends dedicated to dealing with Williams Syndrome. | |
| Wilson's Disease | Wilson's Disease Association International It is important to diagnose Wilson's Disease as early as possible, since severe liver damage can occur before there are any signs of the disease. Individuals with Wilson's Disease may falsely appear to be in excellent health. If not treated, Wilson's disease can cause severe brain damage, liver failure, and death. |
| The Wilson's Disease Support Group UK The organisation aims to provide informative articles about the nature of the disease, articles written by patients, families and friends about their experiences of the disease, recent progress in treatment and much more, by way of a biannual newsletter. | |
| Wilson's Disease Support Group A community of patients, family members and friends dedicated to dealing with Wilson's Disease. | |
| Wilson's Disease Support Group (Daily Strength) Discussion and support boards. | |
| Children’s Liver Disease Foundation Our vision is that childhood liver disease will be understood and fought effectively thereby ensuring that young people with liver disease and families will be able to take control of their lives and achieve their full potential. | |
| Worldwide Education and Awareness for Movement Disorders WE MOVE is the Internet's most comprehensive resource for movement disorder information and the hub of movement disorder activities on the web. | |
Support Groups X, Y, Z
"X" - "Y" - "Z"
| Yaws Information Link |
No support groups found. |
| Yeast Infection Information Link |
Yeast Infection - Prevention & Curing Protocol The protocol incorporates lifestyle change, and implements healthy diet, body cleansing, exercises and different traditional and natural therapies. |
| I Have Chronic Yeast Infection Read true personal stories, chat & get advice, support and help from people who all say 'I Have Chronic Yeast Infection' | |
| Yellow Fever Information Link |
What is yellow fever? Yellow fever is a potentially fatal viral infection that's transmitted by mosquitoes in tropical regions. It has both an urban cycle and a jungle cycle that relies on monkeys as carriers. |
| I Have Yellow Fever Iinformation on diagnosis, treatment, symptoms, along with personal stories and experiences with Yellow Fever. | |
| Xeroderma Pigmentosum | Xeroderma Pigmentosum Family Support Group A rare inherited disease affecting both males and females that causes a person to be extremely sensitive to the damaging effects of ultraviolet radiation. Undiagnosed and untreated, XP can lead to the early onset of skin cancer and blindness. |
| Xeroderma Pigmentosum Society, Inc. The XP Society offers information, support, advocacy, and protection to the XP patient and the family and caregivers while promoting research for a cure. | |
| X-Linked Hypophosphatemia
Also see Rickets |
The XLH Network Worldwide patient support organization for people living and dealing with X-Linked Hypophosphatemia also known as Vitamin D-Resistant Rickets. We are dedicated to understanding XLH in terms of support, research and developing new treatments. XLH primarily affects bone and tooth development. |
| XXYY Syndrome | XXYY Project Males with xxyy have two x and two y sex chromosomes, instead of one each. XXYY is sometimes considered a variant of Klinefelter Syndrome and variations in girls are called Turner Syndrome. |
| What is XXYY Syndrome? There are several types of these variations with different resulting set of characteristics. | |
| Zellweger Syndrome | Zellweger Baby Support Network Our mission is to promote, advance, and improve awareness of Zellweger syndrome and other peroxisomal disorders, to assist, support, and aid, financially or otherwise, individuals and families affected by Zellweger syndrome. |
| Zellweger Syndrome Support Group A community of patients, family members and friends dedicated to dealing with Zellweger Syndrome. | |
| Daily Strength DailyStrength.org is the most comprehensive health network of people sharing their advice, treatment experiences, and support. | |
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